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Haemolytic anaemia
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Possible dangers of too much iron.
Iron supplementation is often advised on this forum. This article points up new research on the effect of iron on Alzheimer's. I would appreciate anyone with medical knowledge running their eye over this in case of any relevance to RLS. They do mention MS, which can be associated with RLS. Lhlklttps
Iron supplementation is often advised on this forum. This article points up new research on the effect of iron on Alzheimer's. I would appreciate anyone with medical knowledge running their eye over this in case of any relevance to RLS. They do mention MS, which can be associated with RLS. Lhlklttps
Madlegs1
in
Restless Legs Syndrome
10 months ago
GP wont prescribe Hydroxycobalamin until further blood tests conducted despite neuro involvement.
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Betwelvepatient
in
Pernicious Anaemia Society
7 months ago
Iron Levels
I am a 74-year-old woman living in New Zealand. I was on Ropinirole for restless legs for approximately 3 years. Augmentation set in and I saw his forum went to my doctor who has changed my medication to Pregabalin. Currently on 50mg per day as I weaned off Ropinirole (completely weaned off for 3 nights
I am a 74-year-old woman living in New Zealand. I was on Ropinirole for restless legs for approximately 3 years. Augmentation set in and I saw his forum went to my doctor who has changed my medication to Pregabalin. Currently on 50mg per day as I weaned off Ropinirole (completely weaned off for 3 nights
Brufax
in
Restless Legs Syndrome
2 months ago
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Stopping iron supplement
Hi all hope everyone is well. I am going to have a iron blood test. How many days before the test do i stop my iron supplement?
Hi all hope everyone is well. I am going to have a iron blood test. How many days before the test do i stop my iron supplement?
giggy63
in
Thyroid UK
2 months ago
What level is normal after B12 injections
First post after being diagnosed with very low B12 (67). I am in the UK and had the course of six injections within two weeks 12 weeks ago. My level of B12 has just been tested and is 360 but I have no idea whether this would be normal at this stage? I am debating whether to have another injection or
First post after being diagnosed with very low B12 (67). I am in the UK and had the course of six injections within two weeks 12 weeks ago. My level of B12 has just been tested and is 360 but I have no idea whether this would be normal at this stage? I am debating whether to have another injection or
NeverSayDi
in
Pernicious Anaemia Society
7 months ago
NICE: Teprotumumab for treating thyroid eye disease ID 6432 - being scoped
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
helvella
Thyroid UK
in
Thyroid UK
2 months ago
Low ferritin, high iron
I recently got a bunch of lab tests done by a functional medicine doctor. I thought I had too much iron. My UIBC was lab low at 91(range 131-425), my iron was lab high at 204(range 27-159), and iron saturation was lab high at 69%(range 15-55%).But ferritin was somewhat low, though not lab low. It was
I recently got a bunch of lab tests done by a functional medicine doctor. I thought I had too much iron. My UIBC was lab low at 91(range 131-425), my iron was lab high at 204(range 27-159), and iron saturation was lab high at 69%(range 15-55%).But ferritin was somewhat low, though not lab low. It was
CraftyGamer19
in
Thyroid UK
10 months ago
How reliably does NHS retest Blood iron levels after IV Iron?
my new NHS gastroenterologist ordered my iron infusion when my GP alerted her to what they are calling complex iron deficiency blood test results, some longstanding. I was given Ferinject on April 11th. The infusion appointment letter says: the physician who is looking after you may follow up with
my new NHS gastroenterologist ordered my iron infusion when my GP alerted her to what they are calling complex iron deficiency blood test results, some longstanding. I was given Ferinject on April 11th. The infusion appointment letter says: the physician who is looking after you may follow up with
Barnclown
in
Restless Legs Syndrome
2 months ago
So many supplements!
I take so many supplements now that sometimes i feel like i'm going to rattle! 😂 I keep adding more and more so i wanted to check that i'm not messing up with timings and supplements taken together. The timings of the ones i take during the day are because of my breaks at work, so i tend to try and
I take so many supplements now that sometimes i feel like i'm going to rattle! 😂 I keep adding more and more so i wanted to check that i'm not messing up with timings and supplements taken together. The timings of the ones i take during the day are because of my breaks at work, so i tend to try and
catpurple7
in
Thyroid UK
2 months ago
Polyneuropathy.
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
Mayo Clinic studies B12 def, are very interesting!!
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
brenanddave
in
Pernicious Anaemia Society
10 months ago
8 week bloodtest
Hi all, I've been on a reduced levothyroxine dose of 125mcg for the last 8 weeks and i stopped taking the iron tablets as my stomach was too painful, so for the past 7 weeks i've been using an iron patch. My dr agreed to retest my iron as i didn't want to be wasting my time and money if the patches
Hi all, I've been on a reduced levothyroxine dose of 125mcg for the last 8 weeks and i stopped taking the iron tablets as my stomach was too painful, so for the past 7 weeks i've been using an iron patch. My dr agreed to retest my iron as i didn't want to be wasting my time and money if the patches
catpurple7
in
Thyroid UK
10 months ago
Trazodone
Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every dopamine drug for many years and now completely free of them for at least 6 months . My question is although Trazodone is deemed not to affect
Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every dopamine drug for many years and now completely free of them for at least 6 months . My question is although Trazodone is deemed not to affect
Rubynessie
in
Restless Legs Syndrome
2 months ago
How much folic acid while on ED injections?
I inject b12 daily or at least every other day for over two years now. I'm lots better by now but have still slight polyneuropathy left. During this time I've experimented with different dosages of folic acid (as well as with methyl folate and folinic acid) but I'm still not sure what works best for
I inject b12 daily or at least every other day for over two years now. I'm lots better by now but have still slight polyneuropathy left. During this time I've experimented with different dosages of folic acid (as well as with methyl folate and folinic acid) but I'm still not sure what works best for
Asselchen
in
Pernicious Anaemia Society
10 months ago
Euthyroid Sick Syndrome
Hi everyone, Just wondering if anyone has been diagnosed with Euthyroid Sick Syndrome or thinks they may have it? I am now beginning to think that my problems are due to this and not Hypothyroidism. Am thinking of getting a reverse T3 test but it's quite expensive.This cannot be treated with meds so
Hi everyone, Just wondering if anyone has been diagnosed with Euthyroid Sick Syndrome or thinks they may have it? I am now beginning to think that my problems are due to this and not Hypothyroidism. Am thinking of getting a reverse T3 test but it's quite expensive.This cannot be treated with meds so
Sooty101
in
Thyroid UK
10 months ago
Ferritin levels
Got bloods taken last week, the GP who ordered them isn't in until Wed, but I spoke to receptionist who said all had been returned as "normal" levels. I asked her to read out my ferritin and she said it was 64. So I know this isn't "normal" for folks with RLS and I image the GP will put me on iron supplements
Got bloods taken last week, the GP who ordered them isn't in until Wed, but I spoke to receptionist who said all had been returned as "normal" levels. I asked her to read out my ferritin and she said it was 64. So I know this isn't "normal" for folks with RLS and I image the GP will put me on iron supplements
Mikamydog
in
Restless Legs Syndrome
10 months ago
Full-text article from 1969
This article is beyond me. I am posting it because it seems relevant on the face; in addition, it is a 1969 article, and full text of articles from the 1960s and 1970s are rarely available, which would seem to suggest that this article is a special case. Therefore, some people on this forum might be
This article is beyond me. I am posting it because it seems relevant on the face; in addition, it is a 1969 article, and full text of articles from the 1960s and 1970s are rarely available, which would seem to suggest that this article is a special case. Therefore, some people on this forum might be
WiscGuy
in
Pernicious Anaemia Society
7 months ago
Results of latest trial.
When I first started doing trials I did them for 120 days, then 90. This was based on the average lifespan of a red blood cell which I no longer consider. I found over time that 30 day trials seemed effective sometimes I found the results to be definitive in 7+- days when reducing or eliminating And
When I first started doing trials I did them for 120 days, then 90. This was based on the average lifespan of a red blood cell which I no longer consider. I found over time that 30 day trials seemed effective sometimes I found the results to be definitive in 7+- days when reducing or eliminating And
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
high monocytes
am at end of cycle 3 of o+v Today monocytes 31% I did need neupogen shot - wbc 1.6 and anc .6 does anyone know if this monocyte number is cause for concern, has anyone had this kind of thing before? This no has never been above 20 for me since I started treatment. I have had zero side effects.
am at end of cycle 3 of o+v Today monocytes 31% I did need neupogen shot - wbc 1.6 and anc .6 does anyone know if this monocyte number is cause for concern, has anyone had this kind of thing before? This no has never been above 20 for me since I started treatment. I have had zero side effects.
SurfSurf
in
CLL Support
10 months ago
Low iron, supplementing with 3 Arrows
Hi everyone, I posted about a week ago after having iron studies done through the NHS, it came back that I wasn’t iron deficient enough to be treated by a doctor, but my levels were definitely low enough to start treatment since I’m already experiencing symptoms and don’t want to get worse….. Latest
Hi everyone, I posted about a week ago after having iron studies done through the NHS, it came back that I wasn’t iron deficient enough to be treated by a doctor, but my levels were definitely low enough to start treatment since I’m already experiencing symptoms and don’t want to get worse….. Latest
MarvelDC
in
Thyroid UK
3 months ago
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