Endometriosis , adenymiosis

[Newjeff]

I have been waiting for support with my endometriosis for years myself.

I was recently told I have adenemyosis also (apologies for spelling check)

The twin to endometriosis too , besides Ibs copd and plenty more on my records I have been threw hell and I’m still near there now after so many tests , appointments and promises .

It’s ridiculous and so is p.ip and the support system .

I am like many who suffer and am on a constant rollercoaster waiting for a critical hysterectomy and doctors letting me down .

Apologies again but the fact it’s a invisible illness is alone a fight itself .

[Moon_maiden]

I sort of consider myself lucky that it’s only been a couple of years and coped the rest of the time with otc painkillers, when others have been going at this for years.

Where are you at with gynae/surgery?

If you’re applying for PIP or going to tribunal print off the info about the parliamentary discussion re endo, it might help.

I hope you don’t have to wait much longer for surgery 🤞