Weird leg pain

[Womble84]

Hi everyone, I'm hoping someone can shed some light on this weird symptom!

For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like my leg is going to explode. It's not sciatic pain, which I do also have but higher up in my thighs, bum and hips.

I was on prostap for about 8 months and during this time my leg pain got significantly better. I hadn't realised how bad it had been, and now I'm off prostap it has gotten worse again. So it is definitely hormone responsive in some way.

I am at the point now where it is seriously affecting my mobility, on top of the endo. I can't walk for more than a few minutes, even at a slower pace. I have been passed around all manner of departments at the hospital and the current thinking is that it is compartment syndrome. But they are ignoring the prostap/endo link, or say that there isn't one. The next step is surgery (fasciotomy) on both legs, but I have a nagging doubt that it's not really compartment syndrome at all. It really was so much better on the prostap so I feel like they're missing something?

Has anyone else had this? Please let me know what tests/treatment you had!

Thank you

[Cocoacupid]

hi hun I had a similar issue when I was on the this injection to Induce menopause I had no groin pain no siatic pain and no restless leg pain . Now that injection is dispersing about three days after surgery I started getting all those pains back and now it is back to sleepless nights for me. I really do think mine is linked to nerve pain or endo that wasn’t visible during my three hour operation I really think for you you need to either have a diary and write down when the pains Happen and how long for strength of the pain. I also was able to walk slightly better when on the injection as I wasn’t limping as much .which is seems to relate to hormones . When I go and see my consultant for follow up I will be asking. Him advice around this as I’m back to sleepless nights even though I’m taking magnesium it has little to no effect. I’m sorry that you’re being passed around the hospital. When did you first notice this pain ? Did you get it before or after surgery? If it was after surgery that could be why they think compartment syndrome as if the legs went numb and you could have slept funny or something that could be the reason behind why they think it’s something else. If you are sure it’s hormone related I really think you need to speak to first your GP so they can do bloods etc to check hormone levels and other things if they are finding they levels are low or not the normal range I think then you can have more evidence to back up your claim that it is hormone related. Once results back etc I think you then need to ask to speak to gynecologist with specialist interest in endometriosis and hormone related issues. I am sorry that you are getting awful pains.