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Immunoglobulin
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Car-T TV special. National Geographic break through series.
1 hour on Car-T. Main guy discussed had CLL. It is totally gone now!!! Great show. On TV currently or can be watched online I think, The Show is called Breakthough on the National Geographic Channel http://channel.nationalgeographic.com/breakthrough-series/videos/using-cells-to-battle-cancer/ Does
1 hour on Car-T. Main guy discussed had CLL. It is totally gone now!!! Great show. On TV currently or can be watched online I think, The Show is called Breakthough on the National Geographic Channel http://channel.nationalgeographic.com/breakthrough-series/videos/using-cells-to-battle-cancer/ Does
Hoffy
in
CLL Support
7 years ago
Ibrutinib and Medicare
I'm from NJ and have relapsed SLL - unmutated - as far as I know I don't have any the mutations that make the disease really high risk. My doctor wants to put me in Ibrutinib because my last PET Scan should the lymph nodes neck, axilla, abdomen and pelvis are getting bulky and some new nodes are appearing
I'm from NJ and have relapsed SLL - unmutated - as far as I know I don't have any the mutations that make the disease really high risk. My doctor wants to put me in Ibrutinib because my last PET Scan should the lymph nodes neck, axilla, abdomen and pelvis are getting bulky and some new nodes are appearing
ReneeSusan
in
CLL America Support
7 years ago
Result bone marrow biopsy
My results for my bone marrow biopsy are fine a so a big bonus : ))) but as we know always a but it is ITP unkown my hemotologist told me my immune system is very weak I am no meds just getting monitored when I had ivig drip platelets went to 220 after 4 weeks now dropped to 120 not too concerned
My results for my bone marrow biopsy are fine a so a big bonus : ))) but as we know always a but it is ITP unkown my hemotologist told me my immune system is very weak I am no meds just getting monitored when I had ivig drip platelets went to 220 after 4 weeks now dropped to 120 not too concerned
Topography52_-
in
ITP Support Association
7 years ago
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Newby - Desparately Seeking Advice or any Level of Hope please....
Even
Immunoglobulin
a elevated. My gp given his advice won't refer me to specialist as too much money! Even oral specialist who was lovely said not behcets it's rare. Without genital ulcer you don't have it. Cfs/me push me to get diagnosis as my symptoms suggest inflammation.
Even
Immunoglobulin
a elevated. My gp given his advice won't refer me to specialist as too much money! Even oral specialist who was lovely said not behcets it's rare. Without genital ulcer you don't have it. Cfs/me push me to get diagnosis as my symptoms suggest inflammation.
spiceyandsugar
in
Behçet's UK
7 years ago
Newby - Desparately Seeking Advice or any Level of Hope please....
Even
Immunoglobulin
a elevated. My gp given his advice won't refer me to specialist as too much money! Even oral specialist who was lovely said not behcets it's rare. Without genital ulcer you don't have it. Cfs/me push me to get diagnosis as my symptoms suggest inflammation.
Even
Immunoglobulin
a elevated. My gp given his advice won't refer me to specialist as too much money! Even oral specialist who was lovely said not behcets it's rare. Without genital ulcer you don't have it. Cfs/me push me to get diagnosis as my symptoms suggest inflammation.
spiceyandsugar
in
Pregnancy and Parenting Support
7 years ago
Question: Has anyone have a bloating feeling on Venetoclax ?
I am on both Imbruvica and full Venetoclax now. I on my 5th cycle of the clinical trial. Over all I have been pretty good. My numbers have rapidly gone to normal. WBC 4, ALC 1.7 , PLT a little low at 110. Others are good. IGA, IGG, IGM are improving as well. I have been on full Venetoclax for
I am on both Imbruvica and full Venetoclax now. I on my 5th cycle of the clinical trial. Over all I have been pretty good. My numbers have rapidly gone to normal. WBC 4, ALC 1.7 , PLT a little low at 110. Others are good. IGA, IGG, IGM are improving as well. I have been on full Venetoclax for
Hoffy
in
CLL Support
7 years ago
13 yr old soccer girl w/ITP
My girl was diagnosed last month after her platelet counts were discovered at under 10. Had IVIG. Yesterday had more blood test and they are even lower. She's began bruising again and Tonight she has the red dots looks like a rash all over her torso and is itching. Benadryl? Or do I call the doc?
My girl was diagnosed last month after her platelet counts were discovered at under 10. Had IVIG. Yesterday had more blood test and they are even lower. She's began bruising again and Tonight she has the red dots looks like a rash all over her torso and is itching. Benadryl? Or do I call the doc?
Stayinyurlane
in
ITP Support Association
7 years ago
High WBC and it does matter to my doctor
My hemoglobin and platelets are in the low-middle of the normal range as are my
immunoglobulin
levels. My nodes are almost all "tiny" and I'm "Stage I". And I have about zero CLL symptoms.
My hemoglobin and platelets are in the low-middle of the normal range as are my
immunoglobulin
levels. My nodes are almost all "tiny" and I'm "Stage I". And I have about zero CLL symptoms.
gemit2000
in
CLL Support
7 years ago
Does Flu and Colds makes the platelet count drops to low level?
My child was confined 2 weeks ago and he received IvIg for 1 day and Solumedrol 870mg for 3 days and no medication at home.....after a week his platelet went up to 359k and after a week again his platelet went low to 29.6k without any petechiae, hematoma and bleeding. ( my son is a bleeder his bleeding
My child was confined 2 weeks ago and he received IvIg for 1 day and Solumedrol 870mg for 3 days and no medication at home.....after a week his platelet went up to 359k and after a week again his platelet went low to 29.6k without any petechiae, hematoma and bleeding. ( my son is a bleeder his bleeding
DavieSimon
in
ITP Support Association
7 years ago
Is RA without joint pain possible?
I was wondering if RA without joint pain is possible. Symptoms: fatigue, memory and concentration issues, constipation, flatulence, numbness and tingling in hands and feet. Btw could RA cause these gut symptoms? Colonscopy and endoscopy was normal. No celiac disease or gastrointestinal diseases (other
I was wondering if RA without joint pain is possible. Symptoms: fatigue, memory and concentration issues, constipation, flatulence, numbness and tingling in hands and feet. Btw could RA cause these gut symptoms? Colonscopy and endoscopy was normal. No celiac disease or gastrointestinal diseases (other
WK1010
in
Cure Arthritis Community
7 years ago
Ivig ..... Bone marrow biopsy
Well I had my ivig as luck would have it I had a reaction ( HCA mentioned it was rare ) and not a good one on Thursday 2 weeks after my ivig came down with a rash over my face which is visible and all under my skin no doubt the rash will appear visable soon over my body I have been to local my health
Well I had my ivig as luck would have it I had a reaction ( HCA mentioned it was rare ) and not a good one on Thursday 2 weeks after my ivig came down with a rash over my face which is visible and all under my skin no doubt the rash will appear visable soon over my body I have been to local my health
Topography52_-
in
ITP Support Association
7 years ago
Any advise or information please
Hi I'm new to this group. A lovely person from systemic sclerosis told me about it I have overlap connective tissue disease. I have really bad raynaulds with it. I have also been told I have IGM anticardiolipin antibody positive. I'm not sure what that means. My knees turn black and my legs goes
Hi I'm new to this group. A lovely person from systemic sclerosis told me about it I have overlap connective tissue disease. I have really bad raynaulds with it. I have also been told I have IGM anticardiolipin antibody positive. I'm not sure what that means. My knees turn black and my legs goes
Sami13
in
Hughes Syndrome APS Forum
7 years ago
Hashimotos IgA, IgM and IgG all come back normal
My antibodies all come back normal, cortisol normal, tsh T3, T4 all in range, on AIP diet all inflammation gone, all ladies hormones normal. Why can't I Lose weight?! Any ideas?!
My antibodies all come back normal, cortisol normal, tsh T3, T4 all in range, on AIP diet all inflammation gone, all ladies hormones normal. Why can't I Lose weight?! Any ideas?!
Joanneconnor
in
Thyroid UK
7 years ago
Efficacy of lenalidomide in relapsed/refractory chronic lymphocytic leukemia patient: a systematic review and meta-analysis
Low
immunoglobulin
levels are one reason why our guys are more prone to infections. Lenalidomide therapy seems to be unique in reversing this trend in
immunoglobulin
levels.
Low
immunoglobulin
levels are one reason why our guys are more prone to infections. Lenalidomide therapy seems to be unique in reversing this trend in
immunoglobulin
levels.
AussieNeil
Administrator
in
CLL Support
7 years ago
Why does the argc clinic have such a high success rate for ivf
Is it because they offer ivig? Is there anything else that's additional that they offer?
Is it because they offer ivig? Is there anything else that's additional that they offer?
Bumbo
in
Fertility Network UK
7 years ago
But You Don't Look Sick
If any of you know about this, sorry for the repeat, but I Just found the term "Spoonies" in one of my friend's Facebook posts. The term comes from having an illness that cannot be seen, that causes fatigue and affects how you live, what you can do each day ,etc. If interested, this is a good read.
If any of you know about this, sorry for the repeat, but I Just found the term "Spoonies" in one of my friend's Facebook posts. The term comes from having an illness that cannot be seen, that causes fatigue and affects how you live, what you can do each day ,etc. If interested, this is a good read.
BeckyLUSA
in
CLL Support
7 years ago
Body composition & Docetaxel (Taxotere)
{"Neutropenia ... is an abnormally low concentration of neutrophils (a type of white blood cell) in the blood.[1] Neutrophils make up the majority of circulating white blood cells and serve as the primary defense against infections by destroying bacteria, bacterial fragments and
immunoglobulin
-bound
{"Neutropenia ... is an abnormally low concentration of neutrophils (a type of white blood cell) in the blood.[1] Neutrophils make up the majority of circulating white blood cells and serve as the primary defense against infections by destroying bacteria, bacterial fragments and
immunoglobulin
-bound
pjoshea13
in
Advanced Prostate Cancer
7 years ago
Low IgM
Hi all My battle continues. Rheumatology have examined me and written a letter to my Dr saying I have some signs of fibromyalgia but not enough to seek group treatment as it doesn't stop me being active. However blood tests have shown isolated low IgM at 0.3 (NR 0.5 - 1.9). They've asked for serum electrophoresis
Hi all My battle continues. Rheumatology have examined me and written a letter to my Dr saying I have some signs of fibromyalgia but not enough to seek group treatment as it doesn't stop me being active. However blood tests have shown isolated low IgM at 0.3 (NR 0.5 - 1.9). They've asked for serum electrophoresis
steviep43
in
Fibromyalgia Action UK
7 years ago
ITP and joint pain
Ive had ITP since 2004, initially treated with steroids which has left me with insomnia, apart from some iVig before Christmas, as my levels normally stay above 30000 (30000 - 80000) we now just monitor rather than have any treatments. I do feel tired all the time, and have nasty monthlies along with
Ive had ITP since 2004, initially treated with steroids which has left me with insomnia, apart from some iVig before Christmas, as my levels normally stay above 30000 (30000 - 80000) we now just monitor rather than have any treatments. I do feel tired all the time, and have nasty monthlies along with
catowen
in
ITP Support Association
7 years ago
Skin rash
I've had CLL for almost 9 years. WBC count had been mostly stable around 20K. After my 5th IVIG infusion (Feb 1, 2017), I developed a skin rash that started on my torso and has gone all over my body. It's been 2 months and hardly abated! Dermatologists put me on Prednisone for 3 weeks, and I've been
I've had CLL for almost 9 years. WBC count had been mostly stable around 20K. After my 5th IVIG infusion (Feb 1, 2017), I developed a skin rash that started on my torso and has gone all over my body. It's been 2 months and hardly abated! Dermatologists put me on Prednisone for 3 weeks, and I've been
CLLBill
in
CLL Support
7 years ago
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