New CCL diagnosis

[WisconsinRalph]

Diagnosis in Feb. Having neuro complications. Started on Ibrutinib April 7. Started on Rifixam infusion yesterday. So far the meds are well tolerated.

[Hidden]

Hi Ralph-

Sorry to hear you're having head problems. Can you describe it?

I was experiencing foggy brain during treatment and thought I was losing it but I came across a Curcumin supplement that eliminated the problem.

I hate to sound like "one of those" but it was incredibly helpful.

Wishing you well-

bill

[Hoffy]

I find taking the Ibruvica at night on an empty stomach helps a lot.

I am originally from Sheboygan Wisconsin.

I also takeaway little curcumin and it seems to help with focus.

[Peggy4]

Hi Ralph, not much time for you to come to terms with your diagnosis before starting treatment. Glad that so far you're doing ok.

Peggy

[theasavta]

Hi, Ralph: I wish you well on treatment. I just completed four Rituximab infusions and will likely start "official" treatment for CLL in the near future. I was on curcumin for a few years of W&W but went off it because of expense. Good to know there may be a place for curcumin mitigating side effects/symptoms.

Susan