Experiences with

Glivec

Hello, I'm 24 and I was diagnosed with CML late last year. I've been taking Gleevec for about 8 months. I dont have oncologist appointments very often because my blood work looks good. However I get swollen by my spleen, really bloated and I get sharp pains there and in my back in the same spot. No

I am a 78 year old retired educator who has battled GIST CANCER for 20 years. To my surprise, An HCC tumor was found in my liver in between two GIST tumors. in my June 5 MRI. The GIST tumors were shrinking out of site thanks to be taking Gleevec, a targeted therapy drug. My surgeon could not safely resect

Had resection a year ago for liver cancer in agony tried a block it lasted 2 days. Unbearable on heavy heavy narcotics only. Bedridden doctors just say take pain meds but the sude effects and amounts are making me comotose. At the end of my tether please any ideas. Sorry but its torture and wish

Two days ago my abdominal ultrasound results came normal. Liver, spleen, pancreas, kidneys, gallbladder are normal but my AST,Alt, Bilirubin,INR, are high and platelets and Albumin are low,what does it mean. Please someone can explain me.

Hello everyone, We're having our first [i]The Truth About Liver Cancer[/i] workshop on Saturday, March 15, at 12 p.m. ET. The topic is Patient Perspectives. You'll meet three people who have or had different liver diseases that put them at a high risk for liver cancer. You can register

My hubby has received an appt letter for his liver transplant inital assessment at Kings- London. Please could anyone who has been through the Kings assessment in the last 2/3 years share your experience please. ( Polite point: We don't do social media so won't be able to get support from the Facebook

So I have medium lung function caused by pulmonary sarcoid years ago and worried I won't pass the lung function test for liver transplant. Anyone squeeze by and get on the list with lung issues? TVM

Hi everyone, I wanted to share a bit about my liver health journey and see if anyone else has had similar experiences or success stories. A month ago, I had a bit of a scare with my liver enzyme results, which were: GGT – 342 ALT – 76.9 I got these results through an online clinic, using a home

I had a hemithyroidectomy in 2015. I have been on levo since then and results were stable, all good. No.problems.About 5 months ago my gp.prescribed spironolactone for hypertension . Gradually my tsh has risen to 4.2 and free t4 is now 17.5. My gp has said to reduce the levo !? I have read that spironolactone

I see many folks posting how they’ve gone from decompensated to compensated with proper diet, no alcohol, etc. Hubby has been doing that for about three years, but no real improvement. Is it because he’d crossed the threshold with having esophageal and gastric bleeds, portal hypertension and ascites

hi everyone, It’s been 2 years since diagnosed with liver cirrhosis . Currently compensated. I have ultrasound every 6 months. My last one was in November. Recently received letter saying Us showed “some small focal areas in left lobe of liver . As a result I have been recalled for next scan on 1st

Reaching out as was diagnosed nearly 2 years ago with fatty liver had scan recently results came back in 2 days g.p requested urgent appointment but appointment not till 17 days if it was really really bad would there leave me 17 days any advice thank you x

Recently had a FIB-4 with a result of 3.1, which indicates a high likelihood of advanced liver fibrosis. Paid for an Enhanced Liver Function test which is 9.2 which apparently means advanced liver fibrosis is unlikely and to make some lifestyle changes and retest in 3 years. I’m assuming the ELF

Hi, has anyone ever suffered from Hepatic Myelopathy? It's a rare spinal neurological complication of chronic liver disease that causes progressive weakness and spasticity in the lower limbs.

Dose scarring on the liver mean you definitely have Cirrhosis? I can not seem to get a straight answer from Dr's. I was told in 2023 I have fatty liver. Then the beginning of last year I got told I have Cirrhosis after a fibroscan. Then towards the end of year I had another fibroscan and my results

Hi...I'm the partner of someone with advanced alcohol induced cirrhosis...feeling a bit helpless as my partner won't stop drinking ...he currently drinks 1-2 half bottles of Vodka daily and several bottles of so called tonic wine weekly....he's the most beautiful person you could wish to meet and sadly

Hi, Would it be unusual to have an ELF reading come back as 14, yet ALT, Platelets, Billirubin all be normal? My doctor isn’t in a rush to see me whilst I have convinced myself I’m on deaths door (no symptoms though). would be interested to hear from other peoples experiences, although I’m struggling

hi diagnosed with cirrhosis march 23 because I was drinking to much , although not being a alcoholic I stop drinking instantly and not drank since, just wondering if a couple of drinks now and then will kill me off!! Am talking like 2 glasses of wine a month or maybe a couple of lagers,?

Does anyone know or can reassure me? I’m 26 and last year I was diagnosed with fatty liver( non alcoholic) They said eat good, exercise etc and can be reversed I was still drinking, eating unhealthy, and just this new year stopped eating the bad stuff and drinking Friday I had bloods for