I was home from Ireland for about three days before I had to hit the road again this time to Manhattan where I've just returned from the International Workshop on CLL (iwCLL 2017). It was a great meeting and I saw many old CLL friends and most of the top researchers in CLL. On Saturday I hosted a Facebook Live meeting on the topic of genetic testing prior to treatment. Thank you for all who attended, submitted questions or cheered me on. If you didn't get a chance to view it, you can access the archive at facebook.com/CLLsociety/
Flying home across the country gives me time to think about lots of things as I endure the long flight and unexpected delays. I started to think about my journey with CLL as I just passed the 5th anniversary of the day I took my first dose of PCI-32765, now known as ibrutinib or Imbruvica. You can read about my personal story here: cllsociety.org/2017/05/pers...
I usually use the CLL Society website to post research news, but I started this journey into advocacy with my personal story on my blog and I am picking it up again.
What a long strange trip this has been.
We are all in this together.