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interstitial cystitis
Hi all So lovely to be part of this community I have had lots of very good advice over the years ! was just wondering does anyone suffer from this with IBS as it’s very difficult to decipher whether you have a kidney infection or this interstitial cystitis ! I have had several attacks over the last
Hi all So lovely to be part of this community I have had lots of very good advice over the years ! was just wondering does anyone suffer from this with IBS as it’s very difficult to decipher whether you have a kidney infection or this interstitial cystitis ! I have had several attacks over the last
Mascot68
in
IBS Network
2 months ago
Benepali and COVID booster
Hi. Trying to check the latest on having COVID booster and do I need to stop my Benepali jab? My appointment is later tomorrow, Tuesday 4pm. I had my last Benepali on Saturday.Can't get hold of Rheumy nurse. I've seen they now recommend stopping mtx for 2 weeks after the booster but wondered about Benepali
Hi. Trying to check the latest on having COVID booster and do I need to stop my Benepali jab? My appointment is later tomorrow, Tuesday 4pm. I had my last Benepali on Saturday.Can't get hold of Rheumy nurse. I've seen they now recommend stopping mtx for 2 weeks after the booster but wondered about Benepali
Haz58
in
NRAS
4 months ago
Blagging a scarce Covid booster
Recent posts have asked questions about Covid booster eligibility for those taking prednisolone and being immuno-suppressed, potentially.I flippantly replied to PMRPro recently that I would accept my invitation via the NHS messaging service, book an appointment with my local pharmacist and see if they
Recent posts have asked questions about Covid booster eligibility for those taking prednisolone and being immuno-suppressed, potentially.I flippantly replied to PMRPro recently that I would accept my invitation via the NHS messaging service, book an appointment with my local pharmacist and see if they
OldPenny
in
PMRGCAuk
4 months ago
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Progress at last
Haven’t posted for a long time. Some of you may know that after reaching my goal of a 10k continuous run I contracted COVID in September 2022. Diagnosed with Long Covid in December 2022, really struggled to even walk 400 yards but saw an improvement last Summer and got to Week 7 all be it very slowly
Haven’t posted for a long time. Some of you may know that after reaching my goal of a 10k continuous run I contracted COVID in September 2022. Diagnosed with Long Covid in December 2022, really struggled to even walk 400 yards but saw an improvement last Summer and got to Week 7 all be it very slowly
Phdgranny
Graduate
in
Couch to 5K
4 months ago
retinal bleed and Covid vaccination
good morning to all of you amazing members. I’m debating on getting my ninth Covid booster. Last fall I had a retinal bleed that occurred during a three week interval between eye examinations. There was quite the debate as to what caused the bleed I read an article from the NIH that discussed retinal
good morning to all of you amazing members. I’m debating on getting my ninth Covid booster. Last fall I had a retinal bleed that occurred during a three week interval between eye examinations. There was quite the debate as to what caused the bleed I read an article from the NIH that discussed retinal
skipro
in
CLL Support
4 months ago
Bevacizumab v Niraparib
I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after). I caught COVID towards the end of
I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with Bevacizumab as a maintenance treatment (I've had 3 rounds of it alongside chemo, 2 before the surgery and 1 after). I caught COVID towards the end of
LovemyJackRussell
in
My Ovacome
4 months ago
Covid-19 spring vaccination
what are peoples thoughts on the spring covid vaccination - to have or not to have?
what are peoples thoughts on the spring covid vaccination - to have or not to have?
Balletchick12
in
My Ovacome
4 months ago
Covid 19 and thyrotoxicosis
If my memory serves me right, there had been questions in the past about changes in thyroid levels after Covid 19. Today I found this publication, which talks about just that. Here is the link: https://www.liebertpub.com/doi/10.1089/thy.2023.0626#xd_co_f=ZDI1NTIxNTEtYzdiZi00ZDRiLWI2ZjAtYTVlYjk1YTdiY2M4
If my memory serves me right, there had been questions in the past about changes in thyroid levels after Covid 19. Today I found this publication, which talks about just that. Here is the link: https://www.liebertpub.com/doi/10.1089/thy.2023.0626#xd_co_f=ZDI1NTIxNTEtYzdiZi00ZDRiLWI2ZjAtYTVlYjk1YTdiY2M4
buddy99
in
Thyroid UK
4 months ago
Covid with FM and returning to work
Good morning, hope your all having a better day. I have Fibromyalgia and long Covid and want to return to work? I have been advised by employer I need to do a full week of at least three hours work on pc each day fully concentrating before my work will consider having me back on phased return. They
Good morning, hope your all having a better day. I have Fibromyalgia and long Covid and want to return to work? I have been advised by employer I need to do a full week of at least three hours work on pc each day fully concentrating before my work will consider having me back on phased return. They
Geeforce99
in
Fibromyalgia Action UK
4 months ago
Spring COVID Booster
Well, here we are again. I have just received an email from NHS regarding the spring booster for Covid which says that according to my medical records I may be immunosuppressed and if so am invited for a booster. My question is that at the dose of 3mg of Prednisolone that I’m now taking would I still
Well, here we are again. I have just received an email from NHS regarding the spring booster for Covid which says that according to my medical records I may be immunosuppressed and if so am invited for a booster. My question is that at the dose of 3mg of Prednisolone that I’m now taking would I still
Bayleaf1
in
PMRGCAuk
4 months ago
Having a STEMI in mid 40's...the search for underlying causes / answers for premature CHD.
Hi Everyone, My husband had a major STEMI in March 2023 with a full blockage of his circumflex artery. He was 44 years old and playing 5-a-side football in a local sports centre when he collapsed without warning. Thank goodness it happened there of all places however, as the swift actions of his team
Hi Everyone, My husband had a major STEMI in March 2023 with a full blockage of his circumflex artery. He was 44 years old and playing 5-a-side football in a local sports centre when he collapsed without warning. Thank goodness it happened there of all places however, as the swift actions of his team
Fortunate1
in
British Heart Foundation
4 months ago
Spring COVID vaccination
Hi all, I was told when I was diagnosed with PMR last year that the condition would mean I was immuno-suppressed. Consequently I thought I would be entitled to a free spring COVID jab which is being widely advertised now for over-75s (not me yet) and people with weakened immune systems (like me, I
Hi all, I was told when I was diagnosed with PMR last year that the condition would mean I was immuno-suppressed. Consequently I thought I would be entitled to a free spring COVID jab which is being widely advertised now for over-75s (not me yet) and people with weakened immune systems (like me, I
Hedgehogfriend
in
PMRGCAuk
4 months ago
COVID jab
Is anyone wary of having another COVID jab this spring after having A F after the jab.
Is anyone wary of having another COVID jab this spring after having A F after the jab.
Myflowers2
in
Atrial Fibrillation Support
4 months ago
Latest COVID jab.
Am in the early days of PMR and have just been notified I can get a free COVID.jab. I am a bit worried as the only other person I know who has PMR got it the day after a her jab along with diabetes. There is no rush but I wonder if you have any advice as it is a while until I see a doctor.
Am in the early days of PMR and have just been notified I can get a free COVID.jab. I am a bit worried as the only other person I know who has PMR got it the day after a her jab along with diabetes. There is no rush but I wonder if you have any advice as it is a while until I see a doctor.
tinlid
in
PMRGCAuk
4 months ago
Covid jab
I have been invited for a booster Covid jab. However I have seen that there is a connection between afib symptoms commencing after having a jab on a ,gov website. Has any one any experience of this?
I have been invited for a booster Covid jab. However I have seen that there is a connection between afib symptoms commencing after having a jab on a ,gov website. Has any one any experience of this?
Prawnsalad
in
Atrial Fibrillation Support
4 months ago
B-12 Def in Mexico (no health insurance)
Here is my (ongoing) thread to detail my B12 journey. Here goes! 2-3 years before diagnosis I began having the following symptoms. Numbness in toes which slowly spread to feet then ankles, then calves. A slow deterioration of muscle tone all over. Periods of intermittent dizziness/vertigo and fatigue
Here is my (ongoing) thread to detail my B12 journey. Here goes! 2-3 years before diagnosis I began having the following symptoms. Numbness in toes which slowly spread to feet then ankles, then calves. A slow deterioration of muscle tone all over. Periods of intermittent dizziness/vertigo and fatigue
GracePV
in
Pernicious Anaemia Society
4 months ago
People with hypothyroidism and ME
Those who suffer with both hypothyroidism and ME, do you find that your exhaustion is somewhat abated if your vitamins and minerals are optimal? I have posted previously about a friend who has had hypothyroidism for many years. But after contracting Covid she started to feel exhausted and eventually
Those who suffer with both hypothyroidism and ME, do you find that your exhaustion is somewhat abated if your vitamins and minerals are optimal? I have posted previously about a friend who has had hypothyroidism for many years. But after contracting Covid she started to feel exhausted and eventually
AnneEvo
in
Thyroid UK
4 months ago
Spring Covid booster
Have had text from my surgery offering me a Spring Booster for Covid. Have been on 4.5mg Prednisolone for a couple of months now. Would my immune system still be classed as compromised on such a low dose?
Have had text from my surgery offering me a Spring Booster for Covid. Have been on 4.5mg Prednisolone for a couple of months now. Would my immune system still be classed as compromised on such a low dose?
jaycee444
in
PMRGCAuk
4 months ago
Spring COVID Vaccine 2024 booster eligibility
Spring COVID Vaccine 2024 booster eligibility The government has announced a Spring 2024 dose of COVID-19 vaccine for: people aged 75 years and over those in care homes those with a weakened immune system (aged 6 months and over) https://www.vasculitis.org.uk/news/covid-boosters
Spring COVID Vaccine 2024 booster eligibility The government has announced a Spring 2024 dose of COVID-19 vaccine for: people aged 75 years and over those in care homes those with a weakened immune system (aged 6 months and over) https://www.vasculitis.org.uk/news/covid-boosters
Suzi70
Administrator
in
Vasculitis UK
4 months ago
Covid booster
Hi. I am travelling abroad to Asia at the end of April and have been trying to find out if I can get my Covid booster before I go. Gp not doing them. NHS website says booking service no longer available and no Clinics open. 119 recorded message says you can’t book through that line and hangs up. Both
Hi. I am travelling abroad to Asia at the end of April and have been trying to find out if I can get my Covid booster before I go. Gp not doing them. NHS website says booking service no longer available and no Clinics open. 119 recorded message says you can’t book through that line and hangs up. Both
grumpygirl
in
NRAS
4 months ago
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