Experiences with

Glivec

Hello, I'm 24 and I was diagnosed with CML late last year. I've been taking Gleevec for about 8 months. I dont have oncologist appointments very often because my blood work looks good. However I get swollen by my spleen, really bloated and I get sharp pains there and in my back in the same spot. No

I am a 78 year old retired educator who has battled GIST CANCER for 20 years. To my surprise, An HCC tumor was found in my liver in between two GIST tumors. in my June 5 MRI. The GIST tumors were shrinking out of site thanks to be taking Gleevec, a targeted therapy drug. My surgeon could not safely resect

I was having stomach pain for a long time so GP sent me for an ultrasound scan. The radiologist said my liver looked bright red, he then said I have fatty liver but that is nothing to worry about and very common but that didn't reassure me, after all cancer is very common. He asked if I took a lot of

my husband, 52 has been an alcoholic for many years, functioning until he wasn’t. Just over 2 years ago he started becoming confused with increasing mobility issues and kept dropping everything. I spoke to the gp several times and they told me if he was refusing to go to hospital there was nothing

hello, as by by past posts use know I was diagnosed with cirrhosis 20 month ago and I am doing really well, my husband whom am parted with has been drinking since until recently, he was drinking like me 3-5 bottles of wine per day for approx 10 year but was also a heavy drinker prior to this for 20 before

I was diagnosed with AIH in 2012 and a few years later crossover with PBC was confirmed. I also have alpha 1 antitrypsin deficiency. Triple whammy! I’ve been on Azathioprine and Urso for many years as I was diagnosed early. I’m fortunate that my liver results are within the normal range and I have

Hi everyone 👋 I’m a new member and hoping to understand more about cirrhosis, my diagnosis and what it means going forward. Long story short - I was admitted to hospital in May 2022 with a decompensated liver and highest rating of 75 kPa and cirrhosis. I was discharged after a week (and after the shock

[i]When Thursdays rolls around I often begin my day by asking what should I say today to my group?[/i] [i]What can I say that would matter? What would make a difference in someone's day?[/i] [i]Maybe all I can say is that "it's ok". You are "ok". I had PBC for 20 years before I was

If your child has pediatric liver cancer, such as hepatoblastoma or hepatocellular carcinoma, please check out this webinar recording featuring Dr. Arun Rangaswami of UCSF Benioff Children's Hospitals and Dr. Allison O'Neill of Dana-Farber/Boston Children's Cancer Institute, discussing the path to diagnosis

Hi all, well today I start my radiotherapy out of 5 over the next couple of weeks. I hope and pray this works out for me. I am very positive and have been since being diagnosed with liver cancer. Of course, I shall inform you how it goes for me. Regards Mick

Hi folks, I had a fibroscan 2 years ago and have a new appointment tomorrow morning. I was wondering if anyone else who has had one has seen their readings have lowered. I have been abstinent from Alcohol and Cigarettes since being diagnosed with Cirrhosis 3 years ago and lost 5+ stone in weight due

i am 34 year old i am drinking alchohal from last 10 years my ggt is 150 and alt 82 and ast 44 i am still drinking a one bottle of whiskey in week its normal values or really high i have faty liver please help me

Hi! I have had various tests and biopsy. Found 12 adenomas, benign. Largest being 5.1cm. Plan is to remove and monitor the other smaller 11 anually. Appear to be as a result if 22 years on the pill. Does anyone have any advice for me about the operation? What to expect afterwards? Also what are your

Hi, My dad ended up in A&E fighting for his life August bank holiday this year and turns out he has cirrhosis with that episode being the first time presenting which was a surprise to everyone (apparently usually there’s signs before the point he got to but he was putting symptoms down to side effects

Hello everyone I’ve recently been told that my son Jamie who is 15 years old will need a liver transplant due to portal hypertension and varices There was an official meeting the following week where it was decided he would be having one However fast forward 7 weeks and his liver Co-ordinator

Hello - I am wondering if anyone had tips for a healthy diet to maintain compensated cirrhosis - I’m overweight and have to loose weight as quickly and safely as possible. Is it just the same principles as recommended for NAFLD do you know? Anyone know is sweeteners are an issue for the liver to process

Hi all I posted here a few weeks ago about my Fibroscan scores. 10.3 to 5.5 (scans 10 months apart and a fantastic reduction by abstaining from alcohol) then a score of 7.2 just 6 weeks later (I know it's still in the normal range but I was concerned about the increase in such a short space of time

Started to get ascites a couple of months ago and have since had two drains (11.5 and 16 litres), and was put on 200mg of spironolactone a day. The most irritating side effect is the leg cramps as soon as I go to bed. How has everybody else coped with this and any ideas on how to combat it

hi got korsakoff and ascites waiting on ultrasound scared be too weak for a transplant

just updating from last post, had a fibroscan at work ( it was a mobile unit) Kpa was 15.8! Cap 188, had bloods done liver function normal including ALT. AST, GP still won’t allow blood for viral or autoimmune until I see him on the 13th, was lucky to get a private USS via work, booked for the 18th.