Experiences with

Haemochromatosis

Haemochromatosis..Nash liver cirrhosis. all 3 to get is very unlikely. Is any one out their has 3 or more diseases.

Hi All I have now have very low ferritin its 13 and I have haemochromatosis but not had a venesection since August 2022. My ferritin has been low for some time. My consultant wrote to say its very low because of my previous venesection program. Has any one had this happen to them please ?

The British Liver Trust are looking for people living with haemochromatosis to help us update our patient information. We are especially interested in including people recently diagnosed with the condition.

I’ve just been diagnosed with Haemochromatosis. A condition where there is iron overload. I need venesection to remove the iron. Has anyone else experienced this?

Never got that referral but much later Doc said they heard from haematology and there was no sign of Haemochromatosis so should be fine. I wasn’t totally convinced as my GP is very ‘blase’ with little detail and if you get 5 mins you’ve done very well.

tests being done for haemochromatosis but more than likely alcohol related. cutting alcohol will be hard and I’m getting help for it. it’s really worrying me as doctor is amazed I’m not yellow. Did anyone manage to bring down levels quickly and if so, any tips?

Pearl is an acronym of - Prospective Cohort for Early Detection of Liver Cancer The Pearl study aims to recruit 3000 people with liver cirrhosis caused by one of the underlying conditions of HCV, HBV, alcohol-related, NAFLD and haemochromatosis, who have never been diagnosed with HCC.

I have fatty liver cirrhosis .i was diagnosed 3 years ago .i have haemochromatosis been having venesection. i been suffering with severe depression and anxiety.Panic attacks while trying to get to sleep and during asleep. im really suffering from lack off salt and sugar.

I had a GP appointment today, booked weeks ago to discuss my ferritin sats ( next step is testing for haemochromatosis) but in the course of the conversation, I asked about her take on the Gastroenterologist saying she doesn't think I have PA, and she replied that she isn't sure what to make of it but

Hi all, I recently had some blood tests as part of a health MOT which included FBC, U&E, LFT, vitamins. I have no symptoms of any illnesses and am in good health. Everything was within range apart from serum ferritin, which was 899 (range 20-300 for males). I have done a bit of research and think

Hi I'm due to see my gp tomorrow. I have been to the sleep clinic at guys, london and they have agreed that i have severe rls. I am currently taking gabapentin 300mg x2 at 6pm, 300mg at 7pm and 200mg at around 10pm. I also take 20mg x2 ferrous bisglycinate every other day with vit c. My rls is controlled

Hello , I have received the following test results today for iron studies and hoping someone on here can help interpret them please. My GP has informed me that my iron levels are unclear as to whether I have iron overload and thinks it prudent to get another blood test (HFE) just to make sure there

Hi Everyone Can anyone help me with my Iron blood tests results please. I am taking 200mg Ferrous Sulphate once a week as prescribed by my Doctor. I was originally on it daily but my dose has been gradually reduced over the course of the last year or so. I haven’t spoken to the Doctor about my results

Hi. Following my last post (in December) I just wanted to let people know that I seem to have reached a point where the iron I have been taking for a year now is having effect on my RLS!!. My serum ferritin test in Dec had improved from 22 (in March 2024) to 78 but at that point I hadn't noticed any

Hi all, I have recently had blood tests done in Ireland and I'm not sure how to interpret the results, input would be greatly appreciated.Iron: 19.7 Transferrin: 2.1 TF Saturation: 37.5 Ferritin: 479 Thanks

Hi everyone, I’m reaching out because I need some guidance regarding my health. My dad passed away last November due to hemochromatosis, and his sister has the condition as well. I was tested for it, but my doctors have assured me that I don’t have it and seem to dismiss my blood test results.

Hi, My latest blood tests show iron near the top of the range, and tsat% over-range. I've stopped iron and vitamin C supplements for fear I poison myself ! I'd only been supplementing iron 5 weeks since end of Dec 24, 20mg of iron bisglycinate every 2-3 days, sometimes not at all. I was trying to see

This forum is, obviously, primarily for thyroid issues. But, as most know, the parathyroid glands are physically adjacent to thyroid tissue. And it is well-known that some thyroid treatments (thyroidectomy and radio-active iodine for two) can result in damage to the parathyroids. We usually have four

I have had Lupus SLE since 2002 and have now been diagnosed with Haemachromatosis in November 2024.I am to have venesection to reduce my iron overload. I would love to hear from anyone else who has both these conditions or just the Haemachromatosis and what has been their experience and treatments.

asked my doctor last week to order a full panel iron test. Lab order was written as IRON(F). 3 hours later get a message that preliminary result is iron high 172 gu/dl. Doctor will discuss results later. Nothing on Ferritin. Have an appointment with Neurologist next month. First time seeing a specialist