Well saw my Rumey con today left in tears the second time in 2 visit ,he told me I don't have lupus even though he told me last august that I had lupus antibodies in my blood , and gave me info on it and told me to read it ! So today my breathlessness when I try do anything is hyperventaling , my lung test are all fine normal . But I do have chronic fatigue , fibromalager , he has put sjogrens in the mix ,still waiting on lip biopsy eye specialist ,and heart test ,has told me I have connective tissue issues ,he doesn't seem to want to take on board my history of child hood rash on face that a 60 yr old soon to retire GP said it was some type of pox never seen anything like it before so gran bathe me in jaysfluid to get rid of it I still rememember the pain .at 17 had glandular fever hair started to fall out after that and discovered I was allergic to septrin . Sent to dermatologist who told me I was animic and was more concerned about me having children but I wasn't interestedwith all that then only heard animic and hair loss iron tablets would have to be taken and that would help with that and that was all this 17 yr old was interested in .(went on and married my worst nightmare but didn't realise it. )
After the birth of my second child had what they told me was an allergic reaction to having a boy (having forgot all about dermatoligist )was told I had gutetate phrsoris (can't spell half these terms sorry ) that lasted about a year put loads of weight on so applied for diet clinc trail at local hospital as they were advertising for gunnie pigs had bloods done and fasting test and was told I couldn't do it as I had Gilbert's syndrome ,basically liver doesn't work properly can't break down toxins , anyway back today. He's told me I am not well enough to work he wants me treated for depression but I don't think I am depressed just frustrated with my self for not being able to function like I should an I am to wait and trust him to sort me out my employers want me back to work 1hour a day 3 days a week ,but he has said I am not well enough what do I do next .?
Also forgot raynaulds in feet and hands always have a couple of hot water bottles on sofa and have just treated myself to a electric foot warmer . Also since he took me off all my drugs hydroquinine etc the pain has kicked back in everywhere especially in my hand s and feet ,he has said once we get the results of all the test he will put me back on it or one like it coz i did respond well to that and was able to sew again but now I can't also now get really bad headaches all the time only had them when I was married no joke intended thanks for reading.