Experiences with

Haemochromatosis

Could someone give advice on my test results please, if I'm reading them right they don't seem that bad, I have been taking supplements. UIBC 32.1 umol/L ref.(2.5 - 4.9) iron 22.2 ref.(6.0 -34.5) Total iron binding 54.3 ref.(45 - 70) Trans saturation 40.9 % ref.

Sorry I have not replied back to anyone but I have been having a pity party. All the anxiety and being so upset and afraid over the dam biopsy, I finally find the courage to go thinking I will finally have my answer. NOTHING....a big fat nothing. My biopsy only showed some abnormalities, nothing diagnostic

There's a new trial for Deferiprone for EU and UK patients. Unfortunately my dad isn't a candidate but it might be beneficial for those who have had a more recent diagnosis: http://www.fairpark2.eu/29-the-project/france/76-uk-patients There's not a lot of information on the iron/Parkinson's connection

In 2015 she was also diagnosed with Genetic Haemochromatosis, a hereditary metabolic disorder which leads to a toxic accumulation of iron in the body. See Being Mutant for more on both conditions and her experience of living with them.

Hereditary Hemochromatosis (HFE‑Related) genetic test result two copies of genetic variant found, so i have an increased risk of getting it what ever it may be ! what is Hemochromatosis as know my dad had blood problems but not sure what they were , he's passed away so I cant ask him what it was ? So

Free T4 12.2 (10.50-22.00) T3 lab refused to analyze TSH 3.67 (0.27-4.20) Serum vit B12. 399 (188-883) Serum Folate 8.7 (3.00-17.00) Serum Ferritin 19.0 (10.00-200.00) Iron 18 (9.00-30.00) Transferrin 2.5 (2.00-3.60) Calculated TIBC 63 (53.00-95.00) Transferrin Sat. 29 (19.00-43.00) Vitamin D 28 (

Hi, I am beta thalasemmia minor and my iron and ferritin levels are as below Ferritin-75 Iron serum-53 (27-159 ug/dL) Iron saturation 17% (15-55%) My obgyn or family physician have not checked my folate yet and was not prescribed any folate medicines after my miscarriage also. The prenatals has only

I found out today that my TPO went from 1518 end of November, to 3739 (0-60) two days ago. I have been trying so hard to get my numbers down and I am shocked that they have more than doubled. I believe the cause could be from some sort of a virus that I had all fall. I also recently found out that I

Just heard inside science talking about iron supplementation which was very interesting. Thought I would post the transcript as so many of us Hypo people also have iron problems. It seems that lower doses on alternate days may actually cause the body to absorb iron better due to evolutionary reasons

Some research coming out of Zurich seems to suggest that iron deficiency anaemia may be corrected quicker with lower dosing and less frequent dosing ie alternate days instead of daily and it may also make adverse effects to iron supplementation more tolerable. Forward to last 10 minutes of programme

Does anyone have any links to evidence I can show my GP regarding ferritin and hypothyroidism? My ferritin was 29 (10-300) and my GP said because my hb, folate and B12 are all good I don’t need to supplement? But I’ve noticed a lot of posts on here saying differently. Thanks

Went got print out from surgery Iron profile Serum iron level 18 umol 600-35.00 Serum transferrin 2.65 gl 2.00-3.60 g/l Serum ferritin 44 ugl B12 and folate 900 nhs/l Serum folate 12.6 ug/l Have no idea what these mean Thanks for any info

I am trying to understand the logic behind iron blood tests. And need some help. My results are: Serum iron level: 16 ( 9 - 30 umol/L) Serum transferrin: 28 ( 25 - 45 umol/L) Transferrin saturation index: 0.29 (0.0 - 0.45) Ferritine: 63 (15 - 150 ug/L) I've read multiple times that to find out Transferrin

Upper GI bleeding Jaundice Water retention HE Is there anything more nasty that I have to look forward to? My liver is too far gone to heal itself BUT it hasn’t got any worse lately. Cheers, Brett

Just yesterday doctor prescribed 30 mg iron and vit b 12 (1500) methylcobalamine capsules... I took 1 vit b 12 capsule after lunch and 2 hrs later I had guava and took 1 Iron capsule... From yesterday night having horrible pain in the left shoulder area.. stil it's not subsidizing , can't bear it,so

Anyone been on Nexavar treatment just started taking them Wednesday 400mg to start with , my third tace treatment didn’t really work, I’ve got liver cancer hepatocellular cancinoma , feeling every nervous about it all .

BBC Documentary about Surgeons concludes next week and is looking at clinical trials. One of which involves a method of utilising more marginal livers in liver transplantation. I think it will be an exceptionally interesting watch for most of us here. Even more so for me as one of the surgeons featured

Anyone using GABA or L Tryptophan for sleep aids? If so, any adverse effects? Thanks- John G (reedboat)

I’m hoping someone can help me make some sense of these blood tests. I’m not sure what they mean or if I’m in the right group to ask about them! I’m sorry. This is all completely new to me. I had a range of bloods taken due to extreme fatigue and one that was highlighted was; IRON *31.96 umol/L (6.60

Hello I had a lap/dye test and ovarian drilling just over a week ago due to having pcos and clomid not being successful when having the procedure they also found endometriosis which they have removed! My question is I haven’t had much bleeding since the op and now just wondering how long it was till