Experiences with

Haemochromatosis

Haemochromatosis..Nash liver cirrhosis. all 3 to get is very unlikely. Is any one out their has 3 or more diseases.

Hi All I have now have very low ferritin its 13 and I have haemochromatosis but not had a venesection since August 2022. My ferritin has been low for some time. My consultant wrote to say its very low because of my previous venesection program. Has any one had this happen to them please ?

The British Liver Trust are looking for people living with haemochromatosis to help us update our patient information. We are especially interested in including people recently diagnosed with the condition.

I’ve just been diagnosed with Haemochromatosis. A condition where there is iron overload. I need venesection to remove the iron. Has anyone else experienced this?

Never got that referral but much later Doc said they heard from haematology and there was no sign of Haemochromatosis so should be fine. I wasn’t totally convinced as my GP is very ‘blase’ with little detail and if you get 5 mins you’ve done very well.

tests being done for haemochromatosis but more than likely alcohol related. cutting alcohol will be hard and I’m getting help for it. it’s really worrying me as doctor is amazed I’m not yellow. Did anyone manage to bring down levels quickly and if so, any tips?

Cholesterol is high at 6.8 cannot take statins as I have haemochromatosis. Been given nustendi but after reading the side effects am scared to start them. Common side effect is gastritis and stomach issues, I have ulcerative colitis and diverticulitis so enough going on with stomach.

Pearl is an acronym of - Prospective Cohort for Early Detection of Liver Cancer The Pearl study aims to recruit 3000 people with liver cirrhosis caused by one of the underlying conditions of HCV, HBV, alcohol-related, NAFLD and haemochromatosis, who have never been diagnosed with HCC.

I have fatty liver cirrhosis .i was diagnosed 3 years ago .i have haemochromatosis been having venesection. i been suffering with severe depression and anxiety.Panic attacks while trying to get to sleep and during asleep. im really suffering from lack off salt and sugar.

I had a GP appointment today, booked weeks ago to discuss my ferritin sats ( next step is testing for haemochromatosis) but in the course of the conversation, I asked about her take on the Gastroenterologist saying she doesn't think I have PA, and she replied that she isn't sure what to make of it but

Hello, Serum Iron 17.9 (9-30 range) Transferrin ! 2.11 (2.5-3.8 range ) TIBC 52 (45-72 range) Ferritin 163 ( 10-291 range ) CRP 8.8 (0-10 range ) TSH

Currently seeking additional RLS relief (on 1000 mg Gabapentin) and hopeful iron infusion is a solution. Quick interpretation would be most helpful as I’m leaving Internist confused. Latest blood draw indicates the following: IRON and TIBC Iron 86 ug/dl TIBC 301 ug/dl Saturation 29%

Hi Can anyone help explain the results below please. Everything is in range so I am assuming all is well. Thank you CRP 0.26 IRON 16.2 (10-30) TIBC 55 (45-81) UIBC 38.4 (13-56) TRANSFERRIN SAT 30 (25-45) FERRITIN 99 (30-332)

Hi. I have the genes for Hemochromatosis and have had 2 venesections. My last ferritin was 22 with normal iron panel so no more for now. My question is diet related. What amount of iron do you eat per day to not over absorb but also not get anemic? I have been severely anemic in the past (about

Hi all, I recently had some blood tests as part of a health MOT which included FBC, U&E, LFT, vitamins. I have no symptoms of any illnesses and am in good health. Everything was within range apart from serum ferritin, which was 899 (range 20-300 for males). I have done a bit of research and think

Hi I'm due to see my gp tomorrow. I have been to the sleep clinic at guys, london and they have agreed that i have severe rls. I am currently taking gabapentin 300mg x2 at 6pm, 300mg at 7pm and 200mg at around 10pm. I also take 20mg x2 ferrous bisglycinate every other day with vit c. My rls is controlled

Hello , I have received the following test results today for iron studies and hoping someone on here can help interpret them please. My GP has informed me that my iron levels are unclear as to whether I have iron overload and thinks it prudent to get another blood test (HFE) just to make sure there

Hi Everyone Can anyone help me with my Iron blood tests results please. I am taking 200mg Ferrous Sulphate once a week as prescribed by my Doctor. I was originally on it daily but my dose has been gradually reduced over the course of the last year or so. I haven’t spoken to the Doctor about my results

Hi. Following my last post (in December) I just wanted to let people know that I seem to have reached a point where the iron I have been taking for a year now is having effect on my RLS!!. My serum ferritin test in Dec had improved from 22 (in March 2024) to 78 but at that point I hadn't noticed any

Hi all, I have recently had blood tests done in Ireland and I'm not sure how to interpret the results, input would be greatly appreciated.Iron: 19.7 Transferrin: 2.1 TF Saturation: 37.5 Ferritin: 479 Thanks