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Gaucher disease type 2 (GD2)
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Secondary Cancers after CAR-T Cell Therapy
From New England Journal of Medicine dated 24th Jan 2024 (article is for subscribers only) This brief report states: [i]The demonstrated efficacy of the current generation of approved CAR-T products comes along with several well-described safety concerns, including risks of cytokine release syndrome
From New England Journal of Medicine dated 24th Jan 2024 (article is for subscribers only) This brief report states: [i]The demonstrated efficacy of the current generation of approved CAR-T products comes along with several well-described safety concerns, including risks of cytokine release syndrome
Jm954
Administrator
in
CLL Support
7 months ago
Oximeters
I have just been diagnosed with a fib, after years of suspecting something was amiss, but never having episodes when a doctor, and even a cardiologist, was seeing me. I bought a Kardia6L, which showed many afib episodes. I took that to my GP of 13 years, and he immediately swung into impressive action
I have just been diagnosed with a fib, after years of suspecting something was amiss, but never having episodes when a doctor, and even a cardiologist, was seeing me. I bought a Kardia6L, which showed many afib episodes. I took that to my GP of 13 years, and he immediately swung into impressive action
Corazon17
in
Atrial Fibrillation Support
3 months ago
Permanent AFib
Started on Digoxin .25 daily for past six days and cut Lopressor down to 25 twice a day. Am going to try to wean off. HR 80-110. Generally do not feel well and am going to revisit ablation. I had blurring of vision and dizziness on higher doses of Lopressor alone. Last cardioversion only lasted
Started on Digoxin .25 daily for past six days and cut Lopressor down to 25 twice a day. Am going to try to wean off. HR 80-110. Generally do not feel well and am going to revisit ablation. I had blurring of vision and dizziness on higher doses of Lopressor alone. Last cardioversion only lasted
farewelltoarms
in
Atrial Fibrillation Support
3 months ago
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Study: Depression is largely prevalent, but undiagnosed in SLEResearchers in Pakistan surveyed 40 people with SLE using PHQ-9 scale
Depression is highly prevalent among people with systemic lupus erythematosus (SLE), but often goes undiagnosed, according to a single center study in Pakistan. The “treatment of depression is a vital component in the management of these patients and should be offered where appropriate,” the researchers
Depression is highly prevalent among people with systemic lupus erythematosus (SLE), but often goes undiagnosed, according to a single center study in Pakistan. The “treatment of depression is a vital component in the management of these patients and should be offered where appropriate,” the researchers
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 months ago
I wonder how many of us have this gene snip?It seems responsible for some autoimmune Thyroid disease and is quite rare
I have my nebula genomics results and this snip in particular seems relevant . Does anyone else have their results? Snip rs2476601 it says in snpedia.com that it is bad to have an A and very rare to have 2 AA Can cause lots of other autoimmune diseases too Best wishes Manjushri
I have my nebula genomics results and this snip in particular seems relevant . Does anyone else have their results? Snip rs2476601 it says in snpedia.com that it is bad to have an A and very rare to have 2 AA Can cause lots of other autoimmune diseases too Best wishes Manjushri
Manjushri
in
Thyroid UK
4 months ago
T3 when to take it
have been put on a T3 trial by a private doctor who specialises in thyroid conditions, just wondered what time of day morning and evening is best to take it, as have been told to take it twice a day. Been on thyroid medication for over 70 years. For a underactive thyroid. As members say the thyroid
have been put on a T3 trial by a private doctor who specialises in thyroid conditions, just wondered what time of day morning and evening is best to take it, as have been told to take it twice a day. Been on thyroid medication for over 70 years. For a underactive thyroid. As members say the thyroid
elwins
in
Thyroid UK
4 months ago
Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
Severancered9
in
LUPUS UK
4 months ago
Prednisone and Blood Sugar Levels
I am wondering what other member’s experience has been with prednisone and increasing A1c levels? I had been very consistently in the normal range for long term blood sugar levels until I started the prednisone last August. Since the prednisone, my levels have gradually crept up into the pre-diabetic
I am wondering what other member’s experience has been with prednisone and increasing A1c levels? I had been very consistently in the normal range for long term blood sugar levels until I started the prednisone last August. Since the prednisone, my levels have gradually crept up into the pre-diabetic
Donna5658
in
PMRGCAuk
1 year ago
Vasculitis Specialist Advice/Direction Please
Hi,I was diagnosed with IGA Vasculitis mid -December. This was diagnosed after a hospital stay and kidney biopsy. Upon reflection I think I have had this for some time and am trying to piece everything together. Have started a 6 month treatment course in a bid to get it to remission stage at which point
Hi,I was diagnosed with IGA Vasculitis mid -December. This was diagnosed after a hospital stay and kidney biopsy. Upon reflection I think I have had this for some time and am trying to piece everything together. Have started a 6 month treatment course in a bid to get it to remission stage at which point
Daisyboodle
in
Vasculitis UK
7 months ago
Rising PSA
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
JolleySprings
in
Advanced Prostate Cancer
7 months ago
Hi.....again
Hi everyone, My partners liver cirrhosis had disappeared - to look at him you wouldn't know anything was wrong, he's on medication and for a while everything was good. Now he's developing a hard tummy again, I'm now worried that something is very wrong as he hasn't drank since he went to hospital back
Hi everyone, My partners liver cirrhosis had disappeared - to look at him you wouldn't know anything was wrong, he's on medication and for a while everything was good. Now he's developing a hard tummy again, I'm now worried that something is very wrong as he hasn't drank since he went to hospital back
Stephsmumlou
in
British Liver Trust
7 months ago
Cholesterol and QRISK score
My GP has just completed my annual review and has referred me to the GP specialist Pharmacist to discuss statins. My cholesterol has always been well controlled with a reading of around 5 (I was told my good cholesterol was excellent). This year it has increased to 5.16 and he has also completed a QRISK
My GP has just completed my annual review and has referred me to the GP specialist Pharmacist to discuss statins. My cholesterol has always been well controlled with a reading of around 5 (I was told my good cholesterol was excellent). This year it has increased to 5.16 and he has also completed a QRISK
Karendeena
in
Atrial Fibrillation Support
3 months ago
supplements for a fibs???
Has anyone here used magnesium or L arginine for atrial fibrillations? If yes, and you had good results, what were the dosages and how often daily? Thank you.
Has anyone here used magnesium or L arginine for atrial fibrillations? If yes, and you had good results, what were the dosages and how often daily? Thank you.
peachtreepiggy
in
Atrial Fibrillation Support
3 months ago
statins
Not a PMR question but I’m hoping someone here can help. Sorry it’s a long post. I have been off pred for a couple of months and all is well, fingers crossed. I was offered, because I am now 70, a health check by the local surgery and asked for ESR and CRP to be checked too. They are good but my
Not a PMR question but I’m hoping someone here can help. Sorry it’s a long post. I have been off pred for a couple of months and all is well, fingers crossed. I was offered, because I am now 70, a health check by the local surgery and asked for ESR and CRP to be checked too. They are good but my
Sweetpeasoprano
in
PMRGCAuk
3 months ago
Abnormal ECG
Hi all Having a panic so thought I would see if anyone can give any advice or just generally calm me down abit. Had a heart scan last year that showed some mild thickening and the dr eventually agreed to refer me to a cardiologist, whom I’m seeing in August. A few weeks ago I had a few days of having
Hi all Having a panic so thought I would see if anyone can give any advice or just generally calm me down abit. Had a heart scan last year that showed some mild thickening and the dr eventually agreed to refer me to a cardiologist, whom I’m seeing in August. A few weeks ago I had a few days of having
Helenlouise40
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
Newly diagnosed
I have just been diagnosed with paroxysmal afib after having to go to hospital with fast afib with a top heart rate of 190.I was in for 2 nights and sent home on bisoprolol and rivaroxaban and I was already on enalapril. I have noticed my pulse rate is now in the 50s , lowest being 50 or 51. Are these
I have just been diagnosed with paroxysmal afib after having to go to hospital with fast afib with a top heart rate of 190.I was in for 2 nights and sent home on bisoprolol and rivaroxaban and I was already on enalapril. I have noticed my pulse rate is now in the 50s , lowest being 50 or 51. Are these
Exhiker
in
Atrial Fibrillation Support
3 months ago
Fatty Liver -Pain
Hi, I have had NAFLD for several years but have just started to get pain with it. I think it may have moved to NASH and possibly fibrosis or cirrhosis (nothing has confirmed that officially yet). I had a blood test and the doctor said that the liver function number was raised more so than usual. It
Hi, I have had NAFLD for several years but have just started to get pain with it. I think it may have moved to NASH and possibly fibrosis or cirrhosis (nothing has confirmed that officially yet). I had a blood test and the doctor said that the liver function number was raised more so than usual. It
IronPilgrim
in
British Liver Trust
7 months ago
is this possible?
My son died at the age of 36 in the USA in September 2023. He had been alcohol dependent but had finally managed to stop drinking a month before, and his liver results were steadily improving . He woke up one Sunday bright yellow but feeling fine and it took his wife 48 hours to persuade him to go to
My son died at the age of 36 in the USA in September 2023. He had been alcohol dependent but had finally managed to stop drinking a month before, and his liver results were steadily improving . He woke up one Sunday bright yellow but feeling fine and it took his wife 48 hours to persuade him to go to
Tortoise57
in
British Liver Trust
7 months ago
Rising PSA -
Diagnosed: May 2021 age 53 otherwise no health issues. Only symptom was increased urination that progressed to painful urination and inability to fully empty bladder. Highest PSA was 5. MRI showed Mets to pelvic lymph, seminal vessels, and pelvic bone. Gleason 4+3 (80% of samples) 4+5 for 10%. CT
Diagnosed: May 2021 age 53 otherwise no health issues. Only symptom was increased urination that progressed to painful urination and inability to fully empty bladder. Highest PSA was 5. MRI showed Mets to pelvic lymph, seminal vessels, and pelvic bone. Gleason 4+3 (80% of samples) 4+5 for 10%. CT
MPCSUX
in
Advanced Prostate Cancer
7 months ago
ASCO GU 2024 program
Ok! Here you go, but prostate cancer is only on day 1 https://conferences.asco.org/gu/program
Ok! Here you go, but prostate cancer is only on day 1 https://conferences.asco.org/gu/program
Maxone73
in
Advanced Prostate Cancer
7 months ago
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