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Webinar Recording: 'Can pancreatitis affect your bones?' is now live!
We hope you'll be able to watch it, as this topic offers strategies to keep your bones
healthy
while
living
with pancreatitis and avoid potential complications down the road. Also, if you could share the webinar with your doctor, we would greatly appreciate it.
We hope you'll be able to watch it, as this topic offers strategies to keep your bones
healthy
while
living
with pancreatitis and avoid potential complications down the road. Also, if you could share the webinar with your doctor, we would greatly appreciate it.
Skye_MC
Administrator
in
Chronic Pancreatitis Support
11 months ago
Dodger47 Update
Hi everyone. Just wanted to update those that responded to my plight of CLL/AHIA and COVID and seek additional thoughts since, at this level I have low expertise. I am still in the hospital (15 days now) because my hemoglobin will not stabilize. I get blood transfusions and hemoglobin goes up some,
Hi everyone. Just wanted to update those that responded to my plight of CLL/AHIA and COVID and seek additional thoughts since, at this level I have low expertise. I am still in the hospital (15 days now) because my hemoglobin will not stabilize. I get blood transfusions and hemoglobin goes up some,
Dodger47
in
CLL Support
1 day ago
IVIg?
Hi fellow travelers, I have questions about IVIg. I never had IgG levels checked at diagnosis, in 2014. I’ve had frequent infections over the years, and then my CLL “bloomed” in late ‘22 and I started Acalabrutinib. I’ve been on it a year and a half. Recently, when discussing my immunity, (especially
Hi fellow travelers, I have questions about IVIg. I never had IgG levels checked at diagnosis, in 2014. I’ve had frequent infections over the years, and then my CLL “bloomed” in late ‘22 and I started Acalabrutinib. I’ve been on it a year and a half. Recently, when discussing my immunity, (especially
Islandjewel23
in
CLL Support
8 days ago
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CLL & skin infection
I was diagnosed with CLL in 2002 & been on wait & watch until recently. Treatment with FCR is imminent but only after a severe skin infection has cleared up. Dermatologist took 2 biopsies which the Pathologist reported skin infection/rash was Hypersensitive Dermatitis. I had an IV when I had a CT
I was diagnosed with CLL in 2002 & been on wait & watch until recently. Treatment with FCR is imminent but only after a severe skin infection has cleared up. Dermatologist took 2 biopsies which the Pathologist reported skin infection/rash was Hypersensitive Dermatitis. I had an IV when I had a CT
Happy-Daze
in
CLL Support
25 days ago
Steriods
Because of an injury to my lower back, foolish launch attempt of a Seadoo for grandkids to ride, I received a steroid shot and and orals. Because near the end of my oral steroids my back injury was not healed I visited a Chiropractor who gave me more steroids. Near the end of those steroids I visited
Because of an injury to my lower back, foolish launch attempt of a Seadoo for grandkids to ride, I received a steroid shot and and orals. Because near the end of my oral steroids my back injury was not healed I visited a Chiropractor who gave me more steroids. Near the end of those steroids I visited
Fant1924
in
CLL Support
2 months ago
IVIG makes cells drop severely
Sharing some info on my ET experience…. CALR type 2 here with severe neuropathy that came on after 4 years of peg. Could be a coincidence or from the peg, not sure. I also have an antibody that is known to attack nerves called myelin associated glycoprotein. Traditionally it is known to only effect
Sharing some info on my ET experience…. CALR type 2 here with severe neuropathy that came on after 4 years of peg. Could be a coincidence or from the peg, not sure. I also have an antibody that is known to attack nerves called myelin associated glycoprotein. Traditionally it is known to only effect
George1976
in
MPN Voice
3 months ago
IVIG and prednisone luck with PGS tested embryos after Multiple failed implantation
hi About to cycle soon and wanted to hear some positive stories if anyone had immune treatment with steroids. I'm due to have a Hycosy for my uterus to check there's no issues then cycle the month after.
hi About to cycle soon and wanted to hear some positive stories if anyone had immune treatment with steroids. I'm due to have a Hycosy for my uterus to check there's no issues then cycle the month after.
Poop84
in
Fertility Network UK
3 months ago
IVF transfer protolols (adenomyosis / endometriosis)
Hey there fellow warriors. I am agonising over IVF transfer protocols. After a year of batch stimming I am very fortunate to have 3 euploid blastocysts on ice ready to transfer. I have had five failed transfers (x2 miscarriages, 3 BFNs) and feel like I have tried everything already in terms of protocols
Hey there fellow warriors. I am agonising over IVF transfer protocols. After a year of batch stimming I am very fortunate to have 3 euploid blastocysts on ice ready to transfer. I have had five failed transfers (x2 miscarriages, 3 BFNs) and feel like I have tried everything already in terms of protocols
Falafelrovers
in
Fertility Network UK
3 months ago
itp(information)
Hi all, I have been dealing with Itp since December 2022. My numbers fluctuate from 50k-76k. In march 2024 I had an Ivig infusion with decadron 10mg to increase platelets for a dental surgery. Before the infusion my platelets were 76k. I have done 3 tests from march till now and platelets are decreasing
Hi all, I have been dealing with Itp since December 2022. My numbers fluctuate from 50k-76k. In march 2024 I had an Ivig infusion with decadron 10mg to increase platelets for a dental surgery. Before the infusion my platelets were 76k. I have done 3 tests from march till now and platelets are decreasing
05Pink
in
ITP Support Association
4 months ago
Immune issues with donor eggs
Hi there,I'm just wondering if any of you have been successful with using donor eggs if you have an auto immune issue or have elevated NK cells and/or cytokines. I'm worried that we will go down the donor route and then fail anyway because of my immune issues despite any embryos being good quality.
Hi there,I'm just wondering if any of you have been successful with using donor eggs if you have an auto immune issue or have elevated NK cells and/or cytokines. I'm worried that we will go down the donor route and then fail anyway because of my immune issues despite any embryos being good quality.
Anisha29
in
Fertility Network UK
4 months ago
IvIg Infusions
Finished my IvIg infusions this week. After my two infusions (been doing this for almost 3 years) I’m getting more and more fatigued as time goes by. It takes me up to 3-5 days to get over. It has done a wonderful job at keeping me well. I certainly don’t want to come across as ungrateful. Any pointers
Finished my IvIg infusions this week. After my two infusions (been doing this for almost 3 years) I’m getting more and more fatigued as time goes by. It takes me up to 3-5 days to get over. It has done a wonderful job at keeping me well. I certainly don’t want to come across as ungrateful. Any pointers
robster1
in
My MSAA Community
4 months ago
Recurrent implantation failure - please give me hope
Hello my lovely support team. I'll try and keep this rotten history of mine very very brief.......43 years old, all embryos created between 40-42. Trying since I was 36. Just one natural chemical at 41yo. So far, 5 failed transfers of 6 good-decent embryos. All bfn, no chemicals or anything else. 4 collections
Hello my lovely support team. I'll try and keep this rotten history of mine very very brief.......43 years old, all embryos created between 40-42. Trying since I was 36. Just one natural chemical at 41yo. So far, 5 failed transfers of 6 good-decent embryos. All bfn, no chemicals or anything else. 4 collections
Joeysjourney
in
Fertility Network UK
4 months ago
Skin still covering head of penis after circumcision
I am 30 years old. I am 7 days post circumcision due to phimosis. After 7 days, skin from the shaft of my penis is still covering about half of the head, I can’t see most of the stitches and there appears to be a pretty large hematoma on the bottom side of penis near the incision site. Anyone have any
I am 30 years old. I am 7 days post circumcision due to phimosis. After 7 days, skin from the shaft of my penis is still covering about half of the head, I can’t see most of the stitches and there appears to be a pretty large hematoma on the bottom side of penis near the incision site. Anyone have any
Lineman1993
in
Men's Health Forum
1 year ago
Early results of the Pirtobrutinib, Obinituzumab, Venetoclax trial I'm on have just been published
Dr. Jain of M.D. Anderson has published an oral abstract in advance of the European Hematological Association Congress June 13-16, 2024: https://library.ehaweb.org/eha/2024/eha2024-congress/422268/nitin.jain.combined.pirtobrutinib.venetoclax.and.obinutuzumab.in.first-line.html [i]
Abstract: S164
Dr. Jain of M.D. Anderson has published an oral abstract in advance of the European Hematological Association Congress June 13-16, 2024: https://library.ehaweb.org/eha/2024/eha2024-congress/422268/nitin.jain.combined.pirtobrutinib.venetoclax.and.obinutuzumab.in.first-line.html [i]
Abstract: S164
SeymourB
in
CLL Support
4 months ago
Action too late
I very well can understand your Frustration. My IVIG introduction was very late, not considering my close to 0 Immunity. The result was as well Double Pneumonia, unbelievable hurting caught for 6 month, which produced a Hernia. After being on a Roller-Coaster I have moe or less settled and try the
I very well can understand your Frustration. My IVIG introduction was very late, not considering my close to 0 Immunity. The result was as well Double Pneumonia, unbelievable hurting caught for 6 month, which produced a Hernia. After being on a Roller-Coaster I have moe or less settled and try the
Traudel
in
CLL Support
5 months ago
Kesimpta and IVIG?
I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
pihokken
in
My MSAA Community
5 months ago
Success stories/advice after multiple miscarriages
Hi, I’ve had it confirmed today that I’m having a missed miscarriage. Should have been 7+5 weeks but the gestational sac was empty (I’ve had multiple scans over the past 12 days so it’s definitely over). This is now my third miscarriage so I can add the 1% recurrent miscarriage statistic to all these
Hi, I’ve had it confirmed today that I’m having a missed miscarriage. Should have been 7+5 weeks but the gestational sac was empty (I’ve had multiple scans over the past 12 days so it’s definitely over). This is now my third miscarriage so I can add the 1% recurrent miscarriage statistic to all these
Ctk123
in
Fertility Network UK
5 months ago
phimosis circumsision
hey i just got circumcised after phimosis and the skin of my tip is peeling off revealing a new layer of skin ,question is will the new layer be sensitive
hey i just got circumcised after phimosis and the skin of my tip is peeling off revealing a new layer of skin ,question is will the new layer be sensitive
jack2234
in
Men's Health Forum
1 year ago
Follow up T3 question
Okay, so, it has only recently reached my consciousness that the fact that my thyroid "died" (I got a goiter and my TSH was only barely above "normal" so at first they didn't want to treat me even though I gained 30lbs in a month and lost all my body hair and on and on) at the exact same moment (literally
Okay, so, it has only recently reached my consciousness that the fact that my thyroid "died" (I got a goiter and my TSH was only barely above "normal" so at first they didn't want to treat me even though I gained 30lbs in a month and lost all my body hair and on and on) at the exact same moment (literally
BlueGreenWordyDoc
in
Thyroid UK
6 months ago
Raised TNF alpha? Any advice
hi all Is this raised tnf my clinic haven't said it is they said I need ivig for my pgs embryo transfer. Looking at my results above are my TNF not elevated? If so what treatment or tests did you have to help you get your bfp? Thanks
hi all Is this raised tnf my clinic haven't said it is they said I need ivig for my pgs embryo transfer. Looking at my results above are my TNF not elevated? If so what treatment or tests did you have to help you get your bfp? Thanks
Poop84
in
Fertility Network UK
6 months ago
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