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Newly diagnosed with HCC
I am a 78 year old retired educator who has battled GIST CANCER for 20 years. To my surprise, An HCC tumor was found in my liver in between two GIST tumors. in my June 5 MRI. The GIST tumors were shrinking out of site thanks to be taking Gleevec, a targeted therapy drug. My surgeon could not safely resect
I am a 78 year old retired educator who has battled GIST CANCER for 20 years. To my surprise, An HCC tumor was found in my liver in between two GIST tumors. in my June 5 MRI. The GIST tumors were shrinking out of site thanks to be taking Gleevec, a targeted therapy drug. My surgeon could not safely resect
Dachshund45
in
Blue Faery Liver Cancer
9 days ago
Fibroscan Frequency
I had a Fibroscan 3 months ago as an earlier US diagnosed I had cirrhosis. I have fatty liver and a LSM of 28.2 . I have given up alcohol completely since then. I asked the consultant when will I have another Fibroscan . He told me in about a year. I was hoping to have another one much sooner so
I had a Fibroscan 3 months ago as an earlier US diagnosed I had cirrhosis. I have fatty liver and a LSM of 28.2 . I have given up alcohol completely since then. I asked the consultant when will I have another Fibroscan . He told me in about a year. I was hoping to have another one much sooner so
Oldtag
in
British Liver Trust
2 hours ago
Encouraging results
Went for 6 monthly US today and they also fitted me in for a fibroscan. Well...the US showed a regular shaped, smooth liver with no nodules and only mild fatty liver. Fibroscan was still high at 40, but much better than 10 months ago when it was 74. My liver is recovering from the years of alcohol I
Went for 6 monthly US today and they also fitted me in for a fibroscan. Well...the US showed a regular shaped, smooth liver with no nodules and only mild fatty liver. Fibroscan was still high at 40, but much better than 10 months ago when it was 74. My liver is recovering from the years of alcohol I
Ilovedavid
in
British Liver Trust
15 hours ago
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Seven years later.
hi all, Im 7 years post transplant.some bile duct problems, but a good recovery after the main operation. I unfortunately still have fatigue and others symptoms but am alive and kicking 🤣 In the 7years since my transplant I have been lucky enough to become nanna to 7 grandchildren… One for each
hi all, Im 7 years post transplant.some bile duct problems, but a good recovery after the main operation. I unfortunately still have fatigue and others symptoms but am alive and kicking 🤣 In the 7years since my transplant I have been lucky enough to become nanna to 7 grandchildren… One for each
Singlady
in
PBC Foundation
18 hours ago
cirrhosis and Pip
Hi everyone, I was just wondering if anyone had experience of giving up work and claiming pip with compensated cirrhosis. My story is I’ve been in quite a stressful role for nearly 24 years and was diagnosed with cirrhosis about 18 months ago. I am feeling increasingly tired with considerable joint
Hi everyone, I was just wondering if anyone had experience of giving up work and claiming pip with compensated cirrhosis. My story is I’ve been in quite a stressful role for nearly 24 years and was diagnosed with cirrhosis about 18 months ago. I am feeling increasingly tired with considerable joint
0range5520
in
British Liver Trust
2 days ago
to anyone new to the group.....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
2 days ago
Wednesday's Word
[i]
encephalopathy
[/i] This is a term used for a condition of toxic brain dysfunction. In those with PBC, it is known as hepatic encephalopathy. This occurs in advanced cirrhosis as the liver fails to filter the toxins. It occurs rarely, a liver transplant being the only help. HE (Hepatic Encephalopathy
[i]
encephalopathy
[/i] This is a term used for a condition of toxic brain dysfunction. In those with PBC, it is known as hepatic encephalopathy. This occurs in advanced cirrhosis as the liver fails to filter the toxins. It occurs rarely, a liver transplant being the only help. HE (Hepatic Encephalopathy
DonnaBoll
Administrator
in
PBC Foundation
2 days ago
Organ Donation for Transplant and Research
This post is talking about Organ Donation upon Death, so please take care to choose to read on further.
I recently went down to the Blood and Transplant Service Head Office in Bristol and attended a workshop on the importance of organ research. There were four of us fellow liver transplantees
This post is talking about Organ Donation upon Death, so please take care to choose to read on further.
I recently went down to the Blood and Transplant Service Head Office in Bristol and attended a workshop on the importance of organ research. There were four of us fellow liver transplantees
Richard-Allen
in
British Liver Trust
2 days ago
Confusion on fibroscan results
Hi All, my husband was recently told he had an enlarged liver ( spotted when having a gastroscopy ) and that he would get a follow up fibroscan - this took a few weeks and then we got the results by letter which completely shocked and scared us! It stated he had F4 liver cirrhosis and S3 fatty liver
Hi All, my husband was recently told he had an enlarged liver ( spotted when having a gastroscopy ) and that he would get a follow up fibroscan - this took a few weeks and then we got the results by letter which completely shocked and scared us! It stated he had F4 liver cirrhosis and S3 fatty liver
Tmrw
in
British Liver Trust
2 days ago
Some 'tips' for new/already diagnosed members
If at all possible, see a knowledgable hepatologist Only use trusted and reputable sources for information Don’t google unless the article is current and from a reputable source such as The American Liver Foundation, Canadian PBC Society,The PBC Foundation, LivingWithPBC, Cleveland and Mayo Clinics
If at all possible, see a knowledgable hepatologist Only use trusted and reputable sources for information Don’t google unless the article is current and from a reputable source such as The American Liver Foundation, Canadian PBC Society,The PBC Foundation, LivingWithPBC, Cleveland and Mayo Clinics
DonnaBoll
Administrator
in
PBC Foundation
4 days ago
Part 1 of my liver assessment
Finally got put forward for part 1 of my liver assessment for a possible transplant, it's going to be a very long day on Monday and I will be 7 days post drain, so I will be like a beached whale again, grateful to be finally put forward for it and a bit nervous, any advice on what to expect or what to
Finally got put forward for part 1 of my liver assessment for a possible transplant, it's going to be a very long day on Monday and I will be 7 days post drain, so I will be like a beached whale again, grateful to be finally put forward for it and a bit nervous, any advice on what to expect or what to
bushburywolf
in
British Liver Trust
4 days ago
Pain After Paracentesis
My partner had his ascites drained last week. He has had 2 previous drains but this time he has experienced a lot of pain afterwards. It’s sometimes quite acute - and gets worse when he eats. Then he feels 100% better - only for the pain to start again. Has anyone else had this experience? Any advice
My partner had his ascites drained last week. He has had 2 previous drains but this time he has experienced a lot of pain afterwards. It’s sometimes quite acute - and gets worse when he eats. Then he feels 100% better - only for the pain to start again. Has anyone else had this experience? Any advice
Ladypinkdoor
in
British Liver Trust
5 days ago
Amino acid urine test finds taurine “wasting”, elevated beta alanine and anserine - anyone else?
hi. Input much appreciated on a mystery . First background: I have had elevated ALT, AST, and GGT for decades along with poor health and some little recognized chronic conditions. I would like to know if anyone else with liver disease has or has heard of the following odd metabolic derangement. I
hi. Input much appreciated on a mystery . First background: I have had elevated ALT, AST, and GGT for decades along with poor health and some little recognized chronic conditions. I would like to know if anyone else with liver disease has or has heard of the following odd metabolic derangement. I
SkinNBones
in
British Liver Trust
5 days ago
Using Travel Insurance
Has anyone here ever needed to use their Emergency Travel Medical insurance for a hospital stay related to their cirrhosis?Hubby wants to travel but he doesn’t go more than 6 months without ending up in hospital. Just spent 10 days due to sepsis. The week before he was 100% normal. I also worry about
Has anyone here ever needed to use their Emergency Travel Medical insurance for a hospital stay related to their cirrhosis?Hubby wants to travel but he doesn’t go more than 6 months without ending up in hospital. Just spent 10 days due to sepsis. The week before he was 100% normal. I also worry about
MississaugaLiver
in
British Liver Trust
6 days ago
Liver cancer
finally got to talk to a very knowledgeable liver specialist having been trying to get some answers for months. He understood why I wanted to know and given some idea how long I can expect too live. He went into a lot of detail fully explaining all the scenarios, which is exactly what my wife and I wanted
finally got to talk to a very knowledgeable liver specialist having been trying to get some answers for months. He understood why I wanted to know and given some idea how long I can expect too live. He went into a lot of detail fully explaining all the scenarios, which is exactly what my wife and I wanted
oap74
in
British Liver Trust
8 days ago
Yet another question about cirrhosis.
I'm so sorry to bother everyone again. I promise this will be my last post for quite some time [hopefully]. I'm taking some advice from a couple of lovely members from this forum who have advised me to try and not worry so much over every detail of my condition, and live each day to its fullest. Just
I'm so sorry to bother everyone again. I promise this will be my last post for quite some time [hopefully]. I'm taking some advice from a couple of lovely members from this forum who have advised me to try and not worry so much over every detail of my condition, and live each day to its fullest. Just
puddy68
in
British Liver Trust
8 days ago
Questions about Cirrhosis Prognosis
Hi Everyone. I have yet another question[s] [I'm sorry!] I just read a post from 6 years ago that gave me a bit of a fright, and I'm wondering if anyone has any thoughts or advice on this? The post stated that cirrhosis patients can do "remarkably well provided they can keep clean, & early stage cirrhosis
Hi Everyone. I have yet another question[s] [I'm sorry!] I just read a post from 6 years ago that gave me a bit of a fright, and I'm wondering if anyone has any thoughts or advice on this? The post stated that cirrhosis patients can do "remarkably well provided they can keep clean, & early stage cirrhosis
puddy68
in
British Liver Trust
8 days ago
Liver Biopsy Soon.
Hey everyone, I have a Liver Biopsy next week, as my blood tests have shown that my body is attacking my liver as it thinks it's "Foreign". I'm going under general for it. Does anyone know why my body is attacking my liver? Thanks,
Hey everyone, I have a Liver Biopsy next week, as my blood tests have shown that my body is attacking my liver as it thinks it's "Foreign". I'm going under general for it. Does anyone know why my body is attacking my liver? Thanks,
Lmm4
in
British Liver Trust
9 days ago
potential DILI - advice?
hi everyone, I’m 29F, at the end of April I was hospitalised for e-coli, given anti biotics and PPI’s through my IV line for 3 days, then continued on oral anti biotics with PPI’s for 5 days My symptoms continued and my ALT/AST are at 952/370 and continuing to rise still today, I feel awful, nauseous
hi everyone, I’m 29F, at the end of April I was hospitalised for e-coli, given anti biotics and PPI’s through my IV line for 3 days, then continued on oral anti biotics with PPI’s for 5 days My symptoms continued and my ALT/AST are at 952/370 and continuing to rise still today, I feel awful, nauseous
eljd
in
British Liver Trust
9 days ago
Just a few more questions about Cirrhosis
Hello, it's me [again]. Only one more day until I go for my endoscopy as they picked up varices on my cat scan. May [or most definitely will, according to my gastroenterologist] have to band them. This whole procedure has got me thinking again, and I inevitably then end up with more questions [sorry]
Hello, it's me [again]. Only one more day until I go for my endoscopy as they picked up varices on my cat scan. May [or most definitely will, according to my gastroenterologist] have to band them. This whole procedure has got me thinking again, and I inevitably then end up with more questions [sorry]
puddy68
in
British Liver Trust
9 days ago
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