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Possible relapse, trouble seeing Rheumatologist.
Hi, I have not posted in quite some time. Read other's mostly, and since I have been in remission for 7-8 years I have not had much I could add to conversation. I was diagnosed with GPA in 2015. Put on pred and mycophenolate initially, then two rounds of rituximab. I have been med free since 2016
Hi, I have not posted in quite some time. Read other's mostly, and since I have been in remission for 7-8 years I have not had much I could add to conversation. I was diagnosed with GPA in 2015. Put on pred and mycophenolate initially, then two rounds of rituximab. I have been med free since 2016
lollypocket
in
Vasculitis UK
8 months ago
I don’t understand
hi My husband was diagnosed with Parkinson’s in 2021 after a few years of dizziness and balance problems , over the 2 years since diagnosis things have changed dramatically, he went from balance issues and stooping to using a stick, he was seen by a urologist for wee retention and was given catheters
hi My husband was diagnosed with Parkinson’s in 2021 after a few years of dizziness and balance problems , over the 2 years since diagnosis things have changed dramatically, he went from balance issues and stooping to using a stick, he was seen by a urologist for wee retention and was given catheters
DeeMilo25
in
Multiple System Atrophy Trust
1 year ago
Fostair & dry mouth
Just started Fostair nextinhaler this week whilst in hospital for acute severe asthma. Have a very dry mouth & angular stomatitis (cracks in corner of mouth). Does anyone else have the same issues?
Just started Fostair nextinhaler this week whilst in hospital for acute severe asthma. Have a very dry mouth & angular stomatitis (cracks in corner of mouth). Does anyone else have the same issues?
Easybreath
in
Asthma Community Forum
8 months ago
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Migraine and visual hallucinations
I’ve suffered with migraines for many years since I was about 11 (I’m 35 now). Anyway as I’ve gotten older they’ve thankfully become less frequent and severe (though I take propranalol to prevent). I had an attack begin late last night with my usual blind spots and visual disturbance. It was bed time
I’ve suffered with migraines for many years since I was about 11 (I’m 35 now). Anyway as I’ve gotten older they’ve thankfully become less frequent and severe (though I take propranalol to prevent). I had an attack begin late last night with my usual blind spots and visual disturbance. It was bed time
PTNewbie
in
National Migraine Centre
8 months ago
Just diagnosed this week
Hi Glaucoma community,I have been diagnosed with early stage glaucoma this week, in one eye. I'm 46 years old, female. My eye pressures in both eyes were 21 - so borderline from what I understand. I had a central retinal vein occlusion in my right eye in 2016 and saw a consultant for18 months until it
Hi Glaucoma community,I have been diagnosed with early stage glaucoma this week, in one eye. I'm 46 years old, female. My eye pressures in both eyes were 21 - so borderline from what I understand. I had a central retinal vein occlusion in my right eye in 2016 and saw a consultant for18 months until it
Eyespy1
in
Glaucoma UK
8 months ago
Can’t sleep
I was diagnosed in May of this year.. Started with double vision. I also have seizures, mostly controlled. I can’t sleep hardly at all. Tried several meds, nothing. Very frustrating. I get maybe 3, maybe 4 hours if lucky. There have been some nights I haven’t slept at all? Anyone else have
I was diagnosed in May of this year.. Started with double vision. I also have seizures, mostly controlled. I can’t sleep hardly at all. Tried several meds, nothing. Very frustrating. I get maybe 3, maybe 4 hours if lucky. There have been some nights I haven’t slept at all? Anyone else have
Cinjav
in
PSP Association
8 months ago
Repost results
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
6 months ago
bowel obstruction
hello, my Mum is now in palliative care (12 days) for a total bowel obstruction because of a 6 sigmoid volvulus. At 92 an operation is not possible. Almost two weeks now and so far she is coping remarkably - her tummy is huge but otherwise only moderate pain now and then and a need to pee quite often
hello, my Mum is now in palliative care (12 days) for a total bowel obstruction because of a 6 sigmoid volvulus. At 92 an operation is not possible. Almost two weeks now and so far she is coping remarkably - her tummy is huge but otherwise only moderate pain now and then and a need to pee quite often
Anjidav
in
Bowel Disease Support
1 year ago
Mum with CBD
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Bobbiejo21
in
PSP Association
1 year ago
Blepharitis
hi I have rheumatoid arthritis, herpes simplex in my right eye and acute glaucoma caused by the treatment for my eye. I’ve now got blepharitis in both my eyes which has just started on Monday after my infusion for my arthritis. I went to the doctor and they said just use baby shampoo but my eyes are
hi I have rheumatoid arthritis, herpes simplex in my right eye and acute glaucoma caused by the treatment for my eye. I’ve now got blepharitis in both my eyes which has just started on Monday after my infusion for my arthritis. I went to the doctor and they said just use baby shampoo but my eyes are
Golden87
in
Glaucoma UK
8 months ago
GCA flares and eyesight
Thank you to everybody on this site – I have found it very helpful. I was diagnosed with GCA in September. I have to say my GP and Bath Hospital were excellent though it was a shock. My sight tested OK in the Eye Clinic. I started on 60 prednisolone reducing, and I am coping quite well, but I am paranoid
Thank you to everybody on this site – I have found it very helpful. I was diagnosed with GCA in September. I have to say my GP and Bath Hospital were excellent though it was a shock. My sight tested OK in the Eye Clinic. I started on 60 prednisolone reducing, and I am coping quite well, but I am paranoid
Gladys911
in
PMRGCAuk
8 months ago
Anyone opted for private Cataract surgery?
Hi, I have seronegative RA and am on Benepali. Have just had a routine eye test and been told I need cataract surgery. I thought I needed new glasses but it turns out it's cataracts! Anyway my optician has referred me on the NHS via my GP but I'm wondering about going private as I have no idea how long
Hi, I have seronegative RA and am on Benepali. Have just had a routine eye test and been told I need cataract surgery. I thought I needed new glasses but it turns out it's cataracts! Anyway my optician has referred me on the NHS via my GP but I'm wondering about going private as I have no idea how long
Chann
in
NRAS
8 months ago
Sjogrens - eye pain/migraine
I'm getting severe headaches that are around my eyes. I wake up with my head & eyes killing me. Is this just dry eyes? My light sensitivity is off the charts. Has anyone else expierenced this? Is this a Sjogren symptom?
I'm getting severe headaches that are around my eyes. I wake up with my head & eyes killing me. Is this just dry eyes? My light sensitivity is off the charts. Has anyone else expierenced this? Is this a Sjogren symptom?
Texgirl
in
NRAS
9 months ago
Has the Pulsed Field Ablation technique increased success rate?
Although Flecainide 50mg bid has kept AF episodes to a much lower frequency, 6 in ‘23, I’d like to hear from a few more of you who have undergone this new procedure. What are the results; is the blanking period shorter; anyone had it done at Royal Bournemouth Hospital? I hear reports that it’s much
Although Flecainide 50mg bid has kept AF episodes to a much lower frequency, 6 in ‘23, I’d like to hear from a few more of you who have undergone this new procedure. What are the results; is the blanking period shorter; anyone had it done at Royal Bournemouth Hospital? I hear reports that it’s much
Racquet
in
Atrial Fibrillation Support
6 months ago
Palliative care survey for less survivable cancer patients & loved ones (UK)
📣 The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
📣 The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Hi all. I have had concussion since August, after a fall when I banged my head. Although improving, I have a problem with bright light/glare
As above - I had a fall in August and banged my neck, chin. I am improving but can't deal with light (as in a bright sky), or glare. I also have difficulty when there is a lot of noise (as in grandchildren!). I can't wear earphones.... Does anyone know of research into coloured lenses and how certain
As above - I had a fall in August and banged my neck, chin. I am improving but can't deal with light (as in a bright sky), or glare. I also have difficulty when there is a lot of noise (as in grandchildren!). I can't wear earphones.... Does anyone know of research into coloured lenses and how certain
Braininfo
in
Headway
9 months ago
Cataract surgery advice please.
I've got glaucoma and I'm very short sighted. The left eye has got the glaucoma. The right eye isn't affected much with it yet, but does have the cataract. After they fit the new lens in my right eye, my shortsightedness apparently might be rectified. This will give me an enormous discrepancy between
I've got glaucoma and I'm very short sighted. The left eye has got the glaucoma. The right eye isn't affected much with it yet, but does have the cataract. After they fit the new lens in my right eye, my shortsightedness apparently might be rectified. This will give me an enormous discrepancy between
Quiet_Lin
in
Glaucoma UK
9 months ago
Starbursts from new glasses driving me insane. Can anyone help?
Hi, I recently got 2 new pairs of glasses, one with Transitions lenses and one 'plain'. There's been a lot of faff with the Transitions because I didn't like the frames, but right at the outset I noticed I was suddenly getting these epic starbursts on lights (with both pairs), particularly in the distance
Hi, I recently got 2 new pairs of glasses, one with Transitions lenses and one 'plain'. There's been a lot of faff with the Transitions because I didn't like the frames, but right at the outset I noticed I was suddenly getting these epic starbursts on lights (with both pairs), particularly in the distance
Chancery
in
Anxiety Support
9 months ago
Starburst problem with new specs
Hi, I don't have glaucoma, but I'm hoping someone might be able to help me here as I have been Googling my issue all night. So, sorry if this is completely off-topic for you guys! I recently got 2 new pairs of glasses, one with Transitions lenses and one 'plain'. There's been a lot of faff with the
Hi, I don't have glaucoma, but I'm hoping someone might be able to help me here as I have been Googling my issue all night. So, sorry if this is completely off-topic for you guys! I recently got 2 new pairs of glasses, one with Transitions lenses and one 'plain'. There's been a lot of faff with the
Chancery
in
Glaucoma UK
9 months ago
update: Zanabrutinib vs Obenven (O&V)
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
Cb1391
in
CLL Support
9 months ago
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