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My Oligometastatic PCa Journey Continues...coming up on year 9!
It's been a while since I've posted. But wanted to offer a note of
encouragement
for those here that have
oligometastatic prostate cancer
. I was diagnosed in 2015 (227 PSA, Gleason 8, 1 MET in the spine) and still going strong. After years of
hormone therapy
, 6 rounds of
chemo
It's been a while since I've posted. But wanted to offer a note of
encouragement
for those here that have
oligometastatic prostate cancer
. I was diagnosed in 2015 (227 PSA, Gleason 8, 1 MET in the spine) and still going strong. After years of
hormone therapy
, 6 rounds of
chemo
JamesAtlanta
in
Advanced Prostate Cancer
7 months ago
Are Functional Motor Symptoms Influenced by Glutamate and Glutamine Fluctuations?
I was reading an old post and someone commented about this, so naturally I asked the question and found this study: https://www.neurologylive.com/view/functional-motor-symptoms-influenced-glutamate-glutamine-fluctuations Interesting reading and saying that the "functional movements" are down to biology
I was reading an old post and someone commented about this, so naturally I asked the question and found this study: https://www.neurologylive.com/view/functional-motor-symptoms-influenced-glutamate-glutamine-fluctuations Interesting reading and saying that the "functional movements" are down to biology
Lady4
in
Functional Neurological Disorder - FND Hope
7 months ago
Ablation or Not?
I'm currently waiting for an ablation and have been for over 6 months. When I first developed AF I was quite badly affected by it. I would: Get out of breath just walking a short distance Keep falling asleep Found climbing stairs and carrying 'heavy' things more difficult than they should Occasionally
I'm currently waiting for an ablation and have been for over 6 months. When I first developed AF I was quite badly affected by it. I would: Get out of breath just walking a short distance Keep falling asleep Found climbing stairs and carrying 'heavy' things more difficult than they should Occasionally
Peakoverload
in
Atrial Fibrillation Support
3 months ago
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Suspect I have Addison's
I had a blood test yesterday and my serum cortisol was 330 nm/l.I have some hyperpigmentation & vitaligo. I think my GP was checking for Addison's. Hopefully now I can see an endocrinologist
I had a blood test yesterday and my serum cortisol was 330 nm/l.I have some hyperpigmentation & vitaligo. I think my GP was checking for Addison's. Hopefully now I can see an endocrinologist
antiloquax
in
Thyroid UK
4 months ago
MTHFR and Lupus
I noticed that some members have both of these diagnosis as well as Sjogrens. No one ever checked my homocysteine level until after I had Complete Heart Block and was implanted with a Pacemaker/defibulator. I have always felt that if the MTHFR was diagnosed before all the other autoimmune diseases, I
I noticed that some members have both of these diagnosis as well as Sjogrens. No one ever checked my homocysteine level until after I had Complete Heart Block and was implanted with a Pacemaker/defibulator. I have always felt that if the MTHFR was diagnosed before all the other autoimmune diseases, I
DogHospiceMom
in
LUPUS UK
3 months ago
Dicyclomine will work with Docetaxel ?
Will this work ? https://www.genengnews.com/topics/cancer/ibs-drug-restores-chemotherapy-effectiveness-against-resistant-prostate-cancer/
Will this work ? https://www.genengnews.com/topics/cancer/ibs-drug-restores-chemotherapy-effectiveness-against-resistant-prostate-cancer/
Manilo
in
Advanced Prostate Cancer
7 months ago
Arrhythmia Checklist
Do you or a family member experience unexplained chest pain, a rapid or irregular pulse, breathlessness, or light-headedness, these are all symptoms that should not be ignored and could be the early warning signs of an underlying heart rhythm disorder/ For further guidance, download the Arrhythmia
Do you or a family member experience unexplained chest pain, a rapid or irregular pulse, breathlessness, or light-headedness, these are all symptoms that should not be ignored and could be the early warning signs of an underlying heart rhythm disorder/ For further guidance, download the Arrhythmia
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
3 months ago
Stomach issues
Morning all, So I am just about at my wits end with chronic gastric reflux and chronic wind up and down without much smell. Sometimes I vomit with it, and now I can only eat jasmine rice and even struggle to get water down at the moment. My stomach feels like I have been beat up from the inside
Morning all, So I am just about at my wits end with chronic gastric reflux and chronic wind up and down without much smell. Sometimes I vomit with it, and now I can only eat jasmine rice and even struggle to get water down at the moment. My stomach feels like I have been beat up from the inside
M0wnt
in
LUPUS UK
4 months ago
Nebivolol 2.5mg
I started Nebivolol for my AFIB about one month ago for my heart rate! I like the drug but seem to have a lot of gas on my stomach! Has anyone else had this problem?
I started Nebivolol for my AFIB about one month ago for my heart rate! I like the drug but seem to have a lot of gas on my stomach! Has anyone else had this problem?
BaileyC57
in
Atrial Fibrillation Support
3 months ago
We could tell in advance if enzalutamide works on a patient: computational biology
hopefully it will be clinically tested soon ”For the study in Nature Communications, Mitrofanova's team developed computational algorithms to discover why the prostate cancer drug enzalutamide (sold under the brand name Xtandi) never works for some patients and why it eventually stops working in others
hopefully it will be clinically tested soon ”For the study in Nature Communications, Mitrofanova's team developed computational algorithms to discover why the prostate cancer drug enzalutamide (sold under the brand name Xtandi) never works for some patients and why it eventually stops working in others
Maxone73
in
Advanced Prostate Cancer
7 months ago
Low Testosterone and value of continuing Hormone Therapy
83 year old male with a question: My understanding is that the role of hormone therapy is to lower one’s testosterone level. Does hormone therapy provide additional benefits in fighting prostate cancer beyond lowering testosterone levels? I was diagnosed with high grade prostate cancer (Gleason 10
83 year old male with a question: My understanding is that the role of hormone therapy is to lower one’s testosterone level. Does hormone therapy provide additional benefits in fighting prostate cancer beyond lowering testosterone levels? I was diagnosed with high grade prostate cancer (Gleason 10
saniku
in
Advanced Prostate Cancer
7 months ago
need some guidance, feeling desperate..
My husband has advanced, Stage IV castration resistant prostate cancer. When he was diagnosed in May 2022 his PSA was 4700, he has widespread bone metastases. He stopped responding to Docetaxel, Pluvicto and is now not responding to Cabazitaxel, his PSA is now over 700. He is feeling good, no pain
My husband has advanced, Stage IV castration resistant prostate cancer. When he was diagnosed in May 2022 his PSA was 4700, he has widespread bone metastases. He stopped responding to Docetaxel, Pluvicto and is now not responding to Cabazitaxel, his PSA is now over 700. He is feeling good, no pain
Kiki27
in
Advanced Prostate Cancer
7 months ago
Three Distinct MS Subtypes Identified
From MDedge/neurology 09April 2024
https://www.mdedge.com/neurology/article/268641/multiple-sclerosis/three-distinct-ms-subtypes-identified?ecd=WNL_EVE_240411_mdedge&icd=login_success_email_match_norm&print=1
From MDedge/neurology 09April 2024
https://www.mdedge.com/neurology/article/268641/multiple-sclerosis/three-distinct-ms-subtypes-identified?ecd=WNL_EVE_240411_mdedge&icd=login_success_email_match_norm&print=1
BettysMom
in
My MSAA Community
4 months ago
Extra steroids?
Having had my first cold since before the pandemic after Christmas, I went off the to the doctors about 10 days ago because although I felt I'd recovered I was deaf in one ear and had sticky eyes. One ear hadn't 'popped' on the flight out or back to the UK and once the cold kicked in it got worse. Currently
Having had my first cold since before the pandemic after Christmas, I went off the to the doctors about 10 days ago because although I felt I'd recovered I was deaf in one ear and had sticky eyes. One ear hadn't 'popped' on the flight out or back to the UK and once the cold kicked in it got worse. Currently
ladygigger
in
PMRGCAuk
7 months ago
My folate deficiency merry-go-round.
Hi all,I have joined here in hope of learning more about why l keep getting folate decifiency. It is currently 2.1. I become deficient usually every 7/8 months and it has been this way for about 3 years. Each time it happens, l complain to my GP that l feel exhausted, he runs blood tests and it is
Hi all,I have joined here in hope of learning more about why l keep getting folate decifiency. It is currently 2.1. I become deficient usually every 7/8 months and it has been this way for about 3 years. Each time it happens, l complain to my GP that l feel exhausted, he runs blood tests and it is
Blue_feather
in
Pernicious Anaemia Society
4 months ago
Creatine
I am on Ursofalk and very well fortunately. I take Bezafibrate for itch (life saver). I have embark on a fitness journey of Crossfit and after 12 months wish to improve even more. I am advised by my coach to take Creatine and that this is natural and improves performance and muscle recovery. Anyone
I am on Ursofalk and very well fortunately. I take Bezafibrate for itch (life saver). I have embark on a fitness journey of Crossfit and after 12 months wish to improve even more. I am advised by my coach to take Creatine and that this is natural and improves performance and muscle recovery. Anyone
amt50
in
PBC Foundation
7 months ago
Predicting AF 30 mins before it happens
Researchers at the University of Luxembourg (LCSB) have developed an AI which is able to predict an episode of afib 30 minutes ahead of time with around 80% accuracy. https://www.sciencedaily.com/releases/2024/04/240422120707.htm [i]Prof. Jorge Goncalves, head of the Systems Control group at
Researchers at the University of Luxembourg (LCSB) have developed an AI which is able to predict an episode of afib 30 minutes ahead of time with around 80% accuracy. https://www.sciencedaily.com/releases/2024/04/240422120707.htm [i]Prof. Jorge Goncalves, head of the Systems Control group at
Barny12
in
Atrial Fibrillation Support
3 months ago
Can anyone help please?
Hi everyone. I am 9 years undiagnosed 🙄 my Rheumatologist thought I was a possible for Lupus but wasn't prepared to diagnose me there and then, this was 2015. I had had a positive Cryoglobulinemia blood test which was negative for Hep C, he said this was an indication of Lupus? Has anyone else got
Hi everyone. I am 9 years undiagnosed 🙄 my Rheumatologist thought I was a possible for Lupus but wasn't prepared to diagnose me there and then, this was 2015. I had had a positive Cryoglobulinemia blood test which was negative for Hep C, he said this was an indication of Lupus? Has anyone else got
Jodelights
in
LUPUS UK
4 months ago
night cramps
Hi everyone, I’m new on this forum. I was diagnosed with Rheumatoid Arthritis 3 years ago, in the family genes!, I’m currently on Methotrexate (25mg). Seem to be ok until about 2 weeks ago when I started to experience severe night cramps in my legs and feet. My consultant tells me it wasn’t a symptom
Hi everyone, I’m new on this forum. I was diagnosed with Rheumatoid Arthritis 3 years ago, in the family genes!, I’m currently on Methotrexate (25mg). Seem to be ok until about 2 weeks ago when I started to experience severe night cramps in my legs and feet. My consultant tells me it wasn’t a symptom
sussiewong22
in
NRAS
4 months ago
Getting on with life.
My prostate has been removed, my psa is rising. I am not on medication. Basically, just getting on with life. Refusing to let this nonsense get me down. Thoughts anyone ?
My prostate has been removed, my psa is rising. I am not on medication. Basically, just getting on with life. Refusing to let this nonsense get me down. Thoughts anyone ?
Scouse0151
in
Advanced Prostate Cancer
7 months ago
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