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Diagnosed as Compound Haemochromatosis
I was made aware of this condition by a friend many months ago, possibly 18 months. I forgot about it until one evening around 7.30pm my GP rang to say my Ferritin level was over 900, well she sent me to our walk in centre for some blood tests, some how the ferritin had gone down but still over 300.
I was made aware of this condition by a friend many months ago, possibly 18 months. I forgot about it until one evening around 7.30pm my GP rang to say my Ferritin level was over 900, well she sent me to our walk in centre for some blood tests, some how the ferritin had gone down but still over 300.
LaceyLady
in
Haemochromatosis Society UK
1 year ago
Carboplatin
Had a good year on Taxol and it knocked my CA15 down to almost normal but its creeping back up and my PET shows new activity. We discussed a ton of options and I am grateful there are so many. We also re-ran my original tumors through some more advanced genetic testing. The bottom line next drug is
Had a good year on Taxol and it knocked my CA15 down to almost normal but its creeping back up and my PET shows new activity. We discussed a ton of options and I am grateful there are so many. We also re-ran my original tumors through some more advanced genetic testing. The bottom line next drug is
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
1 year ago
Another Update from Us...
Good afternoon good people of LC. I have been struggling with everything so have been a bit quiet. HUGE thanks to those behind the scenes who have bothered to check in, and made me feel remembered and not alone. DH has been back and forth to the hospital recently, after the appointment he kept on
Good afternoon good people of LC. I have been struggling with everything so have been a bit quiet. HUGE thanks to those behind the scenes who have bothered to check in, and made me feel remembered and not alone. DH has been back and forth to the hospital recently, after the appointment he kept on
DrunkJam_UK
in
Leukaemia Support
2 years ago
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Things have gone from bad to worse; need some hope and guidance.
Hi, Oh man what a terrible 10 days it has been. I wrote a couple weeks ago how my dad didn't seem to be responding to his Docetaxel re-challenge. "Before his first round of chemo Dec 20- PSA: 182 ALP:518 LDH:357 After his first round of chemo Jan 9- PSA: 281 ALP: 916 LDH:759 After his second round
Hi, Oh man what a terrible 10 days it has been. I wrote a couple weeks ago how my dad didn't seem to be responding to his Docetaxel re-challenge. "Before his first round of chemo Dec 20- PSA: 182 ALP:518 LDH:357 After his first round of chemo Jan 9- PSA: 281 ALP: 916 LDH:759 After his second round
fmoser
in
Advanced Prostate Cancer
1 year ago
Returning to ‘normal’…
Hello, I am recovering from PP following the birth of my daughter last May. I have been surfing the highs and lows and came off medication late January. Soon I will be discharged to my GP and plan to return to work in May. Although everything has followed as smooth a path as possible I am struggling
Hello, I am recovering from PP following the birth of my daughter last May. I have been surfing the highs and lows and came off medication late January. Soon I will be discharged to my GP and plan to return to work in May. Although everything has followed as smooth a path as possible I am struggling
Olanzapinelenny
in
Action on Postpartum Psychosis
1 year ago
Accessing T3
Over 15 years ago a NHS consultant recommended that i take T3 along with T4 resulting in GP prescribing T3. . About 5 years ago local NHS refused to carry on prescribing T3 even though i had a genetic test proviing that I don't convert T4 to T3 readily. My supplier of T3 no longer seems to exist. Anyone
Over 15 years ago a NHS consultant recommended that i take T3 along with T4 resulting in GP prescribing T3. . About 5 years ago local NHS refused to carry on prescribing T3 even though i had a genetic test proviing that I don't convert T4 to T3 readily. My supplier of T3 no longer seems to exist. Anyone
JW20
in
Thyroid UK
1 year ago
genetic testing
morning all My question is about genetic testing for prostate cancer. Is there a test that will show that family members are likely to get prostate cancer if one actually does have it? Thinking about my nephews. I have no children. Told my nephew who is 47 to start getting the testing and his family
morning all My question is about genetic testing for prostate cancer. Is there a test that will show that family members are likely to get prostate cancer if one actually does have it? Thinking about my nephews. I have no children. Told my nephew who is 47 to start getting the testing and his family
lowT163
in
Advanced Prostate Cancer
1 year ago
Having a low day and need reassurance and advice from those who've been where I am
Today is a hard day. I feel like my hope in getting a positive outcome ever with this horrendous process called IVF is seriously waning. TRIGGER WARNING as mentions pregnancy and loss... As some of you may know, 3 years ago I had an unassisted pregnancy that ended in a second trimester TMFR due to
Today is a hard day. I feel like my hope in getting a positive outcome ever with this horrendous process called IVF is seriously waning. TRIGGER WARNING as mentions pregnancy and loss... As some of you may know, 3 years ago I had an unassisted pregnancy that ended in a second trimester TMFR due to
Mudra85
in
Fertility Network UK
1 year ago
Genetic testing results
I was tested by a PD gene program at Columbia Presbyterian and they found I have none of the 7 known mutations. They said that this is the case for 85% of people tested. I'm curious, have you been tested, and how many of you were negative for these mutations?
I was tested by a PD gene program at Columbia Presbyterian and they found I have none of the 7 known mutations. They said that this is the case for 85% of people tested. I'm curious, have you been tested, and how many of you were negative for these mutations?
gomelgo
in
Cure Parkinson's
1 year ago
Cardiff University School of Medicine are conducting a Study
Cardiff University School of Medicine, UK are conducting a Study: A qualitative study exploring the impact that increasing options due to new genetic/genomic technologies may have on patient perceptions of genetic responsibilities.
This study is now drawing to a close, and this will be your last opportunity
Cardiff University School of Medicine, UK are conducting a Study: A qualitative study exploring the impact that increasing options due to new genetic/genomic technologies may have on patient perceptions of genetic responsibilities.
This study is now drawing to a close, and this will be your last opportunity
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
1 year ago
Question on Genetic Testing, how much is too much?
This is wife. He has PC with mets to bones. Orch done July of 21. MO had genetic testing (DNA thru blood) done about 1 1/2 yrs ago, nothing significant according to a genetic counselor. Then a liquid biopsy was done with Foundation One on blood Oct. 22 because of new met to Sacrum. It showed cdk12
This is wife. He has PC with mets to bones. Orch done July of 21. MO had genetic testing (DNA thru blood) done about 1 1/2 yrs ago, nothing significant according to a genetic counselor. Then a liquid biopsy was done with Foundation One on blood Oct. 22 because of new met to Sacrum. It showed cdk12
Pops78
in
Advanced Prostate Cancer
1 year ago
Advice please Thyroid??
Hello. I have been reading for a while now whilst searching to help my daughter. She is age 20 and for the last year or so hasn't been feeling so good. long story short, She has gone from a a size ten to gaining four stone. She is only 5ft 2 so it has really changed her. Her sleep is erratic, she feels
Hello. I have been reading for a while now whilst searching to help my daughter. She is age 20 and for the last year or so hasn't been feeling so good. long story short, She has gone from a a size ten to gaining four stone. She is only 5ft 2 so it has really changed her. Her sleep is erratic, she feels
Joliplace
in
Thyroid UK
1 year ago
Prolaris Test Helps ID Higher-risk Patients Who May Safely Skip ADT when receiving radiation for PCa
"Prolaris is a genetic test that predicts the aggressiveness of prostate cancer — can accurately identify which men with intermediate- or high-risk disease will benefit from adding androgen deprivation therapy (ADT) to standard radiation therapy, a study shows. This Myriad Genetics’ test was found to
"Prolaris is a genetic test that predicts the aggressiveness of prostate cancer — can accurately identify which men with intermediate- or high-risk disease will benefit from adding androgen deprivation therapy (ADT) to standard radiation therapy, a study shows. This Myriad Genetics’ test was found to
George71
in
Fight Prostate Cancer
1 year ago
Doctors review and anxiety
hi hope you are ok out there. I am okay but I am still struggling with fibromyalgia pain and a bit of fatigue, I asked for a doctor's note and got another one but felt two weeks is not enough due to anxiety issues and I have been told that I have a panic disorder coupled with a bit of agoraphobia anxiety
hi hope you are ok out there. I am okay but I am still struggling with fibromyalgia pain and a bit of fatigue, I asked for a doctor's note and got another one but felt two weeks is not enough due to anxiety issues and I have been told that I have a panic disorder coupled with a bit of agoraphobia anxiety
fibrogirl41
in
Fibromyalgia Action UK
1 year ago
HANG IN THERE.
as a severe sufferer just want to let all my people know that you can live with it, hang in there when times are tough. There are ways to cope maybe not right away but over time it must become your friend not your enemy. Living with Tinnitus is a mental game not a physical. You Just have to find what
as a severe sufferer just want to let all my people know that you can live with it, hang in there when times are tough. There are ways to cope maybe not right away but over time it must become your friend not your enemy. Living with Tinnitus is a mental game not a physical. You Just have to find what
Left_earMike
in
Tinnitus UK
1 year ago
What I see where my vision is impaired
My name is Michael. I'm 43 years old. I was diagnosed with macular dystrophy several years ago. I was told that without some type of genetic test that it's difficult to know whether or not it is adult onset or Best's Disease. At that time, I had never heard of this condition. Previous visits to the optometrist
My name is Michael. I'm 43 years old. I was diagnosed with macular dystrophy several years ago. I was told that without some type of genetic test that it's difficult to know whether or not it is adult onset or Best's Disease. At that time, I had never heard of this condition. Previous visits to the optometrist
Alberni79
in
Macular Society
1 year ago
22 year old not moving on with his life
Apologies for the long post. My son always had difficulties with concentration/working memory at school but was a happy, polite, co-operative kid so we, and his teachers, never considered ADHD. Things got worse into his teens. He was always in trouble for not doing homework and could not do maths at
Apologies for the long post. My son always had difficulties with concentration/working memory at school but was a happy, polite, co-operative kid so we, and his teachers, never considered ADHD. Things got worse into his teens. He was always in trouble for not doing homework and could not do maths at
Stormchaser1
in
CHADD's ADHD Parents Together
1 year ago
what’s normal?
Hi, I’m hoping some of you will please share your experiences regarding hospital follow ups after a diagnosis of heart failure . I was diagnosed in October 2021 (LVEF 38%) and my medications increased to Ramipril, Carvedilol and Spironolactone. I was also prescribed Atorvastatin 8 months later. My
Hi, I’m hoping some of you will please share your experiences regarding hospital follow ups after a diagnosis of heart failure . I was diagnosed in October 2021 (LVEF 38%) and my medications increased to Ramipril, Carvedilol and Spironolactone. I was also prescribed Atorvastatin 8 months later. My
Ticker26
in
British Heart Foundation
1 year ago
Parent looking for help
Hello, my son is 14yrs old was diagnosed with ADHD and Executive Function Disorder with underlying depression scores. We paid out of pocket for a professional evaluation by a psychologist with a battery of tests and interviews. This was about two years ago prior to COVID. We did on and off counseling
Hello, my son is 14yrs old was diagnosed with ADHD and Executive Function Disorder with underlying depression scores. We paid out of pocket for a professional evaluation by a psychologist with a battery of tests and interviews. This was about two years ago prior to COVID. We did on and off counseling
Barness74
in
CHADD's ADHD Parents Together
1 year ago
Family member in ICU after heart attack
Hi everyone, I’m new here and have had whirlwind of a week. We have a family member in ICU at present and under sedation, there are a lot of complications too. We are hoping that they will regain some strength to then have a heart repair operation. we’ve been told that it will be a long road to recovery
Hi everyone, I’m new here and have had whirlwind of a week. We have a family member in ICU at present and under sedation, there are a lot of complications too. We are hoping that they will regain some strength to then have a heart repair operation. we’ve been told that it will be a long road to recovery
Hotel_California
in
ICUsteps
1 year ago
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