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V + O for R/R CLL post FCR
I sent this to skyshark based on some info he posted but I was[u] hoping for the whole group to chime in.[/u] I had 3 rounds of FCR in 2018 stopped because of profound neutropenia. I relapsed exactly 2 years later and though I did not start Tx until the 5 year point in 2023, would have gladly started
I sent this to skyshark based on some info he posted but I was[u] hoping for the whole group to chime in.[/u] I had 3 rounds of FCR in 2018 stopped because of profound neutropenia. I relapsed exactly 2 years later and though I did not start Tx until the 5 year point in 2023, would have gladly started
skipro
in
CLL Support
2 months ago
Panic disorder
suffering from panic disorder for long time. day's ago decided to face my fear . It's make me anxious all the time with less physical symptom . Any suggestions?
suffering from panic disorder for long time. day's ago decided to face my fear . It's make me anxious all the time with less physical symptom . Any suggestions?
Jahid9912
in
Anxiety and Depression Support
2 months ago
Final Path Report After RALP (Dad - 74, G7- 4+3) , what’s next ?
Hi All, I had posted about a month ago about my dad with G7 - 4+ 3. We originally thought there were bone Mets but it just turned out to be another bone anomaly identified in the PSMA PET scan. We went ahead with RALP and have shared the final path report here. While the MRI showed no signs of
Hi All, I had posted about a month ago about my dad with G7 - 4+ 3. We originally thought there were bone Mets but it just turned out to be another bone anomaly identified in the PSMA PET scan. We went ahead with RALP and have shared the final path report here. While the MRI showed no signs of
EzioAudi7
in
Advanced Prostate Cancer
8 months ago
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Having a mild pain where the surgery was done before 5 years
Hi, my surgery was done in 2018 and the surgeon removed maximum of my tumor. 5% of tumor was still left and because of that they keep a check on it with regular yearly MRI scans.This year I had my MRI scan done and the results were normal. But now suddenly today I am having external pain where the surgery
Hi, my surgery was done in 2018 and the surgeon removed maximum of my tumor. 5% of tumor was still left and because of that they keep a check on it with regular yearly MRI scans.This year I had my MRI scan done and the results were normal. But now suddenly today I am having external pain where the surgery
Frooti
in
Acoustic Neuroma Support
8 months ago
Colpermin
what’s your opinion on Peppermint Oil Capsules against Buscopan Undecided on Buscopan, got a recent flare up after a break of a couple of month Sure it’s stress related
what’s your opinion on Peppermint Oil Capsules against Buscopan Undecided on Buscopan, got a recent flare up after a break of a couple of month Sure it’s stress related
Almostthere12
in
IBS Network
2 months ago
Brachytherapy and blocked urethra
Had brachytherapy two weeks ago. Was told everything went fine. Over next three days urinination became progressively more difficult and eventually had to go to ER (weekend) to get catheter inserted. Was told that this might happen but that after a period on catheter all should be fine. 10 days later
Had brachytherapy two weeks ago. Was told everything went fine. Over next three days urinination became progressively more difficult and eventually had to go to ER (weekend) to get catheter inserted. Was told that this might happen but that after a period on catheter all should be fine. 10 days later
Scorpio53
in
Prostate Cancer Network
8 months ago
Clinic update
Very frustrated today, been to clinic hoping to find out about my cancer etc. No have to have biopsy re done as they ran out of tissue to test for my previous cancer. Has such a traumatic time on last biopsy that I can't face it again. I have opted for a scope but told it is 50/50 whether it will get
Very frustrated today, been to clinic hoping to find out about my cancer etc. No have to have biopsy re done as they ran out of tissue to test for my previous cancer. Has such a traumatic time on last biopsy that I can't face it again. I have opted for a scope but told it is 50/50 whether it will get
Mindini1964
in
The Roy Castle Lung Cancer Foundation
8 months ago
Enlarged Postrate
I was having problems weeing. My flow was awful and took ages just to do a dribble and so often as well. I had to sit on loo, because with all the straining I often pooped aswell. Desperate to pee, and if I didn't get to the loo in time I couldn't hold it back. I saw my doctor and had cancer test which
I was having problems weeing. My flow was awful and took ages just to do a dribble and so often as well. I had to sit on loo, because with all the straining I often pooped aswell. Desperate to pee, and if I didn't get to the loo in time I couldn't hold it back. I saw my doctor and had cancer test which
Sooty70
in
Men's Health Forum
8 months ago
Bile Acid Diarrhoea
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
Whitesugar
in
IBS Network
6 months ago
Rosacea due to B12 deficiency?
Hi, I have been diagnosed with vitamin b12 deficiency and starting the loading doses after firstly being prescribed oral. I had felt unwell for at least a year and had lots of the usual symptoms but I developed a rare form of rosacea (rosacea fulminans) at the end of last year which the GPs had not ever
Hi, I have been diagnosed with vitamin b12 deficiency and starting the loading doses after firstly being prescribed oral. I had felt unwell for at least a year and had lots of the usual symptoms but I developed a rare form of rosacea (rosacea fulminans) at the end of last year which the GPs had not ever
Bebe74
in
Pernicious Anaemia Society
6 months ago
everything feels weird
hi, I had a panic attack February last year and I’ve never been the same since. I’m now struggling with depression and anxiety , everyday feels a struggle to get through. Everything looks and feels totally different from what it was like before the panic attack and I am constantly thinking about it.
hi, I had a panic attack February last year and I’ve never been the same since. I’m now struggling with depression and anxiety , everyday feels a struggle to get through. Everything looks and feels totally different from what it was like before the panic attack and I am constantly thinking about it.
Lgns
in
Anxiety and Depression Support
2 months ago
for our 'newest' members....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
STAGE 1C1 Grade 2
Hello again everyone Hope you’re all keeping well 😊 I did a reply to my original post a while back but thought I’d give another update I have decided for the one agent only Carboplatin had my first dose yesterday and touch wood feeling ok so far. Thanks for all your replies. The only reason I
Hello again everyone Hope you’re all keeping well 😊 I did a reply to my original post a while back but thought I’d give another update I have decided for the one agent only Carboplatin had my first dose yesterday and touch wood feeling ok so far. Thanks for all your replies. The only reason I
Kscott10
in
My Ovacome
8 months ago
Disability information
Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver secretes bile, a bodily fluid that is essential for the body to digest fats. It also helps the body to rid itself of toxic substances, cholesterol, and worn-out red blood cells. The ducts that release bile can become damaged
Biliary CirrhosisPrimary Biliary Cirrhosis – Condition and Symptoms The liver secretes bile, a bodily fluid that is essential for the body to digest fats. It also helps the body to rid itself of toxic substances, cholesterol, and worn-out red blood cells. The ducts that release bile can become damaged
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Cotreatment with dichloroacetate and omeprazole exhibits a synergistic antiproliferative effect on malignant tumors
As a follow up to my last post I found this on DCA / Omeprazole. like myself,please treat this as information , not promoting any treatments. For me I find reading and learning about my cancer and possible treatments to be uplifting and gives me hope. To be honest something I never get from my doctor
As a follow up to my last post I found this on DCA / Omeprazole. like myself,please treat this as information , not promoting any treatments. For me I find reading and learning about my cancer and possible treatments to be uplifting and gives me hope. To be honest something I never get from my doctor
85745
in
Advanced Prostate Cancer
7 months ago
Detection of Small Cell Prostate Cancer
I understand Small Cell Prostate Cancer (SCPC) may produce less PSA. How do you detect SCPC? Is it detectable by PSMA PET/CT scan?
I understand Small Cell Prostate Cancer (SCPC) may produce less PSA. How do you detect SCPC? Is it detectable by PSMA PET/CT scan?
dac500
in
Advanced Prostate Cancer
8 months ago
double up
I have now seen a Gp re the bleeding piles and she’s confirmed they look sore I can confirm they feel sore I was incredibly anxious waiting to go into see her but calmed down a bit now I’am home so my question is doctor has now doubled up my fybogel to 2 a day that would help on days when I’am constipated
I have now seen a Gp re the bleeding piles and she’s confirmed they look sore I can confirm they feel sore I was incredibly anxious waiting to go into see her but calmed down a bit now I’am home so my question is doctor has now doubled up my fybogel to 2 a day that would help on days when I’am constipated
Poppyseed8
in
IBS Network
6 months ago
Latest vitamin and iron test results following last post.
Vitamin D 80.3 nmol/L (50-150) Folic Acid 12.3 ug/L (>2.7) Iron 21 umol/L (9-30) Transferrin 2.1 g/L 1 (1.7-3.4g/L) Transferrin Saturation 38% (16-55%) Ferretin 143 ug/L (20-300) Vitamin B12 873 ng/L (160-800) Advice as always appreciated. Thank you.
Vitamin D 80.3 nmol/L (50-150) Folic Acid 12.3 ug/L (>2.7) Iron 21 umol/L (9-30) Transferrin 2.1 g/L 1 (1.7-3.4g/L) Transferrin Saturation 38% (16-55%) Ferretin 143 ug/L (20-300) Vitamin B12 873 ng/L (160-800) Advice as always appreciated. Thank you.
Pawsedagain
in
Thyroid UK
6 months ago
Finding strength to keep going
hi guys. This is my first post on here and am brand new to the site. I have had severe anxiety and panic disorder my entire life and it has essentially controlled my life. Every single day, I battle against it all to just even live, let alone enjoy myself. I have come a long way since I was little
hi guys. This is my first post on here and am brand new to the site. I have had severe anxiety and panic disorder my entire life and it has essentially controlled my life. Every single day, I battle against it all to just even live, let alone enjoy myself. I have come a long way since I was little
NurturingNature
in
Anxiety and Depression Support
2 months ago
Prostate cancer treatment and IBS
Dear Friends and Sufferers! I've been diagnosed with prostate cancer and have the option of removing the prostate or radiotherapy with or without hormone treatment. Can anyone out there who has experience of these offer advise on their impact on IBS and bowel function? At the moment, I've got IBS looseness
Dear Friends and Sufferers! I've been diagnosed with prostate cancer and have the option of removing the prostate or radiotherapy with or without hormone treatment. Can anyone out there who has experience of these offer advise on their impact on IBS and bowel function? At the moment, I've got IBS looseness
merve1
in
IBS Network
8 months ago
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