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Around 2017 the debilitating hypo symptoms started up. LDL cholesterol was flagged high and my morning blood fasting glucose started to rise by ten points (still within range), while terribly hyper/hypoglycemic all day. Before 2017 I recall living and functioning normally but looking back now I remember
Around 2017 the debilitating hypo symptoms started up. LDL cholesterol was flagged high and my morning blood fasting glucose started to rise by ten points (still within range), while terribly hyper/hypoglycemic all day. Before 2017 I recall living and functioning normally but looking back now I remember
jrbarnes
in
Thyroid UK
4 years ago
Stopped injections due to covid .. are these results okay?
Hi, First post here. Was diagnosed with PA 2 years ago (28 year old male at the time) had loading doses and then further injections every 10 weeks. This was stopped due to covid then said i don't even have PA so won't restart them even though im getting a lot of symptoms back e.g tingling in hands,
Hi, First post here. Was diagnosed with PA 2 years ago (28 year old male at the time) had loading doses and then further injections every 10 weeks. This was stopped due to covid then said i don't even have PA so won't restart them even though im getting a lot of symptoms back e.g tingling in hands,
Rich2489
in
Pernicious Anaemia Society
4 years ago
FERRITEN b12 h pylori
So went b12 low I June thus year 124 level was nauseates first symtom and mild ear hiss Had loading doses 2 weeks in June continued 1 month Felt worse Got worse Folate was also low was given folic avid tablets Felt even more worse Heard you need b12 and folate together Question I still got worse
So went b12 low I June thus year 124 level was nauseates first symtom and mild ear hiss Had loading doses 2 weeks in June continued 1 month Felt worse Got worse Folate was also low was given folic avid tablets Felt even more worse Heard you need b12 and folate together Question I still got worse
Milley2
in
Pernicious Anaemia Society
4 years ago
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HORRIBLE severe muscle pain, whole body, doctor says everything ok? What is this? Hurts to walk, sit, stand?
Hi, I am in a lot of pain. All my muscles are very tight and stiff. ROCK HARD. My arms, shoulders. legs, butt, back, neck......there is no part on my body that isn't rock hard tight. I had someone touch my upper arm lightly, they were shocked how rock hard my arm was. It hurts to bend, sit, stand, walk
Hi, I am in a lot of pain. All my muscles are very tight and stiff. ROCK HARD. My arms, shoulders. legs, butt, back, neck......there is no part on my body that isn't rock hard tight. I had someone touch my upper arm lightly, they were shocked how rock hard my arm was. It hurts to bend, sit, stand, walk
BlueStars01
in
Thyroid UK
4 years ago
Pain all over body
Hello everyone. I was diagnosed with RA back in 2014. Rheumatoid factor 94. Anticccp 120. It effected my left lung mainly (bronchiectasis). A few months ago I started feeling pain at the soles of my feet when waking up. Now my wrists, feet and right elbow hurt. My right hands pinky finger was swollen
Hello everyone. I was diagnosed with RA back in 2014. Rheumatoid factor 94. Anticccp 120. It effected my left lung mainly (bronchiectasis). A few months ago I started feeling pain at the soles of my feet when waking up. Now my wrists, feet and right elbow hurt. My right hands pinky finger was swollen
ks1966
in
NRAS
4 years ago
How do you test for b12 absorption?
How can I test my b12 absorption? I had my b12 tested a few months ago and it looked normal, but I have Hashimoto's and also tingling hands, dizziness, eye twitching, and gut issues -- all of which correlate to low b12. So I'm wondering if I'm maybe just not absorbing it. I've read that this can happen
How can I test my b12 absorption? I had my b12 tested a few months ago and it looked normal, but I have Hashimoto's and also tingling hands, dizziness, eye twitching, and gut issues -- all of which correlate to low b12. So I'm wondering if I'm maybe just not absorbing it. I've read that this can happen
Gophe
in
Thyroid UK
4 years ago
Newbie
Hi I'm new to this forum just had some blood test back serum c reactive protein levels 10mg/l (00-10) rheumatoid factor 14iu/ml (0.0-14) can anyone tell me what this means
Hi I'm new to this forum just had some blood test back serum c reactive protein levels 10mg/l (00-10) rheumatoid factor 14iu/ml (0.0-14) can anyone tell me what this means
Oldbar
in
Arthritis Action
4 years ago
GP refuses to prescribe Hydroxocobalamin as B12 is within "Therapeutic levels"
Hi Everyone :) I have been diagnosed with Pernicious Anaemia since 2013 and have injections at my GP surgery every 10 weeks. I am due another injection in around 2 weeks time. I had a telephone appointment with a Nurse Practitioner yesterday to get my hydroxocobalamin prescription, who insisted on more
Hi Everyone :) I have been diagnosed with Pernicious Anaemia since 2013 and have injections at my GP surgery every 10 weeks. I am due another injection in around 2 weeks time. I had a telephone appointment with a Nurse Practitioner yesterday to get my hydroxocobalamin prescription, who insisted on more
sarahlouiseee
in
Pernicious Anaemia Society
4 years ago
Lack of Intrinsic Factor
So after a wait of 2 & a half yrs I finally got my marker test, along with my regular thyroid, cholesterol & general tests. I’ve been told Ive lack of intrinsic factor and i’m to have 3monthly B12 injections for life. I previously had a course of 6 injections in February this year, and the same 2yrs
So after a wait of 2 & a half yrs I finally got my marker test, along with my regular thyroid, cholesterol & general tests. I’ve been told Ive lack of intrinsic factor and i’m to have 3monthly B12 injections for life. I previously had a course of 6 injections in February this year, and the same 2yrs
MrsSAcky
in
Pernicious Anaemia Society
4 years ago
Post-treatment lab results -- interpretation help appreciated!
Hi, everyone! I'm hoping those of you who have more experience appraising lab results can help me here, since I still have two weeks before I can go to the hematologist to have these explained to me. I have iron deficiency anemia (formally diagnosed) and, until recently (?), what I assumed to be pernicious
Hi, everyone! I'm hoping those of you who have more experience appraising lab results can help me here, since I still have two weeks before I can go to the hematologist to have these explained to me. I have iron deficiency anemia (formally diagnosed) and, until recently (?), what I assumed to be pernicious
still_elsewhere
in
Pernicious Anaemia Society
4 years ago
Tests to prove B12 injection need to my doctor: Schillings, Active B12 MMA (are they the same?)
I’m asking because I’ve convinced her to prescribe injections for once a week, but am always concerned that my extra supply from Germany might run out. I’ve never had the Schilling’s Test or Intrinsic Factor (are they different?) Nor have I had an MMA ( which I would assume would be normal now) My
I’m asking because I’ve convinced her to prescribe injections for once a week, but am always concerned that my extra supply from Germany might run out. I’ve never had the Schilling’s Test or Intrinsic Factor (are they different?) Nor have I had an MMA ( which I would assume would be normal now) My
KEFNB
in
Pernicious Anaemia Society
4 years ago
Blood results
Well, I have finally recieved my blood results (with reference ranges) from the nurse. Intrinsic Factor - negative. Parietal Cell - negative. Serum B12 was way over range 2000 (180-900) as expected due to B12 injections. I was expecting a fight with my GP about withdrawing my B12 injections. Strange
Well, I have finally recieved my blood results (with reference ranges) from the nurse. Intrinsic Factor - negative. Parietal Cell - negative. Serum B12 was way over range 2000 (180-900) as expected due to B12 injections. I was expecting a fight with my GP about withdrawing my B12 injections. Strange
Wellington1
in
Pernicious Anaemia Society
4 years ago
New, scared and need some advice please
Hello, I am new to this forum but not RA. I was diagnosed in 2016 showing positive for the rheumatoid factor in my blood test. I was treated with hydroxychloroquine but not for long. I think it was stopped because my symptoms went away. Anyway 4 years on and I’m really struggling. I developed a hive
Hello, I am new to this forum but not RA. I was diagnosed in 2016 showing positive for the rheumatoid factor in my blood test. I was treated with hydroxychloroquine but not for long. I think it was stopped because my symptoms went away. Anyway 4 years on and I’m really struggling. I developed a hive
Hazel2020
in
NRAS
4 years ago
Receiving monthly Avastin injections now 5 days past due and I notice a decrease in vision
Being treated for CNV. Somehow, I was given a 5 week follow up form my next injection so instead of receiving my scheduled 4 week injection last week, I will get it this week. My vision was getting better and I was able to read things I couldn't read before. Yesterday my vision wasn't nearly as good
Being treated for CNV. Somehow, I was given a 5 week follow up form my next injection so instead of receiving my scheduled 4 week injection last week, I will get it this week. My vision was getting better and I was able to read things I couldn't read before. Yesterday my vision wasn't nearly as good
Edman777
in
Macular Society
4 years ago
First Rheumy appointment (since PMR diagnosis by GP) totally disappointing! Sorry no question just bringing myself back to reality!
Sooooo.... Long story short after a telehealth visit- according to the rheumatologist I was too young in March 2020 to be diagnosed at 51 years old with PMR. Really! Was I expecting something different? I lived in the hope that maybe my case would have a different outcome to so many others diagnosed
Sooooo.... Long story short after a telehealth visit- according to the rheumatologist I was too young in March 2020 to be diagnosed at 51 years old with PMR. Really! Was I expecting something different? I lived in the hope that maybe my case would have a different outcome to so many others diagnosed
Surami2020
in
PMRGCAuk
4 years ago
FERRITEN iron
FERRITEN level 39 Gp says in range I went b12 defiency in March this year had loading doses etc and folic to raise levels I eat meat etc and good food Intrinsic factor was normal It’s now sept still symptomatic mainly ear hiss and humming which is vile I requested h pylori test it was positive ?
FERRITEN level 39 Gp says in range I went b12 defiency in March this year had loading doses etc and folic to raise levels I eat meat etc and good food Intrinsic factor was normal It’s now sept still symptomatic mainly ear hiss and humming which is vile I requested h pylori test it was positive ?
Milley2
in
Pernicious Anaemia Society
4 years ago
Reference for not testing once b12 injections started? Threatening to stop injections due to high b12 levels in blood test.
Hiya I have a call booked with the practice nurse who wants to stop my b12 injections as a recent blood test shows levels that are 'too high'. Can anyone point me to NICE guidelines or smilar that state that once b12 injections have commenced, b12 levels should not be checked? I am diagnosed with pernicious
Hiya I have a call booked with the practice nurse who wants to stop my b12 injections as a recent blood test shows levels that are 'too high'. Can anyone point me to NICE guidelines or smilar that state that once b12 injections have commenced, b12 levels should not be checked? I am diagnosed with pernicious
TFH1
in
Pernicious Anaemia Society
4 years ago
No more injections for 3 months
hello, Just wanted to get the thoughts of forum members on this... My b13 levels have gone from undectectable to over 2000 since having 6 loading injections of hydro. I've been tested for the intrinsic factor and should get the results by next week. My GP doesn't want to give me any more injections for
hello, Just wanted to get the thoughts of forum members on this... My b13 levels have gone from undectectable to over 2000 since having 6 loading injections of hydro. I've been tested for the intrinsic factor and should get the results by next week. My GP doesn't want to give me any more injections for
katamarang
in
Pernicious Anaemia Society
4 years ago
Bloods and medication ordered by Oral Medicine Consultant ...refused by GP.
Has anyone experienced this at all? Refusal to prescribe and do bloods? I have been waiting to see an oral medicine consultant since January. Obviously, due to the dreaded, it was, like many appointments, cancelled and put on hold. Thankfully, I have not had to wait too long since easing of lockdown
Has anyone experienced this at all? Refusal to prescribe and do bloods? I have been waiting to see an oral medicine consultant since January. Obviously, due to the dreaded, it was, like many appointments, cancelled and put on hold. Thankfully, I have not had to wait too long since easing of lockdown
Minnskimoo
in
LUPUS UK
4 years ago
Pernicious Anemia with worsening neuropathy. I'm new here.
I was diagnosed by my physician in late February 2020 of pernicious anemia after a follow-up visit to my physician from an emergency room visit approximately 1 week prior. I will try to tell my story without being too lengthy, so here goes. Approximately 3 years ago I began having very brief episodes
I was diagnosed by my physician in late February 2020 of pernicious anemia after a follow-up visit to my physician from an emergency room visit approximately 1 week prior. I will try to tell my story without being too lengthy, so here goes. Approximately 3 years ago I began having very brief episodes
jimmel196
in
Pernicious Anaemia Society
4 years ago
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