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Terrible Symptoms from Caelyx
Hi ladies! Just looking for some adivce for my Mum, who's half way through her course of six Caelyx treatments. For context, she was diagnosed HGS stage 3c/4a in Jan 2022, had three rounds of chemo, optimal debulking surgery with full hysterectomy and removal of omentum, and then three more rounds of
Hi ladies! Just looking for some adivce for my Mum, who's half way through her course of six Caelyx treatments. For context, she was diagnosed HGS stage 3c/4a in Jan 2022, had three rounds of chemo, optimal debulking surgery with full hysterectomy and removal of omentum, and then three more rounds of
georgialocksss
in
My Ovacome
1 year ago
Hysterectomy advice
Hello all, I have been off of Zoladex for around 6 months and went for some more in-depth scans a couple of weeks ago which showed severe damage to both ovaries (specifically however the left ovary is not having a good time) and lots of fibroids, cysts and sticky tissue. Consultant call today has
Hello all, I have been off of Zoladex for around 6 months and went for some more in-depth scans a couple of weeks ago which showed severe damage to both ovaries (specifically however the left ovary is not having a good time) and lots of fibroids, cysts and sticky tissue. Consultant call today has
Spangalow07
in
Endometriosis UK
1 year ago
update!
so after post a couple of days ago regarding I’ve finally been put on the list for total hysterectomy, I got a phone call from the hospital yesterday. I have a date! 8 weeks time! Quite nervous and not looking forward to the recovery phase ( I don’t do sitting still) but at lest it means no more treatments
so after post a couple of days ago regarding I’ve finally been put on the list for total hysterectomy, I got a phone call from the hospital yesterday. I have a date! 8 weeks time! Quite nervous and not looking forward to the recovery phase ( I don’t do sitting still) but at lest it means no more treatments
MrsPaddingtonBear
in
Endometriosis UK
11 months ago
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Hysterectomy & bowel re-section advice
Hi I have recently been diagnosed after suffering bleeding problems and cysts on & off for about 20 years. The recent MRI showed that I have a significant nodule on my bowel so if I opt for a hysterectomy then they will haev to do a bowel re-section. I am currently on zoladex which is helping with the
Hi I have recently been diagnosed after suffering bleeding problems and cysts on & off for about 20 years. The recent MRI showed that I have a significant nodule on my bowel so if I opt for a hysterectomy then they will haev to do a bowel re-section. I am currently on zoladex which is helping with the
Bookish_Girl
in
Endometriosis UK
1 year ago
Exhausted
I'm feeling so exhausted and pain all over. I've done my temperature first thing in the morning twice and it is 35.8. I'm still recovering from total hysterectomy because of cancer and on treatment for a cuti I've had 4 years. Obviously hormones have crashed as i had to come of hrt I feel cold one minute
I'm feeling so exhausted and pain all over. I've done my temperature first thing in the morning twice and it is 35.8. I'm still recovering from total hysterectomy because of cancer and on treatment for a cuti I've had 4 years. Obviously hormones have crashed as i had to come of hrt I feel cold one minute
France92
in
Thyroid UK
11 months ago
Any1 know how long you can stay on prostap injections (every 4 weeks ) b4 a full hysterectomy?
Looking for some more information regarding this prostap injection b4 hysterectomy, if anyone can help please
Looking for some more information regarding this prostap injection b4 hysterectomy, if anyone can help please
Sjxxx
in
Endometriosis UK
1 year ago
On prostap every 4 weeks now on 2nd injection but feeling sick and have pelvic stabbing pain ? Anyone else had the same ? Is it normal ?
I'm 34 , i have stage 4 endometriosis after having 12 miscarriages and a still born daughter we are unable to conceive and ivf would be slim and high chance of other problems . Iv Had many operations and currently on prostap injections every 4 week and waiting for my full hysterectomy. Both of my tubes
I'm 34 , i have stage 4 endometriosis after having 12 miscarriages and a still born daughter we are unable to conceive and ivf would be slim and high chance of other problems . Iv Had many operations and currently on prostap injections every 4 week and waiting for my full hysterectomy. Both of my tubes
Sjxxx
in
Endometriosis UK
1 year ago
Is anyone positive about prolapse surgery?
I never really had any advice and had
vaginal
hysterectomy
after my last baby and then another repair 10 years later. For the past 3/4 years have had several pessary fitted some fine and others not. I am now waiting for op , to hopefully sort me out.
I never really had any advice and had
vaginal
hysterectomy
after my last baby and then another repair 10 years later. For the past 3/4 years have had several pessary fitted some fine and others not. I am now waiting for op , to hopefully sort me out.
Stone44
in
Pelvic Pain Support Network
1 year ago
Post Radiotherapy Fatigue
Hello. I had a total hysterectomy with BSO late December followed by 25 days of external beam radiotherapy in March / April. I’m really struggling with fatigue/ low energy levels. Is this normal? I had hoped for sone improvement four and a half months post treatment. I’ve had repeat blood tests to rule
Hello. I had a total hysterectomy with BSO late December followed by 25 days of external beam radiotherapy in March / April. I’m really struggling with fatigue/ low energy levels. Is this normal? I had hoped for sone improvement four and a half months post treatment. I’ve had repeat blood tests to rule
Fika500
in
SHARE Uterine Cancer Support
11 months ago
is a hysterectomy the answer?
I went to a private consultant last year who said I have endometriosis, she did an internal ultrasound and then listened to my symptoms to make her diagnosis. I have been on tibolone and prostap injections the past 8 months, and still having a lot of pelvis pain and bowel and bladder issues, so she says
I went to a private consultant last year who said I have endometriosis, she did an internal ultrasound and then listened to my symptoms to make her diagnosis. I have been on tibolone and prostap injections the past 8 months, and still having a lot of pelvis pain and bowel and bladder issues, so she says
Tootie2008
in
Endometriosis UK
1 year ago
MRI results
I’ve had an MRI to check for adenomyosis and deep infiltrating endometriosis. Can anyone explain the findings to me please? I have a lot of problems with my bowels, rectal bleeding and constipation, mucus stools etc. mid cycle I cannot open my bowels for around a week and then have frequent mucus stools
I’ve had an MRI to check for adenomyosis and deep infiltrating endometriosis. Can anyone explain the findings to me please? I have a lot of problems with my bowels, rectal bleeding and constipation, mucus stools etc. mid cycle I cannot open my bowels for around a week and then have frequent mucus stools
Ccn2018
in
Endometriosis UK
1 year ago
At last!
Sooooooo happy! Had my appointment at the hospital today and my consultant finally agreed after 20 horrible long years to put me on the list for a total hysterectomy. Continuing Prostap and Evorell patches till then, but the papers are all signed. So relieved. I really thought he was going to fob me
Sooooooo happy! Had my appointment at the hospital today and my consultant finally agreed after 20 horrible long years to put me on the list for a total hysterectomy. Continuing Prostap and Evorell patches till then, but the papers are all signed. So relieved. I really thought he was going to fob me
MrsPaddingtonBear
in
Endometriosis UK
11 months ago
Zoladex and HRT
I was diagnosed with endo in 2021, it was removed from my abdominal wall but my pain never fully left. Just 4 months later my symptoms returned and the pain was as bad as it was pre-op. Here I am, 19 months later in significant daily pain. I am signed off sick from work for the 3rd week, and it seems
I was diagnosed with endo in 2021, it was removed from my abdominal wall but my pain never fully left. Just 4 months later my symptoms returned and the pain was as bad as it was pre-op. Here I am, 19 months later in significant daily pain. I am signed off sick from work for the 3rd week, and it seems
Ccn2018
in
Endometriosis UK
1 year ago
Bowel issues and pain.
Hi everyone. I am hoping one of you lovely brave people may be able to help me. Apologies in advance for the long post. I am 21 weeks post total hysterectomy for Adenomyosis, along with extensive excision of DIE endometriosis, and bowel shave. I have previously had a Bilateral Salpingo Oophorectomy
Hi everyone. I am hoping one of you lovely brave people may be able to help me. Apologies in advance for the long post. I am 21 weeks post total hysterectomy for Adenomyosis, along with extensive excision of DIE endometriosis, and bowel shave. I have previously had a Bilateral Salpingo Oophorectomy
Sandygirl6697
in
Endometriosis UK
11 months ago
Hysterectomy and endo
So I'm 22 years old with severe endo I've been told all my endo can't be removed because of its position. Endo is reliant on the supply of estrogen if I had a full hysterectomy would that help forfill my twenties and thirties? I want to speak to a consultant. I cant afford lap private because its too
So I'm 22 years old with severe endo I've been told all my endo can't be removed because of its position. Endo is reliant on the supply of estrogen if I had a full hysterectomy would that help forfill my twenties and thirties? I want to speak to a consultant. I cant afford lap private because its too
Annabelannabel
in
Endometriosis UK
1 year ago
Chronic flank pain and atrophy...
I dealt with left flank pain after the birth of my first son 4 years ago and it was attributed to pain from my previously diagnosed/treated endometriosis. I never saw the results of the CT scan until it came up again after my second son was born last year, but apparently that CT scan showed left atrophy
I dealt with left flank pain after the birth of my first son 4 years ago and it was attributed to pain from my previously diagnosed/treated endometriosis. I never saw the results of the CT scan until it came up again after my second son was born last year, but apparently that CT scan showed left atrophy
CallieJenn
in
Kidney Disease
1 year ago
Clinical Trial with Abemaciclib and Olaparib
Hey Queens! I am reaching out to see if anyone is participating in this clinical trial. I am having a hard time deciding if this is a “favorable” option for me. I’d love to get some type of feedback from an actual patient. It’s fairly new, so any findings seem impossible to come by. Also, I’
Hey Queens! I am reaching out to see if anyone is participating in this clinical trial. I am having a hard time deciding if this is a “favorable” option for me. I’d love to get some type of feedback from an actual patient. It’s fairly new, so any findings seem impossible to come by. Also, I’
TealBlooms
in
My Ovacome
11 months ago
Hashi's & Menopause/HRT - weight loss help!
Hi all, I have Hashimoto's and have been on levo 75mg with combined HRT (oestrogen patch and progesterone pill) for a few years. Had a total hysterectomy almost 2 years ago, but they left my ovaries, due to extensive endo, adenomyosis and fibroids. But I have literally been stuck in limbo since then
Hi all, I have Hashimoto's and have been on levo 75mg with combined HRT (oestrogen patch and progesterone pill) for a few years. Had a total hysterectomy almost 2 years ago, but they left my ovaries, due to extensive endo, adenomyosis and fibroids. But I have literally been stuck in limbo since then
Partiallythere
in
Thyroid UK
1 year ago
Trying to get my health on track..
Had a abdominal hysterectomy and kept my ovaries in Early March, was put into chemical menopause with Prostap SR which really messed me up. The drug caused me to be extremely depressed/anxious. As well as thyroid/heart/ kidney issues. My thyroid is still being investigated (their suspecting hoshimoto
Had a abdominal hysterectomy and kept my ovaries in Early March, was put into chemical menopause with Prostap SR which really messed me up. The drug caused me to be extremely depressed/anxious. As well as thyroid/heart/ kidney issues. My thyroid is still being investigated (their suspecting hoshimoto
Kinzy1979
in
My EXI Community
1 year ago
Northern Ireland waiting list for hysterectomy.
Hi everyone, Just wondering if anyone can help. After waiting 3 years for an appointment with a consultant, I finally got put on the waiting list for a total hysterectomy. I am suffering so much and honestly cant wait for the op to finally get some relief. I'm trying to find out roughly how long
Hi everyone, Just wondering if anyone can help. After waiting 3 years for an appointment with a consultant, I finally got put on the waiting list for a total hysterectomy. I am suffering so much and honestly cant wait for the op to finally get some relief. I'm trying to find out roughly how long
Crystallady1
in
Endometriosis UK
1 year ago
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