Decided to ring the liver trust nurses today . I spoke to a lovely lady who went through stuff with me but as she said didn’t know my medical details but encouraged or questioned should I be asking my consultant about my prognosis. Am I alone with now being scared to death that if I should ask that what will they say ? Do I want to really know ? Should I know ? Not sure 🤔 if it would actually help me . If it’s good I’ll feel better if it’s bad I’ll feel bad .
On a positive I had my neumonia jab today !
Just sharing x
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Etymolog
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My mum didn’t ask and spent years with her head in the sand, leading to us having very few options available. If you had a friend asking, would you advise them to ask or not? It is very much a personal opinion, and it is your choice but I wish we had known sooner, and we could have made more informed decisions. But it is your choice, don’t let anyone else tell you otherwise
I have PBC and l know exactly how you feel about do we ask or do we really want to know. I suffer terribly from anxiety and find myself overthinking and when l find out exactly what is going on with my liver it mostly isn’t as bad as l had imagined. I eat healthily, exercise regularly, don’t drink alcohol at all so know I’m doing all l can to help myself. I have recently lost a stone in weight so praying my next scan will have improved. Good luck
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