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I’m Back
it has been quite a while since I have been on this message board, life just happens as we all know with Lupus. Many changes have occurred from multifocal, pneumonia, aspergillus in my lung and tumor in my lung upper right lobe… however, it is benign right now and they’re just going to watch it. I
it has been quite a while since I have been on this message board, life just happens as we all know with Lupus. Many changes have occurred from multifocal, pneumonia, aspergillus in my lung and tumor in my lung upper right lobe… however, it is benign right now and they’re just going to watch it. I
SunflowerYiayia
in
LUPUS UK
4 months ago
Covid
l have Covid at the moment, had it about a week, l haven’t got the usual symptoms, not on any anti virals, l feel really tired, my main symptoms are very inflamed gums and very dry mouth, l have sorgens so dry mouth, but nothing like this, can l just ask has anyone else experienced this, not sure what
l have Covid at the moment, had it about a week, l haven’t got the usual symptoms, not on any anti virals, l feel really tired, my main symptoms are very inflamed gums and very dry mouth, l have sorgens so dry mouth, but nothing like this, can l just ask has anyone else experienced this, not sure what
Kate2628
in
NRAS
6 months ago
covid and pred
good morning Angels, It seems I have covid!! It’s my first time, what do I do re pred? More?
good morning Angels, It seems I have covid!! It’s my first time, what do I do re pred? More?
Alazarin
in
PMRGCAuk
7 months ago
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Struggling with antibiotics on chemo
Hi all, following chemo last week I then started with cellulitis infection in my leg. I began taking co-amoxiclav antibiotics but found i couldn’t take them orally due to sickness. On Saturday ended up in a &e having injectable antibiotics. They sent me home with the same pills and told me to take
Hi all, following chemo last week I then started with cellulitis infection in my leg. I began taking co-amoxiclav antibiotics but found i couldn’t take them orally due to sickness. On Saturday ended up in a &e having injectable antibiotics. They sent me home with the same pills and told me to take
Lyndy
in
My Ovacome
4 months ago
Tired Tavern - Discord server for people with CFS/ME and Long Covid
Hi guys, Just wanted to say that our CFS/ME and Long Covid Discord server has been up and running for two weeks now and we're close to 150 members. We're a very welcoming community that helps one another by sharing experiences, comfort and understanding. We also have server and community events coming
Hi guys, Just wanted to say that our CFS/ME and Long Covid Discord server has been up and running for two weeks now and we're close to 150 members. We're a very welcoming community that helps one another by sharing experiences, comfort and understanding. We also have server and community events coming
TiredTavern
in
Myalgic Encephalomyelitis Community
7 months ago
When on a weekly dose of Pegasys is it ok to occasionally alter the day you inject?
Hi everyone, I’m about to try Pegasys in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection. I forgot to ask my haematologist at my appointment
Hi everyone, I’m about to try Pegasys in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection. I forgot to ask my haematologist at my appointment
Na56
in
MPN Voice
4 months ago
first time covid - symptoms expectation
Hello fellow RA warriors, I have been very careful since the start of the covid era - very limited outings/socializing, always mask up when out, no more gym exercise classes. I decided to enjoy the holiday a little bit more this year - dined out with a few family members in a crowded and popular restaurant
Hello fellow RA warriors, I have been very careful since the start of the covid era - very limited outings/socializing, always mask up when out, no more gym exercise classes. I decided to enjoy the holiday a little bit more this year - dined out with a few family members in a crowded and popular restaurant
Mymymy
in
NRAS
7 months ago
Covid testing
Does anybody know if home carers are still expected to do Covid tests? I have a new carer and when she came today she was coughing a lot. I asked her when she had last tested and she said she hasn’t tested since January of this year.
Does anybody know if home carers are still expected to do Covid tests? I have a new carer and when she came today she was coughing a lot. I asked her when she had last tested and she said she hasn’t tested since January of this year.
thelmar
in
NRAS
7 months ago
Help me! behcet syndrome with tuberculosis
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hulusi
in
Behçet's UK
4 months ago
Disability Allowance - Any Advice Please
Hi everybody. At a recent trip to hospital for my usual check ups a question was posed by one of the medical staff. “Are you getting Disability Allowance”? No I answered! “Well you should have a look at that” they replied “especially if you have had to stop work” So that got me thinking. I am 62, I
Hi everybody. At a recent trip to hospital for my usual check ups a question was posed by one of the medical staff. “Are you getting Disability Allowance”? No I answered! “Well you should have a look at that” they replied “especially if you have had to stop work” So that got me thinking. I am 62, I
Investigator1
in
Vasculitis UK
7 months ago
Covid First Time
Well I have finally caught Covid, in fact it is the first time that I have noticeably caught anything since 2019. At the moment I have chills, vomiting and a headache=not happy. Just wondering if anyone has any tips or info. on how to stay as comfy as possible and anything to look out for Asthma wise
Well I have finally caught Covid, in fact it is the first time that I have noticeably caught anything since 2019. At the moment I have chills, vomiting and a headache=not happy. Just wondering if anyone has any tips or info. on how to stay as comfy as possible and anything to look out for Asthma wise
LittleZebra
in
Asthma Community Forum
7 months ago
Covid and AF
Apologies if I posted this earlier. Despite countless jabs against covid (I am 79 ) and escaping the virus the past three and a half years I succumbed to the latest variant last Sunday 10th Dec. At first I thought it was just a heavy cold with a cough. Also I was thinking that I was more susceptible
Apologies if I posted this earlier. Despite countless jabs against covid (I am 79 ) and escaping the virus the past three and a half years I succumbed to the latest variant last Sunday 10th Dec. At first I thought it was just a heavy cold with a cough. Also I was thinking that I was more susceptible
Camelia23
in
AF Association
7 months ago
COVID
Doea anyone have any advice. I had my ablation in September and a nurse told me not to have a flu jab or covid booster. I am now stuck at home with Covid. I am a little worried about it triggering AFib.
Doea anyone have any advice. I had my ablation in September and a nurse told me not to have a flu jab or covid booster. I am now stuck at home with Covid. I am a little worried about it triggering AFib.
Be-still-my-heart
in
AF Association
7 months ago
Bands pulmonary fibrosis tomography
hello my story in short in 2022 I had covid 19 after recovery I did a lung X-ray which did not show anything suspicious now in September 2023 a year after covid19 I started having breathing difficulties I couldn't breathe deeply and I was falling into bed we can't I'm going to the end of the cascading
hello my story in short in 2022 I had covid 19 after recovery I did a lung X-ray which did not show anything suspicious now in September 2023 a year after covid19 I started having breathing difficulties I couldn't breathe deeply and I was falling into bed we can't I'm going to the end of the cascading
Petre84
in
Lung Conditions Community Forum
7 months ago
#1 Symptom Reducer
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
staceysack
in
Cure Parkinson's
5 months ago
Phone-call from receptionist today
Only just joined and not sure where to begin as I feel as if I’m in shock a little and desperately trying to find out information. I had a phone call from the drs receptionist this afternoon to tell me I have hypothyroidism after some blood tests and needed to pick up a prescription which I would need
Only just joined and not sure where to begin as I feel as if I’m in shock a little and desperately trying to find out information. I had a phone call from the drs receptionist this afternoon to tell me I have hypothyroidism after some blood tests and needed to pick up a prescription which I would need
Benjipuss
in
Thyroid UK
7 months ago
covid meds and prednisolne
Evening all I have PMR and currently tapering Pred down, I am on 3 mg per day. However yesterday I tested positive for Covid. Two questions 1. do I need to inform my GP as my immune system is compromised the NHS site is not clear. 2. What meds does anyone suggest for the hacking cough, runny nose
Evening all I have PMR and currently tapering Pred down, I am on 3 mg per day. However yesterday I tested positive for Covid. Two questions 1. do I need to inform my GP as my immune system is compromised the NHS site is not clear. 2. What meds does anyone suggest for the hacking cough, runny nose
JAC1947
in
PMRGCAuk
7 months ago
A little, very quiet, thumbs up 👍
Well, I've been keeping quiet about returning (again!) to C25K but I have just managed Week 4, Run 3 without any problems so I am HOPING I can finally get back on the trotting pony regularly now. After literally a whole year of Covid, colds, sinus and chest infections, PVF/Long Covid, post-Covid cough
Well, I've been keeping quiet about returning (again!) to C25K but I have just managed Week 4, Run 3 without any problems so I am HOPING I can finally get back on the trotting pony regularly now. After literally a whole year of Covid, colds, sinus and chest infections, PVF/Long Covid, post-Covid cough
Over60sRunner
Graduate
in
Couch to 5K
7 months ago
Long Covid
Hi All Last week I was diagnosed with post covid viral syndrome (long Covid) I am feeling so unwell and fatigued, just wonder if anyone on here is coping with that too Thanks Annie
Hi All Last week I was diagnosed with post covid viral syndrome (long Covid) I am feeling so unwell and fatigued, just wonder if anyone on here is coping with that too Thanks Annie
Annieosb
in
Lung Conditions Community Forum
7 months ago
Bile acid malabsorption
I got diagnosed with bam over a year ago taking colesevelam for it i take 1 or 2 a day but it has my bowel movements all over the place its all or nothing and usually in a formed mush and sticky i try to eat healthy but just wondering if any one else has bowel movements like this i have ibs aswell and
I got diagnosed with bam over a year ago taking colesevelam for it i take 1 or 2 a day but it has my bowel movements all over the place its all or nothing and usually in a formed mush and sticky i try to eat healthy but just wondering if any one else has bowel movements like this i have ibs aswell and
Netbet22
in
IBS Network
5 months ago
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