Bowel surgery: I was diagnosed with... - Endometriosis UK

Endometriosis UK

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Bowel surgery

Lizziedrizz profile image
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I was diagnosed with rectovaginal endometriosis during my subtotal hysterectomy March 2024. The hysterectomy was due to a fibroid and my ovaries were kept as my surgeon said that they seemed to be doing a good job but since my hysterectomy I have been getting perimenopause symptoms so I'm on HRT gel and progesterone.My rectum and vagina were fused together and my bowel was fused to my cervix. My surgeon Mr Carpenter at Poole Hospital, is an endo specialist and he excised the endo from around the urethra and unfused my rectum, vagina, bowel and cervix.

Everything that was removed was sent for testing and it seems to have been fine.

A few months after my hysterectomy the bowel and pelvic pain that I had been having before my hysterectomy returned so I saw my endo surgeon a few days ago.

He has referred me to see bowel surgeon Professor Qureshi and a specialist endo nurse to discuss the bowel operation and the possible complications.

He warned me that the surgery might not help but the pelvic and bowel pain is such that it seems to be the only option. I'm also getting diarrhoea and constipation at times.

I'm just frustrated that even with surgery done by an endo specialist, the endo can just return so easily.

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Lizziedrizz
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Stitchrunner1 profile image
Stitchrunner1

Unfortunately endo is very sneaky, it can hang around. It can be difficult to catch all of it. I am guessing that you are in the UK by the names of the hospitals you have mentioned. Be aware that the NHS is so tight fisted it would not do anything it didn't think it would be beneficial! 😅 I won't tell you what to do. Your surgeons seem to be doing a good job of keeping you advised. I think if they are willing to do the op, it's likely worth the while. As you have a specialist nurse attached to you case, you might be able to get an appointment to speak with them. They will be more likely to talk in words mortals understand. Don't have surgery, with out being sure. Doctors don't like it if you complain afterwards. 😅They take it personally. On a serious note, no one but you can decide. Don't be afraid to ask questions again. Visit your GP if you can an appointment! They can also distill things to a human level. You sound in such a state. You need a bit more reassurance. Get it from the medics, they are there to help. They would much prefer an informed patient than someone who has no idea what is going on. Tea and bikkies help too!

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