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What were your Anti Parietal Cell Numbers?
What were your Anti Parietal Cell Numbers? Mine is right on the borderline of positive. Trying to figure out I have b12 of 422 and a slightly elevated MMA. I also have a negative Intrinsic Factor Antibody test
What were your Anti Parietal Cell Numbers? Mine is right on the borderline of positive. Trying to figure out I have b12 of 422 and a slightly elevated MMA. I also have a negative Intrinsic Factor Antibody test
Max1777
in
Pernicious Anaemia Society
4 years ago
Desiccated pigs stomach
My sister recently read research from 1930s and I was wondering if anyone knows anything about eating desiccated pigs stomach. By doing so they ingested pigs intrinsic factor. I will try and find the article and add it to the post.
My sister recently read research from 1930s and I was wondering if anyone knows anything about eating desiccated pigs stomach. By doing so they ingested pigs intrinsic factor. I will try and find the article and add it to the post.
PhilAB
in
Pernicious Anaemia Society
4 years ago
Medichecks testing
I have decided to take matters into my own hands and order an Intrinsic Factor test from Medichecks. I know to have it done towards the end of my B12 injection. I have requested a nurse to come to the house as I don't know anyone that can take the blood. Do you have to receive your test first and
I have decided to take matters into my own hands and order an Intrinsic Factor test from Medichecks. I know to have it done towards the end of my B12 injection. I have requested a nurse to come to the house as I don't know anyone that can take the blood. Do you have to receive your test first and
Rocky
in
Thyroid UK
4 years ago
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Something I noticed
In my opinion, in the minds of doctors, there is a big difference between being B12d and having Pernicious Anaemia. For some reason people who are B12d seem to get fobbed off by the medical staff .... but if you have PA, it is seemingly a legitimate medical condition and they can't do enough to help
In my opinion, in the minds of doctors, there is a big difference between being B12d and having Pernicious Anaemia. For some reason people who are B12d seem to get fobbed off by the medical staff .... but if you have PA, it is seemingly a legitimate medical condition and they can't do enough to help
Tubbylardo
in
Pernicious Anaemia Society
4 years ago
This sounds like PA, right?
Several years ago I would occasionally get short of breath. I realized it might be B12, and specifically PA because I eat a lot of meat, and started getting B12 injections. I would get an injection, go several months without symptoms, start getting short of breath again, get another injection, etc. I
Several years ago I would occasionally get short of breath. I realized it might be B12, and specifically PA because I eat a lot of meat, and started getting B12 injections. I would get an injection, go several months without symptoms, start getting short of breath again, get another injection, etc. I
nikaoo
in
Pernicious Anaemia Society
4 years ago
Help with blood results please: B12, ferritin and D.
Hi all. Having had a very low B12 result back in February I got sick of waiting for my GP to re-run the tests I'd had done privately, and paid to have them done again. My results are now in and I'd appreciate your input. Background: I'm vegetarian (though not vegan and eat a lot of dairy), hypothyroid
Hi all. Having had a very low B12 result back in February I got sick of waiting for my GP to re-run the tests I'd had done privately, and paid to have them done again. My results are now in and I'd appreciate your input. Background: I'm vegetarian (though not vegan and eat a lot of dairy), hypothyroid
distractonaught
in
Pernicious Anaemia Society
4 years ago
I'm sure its lupus
Please advise me, my background is sero negative APS diagnosed at St Thomas' in 2004, positive anti ro same time so told SS. Diagnosed fibro 1997. Though I've always had more lupus symptoms than SS. I get raised itchy blisters on wrists and lower legs, mouth ulcers, arthralgia, multiple spine fractures
Please advise me, my background is sero negative APS diagnosed at St Thomas' in 2004, positive anti ro same time so told SS. Diagnosed fibro 1997. Though I've always had more lupus symptoms than SS. I get raised itchy blisters on wrists and lower legs, mouth ulcers, arthralgia, multiple spine fractures
Daisy1962
in
LUPUS UK
4 years ago
As injection schedule decreases, symptoms are returning!
So as some of you know (Seth12345), I was diagnosed with b12d about 8 weeks ago. My loading doses were: once a day for 7 days, once a week for a month and once a month for a year. I just completed the once a week for a month, with the last injection being one day late, on the 8th day. Two days later
So as some of you know (Seth12345), I was diagnosed with b12d about 8 weeks ago. My loading doses were: once a day for 7 days, once a week for a month and once a month for a year. I just completed the once a week for a month, with the last injection being one day late, on the 8th day. Two days later
HopetoB12better
in
Pernicious Anaemia Society
4 years ago
Intrinsic factor antibody test
Hello, My GP has agreed to test this antibody. I have Hashimoto's/hypothyroidism and take 150 mcg levothyroxine along with low dose naltrexone (currently 1 ml daily, titrating up 0.5 ml every two weeks), methyl-B12, methylfolate, vitamin D, ferrous fumarate, vitamin B6, zinc, magnesium and selenium.
Hello, My GP has agreed to test this antibody. I have Hashimoto's/hypothyroidism and take 150 mcg levothyroxine along with low dose naltrexone (currently 1 ml daily, titrating up 0.5 ml every two weeks), methyl-B12, methylfolate, vitamin D, ferrous fumarate, vitamin B6, zinc, magnesium and selenium.
Zazbag
in
Pernicious Anaemia Society
4 years ago
Worried Son
I'd like to know if other members have had B12 injections taken away from them by their GP? My Mum was diagnosed with Pernicious Anemia over 20 years ago and was told that she will need B12 injections for the rest of her life by the Consultant in Haematology. Last year, her GP took them away from her
I'd like to know if other members have had B12 injections taken away from them by their GP? My Mum was diagnosed with Pernicious Anemia over 20 years ago and was told that she will need B12 injections for the rest of her life by the Consultant in Haematology. Last year, her GP took them away from her
IPM1970
in
Pernicious Anaemia Society
4 years ago
Pernicious anemia symptoms returned after loading dose of B12!
Hi Everyone, My last loading dose injection of B12 was on 10th June after testing (twice) for a positive intrinsic factor, and slowly my symptoms have return. This weekend I feel awful, with xtreme tiredness, lack of energy, feeling faint, headaches and tinnitus. Please can anyone recommend anything
Hi Everyone, My last loading dose injection of B12 was on 10th June after testing (twice) for a positive intrinsic factor, and slowly my symptoms have return. This weekend I feel awful, with xtreme tiredness, lack of energy, feeling faint, headaches and tinnitus. Please can anyone recommend anything
Iheart_TS
in
Pernicious Anaemia Society
4 years ago
Intrinsic results back
Hi all.I just got my intrinsic factor test results back. Antibodies 3.47 AU/ml^2 (range 1.2-1.53) Positive. Any tips on what to do next appreciated. I’ve got my endo appointment on the 08/July for the Addisons diagnosis So obviously I’ll need to update him on this result. I’m back to self injecting
Hi all.I just got my intrinsic factor test results back. Antibodies 3.47 AU/ml^2 (range 1.2-1.53) Positive. Any tips on what to do next appreciated. I’ve got my endo appointment on the 08/July for the Addisons diagnosis So obviously I’ll need to update him on this result. I’m back to self injecting
Hidden
in
Pernicious Anaemia Society
4 years ago
Possible B12 deficiency, looking for recommended test list before B12 shot
I ran across someone posting on Reddit who has symptoms that might be from B12 deficiency... tingling, fatigue, etc. He's vegan, his serum B12 tested high, but he's taking daily B12 supplements so his serum test might not be accurate. I recommended trying a B12 shot to see if it helped, but then I
I ran across someone posting on Reddit who has symptoms that might be from B12 deficiency... tingling, fatigue, etc. He's vegan, his serum B12 tested high, but he's taking daily B12 supplements so his serum test might not be accurate. I recommended trying a B12 shot to see if it helped, but then I
genesurf
in
Pernicious Anaemia Society
4 years ago
Private Intrinsic Factor Testing recommendations
Could anyone recommend a company for IFAB testing please? I've been looking all day, I can only find Medichecks.
Could anyone recommend a company for IFAB testing please? I've been looking all day, I can only find Medichecks.
Bunny12345678
in
Pernicious Anaemia Society
4 years ago
Stomach acid and PPI's
Hi I've, like everyone else with PA, have intrinsic auto antibodies, I've also gastric reflux, a hiatus hernia and chronic gastritis/duodenitis (had more than one gastroscopy done which showed it). I'm being treated with Lanzoprasole, on the orders of my gastroenterologist, for excess stomach acid
Hi I've, like everyone else with PA, have intrinsic auto antibodies, I've also gastric reflux, a hiatus hernia and chronic gastritis/duodenitis (had more than one gastroscopy done which showed it). I'm being treated with Lanzoprasole, on the orders of my gastroenterologist, for excess stomach acid
Dewy9698
in
Pernicious Anaemia Society
4 years ago
has anyone had the latest Anti-VEGF brolucizumab),?
Hi All I was wondering if any of the clinics are using the new drug as I believe it has a long duration between injections after the initial 3 loading ones of up up t 12 weeks. It has. Been passed by the FDA I believe. Wishing everyone well Ann
Hi All I was wondering if any of the clinics are using the new drug as I believe it has a long duration between injections after the initial 3 loading ones of up up t 12 weeks. It has. Been passed by the FDA I believe. Wishing everyone well Ann
Annsandra13
in
Macular Society
4 years ago
Too much b12
Hi All I am a vegetarian/vegan and became b12 deficient around 7 years ago which, in my opinion, was caused by lack of b12 in my diet and my doctor putting me on omaprezole. I have received injections up until April 8 when my surgery cancelled injections and put me on 50 ml tablets twice daily. The only
Hi All I am a vegetarian/vegan and became b12 deficient around 7 years ago which, in my opinion, was caused by lack of b12 in my diet and my doctor putting me on omaprezole. I have received injections up until April 8 when my surgery cancelled injections and put me on 50 ml tablets twice daily. The only
Alfabeta
in
Pernicious Anaemia Society
4 years ago
Hands getting worse
Hi, I’m still not diagnosed for sure but am having problems with hands on & off now for weeks. Bad day today, knuckles throbbing & tingling, wrists hurt. All joints in hands feel like seizing up, body stiff as well after rest. Does this sound like RA? Rheumatoid Factor 55, ultrasound, bloods normal.
Hi, I’m still not diagnosed for sure but am having problems with hands on & off now for weeks. Bad day today, knuckles throbbing & tingling, wrists hurt. All joints in hands feel like seizing up, body stiff as well after rest. Does this sound like RA? Rheumatoid Factor 55, ultrasound, bloods normal.
Sunnyseas
in
NRAS
4 years ago
Positive intrinsic factor
Hi everyone, I’m a newbie here! The doctor have confirmed my intrinsic factor is positive and therefore, I will need b12 injections for the rest of my life. This is not a complete shock, but I was wondering if so could do anything else to ease my symptoms, or recommend anything that will be useful
Hi everyone, I’m a newbie here! The doctor have confirmed my intrinsic factor is positive and therefore, I will need b12 injections for the rest of my life. This is not a complete shock, but I was wondering if so could do anything else to ease my symptoms, or recommend anything that will be useful
Iheart_TS
in
Pernicious Anaemia Society
4 years ago
Does PA get worse in time?
Hi Folks Just a question of interest really. I have autoimmune thyroid disease (underactive). Back in summer 2018 I had borderline low active b12 (34 range 25.1-165) and symptoms, but tested negative for intrinsic factor antibodies (I know this is a test with a high possibility of a false negative).
Hi Folks Just a question of interest really. I have autoimmune thyroid disease (underactive). Back in summer 2018 I had borderline low active b12 (34 range 25.1-165) and symptoms, but tested negative for intrinsic factor antibodies (I know this is a test with a high possibility of a false negative).
Laundretta
in
Pernicious Anaemia Society
4 years ago
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