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Mum update (CBD)
Thought I had finally better give you all an update on mum. Mum had a fall back in Feb which resulted in a broken nose and slight skull fracture, still mobile unaided at this point, but with falls risk. Admitted to hospital after 24 hours in A&E, finally getting a bed in a ward. Ward then had changed
Thought I had finally better give you all an update on mum. Mum had a fall back in Feb which resulted in a broken nose and slight skull fracture, still mobile unaided at this point, but with falls risk. Admitted to hospital after 24 hours in A&E, finally getting a bed in a ward. Ward then had changed
Araucana
in
PSP Association
4 months ago
Just saw my first rheumatologist yesterday, very confused by diagnosis?
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
LarMarge6
in
PMRGCAuk
5 months ago
Raynaud's in dark skinned patients
Hi all! My mum has secondary Raynaud's, like triggered by heart meds that unfortunately, she has to take. Diagnosis came very late as she didn't get the white-blue-red which they were expecting. Straight to white under the nails and fingertips, it then progressed straight from that to black dots which
Hi all! My mum has secondary Raynaud's, like triggered by heart meds that unfortunately, she has to take. Diagnosis came very late as she didn't get the white-blue-red which they were expecting. Straight to white under the nails and fingertips, it then progressed straight from that to black dots which
CarerEdi
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
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1 Year out Radiation treatment
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
rickyfish56
in
Advanced Prostate Cancer
7 months ago
RA and lymphoedema
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Keb22
in
NRAS
5 months ago
panicking!
Hi, My husband was diagnosed over 10 years ago with Prostate cancer with PSA 18 and Gleeson 4+3. He was never offered prostatectomy as they said there was a small metastases on the pelvis. So he had 2 weeks of radiation on his hip, and was then treated with 6 monthly injections of Decapeptyl, which
Hi, My husband was diagnosed over 10 years ago with Prostate cancer with PSA 18 and Gleeson 4+3. He was never offered prostatectomy as they said there was a small metastases on the pelvis. So he had 2 weeks of radiation on his hip, and was then treated with 6 monthly injections of Decapeptyl, which
Hidden
in
Advanced Prostate Cancer
7 months ago
TSH Level
hiya( again š) Got a call from the receptionist on Wednesday my TSH level is 5 and I have been advised to stop my Carbimazole 5mg immediately, she was unable to offer any other advise other than Iām to continue having my bloods every 4 weeks . Am I correct does the level of 5 now bring me into the
hiya( again š) Got a call from the receptionist on Wednesday my TSH level is 5 and I have been advised to stop my Carbimazole 5mg immediately, she was unable to offer any other advise other than Iām to continue having my bloods every 4 weeks . Am I correct does the level of 5 now bring me into the
Forumjunkie
in
Thyroid UK
5 months ago
PSA test at a different lab
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
Rfs1975
in
Advanced Prostate Cancer
8 months ago
PSA test at a different lab
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
Rfs1975
in
Advanced Prostate Cancer
8 months ago
Returning to Warfarin after 4 months on Edoxaban ...... part 2
I posted on here my original comments on this subject. Hopefully, this update, will be of interest. I made the decision to quit Edoxaban on 6 April. I didn't /couldn't be bothered to make contact with my GP, whenever I phone up for a chat I'm asked to make an appointment which usually is about 10 days
I posted on here my original comments on this subject. Hopefully, this update, will be of interest. I made the decision to quit Edoxaban on 6 April. I didn't /couldn't be bothered to make contact with my GP, whenever I phone up for a chat I'm asked to make an appointment which usually is about 10 days
BenHall1
in
Atrial Fibrillation Support
4 months ago
Next step..
Gleason 9, s/practice RP. PSA UP to 0.2 8 months later. PSMA showed 4 hot spots all in pelvis. Started on zytiga and lupron same time as radiation started. PSA has remained < 0.04 for 17 months now. Considering the aggressive nature of my cancer, should I insist on a scan even when PSA <0.04 or
Gleason 9, s/practice RP. PSA UP to 0.2 8 months later. PSMA showed 4 hot spots all in pelvis. Started on zytiga and lupron same time as radiation started. PSA has remained < 0.04 for 17 months now. Considering the aggressive nature of my cancer, should I insist on a scan even when PSA <0.04 or
rfgh20
in
Advanced Prostate Cancer
8 months ago
Hello again
I posted a little while ago, that I had been diagnosed with cirrhosis just over a year ago as a progression of NAFLD that I was unaware of. I had been waiting results of DEXA scan which did show thinning of bones and an US which showed no abnormalities. (The cirrhosis had been diagnosed from a Fibroscan
I posted a little while ago, that I had been diagnosed with cirrhosis just over a year ago as a progression of NAFLD that I was unaware of. I had been waiting results of DEXA scan which did show thinning of bones and an US which showed no abnormalities. (The cirrhosis had been diagnosed from a Fibroscan
0range5520
in
British Liver Trust
8 months ago
Tests show fatty liver but I seem to have Terry's Nails?
I am 27F, currently 7 months pregnant. I currently weigh 209 but have lost 45lbs over the past year and a half. I was a big drinker in college and after but have greatly cut back and obviously stopped during this pregnancy and my first one. I went to my doctor a couple years ago with RUQ pain and had
I am 27F, currently 7 months pregnant. I currently weigh 209 but have lost 45lbs over the past year and a half. I was a big drinker in college and after but have greatly cut back and obviously stopped during this pregnancy and my first one. I went to my doctor a couple years ago with RUQ pain and had
Panicprofessional
in
British Liver Trust
8 months ago
A puzzle
Helllo everyone. I came across an interesting publication from the Cleveland Clinic with the title, Is it Lupus or Fibromyalgia? It will not paste. The author is Blumenthal, MD of Rheumatology at CC. With this you can easily find it with a google. I came across it as I was looking at my new lab scores
Helllo everyone. I came across an interesting publication from the Cleveland Clinic with the title, Is it Lupus or Fibromyalgia? It will not paste. The author is Blumenthal, MD of Rheumatology at CC. With this you can easily find it with a google. I came across it as I was looking at my new lab scores
MrsMarigold
in
LUPUS UK
5 months ago
PSA Rising and MRI Negative
My husband PSA has been rising after Prostatectomy. A recent PET Scan showed cancer cells in the Prostate bed, but the MRI didn't pick-up any disease. The Oncologist is checking labs, and will start my husband on HT.Question for the group. Why would PET scan pick-up cancer cells, and not the MRI?
My husband PSA has been rising after Prostatectomy. A recent PET Scan showed cancer cells in the Prostate bed, but the MRI didn't pick-up any disease. The Oncologist is checking labs, and will start my husband on HT.Question for the group. Why would PET scan pick-up cancer cells, and not the MRI?
Inquisitive_one
in
Advanced Prostate Cancer
8 months ago
Sudden increase of PSA...
My PSA numbers after 3 years of Lupron were steady at 0.2...then last month it went to 13....My oncologist has ordered tests but i am worried...Has anyone experienced a similar rise...?
My PSA numbers after 3 years of Lupron were steady at 0.2...then last month it went to 13....My oncologist has ordered tests but i am worried...Has anyone experienced a similar rise...?
Max24
in
Advanced Prostate Cancer
8 months ago
potential DILI - advice?
hi everyone, Iām 29F, at the end of April I was hospitalised for e-coli, given anti biotics and PPIās through my IV line for 3 days, then continued on oral anti biotics with PPIās for 5 days My symptoms continued and my ALT/AST are at 952/370 and continuing to rise still today, I feel awful, nauseous
hi everyone, Iām 29F, at the end of April I was hospitalised for e-coli, given anti biotics and PPIās through my IV line for 3 days, then continued on oral anti biotics with PPIās for 5 days My symptoms continued and my ALT/AST are at 952/370 and continuing to rise still today, I feel awful, nauseous
eljd
in
British Liver Trust
2 months ago
Autoimmune diseases and mental health
Attempting to attach article which strikes a chord with me atm. https://www.msn.com/en-gb/health/medical/study-reveals-hidden-mental-health-symptoms-in-people-with-autoimmune-diseases/ar-AA1e1S9k
Attempting to attach article which strikes a chord with me atm. https://www.msn.com/en-gb/health/medical/study-reveals-hidden-mental-health-symptoms-in-people-with-autoimmune-diseases/ar-AA1e1S9k
random901
in
PMRGCAuk
5 months ago
Any financial help for PwP?
Hi evetybody! I know that we are all suffering with this condition and our lives are more or less impacted and limited..But believe me, or not,what is even worse than have PD is to have Parkinson's symptoms in your late 20 - 30 ties when you should be on the top of your productivity, but you put your
Hi evetybody! I know that we are all suffering with this condition and our lives are more or less impacted and limited..But believe me, or not,what is even worse than have PD is to have Parkinson's symptoms in your late 20 - 30 ties when you should be on the top of your productivity, but you put your
realk
in
Cure Parkinson's
8 months ago
Tuesday's 'Tip'
I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis.[/i][/u] This an amazing source of information on PBC from a world leading expert. I strongly encourage everyone
I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis.[/i][/u] This an amazing source of information on PBC from a world leading expert. I strongly encourage everyone
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
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