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From a Carer’s Perspective
hello to all in the oesophageal cancer community. not necessarily a community that anyone would particularly choose to be in but also comforting to know others are in the same situation. my husband was diagnosed with stage 2 OG in September 2023. he has had four chemo sessions and is due to have surgery
hello to all in the oesophageal cancer community. not necessarily a community that anyone would particularly choose to be in but also comforting to know others are in the same situation. my husband was diagnosed with stage 2 OG in September 2023. he has had four chemo sessions and is due to have surgery
harveydylan
in
Oesophageal & Gastric Cancer
5 months ago
Goods news
3 months ago I was informed of a new suspicious nodule in my left lung. Since then I have lived a mental nightmare knowing that its growth on the next scan would mean another cancer or more likely and worst, the distant recurrence of my first lung cancer (resected with my right lower lobe in April
3 months ago I was informed of a new suspicious nodule in my left lung. Since then I have lived a mental nightmare knowing that its growth on the next scan would mean another cancer or more likely and worst, the distant recurrence of my first lung cancer (resected with my right lower lobe in April
Bibicata
in
The Roy Castle Lung Cancer Foundation
5 months ago
PSMA/PET SCAN methodology
I'm having PSMA next week and am confused a little about the equipment used. In all my reading about the test, a CT or MRI is used in conjunction with the PSMA Pet, When I looked at my upcoming test on the portal it says PET SKULLBASE TO MIDTHIGH NOPR SUBSEQUENT. That tells me it's a PET Scan and
I'm having PSMA next week and am confused a little about the equipment used. In all my reading about the test, a CT or MRI is used in conjunction with the PSMA Pet, When I looked at my upcoming test on the portal it says PET SKULLBASE TO MIDTHIGH NOPR SUBSEQUENT. That tells me it's a PET Scan and
hwrjr
in
Prostate Cancer Network
6 months ago
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I was diagnosed in July with stage 4 endo/adeno, bilateral endometriomas and a frozen pelvis, large ovarian cysts, enlarged falopian tubes following MRI and various ultrasounds. I have been on prostrop since, while on the waiting list for surgery. Last month I received a call from the endo nurse saying
I was diagnosed in July with stage 4 endo/adeno, bilateral endometriomas and a frozen pelvis, large ovarian cysts, enlarged falopian tubes following MRI and various ultrasounds. I have been on prostrop since, while on the waiting list for surgery. Last month I received a call from the endo nurse saying
EvilEdna77
in
Endometriosis UK
6 months ago
2nd recurrence
Hi Ladies as you know I have already posted that I have started treatment for a 2nd recurrence of my Stage 2 OC. I was diagnosed in 2021 and had surgery and 6 cycles of successful Chemo. I started to feel unwell around October time with upper right back pain. CT and MRI were clear. CA125 did start
Hi Ladies as you know I have already posted that I have started treatment for a 2nd recurrence of my Stage 2 OC. I was diagnosed in 2021 and had surgery and 6 cycles of successful Chemo. I started to feel unwell around October time with upper right back pain. CT and MRI were clear. CA125 did start
Hota
in
My Ovacome
6 months ago
Mucus back again
Hi all. As some may remember I suffer from ongoing mucus discharge from rectum. I had a colonoscopy done year and 3/4 ago and clear. All tests.I went gluten dairy free. It worked and did stop it happening everyday but for some weird reason past 3 weeks I've had all my symtoms back again with vengeance
Hi all. As some may remember I suffer from ongoing mucus discharge from rectum. I had a colonoscopy done year and 3/4 ago and clear. All tests.I went gluten dairy free. It worked and did stop it happening everyday but for some weird reason past 3 weeks I've had all my symtoms back again with vengeance
mal444
in
IBS Network
4 months ago
Treatment going forward
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
good2go
in
Advanced Prostate Cancer
6 months ago
A potential game-changer for CAR T cell therapy: mutations in cancer engineered to beat cancer
CAR T therapy has been successful in some acute blood cancers. Response rates, however, are considerably lower in CLL and solid tumours, with T cell exhaustion and antigen escape being shared issues. A potentially game-changing advance in solid tumour CAR T technology may therefore be relevant to CAR
CAR T therapy has been successful in some acute blood cancers. Response rates, however, are considerably lower in CLL and solid tumours, with T cell exhaustion and antigen escape being shared issues. A potentially game-changing advance in solid tumour CAR T technology may therefore be relevant to CAR
bennevisplace
in
CLL Support
6 months ago
Another Lu-177 solution gets fast tracked: Lu-177-DGUL, secures 'GIFT' designation
"On Monday, the Ministry of Food and Drug Safety (MFDS) designated Lu-177-DGUL as the 11th agent to benefit from its “Global Innovative Products on Fast Track” (GIFT) program, signifying a significant milestone in the quest to offer a beacon of hope for prostate cancer patients who currently have limited
"On Monday, the Ministry of Food and Drug Safety (MFDS) designated Lu-177-DGUL as the 11th agent to benefit from its “Global Innovative Products on Fast Track” (GIFT) program, signifying a significant milestone in the quest to offer a beacon of hope for prostate cancer patients who currently have limited
Maxone73
in
Advanced Prostate Cancer
6 months ago
Ibrance/Letrozole Fail
Been through the wringer and back over the past month. Scans showed progression. Had bone only mets and now showing inflammation in my lungs. Had more scans and genomic testing for mutations and it turns out I have no mutations that have been studied yet. My oncologist is putting me on Xeloda and says
Been through the wringer and back over the past month. Scans showed progression. Had bone only mets and now showing inflammation in my lungs. Had more scans and genomic testing for mutations and it turns out I have no mutations that have been studied yet. My oncologist is putting me on Xeloda and says
CTGirl1962
in
SHARE Metastatic Breast Cancer
6 months ago
liver concerns
I had clear cell ovarian cancer and had debulking surgery and hysterectomy a year ago. I recently had sudden right side and back pain and had a scan with blood work. Everything came out ok except my liver numbers (ast and alt) were super high. Could this indicate the start of a reoccurrence? Has
I had clear cell ovarian cancer and had debulking surgery and hysterectomy a year ago. I recently had sudden right side and back pain and had a scan with blood work. Everything came out ok except my liver numbers (ast and alt) were super high. Could this indicate the start of a reoccurrence? Has
Marieck
in
My Ovacome
6 months ago
low hemoglobin
my dad has a hemoglobin of 10. He has been dizzy, and had a rash(Unclear if the two are related- - PCP said possibly ). Also low appetite. Just completed radiation Jan 3 and started the Lupron end of November. Radiation was done to prostate and to met on hip bone. Anyone have insight into what
my dad has a hemoglobin of 10. He has been dizzy, and had a rash(Unclear if the two are related- - PCP said possibly ). Also low appetite. Just completed radiation Jan 3 and started the Lupron end of November. Radiation was done to prostate and to met on hip bone. Anyone have insight into what
alysona828
in
Advanced Prostate Cancer
6 months ago
Hello
Hi everyone, I've been Stage IV mbc since December 2019, on Ibrance / Letrozole but now facing a change. Those drugs (with some off label drugs and naturopathic treatments/supplements) kept me stable for nearly 4 years. Now some update on my left femur, sternum and new tumors in my liver. Curious
Hi everyone, I've been Stage IV mbc since December 2019, on Ibrance / Letrozole but now facing a change. Those drugs (with some off label drugs and naturopathic treatments/supplements) kept me stable for nearly 4 years. Now some update on my left femur, sternum and new tumors in my liver. Curious
Bella_mum
in
SHARE Metastatic Breast Cancer
6 months ago
Health anxiety... bloating, diarrhea, etc.
I have aalways sufferred from digestive problems, constipation, bloating, etc... and also I was diagnosed 15 years ago with general anxiety disorder. Recently, two weeks ago, I started with diarrhea and bloating, I just thought it to be another of the many indigestions I get, but it's been two weeks
I have aalways sufferred from digestive problems, constipation, bloating, etc... and also I was diagnosed 15 years ago with general anxiety disorder. Recently, two weeks ago, I started with diarrhea and bloating, I just thought it to be another of the many indigestions I get, but it's been two weeks
munrapz
in
Anxiety Support
4 hours ago
Just received my blood test results
TSH 4.6 mIU/L (0.27 - 4.2) FT3 3.7 pmol/L (3.1 - 6.8) FT4 14.1 pmol/L (12 - 22) THYROGLOBULIN ANTIBODIES 16.3 kIU/L (0 - 115) THYROID PEROXIDASE ANTIBODIES 10.1 kIU/L (0 - 34 ) FOLATE 9.3 nmol/L ( > 7) VITAMIN B12 - ACTIVE >150 pmol/L (
TSH 4.6 mIU/L (0.27 - 4.2) FT3 3.7 pmol/L (3.1 - 6.8) FT4 14.1 pmol/L (12 - 22) THYROGLOBULIN ANTIBODIES 16.3 kIU/L (0 - 115) THYROID PEROXIDASE ANTIBODIES 10.1 kIU/L (0 - 34 ) FOLATE 9.3 nmol/L ( > 7) VITAMIN B12 - ACTIVE >150 pmol/L (
diamondgirl902
in
Thyroid UK
3 hours ago
Bloating, diarrhea, and general body ache.
I have aalways sufferred from digestive problems, constipation, bloating, etc... and also I was diagnosed 15 years ago with general anxiety disorder. Recently, two weeks ago, I started with diarrhea and bloating, I just thought it to be another of the many indigestions I get, but it's been two weeks
I have aalways sufferred from digestive problems, constipation, bloating, etc... and also I was diagnosed 15 years ago with general anxiety disorder. Recently, two weeks ago, I started with diarrhea and bloating, I just thought it to be another of the many indigestions I get, but it's been two weeks
munrapz
in
IBS Network
4 hours ago
pelvic varices
hi. I’m a 62 year old of 5 children. After 7 months of trying to find the reason for my sudden pain and bloating I was told I had large volume pelvic varices which showed on both MRI and CT scan which I had done privately as NHS were done with me after 2 ultrasounds and CA125 tests came back clear. I
hi. I’m a 62 year old of 5 children. After 7 months of trying to find the reason for my sudden pain and bloating I was told I had large volume pelvic varices which showed on both MRI and CT scan which I had done privately as NHS were done with me after 2 ultrasounds and CA125 tests came back clear. I
MillieEllie
in
Pelvic Pain Support Network
7 hours ago
Salad - Good apparantly
I have IBS for years and its been behaving recently and an IBD. I have noticed in the last 6 months or more I am bloated from a basic salad, containing tomatoes, cucumber, peppers and lettace or spinach with chicken or chickpeas (home cooked). Has anyone else had any irritation from salad before?
I have IBS for years and its been behaving recently and an IBD. I have noticed in the last 6 months or more I am bloated from a basic salad, containing tomatoes, cucumber, peppers and lettace or spinach with chicken or chickpeas (home cooked). Has anyone else had any irritation from salad before?
AGB111
in
IBS Network
1 day ago
Shocking story about women dying of CRF/ME
Did anyone read about the women who died from CFS/ME? https://news.sky.com/story/woman-with-me-died-after-begging-gp-for-help-inquest-told-13183530 Why didn't anyone try B12 and see if it could help her? If you look online there is masses of information about how B12 can help CFS/ME. For example
Did anyone read about the women who died from CFS/ME? https://news.sky.com/story/woman-with-me-died-after-begging-gp-for-help-inquest-told-13183530 Why didn't anyone try B12 and see if it could help her? If you look online there is masses of information about how B12 can help CFS/ME. For example
charks
in
Pernicious Anaemia Society
1 day ago
Gastritis and B12 deficiency
Good morning all you lovely people. Does anybody have gastritis as their root cause of B12D? I was hospitalised in 2009 with gastritis and I now believe that this was the beginning of my problems, with a Naproxen prescription and high stress levels in 2023 really exacerbating things in my stomach to
Good morning all you lovely people. Does anybody have gastritis as their root cause of B12D? I was hospitalised in 2009 with gastritis and I now believe that this was the beginning of my problems, with a Naproxen prescription and high stress levels in 2023 really exacerbating things in my stomach to
ClaireWF1346
in
Pernicious Anaemia Society
2 days ago
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