Search
Search
About
Log in
Join
Experiences with
Haemolytic anaemia
Posts
Communities
7,741 public posts
Filter results
B12-supplement causing restlessness, brain fog, anhedonia and sexual dysfunction
Hi! I made a post a while ago about reaction to B12. I still keep reacting badly. I dont understand what is happening and How.I keep getting restless and have bad sleep. Also get bad brain fog, concentration and anhedonia. The new symtom is sexual dysfunction.I had taken small doses B12 because of
Hi! I made a post a while ago about reaction to B12. I still keep reacting badly. I dont understand what is happening and How.I keep getting restless and have bad sleep. Also get bad brain fog, concentration and anhedonia. The new symtom is sexual dysfunction.I had taken small doses B12 because of
Sofa00
in
Pernicious Anaemia Society
2 years ago
Advice on iron
Hi all, so after my iron results a week or so ago and my dr dismissing that i have iron deficiency anemia i decided to self medicate with ferrous fumerate 210mg. Last week i took 3 a day with vitamin c capsules as i read somewhere that that is the adult doseage ( i can't find it now) i have suffered
Hi all, so after my iron results a week or so ago and my dr dismissing that i have iron deficiency anemia i decided to self medicate with ferrous fumerate 210mg. Last week i took 3 a day with vitamin c capsules as i read somewhere that that is the adult doseage ( i can't find it now) i have suffered
catpurple7
in
Thyroid UK
2 years ago
Tests for iron
Following the advice in the Mayo's clinic protocol, I asked my doctor for a full iron assessment including serum iron, ferritin, total iron-binding capacity, and percentage transferrin saturation which should be measured in the early morning after an overnight fast. She did not arrange any tests for
Following the advice in the Mayo's clinic protocol, I asked my doctor for a full iron assessment including serum iron, ferritin, total iron-binding capacity, and percentage transferrin saturation which should be measured in the early morning after an overnight fast. She did not arrange any tests for
Desperate100
in
Restless Legs Syndrome
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Betaine HCl (hydrochloric acid) for autoimmune atrophic gastritis low acid pain (have PA as well)
Happy Sunday to you... I was wondering if any of you use or have used Betaine HCl (with pepsin) for low acid stomach pain and discomfort. I have tried all the acid reducers per gastro doc which didn't work well or not at all for me, and my stomach continued to get worse. While researching I learned
Happy Sunday to you... I was wondering if any of you use or have used Betaine HCl (with pepsin) for low acid stomach pain and discomfort. I have tried all the acid reducers per gastro doc which didn't work well or not at all for me, and my stomach continued to get worse. While researching I learned
Hidden
in
Pernicious Anaemia Society
2 years ago
Finally got results
Got letter from GP with results. He says T3 is slightly below the normal range but if I am feeling well this is the level he would be reasonably happy with. Alkaline phosphatase is very slightly raised as is haemoglobin both to be tested again in 3 months. Still waiting the results of the vitamin D test
Got letter from GP with results. He says T3 is slightly below the normal range but if I am feeling well this is the level he would be reasonably happy with. Alkaline phosphatase is very slightly raised as is haemoglobin both to be tested again in 3 months. Still waiting the results of the vitamin D test
Hidden
in
Thyroid UK
2 years ago
Positive Intrinsic Factor
It's obvious to me now i have pernicious anemia. I went round and round with the conventional tests but the symptoms and the positive IF are enough for me. My symptoms are scary and include psychosis so this has been a nightmare. My question is what exactly [i]causes[/i] the low stomach acid to begin
It's obvious to me now i have pernicious anemia. I went round and round with the conventional tests but the symptoms and the positive IF are enough for me. My symptoms are scary and include psychosis so this has been a nightmare. My question is what exactly [i]causes[/i] the low stomach acid to begin
Ecf123
in
Pernicious Anaemia Society
2 years ago
Latest #s - Is my B12 sublingual 1000mcg daily working?
Hello, My Friends (who are most likely asleep as I write this from Ohio). On June 14th I had updated blood tests done that I specifically requested based on suggestions made on this forum so we could see if maybe my B12 treatment is getting into my cells. My B12 blood serum is close to 1000, but we
Hello, My Friends (who are most likely asleep as I write this from Ohio). On June 14th I had updated blood tests done that I specifically requested based on suggestions made on this forum so we could see if maybe my B12 treatment is getting into my cells. My B12 blood serum is close to 1000, but we
Hidden
in
Pernicious Anaemia Society
2 years ago
Private FIT test recommendation
Hi, I'm still very much in that 'more questions than answers' phase regarding my health with a mix of thyroid, anaemia and perimenopause issues going on. Due to repeated low iron over many years, I'm thankful the NHS is now looking into the cause and I have a colonoscopy and gastroscopy arranged
Hi, I'm still very much in that 'more questions than answers' phase regarding my health with a mix of thyroid, anaemia and perimenopause issues going on. Due to repeated low iron over many years, I'm thankful the NHS is now looking into the cause and I have a colonoscopy and gastroscopy arranged
Insomania
in
Thyroid UK
2 years ago
Recent NHS iron results
I posted my medichecks results a few weeks ago with full thyroid panel indicating low ferritin . I made an appointment with gp who was not aware of the NICE guidlines regarding this. I gave her a copy of the information I had from this site and she accepted them However because I am over 60 she was
I posted my medichecks results a few weeks ago with full thyroid panel indicating low ferritin . I made an appointment with gp who was not aware of the NICE guidlines regarding this. I gave her a copy of the information I had from this site and she accepted them However because I am over 60 she was
Starmen
in
Thyroid UK
2 years ago
Help with results and GP recommendations
I have been struggling with Hashimoto since 2016 probably undiagnosed for a long time. My TSH results at the GP have always been around 3-4 and the GP always said your results are in range but I was feeling knackered. I have seen a few a functional medicine doctors over the years while they have helped
I have been struggling with Hashimoto since 2016 probably undiagnosed for a long time. My TSH results at the GP have always been around 3-4 and the GP always said your results are in range but I was feeling knackered. I have seen a few a functional medicine doctors over the years while they have helped
RachelChD
in
Thyroid UK
2 years ago
Husband’s recent iron panel labs show dire ferritin but other levels appear to say he shouldn’t supplement. Unless I’ve misunderstood
We requested an iron panel as it was clear his GP wasn’t going to offer even though husband falls asleep at the drop of a hat. I’m glad we asked because his ferritin is very low having fallen from his usual 50-90 over the years 26/07/22 Ferritin 19.2 (22 -322) Serum iron 21.4 (14 - 31.3) 42.77%
We requested an iron panel as it was clear his GP wasn’t going to offer even though husband falls asleep at the drop of a hat. I’m glad we asked because his ferritin is very low having fallen from his usual 50-90 over the years 26/07/22 Ferritin 19.2 (22 -322) Serum iron 21.4 (14 - 31.3) 42.77%
Noelnoel
in
Thyroid UK
2 years ago
Besremi and Hematocrit Control
Closing in on five months on Besremi and my WBC and PLT's are now in the "normal" range, but HCT control continues to be elusive. I did get a 250ml PB on May 21, hoping that along with higher dose of Besremi (145) would knock the HCT down. The result? Exactly the same. 43.6 (My goal is 42 or lower
Closing in on five months on Besremi and my WBC and PLT's are now in the "normal" range, but HCT control continues to be elusive. I did get a 250ml PB on May 21, hoping that along with higher dose of Besremi (145) would knock the HCT down. The result? Exactly the same. 43.6 (My goal is 42 or lower
Elizka
in
MPN Voice
2 years ago
Curious, recovery timeline
Hello all I hope everyone is doing well :) I have a quick question that I am curious about. I am wondering how long have you been receiving treatment, how often are you receiving treatment, and if you have made a full recovery or still suffer from symptoms. I am a 37yo female who was diagnosed B12
Hello all I hope everyone is doing well :) I have a quick question that I am curious about. I am wondering how long have you been receiving treatment, how often are you receiving treatment, and if you have made a full recovery or still suffer from symptoms. I am a 37yo female who was diagnosed B12
Ctadds1
in
Pernicious Anaemia Society
2 years ago
ET JAK2 positive
Hello all, This is my first post although I joined the forum about two years ago. Not sure why I haven’t posted sooner and not sure exactly where to start. I would like to say thank you to everyone here for all of the invaluable information and sharing your stories and experiences with MPN’s. I read
Hello all, This is my first post although I joined the forum about two years ago. Not sure why I haven’t posted sooner and not sure exactly where to start. I would like to say thank you to everyone here for all of the invaluable information and sharing your stories and experiences with MPN’s. I read
pjm03
in
MPN Voice
2 years ago
Should I be taking an iron supplement?
Hi all, I tested my iron level and I got: Iron 13 μmol/l (11-32) Transferrin 2.2 g/l (2.0-3.6) Transferrin saturation 23.5% (16-45) In 2020 I had the following: Serum iron 20.9 μmol/l (13-32) Serum transferrin 2.17 g/l (2.00-3.60) Serum unsaturated binding capacity 49μmol/l (45-70) Saturation
Hi all, I tested my iron level and I got: Iron 13 μmol/l (11-32) Transferrin 2.2 g/l (2.0-3.6) Transferrin saturation 23.5% (16-45) In 2020 I had the following: Serum iron 20.9 μmol/l (13-32) Serum transferrin 2.17 g/l (2.00-3.60) Serum unsaturated binding capacity 49μmol/l (45-70) Saturation
WhyAmISoTired
in
Thyroid UK
2 years ago
New bloods - confused about iron study outcomes
Good afternoon Fabulous people – hoping for your wisdom again. I had new bloods on 10th June (8 week check on levo dosage). I knew that the NHS bloods wouldn’t test FT3 and FT4 (even though they were specifically requested on the form by the GP). I ordered a medichecks test to test these privately.
Good afternoon Fabulous people – hoping for your wisdom again. I had new bloods on 10th June (8 week check on levo dosage). I knew that the NHS bloods wouldn’t test FT3 and FT4 (even though they were specifically requested on the form by the GP). I ordered a medichecks test to test these privately.
AtemiM
in
Thyroid UK
2 years ago
Trying to get a diagnosis of PA via a GP
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
4daughters1971
in
Pernicious Anaemia Society
2 years ago
Besremi and Zyrtec
Hi.........I'm going through the process of getting approved for Besremi. My not specialist hem is worried about me taking Zyrtec, She told me that I need to stop taking once I start Besremi. I take it for bad allergies and my PV JAk2+. Anyone been told this or are there folks still taking Zyrtec?
Hi.........I'm going through the process of getting approved for Besremi. My not specialist hem is worried about me taking Zyrtec, She told me that I need to stop taking once I start Besremi. I take it for bad allergies and my PV JAk2+. Anyone been told this or are there folks still taking Zyrtec?
nyelynndesigns
in
MPN Voice
2 years ago
Buprenorphine - what are the pluses?
I'm currently on 1800 mgs of Gabapentin, which, after a brief reprise, is failing to suppress my PLMs sufficiently. They wake me up and I continue to experience them until they're dismissed by walking up and down. I have just been issued with a Buprenorphine patch. I'm acquainted with the various side
I'm currently on 1800 mgs of Gabapentin, which, after a brief reprise, is failing to suppress my PLMs sufficiently. They wake me up and I continue to experience them until they're dismissed by walking up and down. I have just been issued with a Buprenorphine patch. I'm acquainted with the various side
dickJones
in
Restless Legs Syndrome
2 years ago
RLS restlessness vs electric shock feeling
I had a question for everyone…. My RLS has the restlessness feeling but it also has the electric jolt feeling which is worse and it’s def more aggravating than the urge to move itself as anyone who I have spoke to knows I am a difficult case and my doctor and I are trying everything. I have recently
I had a question for everyone…. My RLS has the restlessness feeling but it also has the electric jolt feeling which is worse and it’s def more aggravating than the urge to move itself as anyone who I have spoke to knows I am a difficult case and my doctor and I are trying everything. I have recently
RC723
in
Restless Legs Syndrome
2 years ago
1
...
78
79
80
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
3583 results
Thyroid UK
2478 results
Restless Legs Syndrome
378 results
View top 10 communities
Sort by
Most Relevant
Newest