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First time Ruxolitinib and what to make note of, from Vietnam - a case of interest/study
I am writing on behalf of my mother who was diagnosed with PV back in 2002. The symptoms started with her in 2001 but it took over 1 year for my mother to get to the right hospital, a specialized Hematologic hospital of the Ho Chi Minh City and she was put on HU since then, until recently, as a BMB showed
I am writing on behalf of my mother who was diagnosed with PV back in 2002. The symptoms started with her in 2001 but it took over 1 year for my mother to get to the right hospital, a specialized Hematologic hospital of the Ho Chi Minh City and she was put on HU since then, until recently, as a BMB showed
Cranston3x
in
MPN Voice
1 year ago
Taking so many drugs ...
Hi all - I posted on here recently as I had an asthma flare up whilst in India. Well, couldn't make it home without seeing a doctor š He said it was pollution induced and gave me a short course of methylprednisolone, omeprazole, anti histamines, cough medicine and antibiotics!!! He also said he couldn't
Hi all - I posted on here recently as I had an asthma flare up whilst in India. Well, couldn't make it home without seeing a doctor š He said it was pollution induced and gave me a short course of methylprednisolone, omeprazole, anti histamines, cough medicine and antibiotics!!! He also said he couldn't
Padders
in
Asthma Community Forum
8 months ago
Covid
I started to have cold symptoms a week ago and took a test which was negative. Felt like the worse cold ever - terrible muscle aches, cough and congestion. After a couple of days I realised I couldnāt smell anything . My daughter who is a nurse said it sounds like Covid so I tested again and this
I started to have cold symptoms a week ago and took a test which was negative. Felt like the worse cold ever - terrible muscle aches, cough and congestion. After a couple of days I realised I couldnāt smell anything . My daughter who is a nurse said it sounds like Covid so I tested again and this
Wesleygrange2a
in
MPN Voice
11 months ago
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myocarditis
I have long covid and for months Iāve suffered debilitating symptoms of arhythmia and breathlessness and exhaustion on exercise Finally after an MRI scan of heart I have been told I have myocarditis. Does anyone have experience of this being caused by covid? I donāt know how it can be treated but am
I have long covid and for months Iāve suffered debilitating symptoms of arhythmia and breathlessness and exhaustion on exercise Finally after an MRI scan of heart I have been told I have myocarditis. Does anyone have experience of this being caused by covid? I donāt know how it can be treated but am
Midnight2022
in
British Heart Foundation
1 year ago
Suspected Bechets - affecting me mentally & physically
Hello, So sorry for the long post! So my doctor believes I have Bechets and I am currently undergoing tests/waiting for results. I have suffered with horrendous mouth ulcers ever since I had glandular fever at the age of 19 (now 36), and after a couple of years back and forth to the doctors about it,
Hello, So sorry for the long post! So my doctor believes I have Bechets and I am currently undergoing tests/waiting for results. I have suffered with horrendous mouth ulcers ever since I had glandular fever at the age of 19 (now 36), and after a couple of years back and forth to the doctors about it,
TigerLily42
in
BehƧet's UK
6 months ago
Rotten Head cold
I have developed overnight the most rotten head cold .. Headache is really bad ..I know inside is all inflamed I can feel it ...eyes are running along with my nose ... We close the business on Friday till January 5th so a much needed break... So very tired and now this cold to boot ... I'm having a
I have developed overnight the most rotten head cold .. Headache is really bad ..I know inside is all inflamed I can feel it ...eyes are running along with my nose ... We close the business on Friday till January 5th so a much needed break... So very tired and now this cold to boot ... I'm having a
Blackbird8
in
Lung Conditions Community Forum
8 months ago
GP insisting on using CRP & ESR as inflammatory markers...and managing to get a creatine kinase blood test ordered...legs are still an issue
Hello I was called in to my GP surgery yesterday, by one of the GPs, the letter indicating it was for a medication review. She's not one of the GPs I prefer to see, she can be a little vague etc. But we ended up going through my meds and she asked about steroids being on my repeat....I said that although
Hello I was called in to my GP surgery yesterday, by one of the GPs, the letter indicating it was for a medication review. She's not one of the GPs I prefer to see, she can be a little vague etc. But we ended up going through my meds and she asked about steroids being on my repeat....I said that although
Wendy39
in
LUPUS UK
11 months ago
Probiotics
Hi I wondered if anyone has used the Inessa advanced biotic complex? i've read that bifidobacterium infantis is good for gas and bloating ( and i have alot of gas!) and the inessa probiotic contains it whereas the one i'm using at the moment which is Time health probiotic doesn't. If not does anyone
Hi I wondered if anyone has used the Inessa advanced biotic complex? i've read that bifidobacterium infantis is good for gas and bloating ( and i have alot of gas!) and the inessa probiotic contains it whereas the one i'm using at the moment which is Time health probiotic doesn't. If not does anyone
catpurple7
in
Thyroid UK
1 year ago
Not impressed
Decided to go through my medical notes such as they are, and blood tests again now I'm more sensible again. All hospital consultations are missed off and consequently diagnoses. Oh, and there is a gp consultation noted that never took place. Basically my notes appear to be a mess. What really
Decided to go through my medical notes such as they are, and blood tests again now I'm more sensible again. All hospital consultations are missed off and consequently diagnoses. Oh, and there is a gp consultation noted that never took place. Basically my notes appear to be a mess. What really
Wheat
in
Pernicious Anaemia Society
10 months ago
Common Cold and CLL? What does Immune Compromised actually mean?
So when one gets a "common cold," and has CLL progressing but still in W&W, should one expect to get a worse cold than one would've before the CLL took hold? In the 6 years since diagnosis with 13q/unmutated CLL, my numbers have been creeping up, with ALC recently topping at about 30K, and WBC just
So when one gets a "common cold," and has CLL progressing but still in W&W, should one expect to get a worse cold than one would've before the CLL took hold? In the 6 years since diagnosis with 13q/unmutated CLL, my numbers have been creeping up, with ALC recently topping at about 30K, and WBC just
lynnsb6754
in
CLL Support
8 months ago
Covid Recovery - Exhausted
Hi, I tested positive for Covid on July 15. Symptoms were mild at first, felt more like allergies. On July 15 I lost my sense of taste and smell, then the tightest in my chest and exhaustion hit. I took Paxlovid and have had a round of antibiotics and steroids to get rid of this virus, but itās
Hi, I tested positive for Covid on July 15. Symptoms were mild at first, felt more like allergies. On July 15 I lost my sense of taste and smell, then the tightest in my chest and exhaustion hit. I took Paxlovid and have had a round of antibiotics and steroids to get rid of this virus, but itās
Utballa
in
AF Association
1 year ago
Covid & Flu booster
Hello everyone I recently started on Benapali injectionsā¦.2nd one this week so obviously canāt tell if itās helping yet. So far only tiredness as side effect. Do I have to stop for 1 week before having the Covid and flu boosters ? Also I am due my second Shingles vaccination and trying to avoid
Hello everyone I recently started on Benapali injectionsā¦.2nd one this week so obviously canāt tell if itās helping yet. So far only tiredness as side effect. Do I have to stop for 1 week before having the Covid and flu boosters ? Also I am due my second Shingles vaccination and trying to avoid
K3-2
in
NRAS
11 months ago
Treating PVCS on a virtual ward
I have posted on here a number of times about the burden of persistent PVCs. Anyway, after 5 days of feeling very dizzy and nauseous, I went to see my GP. She sent me straight to my local hospital which is a big teaching hospital. I was seen in the Same Day Emergency Medicine unit who were thorough and
I have posted on here a number of times about the burden of persistent PVCs. Anyway, after 5 days of feeling very dizzy and nauseous, I went to see my GP. She sent me straight to my local hospital which is a big teaching hospital. I was seen in the Same Day Emergency Medicine unit who were thorough and
Norfolk_spaniel
in
AF Association
1 year ago
does half a mg make so much difference
about three weeks ago I started to feel the familiar aches associated with pmr. Prior to this I had dropped from 3.5 to 3. I contacted my rheumatologist department and had a blood test which showed cpr <5 cor but I had symptoms. Iāve arranged a further blood test next week and was advised to stay with
about three weeks ago I started to feel the familiar aches associated with pmr. Prior to this I had dropped from 3.5 to 3. I contacted my rheumatologist department and had a blood test which showed cpr <5 cor but I had symptoms. Iāve arranged a further blood test next week and was advised to stay with
Rosina1871
in
PMRGCAuk
1 year ago
cold/cough/flu symptoms on day of FET
Hi everyone, just had my 4th FET, no success so far but hoping my recent fallopian tube removal has done the trick and Iāll implant this time š¤ the annoying thing is after all the failed transfers and last one cancelled when they discovered liquid on my ovary leading to the laproscopy showing a blocked
Hi everyone, just had my 4th FET, no success so far but hoping my recent fallopian tube removal has done the trick and Iāll implant this time š¤ the annoying thing is after all the failed transfers and last one cancelled when they discovered liquid on my ovary leading to the laproscopy showing a blocked
ToffeeLou
in
Fertility Network UK
8 months ago
stopping warfarin
Hi, I am having a lumbar steroid injection for a slipped disc. the doctor performing it wants my my inr below 1.2. I attend Barnet hospital anticoagulation clinic in London. They told me the person performing the steroid injection must make a ā bridging plan ā, that may or may not involve heparin
Hi, I am having a lumbar steroid injection for a slipped disc. the doctor performing it wants my my inr below 1.2. I attend Barnet hospital anticoagulation clinic in London. They told me the person performing the steroid injection must make a ā bridging plan ā, that may or may not involve heparin
Kev667
in
Hughes Syndrome APS Forum
11 months ago
What preparation for my first FET and I have Lupus?
Hello ladies, I have been diagnosed with Lupus in Feb 2020 and I havenāt been well since I had the Pfizer booster injection Dec 2021 which caused tightness in my chest, feeling lightheaded and palpitations. 5 months later being triple vaccinated and I had Covid last year and it has triggered some
Hello ladies, I have been diagnosed with Lupus in Feb 2020 and I havenāt been well since I had the Pfizer booster injection Dec 2021 which caused tightness in my chest, feeling lightheaded and palpitations. 5 months later being triple vaccinated and I had Covid last year and it has triggered some
Sunflowers_2020
in
Fertility, Miscarriage & IVF Support
1 year ago
Been on the IC since April 24hā¦.bit fed up now!
Hi, I completed C25K a few years ago, and run regularly. I started having pain in both feet earlier this year, which felt like Plantar Fasciitis, which I had had very successful surgery for over 20 years ago! ( I must have been REALLY lucky with the results, as itās hardly done now, as itās not thought
Hi, I completed C25K a few years ago, and run regularly. I started having pain in both feet earlier this year, which felt like Plantar Fasciitis, which I had had very successful surgery for over 20 years ago! ( I must have been REALLY lucky with the results, as itās hardly done now, as itās not thought
Dansac29
Graduate
in
Couch to 5K
11 months ago
Infection without cough or fever?
Is it possible to have a chest infection without a cough or fever? I've just gotten over a cold (2nd one in a month) and again my asthma is flaring but I also feel uncomfortable/pain in the back of my lungs. I don't have a cough, but if I do, it's dry and kind of squeaks. š¤·š»āāļø
Is it possible to have a chest infection without a cough or fever? I've just gotten over a cold (2nd one in a month) and again my asthma is flaring but I also feel uncomfortable/pain in the back of my lungs. I don't have a cough, but if I do, it's dry and kind of squeaks. š¤·š»āāļø
-Butterfly-
in
Asthma Community Forum
8 months ago
More red spots on nails
Still don't know what these are. Anyone else get them?
Still don't know what these are. Anyone else get them?
Brychni
in
NRAS
8 months ago
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