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Hoyeraal-Hreidarsson syndrome
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Pain killers
I was prescribed CO-Dydramol yesterday i took one at bedtime I seemed to be awake all night. The above drug did nothing. Pain is just as bad. Will not take it again. Back to paracetamol which does the same
I was prescribed CO-Dydramol yesterday i took one at bedtime I seemed to be awake all night. The above drug did nothing. Pain is just as bad. Will not take it again. Back to paracetamol which does the same
Hidden
in
NRAS
4 years ago
Coconut water
I read a post from a while back on here about a guy that had gotten RLS when he had a nasty case of the flu. He talked about how beneficial coconut water was for his RLS. I was skeptical of course, so I looked it up. Pregnant women use it sometimes for the potassium and everything. Since it’s packed
I read a post from a while back on here about a guy that had gotten RLS when he had a nasty case of the flu. He talked about how beneficial coconut water was for his RLS. I was skeptical of course, so I looked it up. Pregnant women use it sometimes for the potassium and everything. Since it’s packed
mmjxc
in
Restless Legs Syndrome
4 years ago
Some foods tasting soapy
I started noticing certain foods tasting like perfumed soap / liquid detergent two weeks ago. First it was pork foods. Then seasame oil (so soapy it made me gag) and peanut butter. Just now I had to spit out raw pepper as it also had exact same soapy flavour. It's not pregancy but I did have my Mirena
I started noticing certain foods tasting like perfumed soap / liquid detergent two weeks ago. First it was pork foods. Then seasame oil (so soapy it made me gag) and peanut butter. Just now I had to spit out raw pepper as it also had exact same soapy flavour. It's not pregancy but I did have my Mirena
matilda-_
in
NRAS
4 years ago
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Still have to completely avoid triggers while on opioids?
So, with the possibility of a hospital admittance being in my future, I’m sure they’ll want to get me on medications for my stomach that will not agree with my legs. They’ll also probably have me eating a BRAT diet. I’m scared. Last night I woke up a bunch of times and I was restless and had nothing
So, with the possibility of a hospital admittance being in my future, I’m sure they’ll want to get me on medications for my stomach that will not agree with my legs. They’ll also probably have me eating a BRAT diet. I’m scared. Last night I woke up a bunch of times and I was restless and had nothing
mmjxc
in
Restless Legs Syndrome
4 years ago
Le
Hello all - I saw the neurologist here in Seattle this past week about moving from Ropinirole to Buprenorphine due to augmentation. He decided I should move over to 900 mg Gabapentin before bed instead. I have been taking 300 mg of gabapentin 3 x daily for other reasons. During the discussion he
Hello all - I saw the neurologist here in Seattle this past week about moving from Ropinirole to Buprenorphine due to augmentation. He decided I should move over to 900 mg Gabapentin before bed instead. I have been taking 300 mg of gabapentin 3 x daily for other reasons. During the discussion he
B534967
in
Restless Legs Syndrome
4 years ago
Peak flow meter measurement
Hello all, I have recently buyed peak flow meter and I started to measure my peak flow in the morning, afternoon and evening before taking my therapy. I found it strange that even when I feel symptoms (chest tightness) according to my peek flow meter I am in green zone( which should be from 517-600
Hello all, I have recently buyed peak flow meter and I started to measure my peak flow in the morning, afternoon and evening before taking my therapy. I found it strange that even when I feel symptoms (chest tightness) according to my peek flow meter I am in green zone( which should be from 517-600
Jolius
in
Asthma Community Forum
4 years ago
Rls and cannabis
Have any of you ever used cannabis for rls before taking gabapentin i use to find this to work better than anything but due to drug tests at work i could no longer use it iv seen a few documentary's on tv were a few people also used it for rls from young people to old aged pensioners and they all swore
Have any of you ever used cannabis for rls before taking gabapentin i use to find this to work better than anything but due to drug tests at work i could no longer use it iv seen a few documentary's on tv were a few people also used it for rls from young people to old aged pensioners and they all swore
Jonyboi21
in
Restless Legs Syndrome
4 years ago
CBD and THC
I still use CBD and THC for pain it works really well HOWEVER the prescribing doctors don’t realise we need very specific plants or it can make it worse. I have been on Nanibis it works well for pain the doctor changed it to a brand called spectrum from Canada and it overrode my buprenorphine. I thought
I still use CBD and THC for pain it works really well HOWEVER the prescribing doctors don’t realise we need very specific plants or it can make it worse. I have been on Nanibis it works well for pain the doctor changed it to a brand called spectrum from Canada and it overrode my buprenorphine. I thought
Shumbah
in
Restless Legs Syndrome
4 years ago
Slow tapering
Can I ask you wonderful people your thoughts/advice about slow tapering please before I speak to my GP next week. Had a flare and been on 10mg of pred for 2 months. Started tapering as in Kate Gilberts book ie 10mg for 6 days, 9 mg for 1 day, then next week 10mgs for 5 days and 9 for 2 days until down
Can I ask you wonderful people your thoughts/advice about slow tapering please before I speak to my GP next week. Had a flare and been on 10mg of pred for 2 months. Started tapering as in Kate Gilberts book ie 10mg for 6 days, 9 mg for 1 day, then next week 10mgs for 5 days and 9 for 2 days until down
greengages
in
PMRGCAuk
4 years ago
A Message to ChrisWF and the Entire Forum
ChrisWF and all Forum Members, To be clear, I am one of the people who complained about two of your replies, because I felt you were using sarcasm and negativity with some posters because you did not like what they had to say when you could have just ignored them or made your point without the sarcasm
ChrisWF and all Forum Members, To be clear, I am one of the people who complained about two of your replies, because I felt you were using sarcasm and negativity with some posters because you did not like what they had to say when you could have just ignored them or made your point without the sarcasm
chartist
in
Cure Parkinson's
4 years ago
Knee pain
So, at work today I developed a bit of pain behind my knee- it also had a sense of numbness around it. Just got in with the day, but sitting in the sofa tonight, it’s been more painful, and it’s been difficult to bed without tight pain. I asked my daughter to look and she said there is a lump behind
So, at work today I developed a bit of pain behind my knee- it also had a sense of numbness around it. Just got in with the day, but sitting in the sofa tonight, it’s been more painful, and it’s been difficult to bed without tight pain. I asked my daughter to look and she said there is a lump behind
Eiram50
in
NRAS
4 years ago
Help!
Hi, I have been diagnosed with Pm scl 75. Is there anyone else with this? I know it’s an overlap syndrome so I have Raynaulds and Sjogrens, joint pain... I just had an abnormal ECG.. is this a feature of this syndrome or the medication that I am on? Due to COVID im waiting to see both a Rhem and Cardiologist
Hi, I have been diagnosed with Pm scl 75. Is there anyone else with this? I know it’s an overlap syndrome so I have Raynaulds and Sjogrens, joint pain... I just had an abnormal ECG.. is this a feature of this syndrome or the medication that I am on? Due to COVID im waiting to see both a Rhem and Cardiologist
Fizz14
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Restless leg relief ideas
Hi, I am 30 and very active. I wondered if anyone can give me any tips. I had restless leg on and off in the past but recently it’s been every evening and it’s preventing me going to sleep. I’m not sure if upping the dose of spirolactone for my skin has worsened it (50mg-100mg) which happened in the
Hi, I am 30 and very active. I wondered if anyone can give me any tips. I had restless leg on and off in the past but recently it’s been every evening and it’s preventing me going to sleep. I’m not sure if upping the dose of spirolactone for my skin has worsened it (50mg-100mg) which happened in the
Lucygittins90
in
Restless Legs Syndrome
4 years ago
Soothing Sore Bits!!
Currently 32 weeks pregnant and I’ve got quite sore lady bits, I thought it was possible a strange sort of chafing that I’d never had before as I’ve done a lot of walking this weekend, but I’ve just had a look in the mirror and I’m quite swollen down there, I’ve read about engorged swelling down below
Currently 32 weeks pregnant and I’ve got quite sore lady bits, I thought it was possible a strange sort of chafing that I’d never had before as I’ve done a lot of walking this weekend, but I’ve just had a look in the mirror and I’m quite swollen down there, I’ve read about engorged swelling down below
TheFarmersWife
in
Pregnancy and Parenting Support
4 years ago
Anyone over 43 had success here?
Is anyone 45 here and doing ivf? I just did ivf again this time my 10th attempt. I got 5 embryos and they put 3 in my uterus 2 days ago. Im on duphaston pills twice a day and crynone twice a day. I thought last time would be my last but i had to give it another shot. Anyone got any advice how to make
Is anyone 45 here and doing ivf? I just did ivf again this time my 10th attempt. I got 5 embryos and they put 3 in my uterus 2 days ago. Im on duphaston pills twice a day and crynone twice a day. I thought last time would be my last but i had to give it another shot. Anyone got any advice how to make
Iwantpregnancy
in
Fertility Network UK
4 years ago
Thank you
I have had RLS for 20 years - it is a scourge. I am consistently shocked at how cavalier the medical community is about it. Not to mention ignorant. I have resorted now to CBD/THC gummies to sleep but I live in California so that is an option. I also use Hylanda homeopathic remedy which does seem to
I have had RLS for 20 years - it is a scourge. I am consistently shocked at how cavalier the medical community is about it. Not to mention ignorant. I have resorted now to CBD/THC gummies to sleep but I live in California so that is an option. I also use Hylanda homeopathic remedy which does seem to
Maddiehb
in
Restless Legs Syndrome
4 years ago
Lip biopsy results
I recieved the results of my lip biopsy it shows features consistent with sjogren's but level of inflammation is low, with a focus score of 1.2.Any ideas anyone? I just want a diagnosis and some treatment
I recieved the results of my lip biopsy it shows features consistent with sjogren's but level of inflammation is low, with a focus score of 1.2.Any ideas anyone? I just want a diagnosis and some treatment
Kels1974
in
The Australian Sjögren's Syndrome Association
4 years ago
Lip biopsy result
I received the result of my lip biopsy, it says the biopsy shows features consistent with sjogren's but level of inflammation is low, with a focus score of 1.2.Any ideas anyone? I just want a diagnosis and some treatment.
I received the result of my lip biopsy, it says the biopsy shows features consistent with sjogren's but level of inflammation is low, with a focus score of 1.2.Any ideas anyone? I just want a diagnosis and some treatment.
Kels1974
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
burning legs/feeling extremely cold?
my legs currently feel like they’re burning/are freezing, i also have pins and needles. is this a part of RLS? also, would oxycodone help restlessness? or did it only help you guys with sleep/pain? respond ASAP please! i just want to take something to help this. percocet specifically, it’s Oxycodone/
my legs currently feel like they’re burning/are freezing, i also have pins and needles. is this a part of RLS? also, would oxycodone help restlessness? or did it only help you guys with sleep/pain? respond ASAP please! i just want to take something to help this. percocet specifically, it’s Oxycodone/
mmjxc
in
Restless Legs Syndrome
4 years ago
Curious about long time tic
Hi, for as long as i can remember ive always had this strange tic that it seems like no one else has. I get words, phrases, sometimes even songs, stuck in my head, either from hearing them, reading them, or saying them myself, and then will repeatedly mouth the words to myself inside my own mouth, silently
Hi, for as long as i can remember ive always had this strange tic that it seems like no one else has. I get words, phrases, sometimes even songs, stuck in my head, either from hearing them, reading them, or saying them myself, and then will repeatedly mouth the words to myself inside my own mouth, silently
Itsukori
in
Autism Support
4 years ago
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