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Gaucher disease type 3 (GD3)
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Heart Rhythm query…
Please can anyone explain ? My Kardia can show a result of Afib or SVEs even when my heart rhythm appears to be constant. It can show heart rhythm of say 61 throughout a 30 second trace, without fluctuation, yet reveal I have an irregular heart rate. As we are often told to check our pulse and if it’
Please can anyone explain ? My Kardia can show a result of Afib or SVEs even when my heart rhythm appears to be constant. It can show heart rhythm of say 61 throughout a 30 second trace, without fluctuation, yet reveal I have an irregular heart rate. As we are often told to check our pulse and if it’
Tellingfibs
in
Atrial Fibrillation Support
28 days ago
Hip surgery
I'm due to have a hip replacement but nervous because I have paroxysmal A Fib. I' m on Edoxaban and have bisoprolol as a P I P, told to take after a few hours if it didn't resolve, but haven't had to take it . Would welcome some reassurance 😊
I'm due to have a hip replacement but nervous because I have paroxysmal A Fib. I' m on Edoxaban and have bisoprolol as a P I P, told to take after a few hours if it didn't resolve, but haven't had to take it . Would welcome some reassurance 😊
Normynoo
in
Atrial Fibrillation Support
29 days ago
Advice Please
Please accept apologies if this is not the correct support group - just concerned as having Atrial Fibrillation from first thing in morning until I go to sleep. Not sure if this is related but pulse low at 40 and stays at that with occasional increase to 51. Have thyroid problems and advised to reduce
Please accept apologies if this is not the correct support group - just concerned as having Atrial Fibrillation from first thing in morning until I go to sleep. Not sure if this is related but pulse low at 40 and stays at that with occasional increase to 51. Have thyroid problems and advised to reduce
JMF1
in
Atrial Fibrillation Support
29 days ago
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Is musculosketetal condition associated with PMR
I have not written on the form for a while but would like your thoughts on the following: On Sunday night and all day Monday I had chest pain especially when breathing in, and both shoulders and upper back were sore. It was still very painful on Tuesday so I phoned GP and was told as it was chest pains
I have not written on the form for a while but would like your thoughts on the following: On Sunday night and all day Monday I had chest pain especially when breathing in, and both shoulders and upper back were sore. It was still very painful on Tuesday so I phoned GP and was told as it was chest pains
PatB1948
in
PMRGCAuk
29 days ago
Parathyroid
I am booked in for a Parathyroidectomy and I just wondered whether my APS, as an autoimmune disease, could have had something to do with parathyroid condition? Thank you.
I am booked in for a Parathyroidectomy and I just wondered whether my APS, as an autoimmune disease, could have had something to do with parathyroid condition? Thank you.
Raschen
in
Hughes Syndrome APS Forum
3 months ago
nephrectomy
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
higham23
in
MPN Voice
6 months ago
Travel while in Afib
There are probably other posts about this but a search isn't turning them up. I've been in persistent AF for probably a year (except for three days in February when I had a successful cardioversion before I fell back out of sinus rhythm). Now waiting for another cardioversion while on the list for an
There are probably other posts about this but a search isn't turning them up. I've been in persistent AF for probably a year (except for three days in February when I had a successful cardioversion before I fell back out of sinus rhythm). Now waiting for another cardioversion while on the list for an
Redactrice
in
Atrial Fibrillation Support
30 days ago
hyperthyroidism
hi I have hyperthyroidism and have Graves’ disease. I have my consultant appointment next week. I got very ill a few weeks back don’t know if it was the case as I was told to come off my meds 5 months ago. Any tips or advice what diet I should follow ? I have lost so much weight due to my thyroid
hi I have hyperthyroidism and have Graves’ disease. I have my consultant appointment next week. I got very ill a few weeks back don’t know if it was the case as I was told to come off my meds 5 months ago. Any tips or advice what diet I should follow ? I have lost so much weight due to my thyroid
Gee14
in
Thyroid UK
6 months ago
Do you Know Your Pulse?
Do you know what a normal resting heart rhythm is? Do you know what an irregular heart rhythm feels like? Did you know that an irregular pulse can be the very early warning signs of an arrhythmia? It is vital you monitor your heart rhythm by taking regular pulse checks. For further information
Do you know what a normal resting heart rhythm is? Do you know what an irregular heart rhythm feels like? Did you know that an irregular pulse can be the very early warning signs of an arrhythmia? It is vital you monitor your heart rhythm by taking regular pulse checks. For further information
SamAdmin
Administrator
in
Sudden Cardiac Arrest & Heart Attack
30 days ago
Blood results help
Hi I have had blood test tsh is one (range 0.4 to 5) and T4 is 14 ( range is 9 to 19). Also had an ultrasound which showed altered echotexture but no enlargement of thyroid. Are these results OK? Have symptoms of underactive thyroid but results all in range. Thanks
Hi I have had blood test tsh is one (range 0.4 to 5) and T4 is 14 ( range is 9 to 19). Also had an ultrasound which showed altered echotexture but no enlargement of thyroid. Are these results OK? Have symptoms of underactive thyroid but results all in range. Thanks
Lolly2564
in
Thyroid UK
3 months ago
Other blood results
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
Purple450
in
Thyroid UK
3 months ago
new member
hi everyone l joined this group today was wondering could l get any advice, am 38 been recently diagnosed with underactive thyroid l am currently on 100mg of Lev tablets but l still feel tired l have put on so much weigh in past few years and didn’t know what was causing it, I have bought the semuglutide
hi everyone l joined this group today was wondering could l get any advice, am 38 been recently diagnosed with underactive thyroid l am currently on 100mg of Lev tablets but l still feel tired l have put on so much weigh in past few years and didn’t know what was causing it, I have bought the semuglutide
Preciouspearl
in
Thyroid UK
3 months ago
Lupus re-diagnosis UCTD
Hello All, so when I last posted I had been to the rheumatologist Prof X and told my bloods were not suggestive of lupus but he did not suggest want condition could be the underlying cause of my symptoms. This morning he chose not to see me, instead I saw a very nice female doctor in clinical research
Hello All, so when I last posted I had been to the rheumatologist Prof X and told my bloods were not suggestive of lupus but he did not suggest want condition could be the underlying cause of my symptoms. This morning he chose not to see me, instead I saw a very nice female doctor in clinical research
KeepingUpBeat
in
LUPUS UK
3 months ago
Father has had PBC for 16 years - Odd complications since COVID?
Hello all, I wonder if anyone here who has PBC (or has a family member with PBC) has had similar experiences post covid? My father was diagnosed 16 years ago. Recently he contracted COVID and was hospitalised (he's also been a type 1 diabetic since birth, so 60 years). Within a day of getting COVID
Hello all, I wonder if anyone here who has PBC (or has a family member with PBC) has had similar experiences post covid? My father was diagnosed 16 years ago. Recently he contracted COVID and was hospitalised (he's also been a type 1 diabetic since birth, so 60 years). Within a day of getting COVID
Kylewillmott
in
PBC Foundation
6 months ago
GCA, Afib, heart failure
I was concerned my Afib following a TIA Aug 23 wasn’t controlled. GP requested bloods for BNP plus CRP/ ESR which hadn’t been done since March. I have had bouts of fatigue which have up to now been linked to adrenals following a Syncathen test. The CRP came back as 15, ESR 14. Rheumatology helpline suggested
I was concerned my Afib following a TIA Aug 23 wasn’t controlled. GP requested bloods for BNP plus CRP/ ESR which hadn’t been done since March. I have had bouts of fatigue which have up to now been linked to adrenals following a Syncathen test. The CRP came back as 15, ESR 14. Rheumatology helpline suggested
Bluey-1
in
PMRGCAuk
1 month ago
Is vitamin K2 ok with edoxaban?
I'm in the UK I'll keep it brief but I take edoxaban and bisoprolol for afib. I'm aware that historically Warfarin has a question mark over vitamin K1 for various reasons Some people seem to monitor using inr testing but my question is that more modern anti coagulants use a different mechanism of action
I'm in the UK I'll keep it brief but I take edoxaban and bisoprolol for afib. I'm aware that historically Warfarin has a question mark over vitamin K1 for various reasons Some people seem to monitor using inr testing but my question is that more modern anti coagulants use a different mechanism of action
Nogginuk
in
Atrial Fibrillation Support
1 month ago
"When to Hold, When to Fold"...or "a Bird in the Hand..."
Since first experiencing Afib 4 years ago, I have been advised off and on to consider ablation. Many people seem to think that ablation cured or reduced their Afib, while others have reported disappointing ineffectiveness and complications. It is difficult to pin down statistical assessments because
Since first experiencing Afib 4 years ago, I have been advised off and on to consider ablation. Many people seem to think that ablation cured or reduced their Afib, while others have reported disappointing ineffectiveness and complications. It is difficult to pin down statistical assessments because
fibnum
in
Atrial Fibrillation Support
1 month ago
blood test to identify neuroendocrine cancer asap
ok I repost this mainly because the University of Trento is one hour from here and I got good friends there (working on CRISPR)…together with Dana-Farber they have developed a blood test to identify if there is an endocrine prostate cancer and the subtype https://medriva.com/cancer/a-breakthrough-in-prostate-cancer-treatment-new-blood-test-identifies-neuroendocrine-subtype
ok I repost this mainly because the University of Trento is one hour from here and I got good friends there (working on CRISPR)…together with Dana-Farber they have developed a blood test to identify if there is an endocrine prostate cancer and the subtype https://medriva.com/cancer/a-breakthrough-in-prostate-cancer-treatment-new-blood-test-identifies-neuroendocrine-subtype
Maxone73
in
Advanced Prostate Cancer
6 months ago
elevated Liver Enzymes
Hello, I am in need of advice. I have had mildly elevated liver enzymes and can’t figure out the cause of it. I have been tested for everything and anything related to the liver (autoimmune, hepatitis, liver diseases) I have had a normal ultra sound and fibroscan. All lab work is normal except AST and
Hello, I am in need of advice. I have had mildly elevated liver enzymes and can’t figure out the cause of it. I have been tested for everything and anything related to the liver (autoimmune, hepatitis, liver diseases) I have had a normal ultra sound and fibroscan. All lab work is normal except AST and
Lresinger
in
British Liver Trust
6 months ago
Do you know your pulse?
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
5 months ago
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