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Should I ask for PA test?
I’m not sure what to do. In 2016 I had low b12 reading and doc advised loading doses. I have recently had gastro issues and had an endoscopy which looked normal apart from slightly lax valve. I was diagnosed with Graves in 2003 treated with RAI in 2005. I’m worried about PA as Endocrinologist wrote
I’m not sure what to do. In 2016 I had low b12 reading and doc advised loading doses. I have recently had gastro issues and had an endoscopy which looked normal apart from slightly lax valve. I was diagnosed with Graves in 2003 treated with RAI in 2005. I’m worried about PA as Endocrinologist wrote
Sunnydevon
in
Pernicious Anaemia Society
5 years ago
What causes my b12 deficiency?
Hi everyone, long story short, since my last post I had an appointment with my Doctor scheduled anyway as it was for a review of the prescriptions I have in order for him to renew them. He was actually keen to discuss it all with me and so I got to ask his opinion on what is causing my deficiency. I
Hi everyone, long story short, since my last post I had an appointment with my Doctor scheduled anyway as it was for a review of the prescriptions I have in order for him to renew them. He was actually keen to discuss it all with me and so I got to ask his opinion on what is causing my deficiency. I
Milliemaria42
in
Pernicious Anaemia Society
5 years ago
Been advised to get tested for intrinsic factor antibodies
Hi, I’m new to this site, I was diagnosed with Hashimotos Oct last year and have been trying to get my dose correct however I still have symptoms:- Spacey balance feeling A weird temperature feeling mainly down my arms (it’s not hot or cold) but sort of tingly but it sometimes makes me feel drained Ringing
Hi, I’m new to this site, I was diagnosed with Hashimotos Oct last year and have been trying to get my dose correct however I still have symptoms:- Spacey balance feeling A weird temperature feeling mainly down my arms (it’s not hot or cold) but sort of tingly but it sometimes makes me feel drained Ringing
jamjar67
in
Pernicious Anaemia Society
5 years ago
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Can someone help me understand my results?
I have been reading posts for the past year trying to get my head around the wealth of info without much success. To give you some context, I failed to pass the prick test when I went to donate blood in Feb 2018. Blood service wanted me to contact GP as it wasn’t the first time they had refused my blood
I have been reading posts for the past year trying to get my head around the wealth of info without much success. To give you some context, I failed to pass the prick test when I went to donate blood in Feb 2018. Blood service wanted me to contact GP as it wasn’t the first time they had refused my blood
Mrsell
in
Pernicious Anaemia Society
5 years ago
Are these symptoms of thyroid conditions?
Good afternoon, Sorry to bother you all, was looking for some advise, I have come from the PAS community. Wondered if these symptoms could be thyroid symptoms. I am under investigation at present. Shortness of breath on exertion (stairs, washing etc) Increased heart rate on exertion up to 125bpm
Good afternoon, Sorry to bother you all, was looking for some advise, I have come from the PAS community. Wondered if these symptoms could be thyroid symptoms. I am under investigation at present. Shortness of breath on exertion (stairs, washing etc) Increased heart rate on exertion up to 125bpm
Yoshi12
in
Thyroid UK
5 years ago
haematologist appt update : for increase in B12 injections
Result 😀 After feeling v tired , foggy thinking, depressed etc & being on 1 x 3 monthly shots from being diagnosed with PA last year. I asked my GP to increase , she did other tests thyroid & hypolori etc in January which came back okay & referred to haematology. My appt was yesterday and he has agreed
Result 😀 After feeling v tired , foggy thinking, depressed etc & being on 1 x 3 monthly shots from being diagnosed with PA last year. I asked my GP to increase , she did other tests thyroid & hypolori etc in January which came back okay & referred to haematology. My appt was yesterday and he has agreed
Vitb
in
Pernicious Anaemia Society
5 years ago
Intrinsic factor
I am supplementing 5mg of methyl b12 sublingual daily. Will this affect the results if an intrinsic factor test? I decided to supplement myself after having low normal b12 238. Since supplementing the numbness and tingling has improved greatly. However I am still very off balance when walking. Any advice
I am supplementing 5mg of methyl b12 sublingual daily. Will this affect the results if an intrinsic factor test? I decided to supplement myself after having low normal b12 238. Since supplementing the numbness and tingling has improved greatly. However I am still very off balance when walking. Any advice
Awil
in
Pernicious Anaemia Society
5 years ago
Do you need folate/folic acid with injections?
Should injections be accompanied with a folate/folic acid supplement, there seem to be many differing opinions out there.
Should injections be accompanied with a folate/folic acid supplement, there seem to be many differing opinions out there.
deepocean
in
Pernicious Anaemia Society
5 years ago
Reliable PA test
Is there a test for P A that is completely reliable? I mentioned to doctor that I’d read intrinsic factor test could be unreliable and she got irritated with me and said what’s the point of doing it if I don’t trust results! Just want to know for sure.
Is there a test for P A that is completely reliable? I mentioned to doctor that I’d read intrinsic factor test could be unreliable and she got irritated with me and said what’s the point of doing it if I don’t trust results! Just want to know for sure.
Sunnydevon
in
Pernicious Anaemia Society
5 years ago
New here and desperate for advice
I'm new here and felling lost. B12 at 165 but GP won't treat as I'm vegetarian (eat LOADS of eggs + other dairy and Marmite!). Up to 2yrs ago, was receiving injections but these stopped when I had a blood test that showed a higher level of B12 after months of talking iron supplements for plain old anemia
I'm new here and felling lost. B12 at 165 but GP won't treat as I'm vegetarian (eat LOADS of eggs + other dairy and Marmite!). Up to 2yrs ago, was receiving injections but these stopped when I had a blood test that showed a higher level of B12 after months of talking iron supplements for plain old anemia
Ronnocs
in
Pernicious Anaemia Society
5 years ago
Physical symptoms of depression?
Hello everyone. I’d really appreciate if you would take the time to read my story. I wonder if anyone has been through the same and if you’ve learnt something after this (and if so please do tell). I’m a 21 year old male. About 6 years ago I remember being bothered by strange symptoms. I would wake
Hello everyone. I’d really appreciate if you would take the time to read my story. I wonder if anyone has been through the same and if you’ve learnt something after this (and if so please do tell). I’m a 21 year old male. About 6 years ago I remember being bothered by strange symptoms. I would wake
WK1010
in
Anxiety and Depression Support
5 years ago
These are symptoms of...???
Hello everyone. I’d really appreciate if you would take the time to read my story. I wonder if anyone has been through the same and if you’ve learnt something after this (and if so please do tell). I’m a 21 year old male. About 6 years ago I remember being bothered by strange symptoms. I would wake
Hello everyone. I’d really appreciate if you would take the time to read my story. I wonder if anyone has been through the same and if you’ve learnt something after this (and if so please do tell). I’m a 21 year old male. About 6 years ago I remember being bothered by strange symptoms. I would wake
WK1010
in
Fibromyalgia Action UK
5 years ago
Private blood test
Hi there, is there a reliable private blood test I can get to check for PA and AMG? Would it be intrinsic factor test? I saw Medichecks do one. Also would it effect results if my levels are ok at the moment( have been supplementing with a B12 spray. Blood results last April (1 year after loading injections
Hi there, is there a reliable private blood test I can get to check for PA and AMG? Would it be intrinsic factor test? I saw Medichecks do one. Also would it effect results if my levels are ok at the moment( have been supplementing with a B12 spray. Blood results last April (1 year after loading injections
Sunnydevon
in
Pernicious Anaemia Society
5 years ago
Myopic CNV Success Stories?
Hi all, I am new here and seeking some support & inspiration. I am a high myope (-10 &-12) and nearly 3 years ago, aged 41, was diagnosed with cnv in the left eye. This was treated with 2 injections of Lucentis, resolved well and remains stable. Now, aged 44, I have developed cnv in the right eye, which
Hi all, I am new here and seeking some support & inspiration. I am a high myope (-10 &-12) and nearly 3 years ago, aged 41, was diagnosed with cnv in the left eye. This was treated with 2 injections of Lucentis, resolved well and remains stable. Now, aged 44, I have developed cnv in the right eye, which
ukmyope
in
Macular Society
5 years ago
Thyroid or Sjogrens?
Just wondering if anybody is able to shed any light on this mystery autoimmune condition I am experiencing! I have been suffering from severely dry eyes now for around 5 years (I'm 30) and have previously been investigated for Sjogrens syndrome. I tested positive for ANA in 2014, however it was only
Just wondering if anybody is able to shed any light on this mystery autoimmune condition I am experiencing! I have been suffering from severely dry eyes now for around 5 years (I'm 30) and have previously been investigated for Sjogrens syndrome. I tested positive for ANA in 2014, however it was only
jen7730
in
Thyroid UK
5 years ago
Pernicious anaemia diagnosis
I have low ferritin, low folate, low hb, low b12, positive partial antibody screen but negative intrinsic factor screen. GP says it is not pernicious anaemia hb fell to 6.1 is now 9.1 after blood transfusion in hospital, was also septic ventilated ITU 10 days. I have read that it can be either positive
I have low ferritin, low folate, low hb, low b12, positive partial antibody screen but negative intrinsic factor screen. GP says it is not pernicious anaemia hb fell to 6.1 is now 9.1 after blood transfusion in hospital, was also septic ventilated ITU 10 days. I have read that it can be either positive
Ferrett1
in
Pernicious Anaemia Society
5 years ago
Unclear diagnosis
Hi everyone My doctor told me I’m low in B12 (my level was 114) and I’ve just finished the 2 week course of 6 shots. I’ve also had a second blood test to test for intrinsic factor antibodies and parietal cell antibodies but my nurse was less than clear as to what this means but she did say it’s not diet
Hi everyone My doctor told me I’m low in B12 (my level was 114) and I’ve just finished the 2 week course of 6 shots. I’ve also had a second blood test to test for intrinsic factor antibodies and parietal cell antibodies but my nurse was less than clear as to what this means but she did say it’s not diet
Hidden
in
Pernicious Anaemia Society
5 years ago
Can you have PA if Haemoglobin is ok?
Just taken my daughter to gp (different one in the surgery) to discuss test results and what to do next. Coeliac negative, intrinsic factor negative. Other gp had ok’d loading jabs which she had in December as b12 was 166, ferritin 14 and folate 4. McV and MCH at top of range. Also put on iron tablets
Just taken my daughter to gp (different one in the surgery) to discuss test results and what to do next. Coeliac negative, intrinsic factor negative. Other gp had ok’d loading jabs which she had in December as b12 was 166, ferritin 14 and folate 4. McV and MCH at top of range. Also put on iron tablets
Vicky2822
in
Pernicious Anaemia Society
5 years ago
Thoughts on Intrinsic Factor supplements
I have seen labs like Metagenics sell a combo vitamin of B12 and intrinsic factor. I think the IF is derived from pigs. Any research if this is effective?
I have seen labs like Metagenics sell a combo vitamin of B12 and intrinsic factor. I think the IF is derived from pigs. Any research if this is effective?
kclusa
in
Pernicious Anaemia Society
5 years ago
Methionine Restriction.
New U.S. cell study below [1]. Studies show that vegan populations have a higher occurrence of various deficiencies. It's a diet that requires a certain amount of education & discipline to get right. But this also makes it an attractive diet for selective nutrient restriction. Methionine is an essential
New U.S. cell study below [1]. Studies show that vegan populations have a higher occurrence of various deficiencies. It's a diet that requires a certain amount of education & discipline to get right. But this also makes it an attractive diet for selective nutrient restriction. Methionine is an essential
pjoshea13
in
Advanced Prostate Cancer
5 years ago
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