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Weight gain and osteoporosis
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
I am in great discomfort because I have developed severe osteoporosis in the spine. I have compression fractures in three areas of the thoracic spine (T10, T11 and T12) and one area of the lumbar spine ( L1). I was diagnosed with GCA in September 2022 and have been on high doses of steroids until very
Raga72
in
PMRGCAuk
10 months ago
I figured out how to tolerate antibiotics (trimethoprim in this case) without huge neuropathic pain flare!! (for real this time!)
I've been posting about this on and off all year trying to get some answers. Anyway, I'll keep it short. I've been unable to tolerate Trimethoprim or Doxycycline without the both causing unbearable neuropathic pain (burning, stinging, tingling, etc). I tried multiple times and failed to continue after
I've been posting about this on and off all year trying to get some answers. Anyway, I'll keep it short. I've been unable to tolerate Trimethoprim or Doxycycline without the both causing unbearable neuropathic pain (burning, stinging, tingling, etc). I tried multiple times and failed to continue after
Whoa182
in
Pernicious Anaemia Society
10 months ago
Xtandi (enzalutimide) SEs Part 2
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
MoonRocket
in
Advanced Prostate Cancer
5 months ago
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Awful day
So yesterday was the worst day I’ve had in a long time. I’ve been bleeding almost constantly since February. I’ve been on zoladex and now Prostap for 18 months. No improvement, in fact seems worse on Prostap. I get the letter no one wants, your smear test is due. Oh great can’t do that in my state. But
So yesterday was the worst day I’ve had in a long time. I’ve been bleeding almost constantly since February. I’ve been on zoladex and now Prostap for 18 months. No improvement, in fact seems worse on Prostap. I get the letter no one wants, your smear test is due. Oh great can’t do that in my state. But
MrsPaddingtonBear
in
Endometriosis UK
10 months ago
Taking hours to fall asleep
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Opie__
in
Restless Legs Syndrome
5 months ago
Risedronate Update
Having had a long break after stopping Alendronic Acid, I started Risedronate on 2nd June 23. For the first few weeks I was fine. No noticeable side effects. (After the terrible time with AA you can appreciate I was overjoyed.) However about 3 weeks ago the same symptoms started creeping back.
Having had a long break after stopping Alendronic Acid, I started Risedronate on 2nd June 23. For the first few weeks I was fine. No noticeable side effects. (After the terrible time with AA you can appreciate I was overjoyed.) However about 3 weeks ago the same symptoms started creeping back.
Calamintha
in
Bone Health and Osteoporosis UK
11 months ago
Obeticholic Acid..weight gain
Has anyone noticed weight gain or not being able to lose weight since taking Ocaliva (Obeticholic Acid) please?
Has anyone noticed weight gain or not being able to lose weight since taking Ocaliva (Obeticholic Acid) please?
Oludeniz2017
in
British Liver Trust
11 months ago
Dietary Approaches to Improve Efficacy and Control Side Effects of Levodopa Therapy in Parkinson's Disease: A Systematic Review
I was researching supplement BCAA provided by my husband's functional medicine MD. I was surprised to find one of the ingredients was listed as a major contraindication with levodopa. L-Phenylalanine. Dug a little deeper and it related to protein and impact on levodopa. Found an interesting article
I was researching supplement BCAA provided by my husband's functional medicine MD. I was surprised to find one of the ingredients was listed as a major contraindication with levodopa. L-Phenylalanine. Dug a little deeper and it related to protein and impact on levodopa. Found an interesting article
Sydney75
in
Cure Parkinson's
7 months ago
Night sweats etc.
I am tapering down from 30mg pred since April 2022 and I am now down to 3mg (4mg alternate days). I am finding I am having a lot of night sweats. Has anyone found else had this problem and if so how long it lasts for? I have to add that I have recently been diagnosed with osteoporosis, and didn't know
I am tapering down from 30mg pred since April 2022 and I am now down to 3mg (4mg alternate days). I am finding I am having a lot of night sweats. Has anyone found else had this problem and if so how long it lasts for? I have to add that I have recently been diagnosed with osteoporosis, and didn't know
Washingup
in
PMRGCAuk
11 months ago
K2 supplement
Having read on this forum that calcium/D3 is best supplemented with K2 to aid absorption, I've been taking it with my (prescribed) iCal D3 chewable tablets for some years. I had breast cancer in 2016 and was prescribed Letrozole, and as I had radiotherapy too, advised to take iCal and Alendronic Acid
Having read on this forum that calcium/D3 is best supplemented with K2 to aid absorption, I've been taking it with my (prescribed) iCal D3 chewable tablets for some years. I had breast cancer in 2016 and was prescribed Letrozole, and as I had radiotherapy too, advised to take iCal and Alendronic Acid
jools56
in
Bone Health and Osteoporosis UK
11 months ago
haematoma -update
As suggested, I got in touch with my haem who told me to go immediately to the hospital. I didn't see her face- to- face but was seen first by a junior doctor and then had a blood test. She reported back to the haem, sending photos. The outcome was I have a course (3 days) of Tranexamic Acid (2000 mg
As suggested, I got in touch with my haem who told me to go immediately to the hospital. I didn't see her face- to- face but was seen first by a junior doctor and then had a blood test. She reported back to the haem, sending photos. The outcome was I have a course (3 days) of Tranexamic Acid (2000 mg
Mwalimu
in
MPN Voice
11 months ago
really panicking over infusions, please help
Hi everyone, I am a 62 year old woman and 103lbs (lost a lot of weight during the pandemic) who was diagnosed with osteoperosis in 2020. About a year ago(7/26/2022) I did a dexascan with following results:
Lumbar spine (L1-L4):
BMD 0.766g/cm2 Z Score -1.9 T Score -2.6 Interval Change (%)
Hi everyone, I am a 62 year old woman and 103lbs (lost a lot of weight during the pandemic) who was diagnosed with osteoperosis in 2020. About a year ago(7/26/2022) I did a dexascan with following results:
Lumbar spine (L1-L4):
BMD 0.766g/cm2 Z Score -1.9 T Score -2.6 Interval Change (%)
Cavey-girl
in
Osteoporosis Support
11 months ago
Flare? Or has biologic stopped working?
I am on COSENTYX and MTX and had been doing ok. The consultant said I needed to start Alendronic acid as my bone density borderline. Within a few weeks my arthritis symptoms started to flare. I had a depo injection, but little or no effect. I have been taking celecoxib which wasn't doing enough so now
I am on COSENTYX and MTX and had been doing ok. The consultant said I needed to start Alendronic acid as my bone density borderline. Within a few weeks my arthritis symptoms started to flare. I had a depo injection, but little or no effect. I have been taking celecoxib which wasn't doing enough so now
Gilliancheche
in
NRAS
11 months ago
Excess Iron In The Brain Of PwP And The Role Of Thiamine, Melatonin And Hesperidin In Alleviating This Issue
Excess iron in the brain is thought to be a contributing factor to PD and is known to damage the brain. Iron increases in the brain with age, but even more so in PD. Symptoms of too much iron in the brain include progressive dystonia (a movement disorder resulting in muscular spasms, twisting, and repetitive
Excess iron in the brain is thought to be a contributing factor to PD and is known to damage the brain. Iron increases in the brain with age, but even more so in PD. Symptoms of too much iron in the brain include progressive dystonia (a movement disorder resulting in muscular spasms, twisting, and repetitive
chartist
in
Cure Parkinson's
11 months ago
UPDATE: Finally, some progress with the back (only took 3 months). Now Week 6 on the bed.
Ater my 11 trips to ER (in Halifax), I got Dr. Das, who at this point, is my hero. He diagnosed 2 fragility fractures at L1, L2 and disc buldges at L4, L5, S1 from a CT scan of July 6th which no one had read. After calling Rheumatolgy Nursing Line on Monday last, for the first time ever, they returned
Ater my 11 trips to ER (in Halifax), I got Dr. Das, who at this point, is my hero. He diagnosed 2 fragility fractures at L1, L2 and disc buldges at L4, L5, S1 from a CT scan of July 6th which no one had read. After calling Rheumatolgy Nursing Line on Monday last, for the first time ever, they returned
Missus835
in
PMRGCAuk
11 months ago
Dexa scan results meaning
Hi Everyone I have finally managed to get a copy of the results of the above which I had done early March. I asked for the scan because I was automatically put on Alendronic acid at the same time as Pred although I had no likelyhood of osteoporosis. It wasn’t until I joined this site I realised the
Hi Everyone I have finally managed to get a copy of the results of the above which I had done early March. I asked for the scan because I was automatically put on Alendronic acid at the same time as Pred although I had no likelyhood of osteoporosis. It wasn’t until I joined this site I realised the
MrsPractical
in
PMRGCAuk
11 months ago
Osteoporosis meds
I've been taking a weekly Alendronic acid tablet plus daily calcium and vit D with no affect on my RLS.
I've been taking a weekly Alendronic acid tablet plus daily calcium and vit D with no affect on my RLS.
Allyp69
in
Restless Legs Syndrome
11 months ago
Morning check in
Well the melatonin was a little bit of help bur still woke up every 2 hours ... talk to anxiety support contacted my doctor about using prescription sleep aid. He's starting me on trazadonne 50 MG..will take before bedtime any suggestions... also gonna get word search fill in books to help during
Well the melatonin was a little bit of help bur still woke up every 2 hours ... talk to anxiety support contacted my doctor about using prescription sleep aid. He's starting me on trazadonne 50 MG..will take before bedtime any suggestions... also gonna get word search fill in books to help during
jojo15210
in
Anxiety and Depression Support
6 months ago
Better taper management
Hello again helpful people. I thought I'd update on my progress managing PMR, which was not going well 3 months ago. I took your advice and visited the dentist, to have a wisdom tooth out and no prospect of Alendronic Acid for at least 3 months, so that was worth it. But after I failed at reducing
Hello again helpful people. I thought I'd update on my progress managing PMR, which was not going well 3 months ago. I took your advice and visited the dentist, to have a wisdom tooth out and no prospect of Alendronic Acid for at least 3 months, so that was worth it. But after I failed at reducing
MarionA
in
PMRGCAuk
11 months ago
Help new drug prescribed
My Gastro has just prescribed Ursodeoxycholic acid for bile gastritis.Im a bit hesitant to take it due to side effects .Is this urso???? When I've looked it up it says hair loss dry eyes etc am I getting these drugs confused or are they the same? I don't have PBC that I know of no ALP rises and negative
My Gastro has just prescribed Ursodeoxycholic acid for bile gastritis.Im a bit hesitant to take it due to side effects .Is this urso???? When I've looked it up it says hair loss dry eyes etc am I getting these drugs confused or are they the same? I don't have PBC that I know of no ALP rises and negative
Paula1710
in
British Liver Trust
11 months ago
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