Experiences with

Glivec

Hello, I'm 24 and I was diagnosed with CML late last year. I've been taking Gleevec for about 8 months. I dont have oncologist appointments very often because my blood work looks good. However I get swollen by my spleen, really bloated and I get sharp pains there and in my back in the same spot. No

Hi. This is my first time here. 🤗My GP send me for an annual blood test. My liver function test results are worrying me. My ALT level is 83. And my AST is 57. Is this really bad? I have no idea. I had a message to book a telephone appointment to discuss the results. I couldn't get one for earlier

Hi. This is my first time here. 🤗My GP send me for an annual blood test. My liver function test results are worrying me. My ALT level is 83. And my AST is 57. Is this really bad? I have no idea. I had a message to book a telephone appointment to discuss the results. I couldn't get one for earlier than

My mother was put on the list for a liver transplant and everything was looking good until recently, she had developed pancreatitis which they say is fatal if she were to transplant her while she has pancreatitis. The doctors keep pushing my family and myself to hospice care and telling us to be realistic

Hello, I am grateful to be with you as support through this journey. I was diagnosed with PMR 3wks ago via elevated sedation rate and CRP. I also had classic sudden onset symptoms. I was started on 20mg of prednisone which helped but the mornings were still rough for 1-3hrs. I was seen again yesterday

From an attendee of our Love Your Liver for Black History Month workshop last week. "I very much enjoyed last week's seminar on liver cancer. Although I don't have liver cancer, back in October 2012, my liver was attacked by three different autoimmune diseases that had me on the liver transplant

18 months ago following a fibroscan I was diagnosed with F3. I have not made any major lifestyle changes as I didn't feel I needed to. I have been on lots of medication for many years. I started to take Milk thistle tablets daily and Vitamin E with selenium several months ago. I also increased ny coffee

Hi Everyone.......I hope you are all travelling well. I am due to see a liver specialist and a respiratory specialist in about 4 weeks [I was meant to see them in February, but my anxiety went through the roof as I had a relapse with the wine and cigarettes, and I absolutely hate myself for it.] I was

Hi allMy GP has been sending me for blood tests, an ultrasound scan and a Fibroscan. Both scans came back absolutely normal. I have slightly elevated AST level and raised antinuclear factor titre. Has anyone else had these results and what was the outcome? I am getting worried because my late husband's

Hello ladies! I was wondering if anyone else has had really high liver enzyme levels? I was diagnosed with HGSOC 3c in December 23, started chemo (paclitaxel , carboplatin & Bevacizumab) in Jan 24. Debulking surgery April 24. Two more chemo cycles post op, (NED) then onto Bev as maintenance, which I

hi I have pbc crossed with aih , with cirrhosis On all the usual meds . I suffer with cramp/ achy muscles in my thighs and calves . Lying in bed now and I can feel them aching . I don’t need to have done any activity for this to happen I always forget to mention this at my appointment Does anyone

hi everyone The filgotinib continues to work its magic and am virtually pain free for first time for over 20 years. Last weeks blood tests show “mild liver abnormality” for first time,and have to retake next month to see if just a one off.Rheumatologist asked if I had any illness which might explain

I I need to know weather I have Cirrhosis. So I can move forward this not knowing is really messing with me. I have ask for a biopsy. But just dosnt seem to be happening. Even though the Consultant has told me that its the only way to really tell 😕I have changed my diet lost over a stone since August

My hubby becomes very itchy after having dinner - high protein in the evening. He has protein drinks during the day and protein in his lunchtime meal but the itching doesn't start until after his evening meal about 7pmish- strange!We know it's to do with toxin build up from the ammonia produced from

Hi all, I hope you're all having a non problematic day so far! I've posted before, but just a bit of background... I was diagnosed with decompensated cirrhosis in August 2023 after I collapsed in my flat, I thought I'd just gad a tummy bug. I was malnourished and my HB was 35, which I'm told is quite

I have a long medical history with various conditions leading to another but for the much greater part have had no pain or distressing symptoms. Briefly: Late 1980s - Gall Stones, Gall Bladder removed. Blood tests didn't return to normal. After a few years of investigations was diagnosed with: Primary

Have you been diagnosed with liver cancer after experiencing unexpected weight loss? A national media journalist is writing about how unintended weight loss can be a symptom of other conditions. If this is something you have experience of, and you would like to share your story, please email

I have had mild alt 30-40 for several years my dr has ever s said too much about it, but my last visit Referred my to a liver dr, had a liver biopsy 11 years ago ..was told at that time it was ok…I do drink Not to the point of drunkenness and I also don’t drink every day…any way ran a bunch of test

Had resection a year ago for liver cancer in agony tried a block it lasted 2 days. Unbearable on heavy heavy narcotics only. Bedridden doctors just say take pain meds but the sude effects and amounts are making me comotose. At the end of my tether please any ideas. Sorry but its torture and wish

Two days ago my abdominal ultrasound results came normal. Liver, spleen, pancreas, kidneys, gallbladder are normal but my AST,Alt, Bilirubin,INR, are high and platelets and Albumin are low,what does it mean. Please someone can explain me.