I think perhaps I should print out Maggie_b's post from yesterday, "High WBC but it doesn't matter" to give to my hemo/oncologist (along with other similar posts, articles, & webinar material about high WBC). Then again given my experience for the past 5+ years with him when it comes to other's opinions... "it doesn't matter".
I'm W&W for 5.5 yrs and WBC has gone from about 10 to 60 (about 6 to 52 for ALC) in that time and has gone up fairly steadily (no spikes). My hemoglobin and platelets are in the low-middle of the normal range as are my immunoglobulin levels. My nodes are almost all "tiny" and I'm "Stage I". And I have about zero CLL symptoms. Yet now for the 2nd time - once in Nov 2015 + now in March '17 he's said the same thing discussing my labs, "Seems like this is the year we'll need to start treatment".
In 2015 he said it was because my WBC was getting to very high levels and my neutrophil count (???) had dipped into the below normal level (wound up a one time thing not that it even mattered). This time he said, "when WBC gets to about 60, it is ready to jump and will likely be 80 or above very soon, perhaps your next appointment." Both times I started to counter with the standards for starting Tx as per the IWCLL, but he always has a way of either negating or ignoring what I offer.
When I first was assigned to him, I talked to both him and 2 administrators about switching doctors as 1) my cousin gave me a reference to one of his colleagues, 2) this other doctor's bio emphasized leukemia whereas my doctor's only mentioned lymphomas, and 3) his tendency not to directly answer my questions or engage in discussion but instead doing this pooh-poohing thing & telling me I'm thinking too much & adding to my anxiety (while to me, not knowing things & leaving it totally up to him adds to my anxiety). When I tried to switch I was met with a real battle. They REALLY didn't want me to. I was told they all meet once a week anyway so my case is everyone's case. I finally gave up trying & ever since just 'yes' my doctor's opinions and guidance and then move on to this site among others to learn things.
So do I push to try to switch again? Go elsewhere (went to a CLL expert at Moffitt about 75 minutes from me a year ago)? Continue to 'yes' him until he pushes for Tx and then get a 2nd opinion? What I didn't even mention is how he ignores my attempts to discuss various Tx methods. I really don't want chemo and 3 years ago and many times since he's told me that "given my 'type', when it comes time for treatment I WILL get FCR" (at which time I usually bring up Dr. Furman, at which time he usually pooh-poohs). I should add that the CLL expert @ Moffitt also pooh-poohed the idea of targeted therapy over chemo).
Gene Mitchell, 62, no co-morbidities, mutated, 13q deleted, Dx 201l.