Paxlovid

[Chel1]

I've caught covid and the covid clinic recommend I take Pacific has anyone else had this and did you have any side effects

[Chel1]

Sorry the auto print kicked in not Pacific meant paxlovid med

[RomaJG in reply to Chel1]

Yes, I had Covid last week & was prescribed Paxlovid. The only side effect I had was a bitter taste in my mouth.

[Dottiedot]

Hi I have just finished paxlovid too, only side effect was the bitter taste in mouth too

[Chel1]

Thanks for that but no other side effects

[Conneryfan1]

Yes, finished it last week. Only side effect was a bitter taste. I feel it sped up my recovery.

[BeOutside]

I am going through my first bout with Covid now. I’m starting day 4 of my paxlovid today. No issues except the lousy mouth taste. I feel good!

[Chel1]

Thank you everyone still waiting for chemist to deliver them so hopefully they'll be here soon

[azaelea]

hi Chel 1. I just started with Covid on Sunday. G.P sent my particulars to Covid hub who rang with questions. I’ve been given Molnupiravir .Not Paxlovid. Think it might be because of other meds I’m taking. Began them last night. I’ve to take 4 capsules together morning and night . So far so good, fingers crossed no adverse effects. Hoping I feel alright soon and no side effects. This virus is worst thing I’ve ever had and escaped for the four years till now. My husband began with it last Thursday. Neither of us had our Spring jab as we couldn’t get Pfizer and didn’t want Moderna. A very foolish decision which we regret,

[Chel1 in reply to azaelea]

Thank you for that we didn't have spring jab as like you had pfizer all along and friends who had jab weren't well with it so decided against it fingers crossed don't get any side effects

[EPguy in reply to azaelea]

to azaelea:

What was the reason you didn't want Moderna? I've posted on the differences.

Anyway the current vax is just an ok match to the current Covid, new ones are coming next month.

[MichaelS]

Last year, after a couple days after trip to Gibraltar, I got Covid. I was taken to hospital because my breathing was very bad and given a strong antibacterial infusion and gthen a 5 day course of Paxovid

[MichaelS]

Sorry, the message was sent incorrectly. When I had the Paxlovid for 5 days, with the permission of Haematology, I had to stop the Ruxolitinib for the 5 days. I was allowed home after 2 days in hospital. I cannot remember having a bad taste in the mouth, but just know that I felt much better before the 5 days of Paxlovid had finished, so I am sure it did me good. I hope all goes well with you and please take care as Covid seems go be everywhere again. Best wishes to all, from Michael S

[EPguy in reply to MichaelS]

I asked my Hem long ago what we would do about Rux if I needed Pax, and whether I could get a standing Rx for it if I needed sometime. He said we'll deal with all that if/when it happens. I've seen advice that Rux is reduced by half while on Pax. Your experience shows it may be paused entirely.

[MichaelS]

It certainly seemed to work for me. Haematology insisted that I stop Rux for only 5 days. It actually took 20 days from the start of the Covid experience to the finish, for me to test negative, although I was feeling pretty good on myself.

[EPguy in reply to MichaelS]

to MichaelS

Supposedly there can be withdrawal symptoms when abruptly pausing Rux. Maybe 5 days is short enough to avoid that. What is your dose?

20 days of Covid stuff is no fun, but good you felt ok.

[MichaelS in reply to EPguy]

I've been on 10mg twice daily since 2014. Recently changed to 5mg morning and 10mg evening to try to let my Hbc get above 100. I believe because of the Rux I have had lots of skin cancers since 2018. The latest one was a lump on the left cheek (on the face) which took a while to analyse, because it is a very rare Merkel Cell Cancer. Unfortunately it has moved into the lymph system and I now have many small lesions in my liver and lungs. Oncologist says no more travel abroad and referred me to a local hospice, which I have visited at their "Drop In" sessions. (They do a very nice cake 😊). I haven't told anybody else on here about this latest development, apart from Maz, who knows me well, as I've been a buddy for years.

[EPguy in reply to MichaelS]

I appreciate your strength in sharing this quite personal matter with us here. MCC is a most unwelcome opponent to Rux pts. Quite rare but not unknown. We all await better medicines with less risk while I can relate too well to the real risks from the ones we have.

A tasty cake is a wonderful treat, wishing you good vibes with the new group.

[LIGEBA in reply to MichaelS]

MichaelS I'm very sorry to hear about your Merkel Cell Carcinoma. I have also had this extremely rare cancer and would be happy to share all the helpful & informative resources I've come across, including one of the name of one of the world leaders & a world wide group that has been extremely helpful. I don't know if I am allowed to share any of that here so please feel free to message me.