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Haemolytic anaemia
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Where to buy?
being daft I spotted somewhere a link to site to buy supplements? Needing to buy VitK2-MK7, Vit D, ,Magnesium, Boron, Zinc, Omegas etc etc . Would be lost without you lot
being daft I spotted somewhere a link to site to buy supplements? Needing to buy VitK2-MK7, Vit D, ,Magnesium, Boron, Zinc, Omegas etc etc . Would be lost without you lot
Polo22
in
Pernicious Anaemia Society
2 years ago
Blood test results - please help!
So I had my bloods taken this week as I'm still struggling really bad with constipation and hair loss, as well as cold legs and feet. Here are my results. I think I need to up my iron, B12 and folate but if anyone can spot anything else that would be really helpful. My iron does look in range but i know
So I had my bloods taken this week as I'm still struggling really bad with constipation and hair loss, as well as cold legs and feet. Here are my results. I think I need to up my iron, B12 and folate but if anyone can spot anything else that would be really helpful. My iron does look in range but i know
Annieza
in
Thyroid UK
2 years ago
Olaparib induced anaemia and walking probs, anyone?
Hi Wonderwomen, I have been on olaparib for just under 3 months. It depressed my bone marrow production of red blood cells, I became very anaemicand was given 3 blood transfusions last week, taken off olaparib for 14 days and will go back on at 275. Mg per day if my Haemoglobin stays at about 82 by
Hi Wonderwomen, I have been on olaparib for just under 3 months. It depressed my bone marrow production of red blood cells, I became very anaemicand was given 3 blood transfusions last week, taken off olaparib for 14 days and will go back on at 275. Mg per day if my Haemoglobin stays at about 82 by
Trickysite
in
My Ovacome
2 years ago
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Raised mcv
Morning all. I have pv and taking hydroxycarbomide and apixaban. I've been struggling with breathlessness for some time now but haematologist says it's not down to the mpn and referred me back to gp for more investigation. The gp did more blood tests and called me the day after to go for another blood
Morning all. I have pv and taking hydroxycarbomide and apixaban. I've been struggling with breathlessness for some time now but haematologist says it's not down to the mpn and referred me back to gp for more investigation. The gp did more blood tests and called me the day after to go for another blood
poly2
in
MPN Voice
2 years ago
Update on “20 years old and Scared”
Hey guys, roughly 11 months ago I posted in this group worried to death about my unspecified polycythemia diagnosis. You guys provided me with so much support during that time, even though I was a bit shy to respond to comments after a couple of days. Well, I was tested for the JAK2 gene which came back
Hey guys, roughly 11 months ago I posted in this group worried to death about my unspecified polycythemia diagnosis. You guys provided me with so much support during that time, even though I was a bit shy to respond to comments after a couple of days. Well, I was tested for the JAK2 gene which came back
Lc06091
in
MPN Voice
2 years ago
CLL with AIHA
I have been on W&W for just over 2 years then became unwell a few weeks ago and was admitted to hospital with Auto Immune
Haemolytic
Anaemia
(AIHA). It is unsure if one triggered the other as my CLL with AIHA have moved to a more active state with both now are undergoing treatment.
I have been on W&W for just over 2 years then became unwell a few weeks ago and was admitted to hospital with Auto Immune
Haemolytic
Anaemia
(AIHA). It is unsure if one triggered the other as my CLL with AIHA have moved to a more active state with both now are undergoing treatment.
Wen_dy
in
CLL Support
3 years ago
IFA & PCA blood tests
Hi, I’ve been booked for bloods for intrinsic factor and parietal cells antibodies, the GP said they are antibodies so no need to stop B12 before hand. I’m reading both 48 hours and/or 2 weeks clear of injections, I don’t want to mess these tests up but at the same time am desperate to get the B12.
Hi, I’ve been booked for bloods for intrinsic factor and parietal cells antibodies, the GP said they are antibodies so no need to stop B12 before hand. I’m reading both 48 hours and/or 2 weeks clear of injections, I don’t want to mess these tests up but at the same time am desperate to get the B12.
ATS1304
in
Pernicious Anaemia Society
2 years ago
Help with CKD stage 2
It was confirmed 2 days ago that I’m a stage 2 kidney dysfunction with high protein in urine and borderline type 2 diabetes they told me I need to routine bloods again in 3 months and told me to cut down on process foods protein potassium in foods plus watch the salt and sugar content. Is this all I
It was confirmed 2 days ago that I’m a stage 2 kidney dysfunction with high protein in urine and borderline type 2 diabetes they told me I need to routine bloods again in 3 months and told me to cut down on process foods protein potassium in foods plus watch the salt and sugar content. Is this all I
Emmie46
in
Early CKD Support
2 years ago
Absorption of vitamins and Minerals in tablet form
Looking for some advice. I have a 3 monthly B12 injections due to poor absorption. My question is - will l have absorption difficulties with other vitamins or Iron in tablet form? Are these types of tablets ineffective for people like me?
Looking for some advice. I have a 3 monthly B12 injections due to poor absorption. My question is - will l have absorption difficulties with other vitamins or Iron in tablet form? Are these types of tablets ineffective for people like me?
Bialystok
in
Pernicious Anaemia Society
2 years ago
Unusual results on standard differential -- would love feedback (and, if possible, reassurance?)
Hey, all, yesterday I was a bit shaken by results that were, for me, unusual, coinciding with the most clipped doctor visit ever had, so left full of unanswered questions. My lymphs had gone quite up (okay, that's CLL progressing) and WBD went well up too (okay, CLL progressing) BUT, neutrophils, which
Hey, all, yesterday I was a bit shaken by results that were, for me, unusual, coinciding with the most clipped doctor visit ever had, so left full of unanswered questions. My lymphs had gone quite up (okay, that's CLL progressing) and WBD went well up too (okay, CLL progressing) BUT, neutrophils, which
Vlaminck
in
CLL Support
2 years ago
W + W for 17 yrs - levels up recently
Since 12/2021 Lymphocytes - 77 to 81 Lymphocytes absolute - 44,000 to 58,000 Monocytes absolute - 3900 to 9000 White Blood Count - 57 to 71 I'm seeing my Hemo-Onc on Thursday to go over things and am looking for advice on what to ask.
Since 12/2021 Lymphocytes - 77 to 81 Lymphocytes absolute - 44,000 to 58,000 Monocytes absolute - 3900 to 9000 White Blood Count - 57 to 71 I'm seeing my Hemo-Onc on Thursday to go over things and am looking for advice on what to ask.
gardener58
in
CLL Support
2 years ago
Very low serum ferritin result
Hello all , I’ve been backwards and forwards to hospital and doctors for over a tear now with irregular heart beats , balance all over the place , extreme tiredness, et. etc . I’ve had every test you can think off and finally a simple blood test has flagged up very low iron , I’m seeing the doctor Tuesday
Hello all , I’ve been backwards and forwards to hospital and doctors for over a tear now with irregular heart beats , balance all over the place , extreme tiredness, et. etc . I’ve had every test you can think off and finally a simple blood test has flagged up very low iron , I’m seeing the doctor Tuesday
Hazel1010
in
Pernicious Anaemia Society
2 years ago
What is if any, the proper amount of B12 to self inject. 1ml, once a week, 2ml, once a week or 0.5ml every day. Twice a day, 0.3ml, for PA?
This site has been a tremendous help for me! I have been self- injecting 1ml of B12 subcutaneous once a week since, Nov. 8, 2022, there has been improvement. But, sometimes symptoms get worse, numbness in hands and arms, joint pain, tingling etc. All tests point to Pernicious Anemia, D levels, homocysteine
This site has been a tremendous help for me! I have been self- injecting 1ml of B12 subcutaneous once a week since, Nov. 8, 2022, there has been improvement. But, sometimes symptoms get worse, numbness in hands and arms, joint pain, tingling etc. All tests point to Pernicious Anemia, D levels, homocysteine
RisingOne
in
Pernicious Anaemia Society
2 years ago
If anyone can help my dad interpret these numbers it might enable him to ask some intelligent questions when GP calls next week. Thanks
Hello again! I’ve asked a lot of questions on here lately and have received some really helpful and sound advice. This time I hope you can help with my dad’s reasonably comprehensive results. His thyroid hormones have been going awry for a couple of years and GP has just been monitoring. He takes no
Hello again! I’ve asked a lot of questions on here lately and have received some really helpful and sound advice. This time I hope you can help with my dad’s reasonably comprehensive results. His thyroid hormones have been going awry for a couple of years and GP has just been monitoring. He takes no
musicaljune
in
Thyroid UK
2 years ago
They Sold It Anyway for 40 Years !
Drugmakers Knew Zantac Caused Cancer But Sold It Anyway for 40 Years😱 https://childrenshealthdefense.org/defender/brent-wisner-rfk-jr-drugmakers-knew-zantac-caused-cancer/?utm_source=salsa&eType=EmailBlastContent&eId=d7346b6c-cd3d-4651-80bb-7171ca3e8c20 I was prescribed Zantac for stomach issues many
Drugmakers Knew Zantac Caused Cancer But Sold It Anyway for 40 Years😱 https://childrenshealthdefense.org/defender/brent-wisner-rfk-jr-drugmakers-knew-zantac-caused-cancer/?utm_source=salsa&eType=EmailBlastContent&eId=d7346b6c-cd3d-4651-80bb-7171ca3e8c20 I was prescribed Zantac for stomach issues many
Polaris
in
Pernicious Anaemia Society
2 years ago
News letter
It seems The Pernicious Anaemua Society are doing a survey. Great I was keen to help. Only if you've got a diagnosis it seems I read on. I rang the helpline for the first tine in over 3 years of being a member to clarify this. I had an answerphone and was called back a few hours later. I explained
It seems The Pernicious Anaemua Society are doing a survey. Great I was keen to help. Only if you've got a diagnosis it seems I read on. I rang the helpline for the first tine in over 3 years of being a member to clarify this. I had an answerphone and was called back a few hours later. I explained
Nackapan
in
Pernicious Anaemia Society
2 years ago
Chronic Fatigue Syndrome and Fibromyalgia treatment with B12 injections and oral folate
In the category of "not helpful but interesting", I am sharing this paper decribing a research project which treated patients with Chronic Fatigue Syndrome and Fibromyalgia with B12 injections and oral folate. One interesting facet is that dose of B12 and folate is based on symptoms as reflected in clinician
In the category of "not helpful but interesting", I am sharing this paper decribing a research project which treated patients with Chronic Fatigue Syndrome and Fibromyalgia with B12 injections and oral folate. One interesting facet is that dose of B12 and folate is based on symptoms as reflected in clinician
WiscGuy
in
Pernicious Anaemia Society
2 years ago
Recent Iron test values and next steps
Hi all - I added Iron Bisglycinate (aka Ferrous Bis..., aka "Gentle Iron") 25 mg several months ago. I started with daily and soon switched to alternate days. I happily reported my RLS was [u]significantly[/u] improved. Today I received lab results for iron. Here is a comparison of last year vs. today
Hi all - I added Iron Bisglycinate (aka Ferrous Bis..., aka "Gentle Iron") 25 mg several months ago. I started with daily and soon switched to alternate days. I happily reported my RLS was [u]significantly[/u] improved. Today I received lab results for iron. Here is a comparison of last year vs. today
PoorRichard
in
Restless Legs Syndrome
2 years ago
Help with iron results please
Hello As always, a huge thank you for all of your help to date! I’ve recently had an iron panel and could really do with some help understanding the iron results. I really don’t know what these mean and I’m confused by the over/ low and what this all suggests?? I don’t supplement at the moment as wanted
Hello As always, a huge thank you for all of your help to date! I’ve recently had an iron panel and could really do with some help understanding the iron results. I really don’t know what these mean and I’m confused by the over/ low and what this all suggests?? I don’t supplement at the moment as wanted
Hidden
in
Thyroid UK
2 years ago
Latest antibody count post 4th vaccine
Will I be needing more booster vaccines? I received the latest results from the LLS study and I was not pleased with the results. After a bout with covid at the start of the year and receiving my 4th Moderna vaccine my antibody test came back >2500 Needless to say I was happy with those results. Five
Will I be needing more booster vaccines? I received the latest results from the LLS study and I was not pleased with the results. After a bout with covid at the start of the year and receiving my 4th Moderna vaccine my antibody test came back >2500 Needless to say I was happy with those results. Five
rubberlegs68
in
CLL Support
2 years ago
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