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Covid/MCAS experiences?
Hi all my situation is very complex but tl/dr has anyone had luck with any doctors, functional docs etc. after severely crashing out from Covid or experience with MCAS/ low vitamins and hashis? I am still very much trying to dig myself out of the hole but unsure how to even begin to fix all this. GP
Hi all my situation is very complex but tl/dr has anyone had luck with any doctors, functional docs etc. after severely crashing out from Covid or experience with MCAS/ low vitamins and hashis? I am still very much trying to dig myself out of the hole but unsure how to even begin to fix all this. GP
Littledancingtiger
in
Thyroid UK
16 days ago
Covid crash, dropping vitamin levels, MCAS?
Hi all my situation is very complex but tl/dr has anyone had luck with any doctors, functional docs etc. after severely crashing out from Covid or experience with MCAS, low vitamins and PA? I am still trying to dig myself out of the hole but unsure how to even begin to fix all this. GP has mentioned
Hi all my situation is very complex but tl/dr has anyone had luck with any doctors, functional docs etc. after severely crashing out from Covid or experience with MCAS, low vitamins and PA? I am still trying to dig myself out of the hole but unsure how to even begin to fix all this. GP has mentioned
Littledancingtiger
in
Pernicious Anaemia Society
16 days ago
Anyone recent experience Carlisle NHS endos?
As a continuation of post the other day re high HR with Long Covid: Gp wants an endo involved to give blessing to his desire to reduce my levo. My private endo who I have seen by zoom during covid is rather expensive and needs paying to get an advisory letter from ( now use Roseway Labs prescriber scheme
As a continuation of post the other day re high HR with Long Covid: Gp wants an endo involved to give blessing to his desire to reduce my levo. My private endo who I have seen by zoom during covid is rather expensive and needs paying to get an advisory letter from ( now use Roseway Labs prescriber scheme
Judithdalston
in
Thyroid UK
17 days ago
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W1R1 again!
Here I go again. After another dose of Covid decided to start again. Determined Long Covid won’t hit again after a 21 month battle with it before. Going to take it really slowly this time. 68 in 2 weeks and would love to get back to 10k again by the time I’m 70! Any tips?
Here I go again. After another dose of Covid decided to start again. Determined Long Covid won’t hit again after a 21 month battle with it before. Going to take it really slowly this time. 68 in 2 weeks and would love to get back to 10k again by the time I’m 70! Any tips?
Phdgranny
Graduate
in
Couch to 5K
17 days ago
antiviral meds covid
I rang haematology and they referred me to covid response team . I had a phone call from them and a courier delivered antivirals within one hour . Excellent service .
I rang haematology and they referred me to covid response team . I had a phone call from them and a courier delivered antivirals within one hour . Excellent service .
HazeBlue
in
MPN Voice
17 days ago
Paxlovid
I've caught covid and the covid clinic recommend I take Pacific has anyone else had this and did you have any side effects
I've caught covid and the covid clinic recommend I take Pacific has anyone else had this and did you have any side effects
Chel1
in
MPN Voice
18 days ago
Covid
Anyone else start having all these issues after the covid vaccine?
Anyone else start having all these issues after the covid vaccine?
FrustratedHuman
in
Functional Neurological Disorder - FND Hope
18 days ago
Summer COVID UK
Hiya, I have ET JAK2 and several of my friends have come down with COVID. I was wondering if anyone knew if we were eligible for free COVID tests in the UK and how to go about it ? Can we also get the anti virals if the worst comes to the worst and I do get it? I looked online and couldn't make much
Hiya, I have ET JAK2 and several of my friends have come down with COVID. I was wondering if anyone knew if we were eligible for free COVID tests in the UK and how to go about it ? Can we also get the anti virals if the worst comes to the worst and I do get it? I looked online and couldn't make much
Cassandra61
in
MPN Voice
18 days ago
Medicare won't cover Paxlovid twice within 6 months
I figured this is worth sharing - as I was shocked to have gone through this, but I found a solution worth sharing that even my pharmacist didn't know about. Yes, I think we all know by now that if you have CLL its important to get Paxlovid if you get COVID (and it really works well). I had COVID in
I figured this is worth sharing - as I was shocked to have gone through this, but I found a solution worth sharing that even my pharmacist didn't know about. Yes, I think we all know by now that if you have CLL its important to get Paxlovid if you get COVID (and it really works well). I had COVID in
xpetes
in
CLL Support
18 days ago
Post lurgy and niggles - update
Well Covid got me and the runs had to take a back seat for a while. I tried a short run the week after and it was such a puffer I had a word with myself and took another week off for recovery. When I next set out for a 20 minute session at a slow plod (I should say, even slower than usual 😀), I started
Well Covid got me and the runs had to take a back seat for a while. I tried a short run the week after and it was such a puffer I had a word with myself and took another week off for recovery. When I next set out for a 20 minute session at a slow plod (I should say, even slower than usual 😀), I started
Fionamags
Graduate10
in
Bridge to 10K
18 days ago
THANK YOU TO ALL RE: Covid Anti Viral Meds.
Thank you for all your helpful replies. As I had telephone appointment already scheduled I spoke to Haematologist about getting Anti viral meds. Apparently things have changed and these Covid meds cannot now be sourced through Haematology. On ringing my GP the receptionist understood right away and went
Thank you for all your helpful replies. As I had telephone appointment already scheduled I spoke to Haematologist about getting Anti viral meds. Apparently things have changed and these Covid meds cannot now be sourced through Haematology. On ringing my GP the receptionist understood right away and went
azaelea
in
MPN Voice
18 days ago
I had the shingles jab in 2019 I thought it was forever?
Hi Guys I have been asked to have another one, but I had one in 2019, well I had one then a booster a few weeks after, but now the GP have booked me in for another I thought they were for life, one jab for life??
Hi Guys I have been asked to have another one, but I had one in 2019, well I had one then a booster a few weeks after, but now the GP have booked me in for another I thought they were for life, one jab for life??
VeronicaF
in
NRAS
5 months ago
Gut problems with Pavlovid
hiya, never posted before but just seeking advice. I have GPA was diagnosed at the start of COVID. I currently take azathioprine. After avoiding it for all this time COVID finally got me and I’ve finished a course of Paxlovid. Despite some residual symptoms mainly breathing difficulties I have recovered
hiya, never posted before but just seeking advice. I have GPA was diagnosed at the start of COVID. I currently take azathioprine. After avoiding it for all this time COVID finally got me and I’ve finished a course of Paxlovid. Despite some residual symptoms mainly breathing difficulties I have recovered
Sweetpea0508
in
Vasculitis UK
19 days ago
COVID
I have Covid! I don't recommend it -- I feel terrible. I hope it doesn't cause a flare. I am down to zero prednisone and my adrenals suddenly caught up so I was feeling normal. Still on the Kevzara, however.
I have Covid! I don't recommend it -- I feel terrible. I hope it doesn't cause a flare. I am down to zero prednisone and my adrenals suddenly caught up so I was feeling normal. Still on the Kevzara, however.
Paulagcl
in
PMRGCAuk
19 days ago
Inflammatory arthritis & pulmonary embolisms - an update & a question on possible meds.
Hi all , In my 1st ever post on here 6 days ago regarding a link between inflammatory arthritis & pulmonary embolisms - I received many replies - all of them excellent. Thank you so much you lovely people! Today I saw my Rheumatologist & worded my question to him very, very carefully: "So Doctor
Hi all , In my 1st ever post on here 6 days ago regarding a link between inflammatory arthritis & pulmonary embolisms - I received many replies - all of them excellent. Thank you so much you lovely people! Today I saw my Rheumatologist & worded my question to him very, very carefully: "So Doctor
YorkieBard
in
NRAS
2 months ago
Covid Update
Hi all, a quick update to my previous post. I have had a couple of days of negative tests for Covid so holiday plans are going ahead as planned (as at this time!). It's been an "interesting" few days but I am feeling a huge amount better than I was, not 100% by any means but leaps and bounds better
Hi all, a quick update to my previous post. I have had a couple of days of negative tests for Covid so holiday plans are going ahead as planned (as at this time!). It's been an "interesting" few days but I am feeling a huge amount better than I was, not 100% by any means but leaps and bounds better
Bcol
in
PMRGCAuk
20 days ago
Covid. Do we still have to receive Antiviral medication?
I have just tested positive with Covid after Husband started with symptoms. I went onto NHS website to report it but it informs that this is no longer necessary. I wonder if we still have to request Antiviral treatment through 111 or GP. I have ET JAK2 Pos.
I have just tested positive with Covid after Husband started with symptoms. I went onto NHS website to report it but it informs that this is no longer necessary. I wonder if we still have to request Antiviral treatment through 111 or GP. I have ET JAK2 Pos.
azaelea
in
MPN Voice
20 days ago
bronciectis is
glad to b back it helps to read all the help you all give covid as done my chest in bronciectis is playing up and im feeling so week because of the last COVID
glad to b back it helps to read all the help you all give covid as done my chest in bronciectis is playing up and im feeling so week because of the last COVID
Redrum46
in
Lung Conditions Community Forum
21 days ago
Double jabs 😷
I had my flu and covid jabs today .. Went around 9.30 this morning then took Sadie for the longest walk ... It was lovley towards the end of walk I was starting to shiver with cold .. Its not cold at all I'm still wearing shorts... I'm now on the couch wrapped in a blanket with my dressing gown on feeling
I had my flu and covid jabs today .. Went around 9.30 this morning then took Sadie for the longest walk ... It was lovley towards the end of walk I was starting to shiver with cold .. Its not cold at all I'm still wearing shorts... I'm now on the couch wrapped in a blanket with my dressing gown on feeling
Blackbird9
in
Lung Conditions Community Forum
10 months ago
To share interesting experience!
Good morning my MPN family, Yesterday my husband tested positive for Covid, then I decided to take test too and was positive. After that I went to contact my MPN team and request antiviral Paxlovid medication. I was not able to get through my MPN team as I was hoping then I called 111 and as I was talking
Good morning my MPN family, Yesterday my husband tested positive for Covid, then I decided to take test too and was positive. After that I went to contact my MPN team and request antiviral Paxlovid medication. I was not able to get through my MPN team as I was hoping then I called 111 and as I was talking
light
in
MPN Voice
22 days ago
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