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Hearing loss.
Has anyone had hearing loss since being diagnosed with hashimotos . A recent hearing test has reported 50 % hearing loss in both ears .
Has anyone had hearing loss since being diagnosed with hashimotos . A recent hearing test has reported 50 % hearing loss in both ears .
hjane
in
Thyroid UK
10 years ago
Can I still use this site ?
Well saw my Rumey con today left in tears the second time in 2 visit ,he told me I don't have lupus even though he told me last august that I had lupus antibodies in my blood , and gave me info on it and told me to read it ! So today my breathlessness when I try do anything is hyperventaling , my lung
Well saw my Rumey con today left in tears the second time in 2 visit ,he told me I don't have lupus even though he told me last august that I had lupus antibodies in my blood , and gave me info on it and told me to read it ! So today my breathlessness when I try do anything is hyperventaling , my lung
Shadows-walker
in
LUPUS UK
10 years ago
Warfarin not in range so on it plus Heparin. Joints in hands and wrist, knees and one heel painful - why?
This means I have to inject
Heparin
(well family do as I can't stand needles) until it goes above 2. I have noticed my joints are really aching which they don't do when Warfarin is at the top of my range 3-3.5, does this mean that
Heparin
doesn't work for me?
This means I have to inject
Heparin
(well family do as I can't stand needles) until it goes above 2. I have noticed my joints are really aching which they don't do when Warfarin is at the top of my range 3-3.5, does this mean that
Heparin
doesn't work for me?
Elaine77c
in
Hughes Syndrome APS Forum
10 years ago
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Oil Pulling. Does anyone Oil Pull?
I was on
heparin
during my pregnancy but now I only take aspirin. It was strange the first few times. I pull when I wake up & get ready by the time I'm done my shower & dressed the 20min is up. I was wondering if anyone else does it or has tried & if it helped with any APS symptoms?
I was on
heparin
during my pregnancy but now I only take aspirin. It was strange the first few times. I pull when I wake up & get ready by the time I'm done my shower & dressed the 20min is up. I was wondering if anyone else does it or has tried & if it helped with any APS symptoms?
SassyOne
in
Hughes Syndrome APS Forum
10 years ago
ear problems and spinning
woke up this morning with the usual pressure in the ears......but when I tried to stand my balance was distinctl dodgy! Had a consultation at the surgery and Doc said it often goes with thyroid probs.....so....another blood test + hearing test. Anyone had similar......he's given me stemetil to take for
woke up this morning with the usual pressure in the ears......but when I tried to stand my balance was distinctl dodgy! Had a consultation at the surgery and Doc said it often goes with thyroid probs.....so....another blood test + hearing test. Anyone had similar......he's given me stemetil to take for
dogtired
in
Thyroid UK
10 years ago
Professor Graham Hughes' BLOG February 2014 via London Lupus Centre
When these choices don’t succeed, the next choice is a ‘big leap’ – to
heparin
or warfarin.
Heparin
(low molecular weight (LMW)
heparin
– not the ‘old’
heparin
formula), is of course limited as it can only be given by injection.
When these choices don’t succeed, the next choice is a ‘big leap’ – to
heparin
or warfarin.
Heparin
(low molecular weight (LMW)
heparin
– not the ‘old’
heparin
formula), is of course limited as it can only be given by injection.
MaryF
Administrator
in
Hughes Syndrome APS Forum
10 years ago
Recommending a specialist
I'm currently 22 weeks pregnancy on aspirin and
heparin
. He was fantastic, the most knowledgeable consultant I've seen to date.
I'm currently 22 weeks pregnancy on aspirin and
heparin
. He was fantastic, the most knowledgeable consultant I've seen to date.
Hopingforababy
in
Hughes Syndrome APS Forum
10 years ago
Is breathlessness a symptom of APS?
I'm on aspirin and
heparin
injections for about a week now, I still feel breathless but I feel as though it's improved a little bit. Just wondering if anyone else had this?
I'm on aspirin and
heparin
injections for about a week now, I still feel breathless but I feel as though it's improved a little bit. Just wondering if anyone else had this?
kateg84
in
Hughes Syndrome APS Forum
10 years ago
I am on long term rivaroxyban (for recurrent P Es). I now need to have major surgery. What advice has anyone been given about stopping
I react badly to Warfarin but would be happy to use
heparin
temporally.
I react badly to Warfarin but would be happy to use
heparin
temporally.
Wagnerm
in
Anticoagulation Support
10 years ago
pregnant and just diagnosed with aps
told me that they normally do 3 blood tests all 12 weeks apart and it's not considered positive unless 2 out of 3 are positive but that given the fact that I am already 9 weeks pregnant and given my previous history they are taking it as a definite positive and treating me with 75mg aspirin and 0.45ml
heparin
told me that they normally do 3 blood tests all 12 weeks apart and it's not considered positive unless 2 out of 3 are positive but that given the fact that I am already 9 weeks pregnant and given my previous history they are taking it as a definite positive and treating me with 75mg aspirin and 0.45ml
heparin
kateg84
in
Hughes Syndrome APS Forum
10 years ago
Oxfordshire based patients
Already has a plan B if plan A fails including a
heparin
trial. Couldnt be more thrilled. And I am sero neg APL, sero neg Lupus. He also assured me that my Lupus is not 'mild' as described by original diagnosis. I have bilateral AVN, which in his words cannot be deemed mild :)
Already has a plan B if plan A fails including a
heparin
trial. Couldnt be more thrilled. And I am sero neg APL, sero neg Lupus. He also assured me that my Lupus is not 'mild' as described by original diagnosis. I have bilateral AVN, which in his words cannot be deemed mild :)
loublou
in
LUPUS UK
10 years ago
Pregnancy and cervical stitch
The doctor tells me that
heparin
and aspirin will not be totally out of my system and still thin my blood a little and the aim is to begin again on day 3. Has anyone any advice/been through this?
The doctor tells me that
heparin
and aspirin will not be totally out of my system and still thin my blood a little and the aim is to begin again on day 3. Has anyone any advice/been through this?
starships
in
Hughes Syndrome APS Forum
10 years ago
Good news for once!
I booked a hearing test on tuesday because iv`e been concerned about my hearing as a result of missing what people are saying on tv now & again. I had the test today, & the results were exellent according to the woman who did the test. She said my hearing was at the top range for someone of my age, which
I booked a hearing test on tuesday because iv`e been concerned about my hearing as a result of missing what people are saying on tv now & again. I had the test today, & the results were exellent according to the woman who did the test. She said my hearing was at the top range for someone of my age, which
hairyfairy
in
Anxiety Support
10 years ago
Can't win!!
They were very impressed with the hospital where I had the surgery as they routinely give a
heparin
injection before major surgery. I've already had one 12 years a go as well as a subarrachnoid haemorrhage!
They were very impressed with the hospital where I had the surgery as they routinely give a
heparin
injection before major surgery. I've already had one 12 years a go as well as a subarrachnoid haemorrhage!
Hidden
in
NRAS
10 years ago
Could I have Hughes Syndrome?
Maybe I should just believe the doc, but my reaction to aspirin and
heparin
, really have me wondering. Sorry for the length of this, and if you have read it many thanks.
Maybe I should just believe the doc, but my reaction to aspirin and
heparin
, really have me wondering. Sorry for the length of this, and if you have read it many thanks.
AnnNY
in
Hughes Syndrome APS Forum
10 years ago
Differences between LMWHeparin and Warfarin, how they work, side effects and suitability.
If you have then I believe the common treatment is warfarin however some take
Heparin
. Is this down to patient choice initially and then reviewed or maybe 'see how it goes' or is it specifically one or the other for each patient.
If you have then I believe the common treatment is warfarin however some take
Heparin
. Is this down to patient choice initially and then reviewed or maybe 'see how it goes' or is it specifically one or the other for each patient.
jp83
in
Hughes Syndrome APS Forum
10 years ago
After 4 years of good health - with warfarin and having stopped smoking, I am devastated to have suffered a mild TIA this week. Why?
Does anything help alongside meds - I am now back on
heparin
until my INR levels reach 2.5. So frustrating but lucky to get fab care at RIE. Any advice gratefully received ?
Does anything help alongside meds - I am now back on
heparin
until my INR levels reach 2.5. So frustrating but lucky to get fab care at RIE. Any advice gratefully received ?
Edinburgh
in
Hughes Syndrome APS Forum
10 years ago
Professor Graham Hughes' - February 2014 - Monthly Blog
Mrs O.L. was started on aspirin with some improvement, and later with
heparin
, and finally with warfarin. All her symptoms, including chest pain and migraine have disappeared. Also improved are the tummy pains and balance problems. Mrs O.L’s verdict: “I have my life back”.
Mrs O.L. was started on aspirin with some improvement, and later with
heparin
, and finally with warfarin. All her symptoms, including chest pain and migraine have disappeared. Also improved are the tummy pains and balance problems. Mrs O.L’s verdict: “I have my life back”.
MaryF
Administrator
in
Hughes Syndrome APS Forum
10 years ago
Pregnancy, APS, medications- how can you manage them all?
Last Sept I fell pregnant (planned) and as per my local specialists advice, was put on Tinzaparin (
Heparin
) injections and low dose Aspirin. Unfortunately I suffered a miscarriage in January (18weeks). All signs are now pointing to the APS and I am awaiting a referral to London (St Thomas).
Last Sept I fell pregnant (planned) and as per my local specialists advice, was put on Tinzaparin (
Heparin
) injections and low dose Aspirin. Unfortunately I suffered a miscarriage in January (18weeks). All signs are now pointing to the APS and I am awaiting a referral to London (St Thomas).
LadyWest
in
Hughes Syndrome APS Forum
10 years ago
Do GP's deal with your prescription and treatment once you have a diagnosis?
In a hypothetical way, say if I'm diagnosed, I presume I can see Dr Khamashta at regular intervals for check ups at my own cost but in regards to getting/accessing warfarin/
heparin
etc how does it work?
In a hypothetical way, say if I'm diagnosed, I presume I can see Dr Khamashta at regular intervals for check ups at my own cost but in regards to getting/accessing warfarin/
heparin
etc how does it work?
jp83
in
Hughes Syndrome APS Forum
10 years ago
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