Consultant phone call help plus working

[ElmoFluff]

Hi Ladies,

Having a really low time at the moment and just really need opinions from other who understand.

In 2018 and 2019 I had a cyst removed from right ovary. As it won't behave itself I had the actual ovary removed in July this year.

I was due to start a new job in August but their medical people put me on a hold for obvious reasons.

However at my follow up with gynea (phonecall) It felt like I was interrogated with regards to pain meds as I had still been taking some, especially on rough days this was in September. Due to the content of the letter and the fact that they would like me not to take mefenamic acid nor tramadol and take "therapeutic paracetamol" I have tried cutting my meds down. When I am due on and on I have to have thr max of mefenamic acid. And when pains bad I take around 4 tramadol in a day. I am paranoid about getting addicted and I have had good days and had none, though usually pay for it. The letter she sent meant I couldn't start my job. And she told me that despite the surgery it may just be that I have pelvic pain forever and the only option is the pill.

Work wouldn't let me start, and on Monday I have a follow up call. I have tried the pill as part of my treatment before surgery and it played havoc with my anxiety and depression, and the point of me taking it back to back was to stop a bleed. But by day 40 my body went for it anyways. On one of my surgeries I had the mirena put in, but 7 months later had that removed due to this ongoing issue with the pains.

My very first consultant told me she was sure my symptoms were endo. I am sure of this too but none has yet been found.

I am still having good and bad days, if I stand too long or walk too much I get a lot of pelvic pain same if sat too long. Today I walked to local shops and now sat with heat pad as in so much pain.

if I tell the hospital I need the meds i will likely lose job opportunity and let's be fair in the current world its hard enough to get a position.

Equally I dont want to lie as may as well just not even answer. I'm open to suggestion hormonal wise but I'm 35 and overweight so have a lot of risk factors.

If I stop tramadol completely I have no other med, cocodamol only agrees with me a day or two. Partly wishing I'd pushed for a hysterectomy but then I would be more disheartened if felt like this after.

My docs are currently signing me off but that can only last so long im sure.

Thanks so much for reading

Stay safe

Xx

[Moon_maiden]

Hi

You’re going through a lot and not getting much help.

Have they said it’s likely it is endo, was this via a specialist?

I don’t understand why they don’t want you to have suitable pain meds that help, did they give a medical reason?

I saw the pain consultant, part of the endo team (but paid) Amitriptyline and stay using Oramorph. For amitriptyline it’s for nerve pain and upto 50mg. Helps a bit, but still can’t do much.

There are things like Zoladex which is fake menopause and normally a Gynae go to these days.

If you haven’t had a lap to confirm and you want one, do see GP, but look up where/who the local BSGE centre is, you’d normally have to have a definite diagnosis though.