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Signs of GCA?
Hi I was diagnosed with PMR nearly 2 years ago and had reduced down to 8mg pred before Christmas before shoulder and hip pain made me put it up to 15mg again. I have now reduced to 12 mg, (split 6mg late at night and 6mg late morning). The pain has not gone away totally but is generally livable with
Hi I was diagnosed with PMR nearly 2 years ago and had reduced down to 8mg pred before Christmas before shoulder and hip pain made me put it up to 15mg again. I have now reduced to 12 mg, (split 6mg late at night and 6mg late morning). The pain has not gone away totally but is generally livable with
ValleysBoy
in
PMRGCAuk
3 years ago
1st NHS Glaucoma check coming up - how frequently do they check you?
Hi, I was diagnosed with glaucoma in 2015 by optician. After numerous attempts over the years to get a referral to my local nhs eye dept they rang out of the blue yesterday to offer me an appointment next week (yhay). I really want to get regular checks as my mother is blind from this and I have other
Hi, I was diagnosed with glaucoma in 2015 by optician. After numerous attempts over the years to get a referral to my local nhs eye dept they rang out of the blue yesterday to offer me an appointment next week (yhay). I really want to get regular checks as my mother is blind from this and I have other
Tricia3
in
Glaucoma UK
3 years ago
Stuff that helps me
Diagnosed 2012 PBC alp222 ALT 60 antibody pos On UCDA for lft since 2013 Bezafibrate my request since 2020 ( papers from Japan/ France Methotrexate for inflammatory arthritis ( i think related to PBC Coenzyme Q10 - fatigue 2021 LFT normal egfr69 lower end normal Well some fatigue run 5k x4 a week
Diagnosed 2012 PBC alp222 ALT 60 antibody pos On UCDA for lft since 2013 Bezafibrate my request since 2020 ( papers from Japan/ France Methotrexate for inflammatory arthritis ( i think related to PBC Coenzyme Q10 - fatigue 2021 LFT normal egfr69 lower end normal Well some fatigue run 5k x4 a week
milo2002
in
PBC Foundation
3 years ago
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Can you believe it? A doctor actually promoted prednisone.
I had my eyes checked yesterday and found I have cateracts to be removed. When I went into see the doctor who would remove them in March, I mentioned polymyalgia and not being about to get down on my prednisone. He said it was very important that I take it and that probably I would not get completely
I had my eyes checked yesterday and found I have cateracts to be removed. When I went into see the doctor who would remove them in March, I mentioned polymyalgia and not being about to get down on my prednisone. He said it was very important that I take it and that probably I would not get completely
Trevgrrl
in
PMRGCAuk
3 years ago
Blurry eyes - caused by Pred? And resolving after Pred stops?
About 2 weeks ago I started to have problems with focussing out of my left eye. I went to the Optometrist who said all was fine - nerve, glaucoma, cataracts. I had been to an opthalmologist a month before with a stye (sorry!) and he carried out a similar exam and said the same. Ie: all was fine . But
About 2 weeks ago I started to have problems with focussing out of my left eye. I went to the Optometrist who said all was fine - nerve, glaucoma, cataracts. I had been to an opthalmologist a month before with a stye (sorry!) and he carried out a similar exam and said the same. Ie: all was fine . But
Predderman2020
in
PMRGCAuk
3 years ago
Can Methotrexate cause lung problems?
I have been on Methotrexate for about 8 years now, even though it doesn't seem to do me much good. I am also on Leflulamide and hydroxy. I have got cellulitis and last November I developed an infected ulcer on my leg and was in hospital as it became very serious. I was only kept in for a few days because
I have been on Methotrexate for about 8 years now, even though it doesn't seem to do me much good. I am also on Leflulamide and hydroxy. I have got cellulitis and last November I developed an infected ulcer on my leg and was in hospital as it became very serious. I was only kept in for a few days because
Hidden
in
NRAS
3 years ago
FT3 - A legal Requirement?
Dear All, I have a friend who is quite obviously suffering form thyroid troubles: dry skin, oedema, fatigue etc etc. However, he has been to his GP in Wales and they are consistently refusing to test his FT3 levels. his is obscuring an overall diagnosis. He has had it done, in the past, privately and
Dear All, I have a friend who is quite obviously suffering form thyroid troubles: dry skin, oedema, fatigue etc etc. However, he has been to his GP in Wales and they are consistently refusing to test his FT3 levels. his is obscuring an overall diagnosis. He has had it done, in the past, privately and
Eloisesupergirl
in
Thyroid UK
3 years ago
Pricking sensation
Hi all I awaiting my second Injection at the start of march. Every now and then I get a prickinling sensation on the outside front of my thigh. It's not pins and needles it's like a spikey tingly sensation. And the floaters are back in my eyes. Anyone else suffer this?
Hi all I awaiting my second Injection at the start of march. Every now and then I get a prickinling sensation on the outside front of my thigh. It's not pins and needles it's like a spikey tingly sensation. And the floaters are back in my eyes. Anyone else suffer this?
Darcey14
in
Pernicious Anaemia Society
3 years ago
New to group
Hi I have just discovered this group and for my first post I though I would post my heart problems story. Last year I was diagnosed with Dilated Cardiomyopathy and had a severe case of heart failure. I had just turned 38 at the time. I had a bad case of flu for a few weeks before the diagnosis. All
Hi I have just discovered this group and for my first post I though I would post my heart problems story. Last year I was diagnosed with Dilated Cardiomyopathy and had a severe case of heart failure. I had just turned 38 at the time. I had a bad case of flu for a few weeks before the diagnosis. All
HarryJK
in
British Heart Foundation
3 years ago
Newly Diagnosed First Treatment Coming Up
Recently diagnosed with DME and going for first eylea injection in two days. Have always been one to put my faith in medical specialists. Hoping this works. Looking for good vibes and positive stories. Thanks for your time.
Recently diagnosed with DME and going for first eylea injection in two days. Have always been one to put my faith in medical specialists. Hoping this works. Looking for good vibes and positive stories. Thanks for your time.
elandja
in
Macular Society
3 years ago
Run 08/02 - chilly!
Hiya, I am making this post in 2 separate times, a part pre-run and a part post-run. Yesterday, Sunday, it snowed here (Belgium) with freezing temperatures, causing the roads to be slippery and all that stuff. Helped outside to clear the walkway (we are obligated to do so, should someone fall before
Hiya, I am making this post in 2 separate times, a part pre-run and a part post-run. Yesterday, Sunday, it snowed here (Belgium) with freezing temperatures, causing the roads to be slippery and all that stuff. Helped outside to clear the walkway (we are obligated to do so, should someone fall before
Hidden
in
Couch to 5K
3 years ago
Toobusyforthis
Hi all..I’ve just been told my doctor suspects I have PMR I’ve had a Blood test done last Thursday and are waiting to hear back ..I’ve been reading up on PMR and GcA and quite frankly it has scared the living daylights out of me! 😬. The GCA is particularly worrying as I’ve read 1-10 people go blind
Hi all..I’ve just been told my doctor suspects I have PMR I’ve had a Blood test done last Thursday and are waiting to hear back ..I’ve been reading up on PMR and GcA and quite frankly it has scared the living daylights out of me! 😬. The GCA is particularly worrying as I’ve read 1-10 people go blind
Toobusyforthis
in
PMRGCAuk
3 years ago
Vision Problem---related to PA?
Is there any link between PA and eye function? I have a condition of the cornea where a surface membrane is not smooth (Anterior Basement Membrane Dystrophy or ABMD). It results in blurred, vision, watery eyes, and easily scratched corneas, sometimes just by firing your eyelids when you wake up.
Is there any link between PA and eye function? I have a condition of the cornea where a surface membrane is not smooth (Anterior Basement Membrane Dystrophy or ABMD). It results in blurred, vision, watery eyes, and easily scratched corneas, sometimes just by firing your eyelids when you wake up.
lindajanes
in
Pernicious Anaemia Society
3 years ago
Going Gluten Free - 1 Year On #hashis
I went GF last January (religiously GF from Feb as there were some things I didn’t realise had gluten in (soy sauce being one of them)). It’s been the best thing I’ve done for my health. The most noticeable improvement was with fatigue and quality of sleep. I actually wake up feeling refreshed (before
I went GF last January (religiously GF from Feb as there were some things I didn’t realise had gluten in (soy sauce being one of them)). It’s been the best thing I’ve done for my health. The most noticeable improvement was with fatigue and quality of sleep. I actually wake up feeling refreshed (before
Hidden
in
Thyroid UK
3 years ago
Blood shot eyes any information please
Truth be know I have not been well really since 2017. Hair loss (alopecia totalise all my hair except my eyes lashes) I'm lucky. Chronic nodular prurigo which I am just recovering from, it causes large itchy sores and since last year I was diagnosed with PMR. Through all this I periodically get blood
Truth be know I have not been well really since 2017. Hair loss (alopecia totalise all my hair except my eyes lashes) I'm lucky. Chronic nodular prurigo which I am just recovering from, it causes large itchy sores and since last year I was diagnosed with PMR. Through all this I periodically get blood
Hiibilly
in
PMRGCAuk
3 years ago
Is low b12 cause head tremors and forehead twitching?
My b12 level is 94 I have tremors in my head continuously it is ting tong.Also have forehead twitching under my skin.I can not concentrate on anything.I am not able to understand is this from low b12 or something else?
My b12 level is 94 I have tremors in my head continuously it is ting tong.Also have forehead twitching under my skin.I can not concentrate on anything.I am not able to understand is this from low b12 or something else?
Shel7
in
Pernicious Anaemia Society
3 years ago
Fet advice
Hi everyone, I am waiting for my period to start FET next week. I am on hydroxychloroquine I have palindromic rheumatism and sacroiliitis. I have done all blood test to see if there is any autoimmune disease and all come back normal. Any tips/advice, vitamins I should be taking apart from folic acid
Hi everyone, I am waiting for my period to start FET next week. I am on hydroxychloroquine I have palindromic rheumatism and sacroiliitis. I have done all blood test to see if there is any autoimmune disease and all come back normal. Any tips/advice, vitamins I should be taking apart from folic acid
Hidden
in
Fertility Network UK
3 years ago
Dry eye and dry nasal passages
Here’s a new one for me. I have been troubled with my eyes since before Christmas so I went to the opticians and asked them to have a look at my peepers. I was experiencing really dry gritty eyes upon waking first thing in the morning, so bad that I could barely open my eyes. Anyway they prescribed
Here’s a new one for me. I have been troubled with my eyes since before Christmas so I went to the opticians and asked them to have a look at my peepers. I was experiencing really dry gritty eyes upon waking first thing in the morning, so bad that I could barely open my eyes. Anyway they prescribed
Kimkat
in
Thyroid UK
3 years ago
Emdr for false memory ocd
Has anyone here tried emdr for false memory OCD?
Has anyone here tried emdr for false memory OCD?
Dorat
in
OCD-UK
3 years ago
Does anyone here have an obsession with words?
For 2 years I have always had the word absurd in front of my eyes and I'm tired of this now. I can not do anything I love. it seems like this word will never go out of my sight. Medication didn't work. I am currently receiving emdr therapy, it has helped a little but it cannot destroy the word. What
For 2 years I have always had the word absurd in front of my eyes and I'm tired of this now. I can not do anything I love. it seems like this word will never go out of my sight. Medication didn't work. I am currently receiving emdr therapy, it has helped a little but it cannot destroy the word. What
moses1392
in
My OCD Community
3 years ago
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