Search
Search
About
Log in
Join
Experiences with
Glivec
Posts
Communities
7,841 public posts
Filter results
Trouble in rehab
Hello folks I am in second week of residential rehab. Going well, detox was fine and getting stuck into all the programmes and groups. I developed a new but mild pain around and under my left collarbone late morning but it seems to getting worse. Don't say ask the rehab nurse as she is an agency person
Hello folks I am in second week of residential rehab. Going well, detox was fine and getting stuck into all the programmes and groups. I developed a new but mild pain around and under my left collarbone late morning but it seems to getting worse. Don't say ask the rehab nurse as she is an agency person
theoldboiler
in
British Liver Trust
2 years ago
URQ fullness
First of all thank you for this site, it has been of great help to me. Question, about a month ago I went in for a general physical as I was having RUQ “fullness feeling”. I was in the past a moderate to heavy drinker so it made me nervous after “googling”. Had slightly elevated alt and ast. Less than
First of all thank you for this site, it has been of great help to me. Question, about a month ago I went in for a general physical as I was having RUQ “fullness feeling”. I was in the past a moderate to heavy drinker so it made me nervous after “googling”. Had slightly elevated alt and ast. Less than
Boss2015
in
British Liver Trust
2 years ago
Worried about CT results
Had a Ct scan last night of abdomen and really worried for the results, is no new good news? I don’t even know if they’ll write to me with the results or call me or what, I don’t have a follow up booked. They said my Gp wouldn’t get the results and it would go back to the consultant. I feel like they
Had a Ct scan last night of abdomen and really worried for the results, is no new good news? I don’t even know if they’ll write to me with the results or call me or what, I don’t have a follow up booked. They said my Gp wouldn’t get the results and it would go back to the consultant. I feel like they
Ac16
in
British Liver Trust
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Pressure from doctors to for feeding tube or trachea
My friend is still on a ventilator. The doctor is saying no more Covid, no more pneumonia. His parents are being told he has Covid brain. His eyes r open but brain won’t signal lungs to breathe? Doc says get a permanent feeding tube? It’s only been 6 days since sedation drugs left.
My friend is still on a ventilator. The doctor is saying no more Covid, no more pneumonia. His parents are being told he has Covid brain. His eyes r open but brain won’t signal lungs to breathe? Doc says get a permanent feeding tube? It’s only been 6 days since sedation drugs left.
LCharles
in
ICUsteps
2 years ago
CMV/RETURNS
Inherited CMV/cytomegalovirus in 2019 from my donar liver,since my liver transplant I have had the virus 3 times,going into hospital on Monday for gancyclovir intravenously as valgancyclovir is not helping at home,has anyone had this virus more than once
Inherited CMV/cytomegalovirus in 2019 from my donar liver,since my liver transplant I have had the virus 3 times,going into hospital on Monday for gancyclovir intravenously as valgancyclovir is not helping at home,has anyone had this virus more than once
Transplantboy
in
British Liver Trust
2 years ago
🥱🥱🥱 and sleep!
Hi guys. I have just had a liver transplant and I am struggling to sleep. I seem to wake every 4 hours and cat nap when fatigue kicks in. I have a fare idea that it is the medication. I'm just wondering if there is anything I can do without taking sleeping tablets. Can I just say, I'm taking vitamin
Hi guys. I have just had a liver transplant and I am struggling to sleep. I seem to wake every 4 hours and cat nap when fatigue kicks in. I have a fare idea that it is the medication. I'm just wondering if there is anything I can do without taking sleeping tablets. Can I just say, I'm taking vitamin
Zukosmile07
in
Sleep Matters
2 years ago
Is running hard on the liver?
Could running hurt my liver? Been going through some liver stuff…I’m ok by test standards but pain and digestive pain are still killing me…took a month off running and came back to it yesterday…the rest of the day felt like it was more inflamed and generally felt kinda sick. Am wondering if I made it
Could running hurt my liver? Been going through some liver stuff…I’m ok by test standards but pain and digestive pain are still killing me…took a month off running and came back to it yesterday…the rest of the day felt like it was more inflamed and generally felt kinda sick. Am wondering if I made it
Guitarlife91
in
British Liver Trust
2 years ago
Seeking Fatty Liver Disease stories from Blacks/African-Americans
Hello everyone! I am the president and founder of Blue Faery, a liver cancer charity. This year, we are looking for stories from Blacks/African Americans who have fatty liver disease. Our Love Your Liver campaign launches next month and we would love to feature you and your story on our website. You
Hello everyone! I am the president and founder of Blue Faery, a liver cancer charity. This year, we are looking for stories from Blacks/African Americans who have fatty liver disease. Our Love Your Liver campaign launches next month and we would love to feature you and your story on our website. You
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
2 years ago
High LDH and increasing
Hi, this is my first post. i have non cirrhotic portal hypertension (caused by sepsis,4 years ago) with varies in gut stomach and now also oesophagus. Last year, from around March I felt really unwell and I had blood tests taken privately. My LDH was 771. My NHS consultant arranged for further tests
Hi, this is my first post. i have non cirrhotic portal hypertension (caused by sepsis,4 years ago) with varies in gut stomach and now also oesophagus. Last year, from around March I felt really unwell and I had blood tests taken privately. My LDH was 771. My NHS consultant arranged for further tests
PiperAlfie
in
CLL Support
2 years ago
Pain on left side
So after years of being dismissed by doctors and fighting tooth and nail for ct scans, ultrasounds and a fibroscan, I am still no where closer to a definitive diagnosis despite pain being ever present. As of late pain has started on the left side of my abdomen. This is a new development so I got a scan
So after years of being dismissed by doctors and fighting tooth and nail for ct scans, ultrasounds and a fibroscan, I am still no where closer to a definitive diagnosis despite pain being ever present. As of late pain has started on the left side of my abdomen. This is a new development so I got a scan
99problem
in
British Liver Trust
2 years ago
Polycythaemia Vera.
I live in Plymouth UK, and have just been diagnosed with Polycycthaemia Vera , and am waiting to hear from my hospital my treatment which I believe will be phlebotomy ie bloods taken to reduce my red blood cell count. I had a liver transplant 12 years ago and have enjoyed good health till now :(. Only
I live in Plymouth UK, and have just been diagnosed with Polycycthaemia Vera , and am waiting to hear from my hospital my treatment which I believe will be phlebotomy ie bloods taken to reduce my red blood cell count. I had a liver transplant 12 years ago and have enjoyed good health till now :(. Only
plym1uk
in
MPN Voice
2 years ago
Decompensated
Panicking :( I was admitted to hospital 19 months ago with jaundice and ascites, diagnosed with a decompensated liver. I got drained and stayed in for maybe a fortnight ? (sorry my brain is a total fuzz). I've been booze free since the day I was admitted and my liver doc says that my function tests
Panicking :( I was admitted to hospital 19 months ago with jaundice and ascites, diagnosed with a decompensated liver. I got drained and stayed in for maybe a fortnight ? (sorry my brain is a total fuzz). I've been booze free since the day I was admitted and my liver doc says that my function tests
billyde
in
British Liver Trust
2 years ago
Long overdue 'anti alcohol report'
Morning, I hope you find this relevant. It's been seen as a watershed proclamation. The so called benefits of small amounts alcohol (especially wine) have been touted for centuries when it comes to cardiovascular health. Four days ago the World Heart Federation officially changed the message. Unequivocally
Morning, I hope you find this relevant. It's been seen as a watershed proclamation. The so called benefits of small amounts alcohol (especially wine) have been touted for centuries when it comes to cardiovascular health. Four days ago the World Heart Federation officially changed the message. Unequivocally
chrisw740
in
British Liver Trust
2 years ago
I suspect I have a pbc. Where to begin? Indy.
Not Diagnosed. Just googling and it really seems this is what I must have. I had esophagus cancer 13 years ago. And I feel this has stressed my liver. Never had a drop of alcohol? Thank goodness.
Not Diagnosed. Just googling and it really seems this is what I must have. I had esophagus cancer 13 years ago. And I feel this has stressed my liver. Never had a drop of alcohol? Thank goodness.
JCIndy
in
PBC Foundation
2 years ago
Progression of liver disease
From fatty liver do you always progress to hepatitis and then possibly cirrhosis? Or can you go straight from fatty liver to cirrhosis? I couldn’t find anything online that answered this question. Thank you
From fatty liver do you always progress to hepatitis and then possibly cirrhosis? Or can you go straight from fatty liver to cirrhosis? I couldn’t find anything online that answered this question. Thank you
Watersk
in
British Liver Trust
2 years ago
Are liver issues pushing me into becoming diabetic
Hi Today I had a zoom session with the NHS Diabetes Prevention Programme, my last bloods score was 48 (on the diabetic metric), I have pre diabetes and I am right on the boundary for the full type 2 scenario. In this zoom session they talked about blood pressure (mine is actually rather low not high
Hi Today I had a zoom session with the NHS Diabetes Prevention Programme, my last bloods score was 48 (on the diabetic metric), I have pre diabetes and I am right on the boundary for the full type 2 scenario. In this zoom session they talked about blood pressure (mine is actually rather low not high
Iro1
in
British Liver Trust
2 years ago
Some clarity please!
Like most people who’ve posted here, I was (and still am) creeped-out by my fibroscan scan results in December 2021 of F4 cirrhosis. I’m told I’m well-compensated and haven’t experienced any symptoms or abnormal blood labs except for very high liver enzymes. My question is: does the natural progression
Like most people who’ve posted here, I was (and still am) creeped-out by my fibroscan scan results in December 2021 of F4 cirrhosis. I’m told I’m well-compensated and haven’t experienced any symptoms or abnormal blood labs except for very high liver enzymes. My question is: does the natural progression
Hidden
in
British Liver Trust
2 years ago
ARL cirrhosis
Could I please ask what a reading of bilirubin of 80 and AFP of 22means? Finally got my sister to have bloods and she has had two scans yesterday with an MRI next week. We have the consultant on Tuesday. It has been her stress an anxiety that has stopped her getting help. She has ARL cirrhosis was
Could I please ask what a reading of bilirubin of 80 and AFP of 22means? Finally got my sister to have bloods and she has had two scans yesterday with an MRI next week. We have the consultant on Tuesday. It has been her stress an anxiety that has stopped her getting help. She has ARL cirrhosis was
cyclist11
in
British Liver Trust
2 years ago
Advice
Hi guys I've not been on for a while.ive got chirrosis to liver,I've been told by my liver consultant to try probiotics,I've tried vsl3 it just made me bloated. Does anyone know a good 1?I'm looking for 1 with no nasty added stuff in I? Does any recommend milk thistle too?thanks in advance
Hi guys I've not been on for a while.ive got chirrosis to liver,I've been told by my liver consultant to try probiotics,I've tried vsl3 it just made me bloated. Does anyone know a good 1?I'm looking for 1 with no nasty added stuff in I? Does any recommend milk thistle too?thanks in advance
Miles7
in
British Liver Trust
2 years ago
MRI Liver
Hi Does anyone know how often you should have liver mri if you have Cirrhosis? I was dx with Cirrhosis 7 yrs ago (PBC 16yrs). Never had a liver mri
Hi Does anyone know how often you should have liver mri if you have Cirrhosis? I was dx with Cirrhosis 7 yrs ago (PBC 16yrs). Never had a liver mri
BlueskyUK
in
British Liver Trust
2 years ago
1
...
73
74
75
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
5003 results
PBC Foundation
972 results
Thyroid UK
217 results
View top 10 communities
Sort by
Most Relevant
Newest