Thoughts?: Hello, Decided to ring the... - British Liver Trust

British Liver Trust

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Thoughts?

Etymolog profile image
5 Replies

Hello,

Decided to ring the liver trust nurses today . I spoke to a lovely lady who went through stuff with me but as she said didn’t know my medical details but encouraged or questioned should I be asking my consultant about my prognosis. Am I alone with now being scared to death that if I should ask that what will they say ? Do I want to really know ? Should I know ? Not sure 🤔 if it would actually help me . If it’s good I’ll feel better if it’s bad I’ll feel bad .

On a positive I had my neumonia jab today !

Just sharing x

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Etymolog profile image
Etymolog
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5 Replies
PerpetuallySad profile image
PerpetuallySad

hello,

My mum didn’t ask and spent years with her head in the sand, leading to us having very few options available. If you had a friend asking, would you advise them to ask or not? It is very much a personal opinion, and it is your choice but I wish we had known sooner, and we could have made more informed decisions. But it is your choice, don’t let anyone else tell you otherwise :)

kingsnorth profile image
kingsnorth

I have PBC and l know exactly how you feel about do we ask or do we really want to know. I suffer terribly from anxiety and find myself overthinking and when l find out exactly what is going on with my liver it mostly isn’t as bad as l had imagined. I eat healthily, exercise regularly, don’t drink alcohol at all so know I’m doing all l can to help myself. I have recently lost a stone in weight so praying my next scan will have improved. Good luck

TEDbear7 profile image
TEDbear7 in reply to kingsnorth

Hi iv just been told I have pbc this last month.im trying to eat healthy but I read fruit and veg but I'm struggling to find things I like.

Yellowsydney profile image
Yellowsydney

There is a section on the British liver trust website about questions to ask your doctor, you my find it helpful.

britishlivertrust.org.uk/in...

oap74 profile image
oap74

very true ignorance is better than maybe being told. Enjoy life to the full whilst you can. All the best.

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