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Ibrutinib
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Ciprofloxacin and ibrutinib
Hi going well on
ibrutinib
nodes shrinking fast but on my 2 week check up yesterday' my consultant gave me ciprofloxacin as I have a stubborn chest infection he said it was fine to take with
ibrutinib
etc.
Hi going well on
ibrutinib
nodes shrinking fast but on my 2 week check up yesterday' my consultant gave me ciprofloxacin as I have a stubborn chest infection he said it was fine to take with
ibrutinib
etc.
cartwheels
in
CLL Support
7 years ago
Celebrating Five Years on PCI-32765, better know these days as Ibrutinib
I started to think about my journey with CLL as I just passed the 5th anniversary of the day I took my first dose of PCI-32765, now known as
ibrutinib
or Imbruvica. You can read about my personal story here: http://cllsociety.org/2017/05/personal-update-part-1/.
I started to think about my journey with CLL as I just passed the 5th anniversary of the day I took my first dose of PCI-32765, now known as
ibrutinib
or Imbruvica. You can read about my personal story here: http://cllsociety.org/2017/05/personal-update-part-1/.
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
Skin issues with CLL and Ibrutinib
I have been on
Ibrutinib
for over a year. Dosage was reduced because of some side effects, I get petechiae on my arm and under one eye. Has anyone found a remedy for skin issues related to
ibrutinib
?
I have been on
Ibrutinib
for over a year. Dosage was reduced because of some side effects, I get petechiae on my arm and under one eye. Has anyone found a remedy for skin issues related to
ibrutinib
?
doris33
in
CLL Support
7 years ago
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ibrutinib and swollen hand/forearm
Is anyone aware of this being a side effect of
ibrutinib
- if so- what is the recommended course of action?
Is anyone aware of this being a side effect of
ibrutinib
- if so- what is the recommended course of action?
jt882
in
CLL Support
7 years ago
Treatment choices and work or not to work
The two options they have given me are FCR and a trial which is Rituximub with
Ibrutinib
. I would be grateful for any thoughts or information on which one would be better for me. The other thing that is worrying me is whether I am going to be able to work.
The two options they have given me are FCR and a trial which is Rituximub with
Ibrutinib
. I would be grateful for any thoughts or information on which one would be better for me. The other thing that is worrying me is whether I am going to be able to work.
Eebie1234
in
CLL Support
7 years ago
Return of sll
Hi my sll has recently woken up again and I have swollen nodes, fatigue, sweats etc, my consultant who is very good is going to start me on imbruvica (
ibrutinib
) on Monday. What are other people's experiences with this drug. Are there many side effects . Thanks
Hi my sll has recently woken up again and I have swollen nodes, fatigue, sweats etc, my consultant who is very good is going to start me on imbruvica (
ibrutinib
) on Monday. What are other people's experiences with this drug. Are there many side effects . Thanks
Tigger53
in
CLL Support
7 years ago
Reaching MRD negative on ibrutinib
Hi all I wondered whether anyone here has reached MRD negative on
ibrutinib
and stopped treatment. My partner is expecting to start treatment soon, probably through the Flair Trial in the UK. On this you now stop getting
ibrutinib
( if you get in in the first place) when you become MRD negative.
Hi all I wondered whether anyone here has reached MRD negative on
ibrutinib
and stopped treatment. My partner is expecting to start treatment soon, probably through the Flair Trial in the UK. On this you now stop getting
ibrutinib
( if you get in in the first place) when you become MRD negative.
Hm15
in
CLL Support
7 years ago
Ibrutinib week 1 - gout?
Has anyone else had similar symptoms of swelling joints or bone ache while on
Ibrutinib
, and does it wear off?
Has anyone else had similar symptoms of swelling joints or bone ache while on
Ibrutinib
, and does it wear off?
Ruhi9
in
CLL Support
7 years ago
New CCL diagnosis
Started on
Ibrutinib
April 7. Started on Rifixam infusion yesterday. So far the meds are well tolerated.
Started on
Ibrutinib
April 7. Started on Rifixam infusion yesterday. So far the meds are well tolerated.
WisconsinRalph
in
CLL Support
7 years ago
TTI 621 trial
Refractory, 3rd time after 10 mos
ibrutinib
. Now enrolled in clinical trial w Trillium's TTI 621, expansion phase, no rituxan. My lymph nodes after week three are growing, not shrinking. Any experience w this drug? Best to all. Thank you
Refractory, 3rd time after 10 mos
ibrutinib
. Now enrolled in clinical trial w Trillium's TTI 621, expansion phase, no rituxan. My lymph nodes after week three are growing, not shrinking. Any experience w this drug? Best to all. Thank you
MelindaBates
in
CLL Support
7 years ago
Bad constipation while having ibrutinib. Could someone please that experienced the same tell how it got resolved?
Thanks in antecipation for your help!!!!
Thanks in antecipation for your help!!!!
J-123
in
CLL Support
7 years ago
Ibrutinib and severe foot cramps
Hi started treatment on Wednesday and after day 3 woke with very painfull right foot could not even walk to the bathroom and bit better this morning but still painfull have read this is probably muscle cramps wanted to know could I take a magnesium citrate supplement to help whilst on ibrutinin and
Hi started treatment on Wednesday and after day 3 woke with very painfull right foot could not even walk to the bathroom and bit better this morning but still painfull have read this is probably muscle cramps wanted to know could I take a magnesium citrate supplement to help whilst on ibrutinin and
cartwheels
in
CLL Support
7 years ago
Ibrutinib Resistance
Hi, I've posted a summary of a new article from the International Journal Cancer Therapy and Oncology about
ibrutinib
resistance in CLL in the Beyond the Basics section of our website. You can access it here:http://cllsociety.org/2017/04/beyond-
ibrutinib
-resistance-cll/.
Hi, I've posted a summary of a new article from the International Journal Cancer Therapy and Oncology about
ibrutinib
resistance in CLL in the Beyond the Basics section of our website. You can access it here:http://cllsociety.org/2017/04/beyond-
ibrutinib
-resistance-cll/.
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
Ibrutinib stopped - What treatment next ?
After 21 months on
Ibrutinib
which quite quickly got my blood results back in normal range, my kidney function started to deteriorate and my consultant stopped the
Ibrutinib
. My bloods continued to be in normal range for 8 or 9 months without any treatment and I have felt well.
After 21 months on
Ibrutinib
which quite quickly got my blood results back in normal range, my kidney function started to deteriorate and my consultant stopped the
Ibrutinib
. My bloods continued to be in normal range for 8 or 9 months without any treatment and I have felt well.
Haileybury
in
CLL Support
7 years ago
CAR-T Clinical Trial
In 3 years she progressed after R-CHOP (6 cycles), bendamustine/rituximab (6 cycles), and
Ibrutinib
(12 months). Then she took Idelalisib/rituximab as her fourth treatment. It worked great for 14 months then a PET scan showed she progressed again.
In 3 years she progressed after R-CHOP (6 cycles), bendamustine/rituximab (6 cycles), and
Ibrutinib
(12 months). Then she took Idelalisib/rituximab as her fourth treatment. It worked great for 14 months then a PET scan showed she progressed again.
wmay13241
in
Understanding Clinical Trials
7 years ago
Venetoclax - Day 25 - 200mg
Reflecting on things, it seems that the period between
ibrutinib
and starting Venetoclax allowed the CLL to ramp up quickly to a very challenging level.
Reflecting on things, it seems that the period between
ibrutinib
and starting Venetoclax allowed the CLL to ramp up quickly to a very challenging level.
Natali
in
CLL Support
7 years ago
Effect of Alcohol with Ibrutinib
Now on
Ibrutinib
for 7 weeks, can I take ; also what is likely effect of alcohol on this medicine-- [i]Title correction - Admin[/i]
Now on
Ibrutinib
for 7 weeks, can I take ; also what is likely effect of alcohol on this medicine-- [i]Title correction - Admin[/i]
Anilbhard
in
CLL Support
7 years ago
ACP196 and weight gain?
Has anyone experienced weight gain while taking this or
Ibrutinib
? I've increased exercise, deceased calories, worked with a nutrionist and the scale won't budge! I've always had weight issues, but with due diligence I was always able to manage it. Thyroid test ok.
Has anyone experienced weight gain while taking this or
Ibrutinib
? I've increased exercise, deceased calories, worked with a nutrionist and the scale won't budge! I've always had weight issues, but with due diligence I was always able to manage it. Thyroid test ok.
GratefulOne
in
CLL Support
7 years ago
FCR, IBRUTINIB, VENETOCLAX what next...Stem Cell or CAR-T
We started failing on
ibrutinib
in Nov. 2016 and by Feb. 2017 the progression was like watching Usain Bolt running the 100m in Rio - moving at its own pace and leaving everything and everyone behind. So what next??
We started failing on
ibrutinib
in Nov. 2016 and by Feb. 2017 the progression was like watching Usain Bolt running the 100m in Rio - moving at its own pace and leaving everything and everyone behind. So what next??
NMMP
in
CLL Support
7 years ago
Commencing Venetoclax
Hi all, My beautiful mum has started a trial on Venetoclax, after disease progression at 29 months on
ibrutinib
. She had a week between medication and the CLL was creeping up in the blood work, but also in a lymph gland, particularly one noteable on in the groin. Night sweats started.
Hi all, My beautiful mum has started a trial on Venetoclax, after disease progression at 29 months on
ibrutinib
. She had a week between medication and the CLL was creeping up in the blood work, but also in a lymph gland, particularly one noteable on in the groin. Night sweats started.
Natali
in
CLL Support
7 years ago
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