Still get cramps after hysterectomy

[Pipersong]

Hi..was just wondering if anyone still gets cramps after a full hysterectomy due to endometriosis?? Been a year since surgery..but I still seem to get cycle pain?!?🤨

[Lindle]

Unfortunately hysterectomy isn't a treatment for endo as it is outside the uterus. If you still have your ovaries you will still get cycle pain.

[Pipersong in reply to Lindle]

Full hysterectomy so they took ovaries aswell... was curious as to whether it was like a 'phantom' pain 🤔😕

[angiecxx in reply to Pipersong]

I had a full hysterectomy just over 3 years ago and I still suffer with pain most days. I was told that a hysterectomy would cure endometriosis, little did i know at the time it doesn't... 😞

[Pipersong in reply to angiecxx]

I can only think there's traces of endometriosis in other areas.. I was told there was no guarantee I would be total pain free but didn't think it would still be as bad..it's a huge life changing thing to go through and still be suffering though 😭😕

[Lindle in reply to Pipersong]

Full hysterectomy is just the uterus and cervix. It all depends on whether your pelvis was thoroughly inspected and all endo excised at the same time. If not then it will still be there and endo doesn't need ovaries to grow.

[Pipersong in reply to Lindle]

It was never mentioned at the time if pelvis was checked so they probably didn't. 😢 X

[Lindle in reply to Pipersong]

No sadly that is so often the case in gynaecology; there still seems a belief by some consultant that hysterectomy cures endo. You must only be treated by someone with expertise in diagnosing endo. Please feel free to pm if you need more info on endo after hysterectomy. I was only diagnosed for the first time at age 51, seven years after hysterectomy and oophorectomy and it was stage 4 after being given HRT.

[Pipersong in reply to Lindle]

Thank you so much for ur help and advice..it's good to kno I'm not the only one 🤗❤️

[bighug]

Hi, I thought it might be in my head too, but unfortunately I still get pain, and keeping a record when it’s worse and seems like a cycle again to me 😕 !!

Back to strong painkillers and hot water bottle 😩

[Pipersong in reply to bighug]

It's definitely weird....and with no docs appointments available just now I just wondered if it was happening to other ladies...will start to keep a diary..good idea..see if there is a pattern..👍😉

[Becoming-me]

There are different terms for full hysterectomy. You need to find out what kind you had. If you didn’t have everything removed you will still get symptoms

[Pipersong in reply to Becoming-me]

Thank you for your reply..i had everything removed.. including cervix and ovaries x