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Ibrutinib
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Ibrutinib Venetoclax question
Anyone out there hear anything about Dr. Kanti Rai starting the I/V trial like MD Anderson?
Anyone out there hear anything about Dr. Kanti Rai starting the I/V trial like MD Anderson?
MPL462
in
CLL Support
7 years ago
New poster... Tirabrutinib study
Have great hopes for tirabrutinib, which I've heard described as a version 2 of
ibrutinib
, both being BTK inhibitors. I'll try to keep you all apprised of my progress and experience with this treatment.
Have great hopes for tirabrutinib, which I've heard described as a version 2 of
ibrutinib
, both being BTK inhibitors. I'll try to keep you all apprised of my progress and experience with this treatment.
clljon
in
CLL Support
7 years ago
Anyone 13 del Igvh mutated on Ibrutinib
Is there anyone out there that has 13 del igvh mutated and chose
Ibrutinib
for first line treatment? If so how are side effects and is it working
Is there anyone out there that has 13 del igvh mutated and chose
Ibrutinib
for first line treatment? If so how are side effects and is it working
Lindab127
in
CLL Support
7 years ago
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Unsure and a little nervous
on combination study of
ibrutinib
and ABT - 199 anyone else out there doing this ?
on combination study of
ibrutinib
and ABT - 199 anyone else out there doing this ?
Granny12
in
CLL Support
7 years ago
Being on ibrutinib for 3 and a half months and had a pathological femur neck fracture. Biopsy indicated CLL infiltration on bone.
She was on
ibrutinib
for around 3 and half months already before that and it was suspended for almost 4 week because of this event. Now
ibrutinib
is resumed (since last Friday).
She was on
ibrutinib
for around 3 and half months already before that and it was suspended for almost 4 week because of this event. Now
ibrutinib
is resumed (since last Friday).
J-123
in
CLL Support
7 years ago
Belly button pain on ibrutinib
Had a tender belly button for the last day not terrible just tender to touch wondered if it could be a side effect of
ibrutinib
I get the aches in joints etc but they only last a day or 2 then go but not experienced a tender belly button before anyone else
Had a tender belly button for the last day not terrible just tender to touch wondered if it could be a side effect of
ibrutinib
I get the aches in joints etc but they only last a day or 2 then go but not experienced a tender belly button before anyone else
cartwheels
in
CLL Support
7 years ago
Hair dye on ibrutinib?
Hi guys. Has anyone dyed their hair while on Ibruitinib? As far as I know it is an inhibitor rather than chemo.
Hi guys. Has anyone dyed their hair while on Ibruitinib? As far as I know it is an inhibitor rather than chemo.
KAS8
in
CLL Support
7 years ago
Venetoclax/Ibrutinib trial needing surgery
Hi, I have been on
Ibrutinib
for 6 months and added Venetoclax 2 weeks ago. My WBC is in range and my Lymphocytes and Neutrophils are within a few points of being in range already. Unfortunately, I tore the meniscus in my knee and a flap is in the joint creating lots of pain.
Hi, I have been on
Ibrutinib
for 6 months and added Venetoclax 2 weeks ago. My WBC is in range and my Lymphocytes and Neutrophils are within a few points of being in range already. Unfortunately, I tore the meniscus in my knee and a flap is in the joint creating lots of pain.
Louie_CC
in
CLL America Support
7 years ago
I've just reviewed treatments and am more confused!
After a lot of reading, this is how I sum up the current state for my mutated 13g del state: - FCR is - as I understand - not advised as I'm aged 65 and had recent pneumonia -
Ibrutinib
has side-effects but is available in the UK (I think?)
After a lot of reading, this is how I sum up the current state for my mutated 13g del state: - FCR is - as I understand - not advised as I'm aged 65 and had recent pneumonia -
Ibrutinib
has side-effects but is available in the UK (I think?)
deveritt
in
CLL Support
7 years ago
Monoclonal B-cell lymphocytosis or MBL and a new clinical trial for those resistant to ibrutinib and more
I have posted some information about a trial for patients with relapsed refractory CLL who have received 2 or more prior treatments, including treatment with a BTK inhibitor such as
ibrutinib
or acalabrutinib.
I have posted some information about a trial for patients with relapsed refractory CLL who have received 2 or more prior treatments, including treatment with a BTK inhibitor such as
ibrutinib
or acalabrutinib.
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
Feinstein Institute Scientist Recognized for Innovative CLL Research
The award was presented at the recent International Workshop on Chronic Lymphocytic Leukemia (iwCLL) for her abstract titled: "IL-4R – IL-4 axis Disruption by
Ibrutinib
Therapy Contributes to the Greater Vulnerability of U-CLL Clones to Loss of Microenvironmental Input."
The award was presented at the recent International Workshop on Chronic Lymphocytic Leukemia (iwCLL) for her abstract titled: "IL-4R – IL-4 axis Disruption by
Ibrutinib
Therapy Contributes to the Greater Vulnerability of U-CLL Clones to Loss of Microenvironmental Input."
Cllcanada
Top Poster CURE Hero
in
CLL Support
7 years ago
In Scotland ; SMC approves Ibrutinib
Apologies for my tardy post but the Scottish Medicines Consortium has mimicked the earlier NICE decision to approve
Ibrutinib
as a second line treatment. See extract from their April newsletter: "Also accepted through the PACE process was
ibrutinib
(Imbruvica).
Apologies for my tardy post but the Scottish Medicines Consortium has mimicked the earlier NICE decision to approve
Ibrutinib
as a second line treatment. See extract from their April newsletter: "Also accepted through the PACE process was
ibrutinib
(Imbruvica).
Mild-Rover
in
CLL Support
7 years ago
Ibrutinib and Medicare
I don't want to start treatment with
Ibrutinib
. I've so much about the cost of
Ibrutinib
as well as the side effects. I checked in my area of NJ with Medicare,the out of pocket cost for
Ibrutinib
is over $700 a month.
I don't want to start treatment with
Ibrutinib
. I've so much about the cost of
Ibrutinib
as well as the side effects. I checked in my area of NJ with Medicare,the out of pocket cost for
Ibrutinib
is over $700 a month.
ReneeSusan
in
CLL America Support
7 years ago
Ibrutinib and fever
I am on my 11th month of
Ibrutinib
. Have not had any side effects except for itchy skin, but suddenly started developing diarrhoea and fever just above 37 degrees. It makes my skin feel prickly and irritated. Paracetamol gets rid of it quickly but it keeps coming back.
I am on my 11th month of
Ibrutinib
. Have not had any side effects except for itchy skin, but suddenly started developing diarrhoea and fever just above 37 degrees. It makes my skin feel prickly and irritated. Paracetamol gets rid of it quickly but it keeps coming back.
Mayor44
in
CLL Support
7 years ago
ASH 2016: Dr. Mato on real world data on ibrutinib
You can view my summary, watch the interview or read the transcript here: http://cllsociety.org/2017/05/ash-2016-real-world-data-
ibrutinib
/. The data suggests that in the community it is intolerance and side effects that is the most common reason for stopping a signal blocker such as
ibrutinib
.
You can view my summary, watch the interview or read the transcript here: http://cllsociety.org/2017/05/ash-2016-real-world-data-
ibrutinib
/. The data suggests that in the community it is intolerance and side effects that is the most common reason for stopping a signal blocker such as
ibrutinib
.
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
Ibrutinib withdrawal symptoms
I was on
ibrutinib
for 3 years. Other than a few side effects at the beginning, such as hair loss, joint pain, eeak nails, I successfully took 4 pills a day. Agter being off due to severe GI issues at the end, I started experiencing joint and muscle pain.
I was on
ibrutinib
for 3 years. Other than a few side effects at the beginning, such as hair loss, joint pain, eeak nails, I successfully took 4 pills a day. Agter being off due to severe GI issues at the end, I started experiencing joint and muscle pain.
Jewelj76
in
CLL Support
7 years ago
Ibrutinib and PACs and A-Fib
I know A-Fib can be a side effect of
Ibrutinib
. Does anyone else have this same issue?
I know A-Fib can be a side effect of
Ibrutinib
. Does anyone else have this same issue?
-buster-brown-
in
CLL Support
7 years ago
Thank you Clive James
Clive James's poem in praise of
Ibrutinib
hits the mark - and then some. If you haven't read either of his recent poetry collections, go out and buy or borrow from your local library ASAP. You are in for a treat.
Clive James's poem in praise of
Ibrutinib
hits the mark - and then some. If you haven't read either of his recent poetry collections, go out and buy or borrow from your local library ASAP. You are in for a treat.
KateEvaLen
in
CLL Support
7 years ago
Developing food allergies post chemotherapy
Now on
ibrutinib
I can eat as much granola and have as many oatmeal cookies as I want!
Now on
ibrutinib
I can eat as much granola and have as many oatmeal cookies as I want!
gardening-girl
in
CLL Support
7 years ago
one year off Ibrutinib. Still well....
Just had 4 month check up and I remain well almost a year after abandoning
Ibrutinib
due to painful side effects. (See previous posts) My WBC is 16.23. Lymphocytes 74.6% (which seem to interest the medics more than the WBC now...)
Just had 4 month check up and I remain well almost a year after abandoning
Ibrutinib
due to painful side effects. (See previous posts) My WBC is 16.23. Lymphocytes 74.6% (which seem to interest the medics more than the WBC now...)
romarin
in
CLL Support
7 years ago
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