A quick update for those that remembe... - Atrial Fibrillati...

Atrial Fibrillation Support

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A quick update for those that remember my recent posts about the Ablation complications!

AmandaLouise77 profile image
21 Replies

Ablation 16/3, artery got damaged, 3 outpatient appointments, 2 failed attempts at thrombin infusion under ultrasound, emergency 3 day admission to hospital with emergency pseudoaneurysm and arteriovenous fistula repair (pretty major surgery involving patching the damaged artery with cow veins) . Most of the incision healed well (in crease of groin from under the hip bone to the pubic bone) apart from the inside end, repeated visits to GP nurse for monitoring and dressing changes. Got a funky blue/green discharge swabbed and results back as Pseudomonas, a hospital acquired super bug. Now on a super strength antibiotic which has a huge list of contra indications including heart rhythm abnormalities, heart weakness, being female and being on some of the drugs that I take. Thankfully just a 5 day course to survive!

I'm exhausted just writing all that. Not sure if there is anything else left to go wrong. Expecting this to put me back in AFib. I'll be amazed if it doesn't

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AmandaLouise77 profile image
AmandaLouise77
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21 Replies
Bagrat profile image
Bagrat

Oh 'ecky thump Amanda what a traumatic journey you're having. This is just to wish you well very soon. I'm betting on no AF to follow as a result of complications. Things you think may happen tend not to, like planning lottery wins!!

AmandaLouise77 profile image
AmandaLouise77 in reply toBagrat

I need to buy a lottery ticket when my luck changes

jeanjeannie50 profile image
jeanjeannie50

Hi Amanda

Oh my goodness what a time you've had! My heart goes out to you.

That's dreadful that you caught that super bug in hospital! Is someone at home to look after you?

Sending you a big healing hug.

Keep in contact please.

Jean

AmandaLouise77 profile image
AmandaLouise77 in reply tojeanjeannie50

Husband is around much of the time, but is usually about outside, we bought a small farm as a retirement project, 3 years ago! So we're both usually busy! Just wondering when this run of bad fortune will end? I want to buy a lottery ticket when it does!

Bagrat profile image
Bagrat in reply toAmandaLouise77

We gave up buying lottery tickets after an extremely heated row about what ( in the unlikely event we won) we would do with the money!!

AmandaLouise77 profile image
AmandaLouise77 in reply toBagrat

My springer spaniel would spend it on vets bills, it's his hobby. My other 3 dogs are great, he's a walking problem dog!

Iamfuzzyduck profile image
Iamfuzzyduck in reply toAmandaLouise77

It’s those floppy ears and grass seeds…

Can’t believe the bad luck you are having. I mean I don’t know how they could’ve stitched it to the artery in the first place, sounds like negligence to me. I hope you feel better soon. If you do have another ablation just fyi my EP used collagen to plug up the holes, no stitches involved so maybe find someone who does that. Hope the super bug leaves quickly.

baba profile image
baba

Sending best wishes. You have had rotten luck

opal11uk profile image
opal11uk

So very sorry to hear this, it must be very frightening for you, sending lots of love and cyber huggggs and wishing you a good recovery x

Larneybuds profile image
Larneybuds

So sorry to hear all you have been through and then the super bug. I had one after my OHS that kept me in hospital for an extra month......not a great experience on top of everything else and I hope the meds don't compromise other things for you and also hope you are better very soon xx

AmandaLouise77 profile image
AmandaLouise77

So far so good, although seem to have a problem with oedema in the right thigh, in most people it goes down to the ankles, mine has stuck in the thigh.

Tapanac profile image
Tapanac

oh dear I’m so sorry. Hope you will be well very soon xx

Ppiman profile image
Ppiman

It must be hard to imagine, given what you have suffered, that in a relatively short while, you'll be reflecting on all this with a smile over a coffee with a friend!

I feel sure that will be the case. Well - let's hope so. It's the most likely outcome.

Steve

AmandaLouise77 profile image
AmandaLouise77 in reply toPpiman

I hope so too, I've tried hard to keep my sense of humour throughout but it's difficult in the darker moments.

Ppiman profile image
Ppiman in reply toAmandaLouise77

Yes indeed. I feel for you. Time will pass and life will resume normality! Make it a mantra!! ;-)

Steve

JOY2THEWORLD49 profile image
JOY2THEWORLD49

Hi

Oh dear Amanda

It couldn't get any worse so just up and up. 60s is crap except when I turned 70 a stroke, with rapid and persistent AF and when properly diagnosed, a thyroid papillary cancer diagnosed emerged when a carotid arteries ultra-sound scan was done. All clear were the C.A but the shadow told a different story.

I had to be lucky that it was the cause of my stroke even though it was not good news.

Bad news that after 3 clear neck scans I've been called back twice on that 4th scan and CT scan with dye. Tuesday is the day of PET Scan. 3 areas, questioned and return of cancer.2 tiny one lymphs are cancer but the 19mmx9mm what is it.

Fingers crossed.

Being left with heart rates of Day avg 186 onMetoprool and 156 Bisoprolol, the Cardiac Specialist lady left me!

Damage to my heart was experienced by leaving me to cope with such high high rates for 2 years 3 months.

A private heart specialist saved me.

There are folks out there who care. 1 appmtmt and I received a handprinted Christmas Card.

Sometimes things go wrong.

I still believe and trust in my Surgeon, he may have missed a lymph node because papillary cancer grows 1mm per year. But there are 100 lymphs on either side of the thyroid. He removed 12 and 2 were infected.

I try to see the complication of all this.

But leaving me with rapid heart rate is unforgiveable. Hence I refused her as my heart specialist.

In Year 2 after my Scan in February I bought a colourful Cup for my surgeon and my Scanner. It read "You are the best" and thanking them.

Over this last event my surgeon is so caring he has rung me three times since January 2024.

cheers JOY. 75. (NZ)

Blearyeyed profile image
Blearyeyed

You are really going through the mill, let's hope this bug will be the last of it. Try and rest as much as you can and hopefully you won't get aFib returning after you've been through so much to rid yourself of events.Keep updating us about how you go or just to have a chat if you need one , gentle hugs , Bee

AmandaLouise77 profile image
AmandaLouise77 in reply toBlearyeyed

Well I've just been caught in an online scam too, had to cancel my bank card. I can't believe my heart rate is still it's normal low 50's having just spent 30mins on the phone to the bank. Praying it stays that way.

Blearyeyed profile image
Blearyeyed in reply toAmandaLouise77

Flip A Brick! If trouble comes in threes you've definitely had your trio. Seems like the whole universe is trying to test how successful your treatment has been , but if your heart rate is still low and you had the energy to take on the bank while you are still in recovery I'd think positive, the treatment may have been successful and will last.....or you have the strength and patience of a Warrior Queen.

I think we need to start sending you some four leaf clovers through the post, hugs , Bee

AmandaLouise77 profile image
AmandaLouise77 in reply toBlearyeyed

I've just taken the dogs for a half hour march around the fields and all good s still well. I'm getting fitter every day. I was half way up a Welsh Mountain when the AFib became intolerable and I went to the GP as soon as I returned home.

Tplongy profile image
Tplongy

OMG what an awful time of it you have had, glad that you are able to attempt humour after all that .. what an absolute fiasco 🙁… really hope the ABX work to get rid of the bug so that you can start to heal… so awful

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