There is hope: This is on my bio but... - British Liver Trust

British Liver Trust

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There is hope

Oldbits profile image
16 Replies

This is on my bio but thought I would copy you all in. I've never posted before but wanted to share this. I have never asked a question but have learnt so much on here that has helped me to support my husband through a very rough time in our 35 year marriage. A total change in life style and we are now looking forward to a future we thought lost. UPDATE. 2024. Hubbie nolonger on any medication! Three monthly blood tests and yearly scans etc and appointment only if changes found. Still has cirrhosis but liver now coping . -

My husband has autoimmune hepatitis, alcohol damage and heamochromatosis. He has stopped drinking since february 2022 and his bloods improved. He has anxiety aswell. Was turned down for transplant 2021 because of the alcohol.

UPDATE 2023 my husbands latest bloods are nearly normal and his medication reduced. He is now compensated, liver badly scarred and polyps on his gall bladder but feeling great. Still on water tablets and mycophenolate. Giving up the drink was the biggest factor in his improvement. Never thought I'd be able to say that.

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Oldbits
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16 Replies
Aztec632 profile image
Aztec632

I am happy for you and your husband, it sounds like all is going in the right direction and now you can see some light at the end of what I am sure was a very dark tunnel Its amazing how determination and hard work pays off. Your husband has done amazing staying away from the poison that alcohol is.

Best wishes for your future journey.

Oldbits profile image
Oldbits in reply toAztec632

Thank you

Lantana100 profile image
Lantana100

so cheering to hear news like this. A huge well done to your husband for managing to give up the alcohol and the same to you for supporting him through it all. Teamwork makes all the difference. I wish you all the best moving forwards.

Oldbits profile image
Oldbits in reply toLantana100

Thank you

Lavender-Pearl profile image
Lavender-Pearl

Wow that is amazing and gives real hope, positivity and direction for folk. My husband had a transplant last June for alcohol related cirrhosis after too many years of enjoying red wine. It crept up on him. Although he stop drinking as soon as we knew his liver was in trouble, 18 months later his liver was failing. Well done your husband for taking hold of his life, you for persevering and sharing this, wishing you both the best for the future. X

Oldbits profile image
Oldbits in reply toLavender-Pearl

Thank you. Alcohol is a hard one to beat but well worth the effort. Glad your husband is doing well.

Taffypaul profile image
Taffypaul

Fantastic very well done. Stopping drinking is without a doubt the life saver. Keep going.

MarkC66 profile image
MarkC66

Great news 👊

Kayseylou profile image
Kayseylou

That’s great news 🙏🙏🙏

teletonetapper profile image
teletonetapper

Such a difficult time for you both. However, the light is shining at the end of the tunnel for the pair of you. Very welcoming news and an inspiration for other members. Good luck in your lives and the future is well deserved for you both. Take care and enjoy further Wedding Anniversary years.

Oldbits profile image
Oldbits in reply toteletonetapper

Thank you

PollyO profile image
PollyO

I have PBC, but did consume a lot of beer for a long time. Amazingly the doc says the alcohol had nothing to do with my liver...not that it did it any good I am sure.Anyway, one evening I had half a beer and I didn't feel like the rest. I never drank again. I never really missed it either. I had tried to quit before to no avail.

Drinking is a mind set caused by lack of self esteem I think. Once you learn to like yourself everything improves.

Just thoughts...

looby24 profile image
looby24

Very happy for you and thank you for sharing. It's really helpful to hear good outcomes. My husband is stable at the moment and we too are hoping for good results at the next set of tests. It's all very scary at the beginning but one then concentrates on what has to be done and gets on with it. It's good when hard work to change lifestyle pays off, well done

Oldbits profile image
Oldbits in reply tolooby24

Thank you, I hope you get the results you want too. It is hard work. My husband was decompensated and at his last appointment his consultant said " you've dodged a very large bullet, well done" !

looby24 profile image
looby24 in reply toOldbits

That's amazing. Do you mind me asking if your husband had a MELD calculation at any point and what it was?

Oldbits profile image
Oldbits in reply tolooby24

He had a UKELD score of 56, I believe anything over 49 is considered for transplant (depending on the cause) he knows how lucky he is

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