Hysterectomy questions

[Hannah27]

I've had 2 laps, last surgery there was hardly any endo and it was likely adeno would be the cause. Bleeding and pain has been exactly the same since last surgery. I fainted from my last period as so heavy and ended up off work on morphine.I have a private appointment tomorrow and want a hysterectomy as soon as possible.

What questions would you ask?

What do you wish you had talked through before surgery?

Waiting list is around a year on NHS in my trust, private seems about 6-8 weeks but is around 10k. Has anyone gone private?

Thanks.

[Sunset-lady]

I'm about to go private with robotic hysterectomy. It's 10k but I'm bleeding all the time on zoladex. I'm on holiday right now and taking tranexamic acid which has made me look pregnant. I'm speaking to my consultant on Friday. I'm very frightened of this operation as they tried to do it in 2023 but abandoned it after finding endometriosis. I think just make sure that it's an endo specialist x

[Hannah27 in reply to Sunset-lady]

Yes it's my endo consultant I'm seeing privately. I feel you with the tranexamic acid. I always look huge! I hope you manage to enjoy your holiday xx

[Hannah27 in reply to Sunset-lady]

Did you find any questions helpful? Xx

[Regenallotment]

I saw a private gynae for a £250 consultation just after Christmas. He actually sent me back via NHS saying that he’d be wasting my money as needs them to identify if endo is there to ensure long term solution of hysterectomy is right for me. If that’s clear (like your latest) he’d be happy to proceed and it was about £8000 so awaiting hysteroscopy and laparoscopy and hopefully then I’ll see him after that. He gave me stats on how many women don’t benefit long term from hysterectomy. He hinted it’s likely I’m one of them. 51 with a regular cycle and classic symptoms plus fibroids plus adeno. In your position I’d be going for it 🙏

[Regenallotment in reply to Regenallotment]

Questions-

Ovaries or not (recommended to have them out) a colleague didn’t and now has cysts causing problems.

Follow up HRT management advice?

How do they minimise risks to bladder ureter? Sister in law had a catheter and bag for 3 weeks after hers before it recovered, she’s fine now.

Cervix or not?

Can’t think of anything else. My NCT trainer 24 years ago taught us BARE.

What are the basic recommendations

What are the alternatives

What are the risks

What are the exceptions/exclusions

You could always ask, what should people ask but they don’t 🤣

[Hannah27 in reply to Regenallotment]

THANK YOU SO MUCH!!! I know he suggested removing cervix but I want more info on sexual function etc.

Leaving ovaries. Which is also what I want. Im not ready for menopause yet, I know what that can do longer term with bone density etc.

An phew. Thanks so much for this reply, got my mind whizzing to slow down a bit! Xx