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Does PA get worse in time?
Hi Folks Just a question of interest really. I have autoimmune thyroid disease (underactive). Back in summer 2018 I had borderline low active b12 (34 range 25.1-165) and symptoms, but tested negative for intrinsic factor antibodies (I know this is a test with a high possibility of a false negative).
Hi Folks Just a question of interest really. I have autoimmune thyroid disease (underactive). Back in summer 2018 I had borderline low active b12 (34 range 25.1-165) and symptoms, but tested negative for intrinsic factor antibodies (I know this is a test with a high possibility of a false negative).
Laundretta
in
Pernicious Anaemia Society
4 years ago
Struggling trying to get IF test done.
I arranged to have the intrinsic factor test done on the 21st via nurse and medichecks. They advised me to stop the supplements two weeks before so I had my last injection on Tuesday past,I’m really suffering bad feet and legs pain and burning again staggering again feel itchy all over my shoulders,
I arranged to have the intrinsic factor test done on the 21st via nurse and medichecks. They advised me to stop the supplements two weeks before so I had my last injection on Tuesday past,I’m really suffering bad feet and legs pain and burning again staggering again feel itchy all over my shoulders,
Hidden
in
Pernicious Anaemia Society
4 years ago
Why are all tests normal? If I don’t have Crohn’s then what?
MRI enterography was normal (not really a surprise, everything is always normal). Does anybody have an idea of what could cause the following? I’ve been having symptoms for years but all these tests are normal. It started with mild gas issues, then it progressed to abdominal discomfort and gas when
MRI enterography was normal (not really a surprise, everything is always normal). Does anybody have an idea of what could cause the following? I’ve been having symptoms for years but all these tests are normal. It started with mild gas issues, then it progressed to abdominal discomfort and gas when
WK1010
in
Crohn's and Colitis Support
4 years ago
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Recent possible fibro diagnosis
Hello - having been given a possible early ra or palindromic arthritis diagnosis, I am now told it may be fibromyalgia. All bloods were normal except raised rheumatoid factor. Symptoms are joint pain, stiffness all over on & off, especially after rest, hands joints v painful with some swelling in the
Hello - having been given a possible early ra or palindromic arthritis diagnosis, I am now told it may be fibromyalgia. All bloods were normal except raised rheumatoid factor. Symptoms are joint pain, stiffness all over on & off, especially after rest, hands joints v painful with some swelling in the
Sunnyseas
in
Fibromyalgia Action UK
4 years ago
PA B12 and H Pylori???
Hi all I haven't posted on here before but find the site really helpful. Sorry for the long post. I was diagnosed with PA about 1 year ago. I only know it's PA because my intrinsic factor test came back positive and I researched it myself. I had no conversation with a doctor! Sooo frustrating!
Hi all I haven't posted on here before but find the site really helpful. Sorry for the long post. I was diagnosed with PA about 1 year ago. I only know it's PA because my intrinsic factor test came back positive and I researched it myself. I had no conversation with a doctor! Sooo frustrating!
Catrratt
in
Pernicious Anaemia Society
4 years ago
B12 Deficiency is the worst experience of my life!
I’m a 50 year old female - have had random Neuro symptoms for over 3 years - tingling and numbness in hands and feet, numb thighs, numb knee caps, pins and needles on my tongue; dizzinesss, balance balance problems - I went to my doctor at least 10xs Only the be sent away with muscle relaxers, anxiety
I’m a 50 year old female - have had random Neuro symptoms for over 3 years - tingling and numbness in hands and feet, numb thighs, numb knee caps, pins and needles on my tongue; dizzinesss, balance balance problems - I went to my doctor at least 10xs Only the be sent away with muscle relaxers, anxiety
HopetoB12better
in
Pernicious Anaemia Society
4 years ago
A tale of two doctors!
Hi All, hope everyone is keeping safe I had a telephone app today with my GP surgery, my usual Dr (male) (no u can’t have an increase, results are fine and somewhere in range) was not available, so spoke to another more sympathetic Dr (female) who last year agreed to 2 dose increases, (Levo) yey!! Thanks
Hi All, hope everyone is keeping safe I had a telephone app today with my GP surgery, my usual Dr (male) (no u can’t have an increase, results are fine and somewhere in range) was not available, so spoke to another more sympathetic Dr (female) who last year agreed to 2 dose increases, (Levo) yey!! Thanks
sarahstevo1974
in
Thyroid UK
4 years ago
B12 blood results
I got my blood test result back that included intrinsic factor and doc told me b12 levels were high but I'm not happy as feeling symptoms now tired painful joints irritable intrinsic factor was ok don't know what to do I'm taking a supplement once a day but think going to try self injecting does anyone
I got my blood test result back that included intrinsic factor and doc told me b12 levels were high but I'm not happy as feeling symptoms now tired painful joints irritable intrinsic factor was ok don't know what to do I'm taking a supplement once a day but think going to try self injecting does anyone
Fedup2020
in
Pernicious Anaemia Society
4 years ago
Arm/wrist
I've got an apt 8the june with a rheumatologist. I've got a positive ana, raised esr, high rheumatoid factor and positive ccp. I'm petrified this pain is something like cancer. My right wrist started hurting and then left 2 lumps. Now I don't know if it's the lumps that are hurting or my actual wrist
I've got an apt 8the june with a rheumatologist. I've got a positive ana, raised esr, high rheumatoid factor and positive ccp. I'm petrified this pain is something like cancer. My right wrist started hurting and then left 2 lumps. Now I don't know if it's the lumps that are hurting or my actual wrist
Zipster369
in
NRAS
4 years ago
Presence of a lupus anticoagulant may explain prolonged activated partial-thromboplastin time in COVID-19
MAY 6, 2020 Presence of a lupus anticoagulant may explain prolonged activated partial-thromboplastin time in COVID-19 By Denise Baez NEW YORK -- May 6, 2020 -- A prolonged activated partial-thromboplastin time (aPTT) should not be a barrier to the use of anticoagulation therapies in the prevention and
MAY 6, 2020 Presence of a lupus anticoagulant may explain prolonged activated partial-thromboplastin time in COVID-19 By Denise Baez NEW YORK -- May 6, 2020 -- A prolonged activated partial-thromboplastin time (aPTT) should not be a barrier to the use of anticoagulation therapies in the prevention and
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
4 years ago
Intrinsic Factor at top of range
My intrinsic factor antibody test came back at 1.1 (normal range 0-1.1). I was told that because my number is trending upward it should be considered positive. My B12 was 234 but many neuro symptoms including twitching, burning feet, ears ringing, anxiety. My question is....should this number be an
My intrinsic factor antibody test came back at 1.1 (normal range 0-1.1). I was told that because my number is trending upward it should be considered positive. My B12 was 234 but many neuro symptoms including twitching, burning feet, ears ringing, anxiety. My question is....should this number be an
walbright
in
Pernicious Anaemia Society
4 years ago
Myopic degeneration and anti VEGF
Hi First and foremost I have to say I am so grateful for this community and hearing other people's stories. I recently had an anti VEGF as it was identified I had myopic macular degeneration. For those that saw improvements in their vision after anti. VEGF injection? How long did it take? Thanks in
Hi First and foremost I have to say I am so grateful for this community and hearing other people's stories. I recently had an anti VEGF as it was identified I had myopic macular degeneration. For those that saw improvements in their vision after anti. VEGF injection? How long did it take? Thanks in
Dmes83
in
Macular Society
4 years ago
Rheumatoid arthritis
Started 6 months ago with left side headache, eye inflammation, sores up nose, fatigue, night sweats, right wrist sore on and off, right shoulder was stiff. I've now got a painful right wrist and it hurts in my ulner region and further down my arm theres a hard bump. Had bloods done before lockdown
Started 6 months ago with left side headache, eye inflammation, sores up nose, fatigue, night sweats, right wrist sore on and off, right shoulder was stiff. I've now got a painful right wrist and it hurts in my ulner region and further down my arm theres a hard bump. Had bloods done before lockdown
Zipster369
in
NRAS
4 years ago
Suffering symptoms of b12 deficiency whilst not getting b12 injections
I'm suffering with extreme tiredness aches all over and pins and needles in fingers and toes. I'm going for b12 blood test next week full blood count and intrinsic factor. I'm really upset that I have to suffer these symptoms and I am worried that it will show a high reading as it has done before.
I'm suffering with extreme tiredness aches all over and pins and needles in fingers and toes. I'm going for b12 blood test next week full blood count and intrinsic factor. I'm really upset that I have to suffer these symptoms and I am worried that it will show a high reading as it has done before.
Fedup2020
in
Pernicious Anaemia Society
4 years ago
B12 or Prenious Anemia
I had my b12 tested and it was 152 low. I started my methycobal inj 12 days ago(7 inj till nw then will have one every week for a month) Also got anti nuclear antibody tested, came in negative, which includes intrinsic factor anti body. I am a uric acid patient for more than 10 years so most of the
I had my b12 tested and it was 152 low. I started my methycobal inj 12 days ago(7 inj till nw then will have one every week for a month) Also got anti nuclear antibody tested, came in negative, which includes intrinsic factor anti body. I am a uric acid patient for more than 10 years so most of the
kashifiq
in
Pernicious Anaemia Society
4 years ago
Why We need B12. How it was discovered.
I have been doing some research and it all confirms what my Consultant told me 40 years ago. There were three men Minot, Whipple and Murphy who worked on this and were awarded the Nobel prize for discovering that Pernicious Anaemia was different from ordinary Anaemia. They used to give patients liver
I have been doing some research and it all confirms what my Consultant told me 40 years ago. There were three men Minot, Whipple and Murphy who worked on this and were awarded the Nobel prize for discovering that Pernicious Anaemia was different from ordinary Anaemia. They used to give patients liver
briarhillcat
in
Pernicious Anaemia Society
4 years ago
Anti VEGF injection - cloudy vision
Hi all, I had my first anti VEGF injection yesterday and I was wondering if it is normal that your vision becomes blurry after the injection and how long it last for? Thanks in advance
Hi all, I had my first anti VEGF injection yesterday and I was wondering if it is normal that your vision becomes blurry after the injection and how long it last for? Thanks in advance
Dmes83
in
Macular Society
4 years ago
Association Between Dihydrotestosterone and Long-Term Risk for PCa Mortality
New study below [1]. To skip the preamble, read below "***". Ever since Huggins discovered that castration offered palliation for men with PCa, albeit temporary, there has been a belief that testosterone [T[ acts like gasoline on a fire. A number of study papers have appeared over the past 15 years
New study below [1]. To skip the preamble, read below "***". Ever since Huggins discovered that castration offered palliation for men with PCa, albeit temporary, there has been a belief that testosterone [T[ acts like gasoline on a fire. A number of study papers have appeared over the past 15 years
pjoshea13
in
Advanced Prostate Cancer
4 years ago
B12 injections stopped by GP.
My GP has stopped my B12 injections altogether and is saying it has nothing to do with the pandemic, that this was going to happen anyway. I was having injections every 8 weeks, due to pernicious anaemia. Intrinsic factor antibody test was positive when diagnosed 2 and a half years ago. Being told that
My GP has stopped my B12 injections altogether and is saying it has nothing to do with the pandemic, that this was going to happen anyway. I was having injections every 8 weeks, due to pernicious anaemia. Intrinsic factor antibody test was positive when diagnosed 2 and a half years ago. Being told that
amydemi
in
Pernicious Anaemia Society
4 years ago
B12 injections
Hi, I take B12 injections for B12 deficiency symptoms which did go away after being given the shot. I am negative for intrinsic factor antibodies. I also take folic acid 5mg which has just been prescribed to me for folate deficiency. The folate was even deficient years before the B12 injections were
Hi, I take B12 injections for B12 deficiency symptoms which did go away after being given the shot. I am negative for intrinsic factor antibodies. I also take folic acid 5mg which has just been prescribed to me for folate deficiency. The folate was even deficient years before the B12 injections were
Lotuspink
in
Pernicious Anaemia Society
4 years ago
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