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help please need some information
had a phone call from doc not my own doc informing me that no injections will be give i have autoimmune pernicious anemia plus few other heath problems .told me it not life threatening as i got told 20 y when. i got told that i can store b12 up to a year tried to tell him i do not have the intrinsic
had a phone call from doc not my own doc informing me that no injections will be give i have autoimmune pernicious anemia plus few other heath problems .told me it not life threatening as i got told 20 y when. i got told that i can store b12 up to a year tried to tell him i do not have the intrinsic
ayrshirelass13
in
Pernicious Anaemia Society
4 years ago
Issues with Methyl B12?
After a lot of physical and mental health (anxiety, panic) issues over the years I started to get my b12 checked monthly with my usual bloodwork. First one came in at 325 with sporadic sublingual use of cyano 2500 mcg. I stopped the supplement and ate heavily carnivore for five weeks and next test was
After a lot of physical and mental health (anxiety, panic) issues over the years I started to get my b12 checked monthly with my usual bloodwork. First one came in at 325 with sporadic sublingual use of cyano 2500 mcg. I stopped the supplement and ate heavily carnivore for five weeks and next test was
mustang1982
in
Pernicious Anaemia Society
4 years ago
New to B12 deficiency - what next?
Hi, I’m relatively new to b12 deficiency. I’m a bit stuck with what to do next and wondered if anyone has any suggestions. I am a 29 year old woman and I first noticed some pins and needles in my arms in Nov last year but it quickly went away. Then just over 2 months ago pins and needles started in both
Hi, I’m relatively new to b12 deficiency. I’m a bit stuck with what to do next and wondered if anyone has any suggestions. I am a 29 year old woman and I first noticed some pins and needles in my arms in Nov last year but it quickly went away. Then just over 2 months ago pins and needles started in both
Alpaca24
in
Pernicious Anaemia Society
4 years ago
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Help my elderly mum - please
Hi there, my mum (79) is B12 deficient (like me and my sister and auntie) and when tested had a really low count of 61 so they put her on loading doses and she has since had 2 lots of injections 3 months apart. She went back to the doctor as still feeling exhausted etc and asked for B12 more frequently
Hi there, my mum (79) is B12 deficient (like me and my sister and auntie) and when tested had a really low count of 61 so they put her on loading doses and she has since had 2 lots of injections 3 months apart. She went back to the doctor as still feeling exhausted etc and asked for B12 more frequently
Colb53
in
Pernicious Anaemia Society
4 years ago
Coronavirus: PAS Advice - PA Diagnosis Does Not Fulfil High Risk Criteria. Follow Current NHS and Government Guidance - Links Here
Hi All We are getting an increasing number of posts about coronavirus and questions about whether those with PA are in the high risk category. The PAS have issued the following advice... [i]As far as we know patients with the diagnosis PA do not fulfil the criteria of high risk. PA is an autoimmune disease
Hi All We are getting an increasing number of posts about coronavirus and questions about whether those with PA are in the high risk category. The PAS have issued the following advice... [i]As far as we know patients with the diagnosis PA do not fulfil the criteria of high risk. PA is an autoimmune disease
Foggyme
Administrator
in
Pernicious Anaemia Society
4 years ago
Intrinsic factor etc
Can anyone advise me.. My vit b12 is 145. Vit D 60 folate 8 Intrinsic factor negative. Mother had pernicious aenemia and developed dementia in her seventies. She didn't and nor did I realise that she needed to have regular shots by gp. I feel so guilty and wish I had known more about this awful disease
Can anyone advise me.. My vit b12 is 145. Vit D 60 folate 8 Intrinsic factor negative. Mother had pernicious aenemia and developed dementia in her seventies. She didn't and nor did I realise that she needed to have regular shots by gp. I feel so guilty and wish I had known more about this awful disease
Soundwell1
in
Pernicious Anaemia Society
4 years ago
P.A or not?? Confused
Hi my sisters daughter recently had bloods done folate was 3.9 (range 3.9-20) b12 was 368 but had been taking child multi vits, any way roll on 3 months no multi v but folate 400m daily, bloods redone folate slightly higher 7.9 b12 had gone up to 427 no iron or ferritin tests (doctor said no need) intrinsic
Hi my sisters daughter recently had bloods done folate was 3.9 (range 3.9-20) b12 was 368 but had been taking child multi vits, any way roll on 3 months no multi v but folate 400m daily, bloods redone folate slightly higher 7.9 b12 had gone up to 427 no iron or ferritin tests (doctor said no need) intrinsic
shortytlc
in
Pernicious Anaemia Society
4 years ago
Finally, I’ve been diagnosed!
I had my follow up appointment yesterday with the Rheumatologist he had previously requested tests for ANA, Rheumatoid factor, CCP antibodies, Serum immunoglobulins, urine for Bence Jones protein, ESR and CPR, vitamin D level , Myeloma screen, X-rays on both hands and wrists and ultrasound scans of the
I had my follow up appointment yesterday with the Rheumatologist he had previously requested tests for ANA, Rheumatoid factor, CCP antibodies, Serum immunoglobulins, urine for Bence Jones protein, ESR and CPR, vitamin D level , Myeloma screen, X-rays on both hands and wrists and ultrasound scans of the
Leepeelee
in
PMRGCAuk
4 years ago
Why Won't GP Refer to Endocrinology?
Can someone help with my readings please? March 2018 TSH 4.25 mU/L Free T4 12.6 pmol/L; April 2019 TSH 6.19 mU/L Free T4 11.3 pmol/L Thyr Perox ABs 10.5 U/mL. At this point a GP put me on thyroid medication. Aug 2019 TSH 1.13nU/L Free T4 14.8 pmol/L (thyr perox abs not checked). The levothyroxine
Can someone help with my readings please? March 2018 TSH 4.25 mU/L Free T4 12.6 pmol/L; April 2019 TSH 6.19 mU/L Free T4 11.3 pmol/L Thyr Perox ABs 10.5 U/mL. At this point a GP put me on thyroid medication. Aug 2019 TSH 1.13nU/L Free T4 14.8 pmol/L (thyr perox abs not checked). The levothyroxine
RabbitMum_1965
in
Thyroid UK
4 years ago
16 year old b12 135, negative intrinsic factor
My 16 year old son had been experiencing dizziness, headaches, low energy and tiredness for the last year. He was sent for blood tests where it was found his b12 level was 135. He was immediately sent for an intrinsic factor antibody test and afterwards began the loading dose of b12. We just found out
My 16 year old son had been experiencing dizziness, headaches, low energy and tiredness for the last year. He was sent for blood tests where it was found his b12 level was 135. He was immediately sent for an intrinsic factor antibody test and afterwards began the loading dose of b12. We just found out
Redazzy
in
Pernicious Anaemia Society
4 years ago
"Novel Approach to Therapeutic Targeting of" CRPC
New paper, below [1]. Intro: "[i]Development of resistance to anti-androgen therapy limits the usefulness of second-generation androgen receptor (AR) antagonists including enzalutamide and abiraterone in castration resistant prostate cancer (CRPC) patients.[/i]" {We know what they mean - both drugs target
New paper, below [1]. Intro: "[i]Development of resistance to anti-androgen therapy limits the usefulness of second-generation androgen receptor (AR) antagonists including enzalutamide and abiraterone in castration resistant prostate cancer (CRPC) patients.[/i]" {We know what they mean - both drugs target
pjoshea13
in
Advanced Prostate Cancer
4 years ago
Sero Negative Arthritis
Hi There I have recently been told I have arthritis and prescribed Methotrexate. I was just looking at the letter to my doctor and it looks like the diagnosis is "Sero Negative Arthritis" I am confused at this as my initial blood test showed Rheumatoid factor raised. I don't want to take the medication
Hi There I have recently been told I have arthritis and prescribed Methotrexate. I was just looking at the letter to my doctor and it looks like the diagnosis is "Sero Negative Arthritis" I am confused at this as my initial blood test showed Rheumatoid factor raised. I don't want to take the medication
DBT776
in
NRAS
4 years ago
FYI -Statement From the Macular Society FB page yesterday & Gov alert
"A reminder that anti-VEGF injections are urgent medical appointments. During lockdown patients should still attend their injections if they are well enough to do so and haven’t been told to self isolate #covid19"
"A reminder that anti-VEGF injections are urgent medical appointments. During lockdown patients should still attend their injections if they are well enough to do so and haven’t been told to self isolate #covid19"
Hidden
in
Macular Society
4 years ago
Had antibodies, now don’t
Hello. In the late 1990s I tested high positive for gastric parietal cell antibodies. Then again on three other occasions during recent years. However, last week I had a test for gastric parietal cell and intrinsic factor antibodies and to my surprise both came back negative. Is this usual? Can these
Hello. In the late 1990s I tested high positive for gastric parietal cell antibodies. Then again on three other occasions during recent years. However, last week I had a test for gastric parietal cell and intrinsic factor antibodies and to my surprise both came back negative. Is this usual? Can these
Popcorn3
in
Pernicious Anaemia Society
4 years ago
Fundic gland polyps
I have been diagnosed with B12 deficiency. I recently had an upper endoscopy in an effort to find out why. The gastroenterologist that did my procedure told me I had many small polyps, mostly in the fundus, but a few in the body of the stomach. Many biopsies were taken. The polyps are all fundic
I have been diagnosed with B12 deficiency. I recently had an upper endoscopy in an effort to find out why. The gastroenterologist that did my procedure told me I had many small polyps, mostly in the fundus, but a few in the body of the stomach. Many biopsies were taken. The polyps are all fundic
Hidden
in
Pernicious Anaemia Society
4 years ago
20 years old seeking advice on process of being diagnosed with RA
I'm 20 years old and currently in the process of being diagnosed with RA. It's been a distressing journey for me, the past year I have suffered from chronic back pain. I've seen many different medical professionals who have been unable to explain the cause. In the past few months I have started to suffer
I'm 20 years old and currently in the process of being diagnosed with RA. It's been a distressing journey for me, the past year I have suffered from chronic back pain. I've seen many different medical professionals who have been unable to explain the cause. In the past few months I have started to suffer
geb527
in
NRAS
4 years ago
Can you overdose on B12?
I wonder if you can help - my daughter is 17 and posted for the first time recently. I’m writing on her behalf as I’m her mum. She went to have her monthly b12 jab this afternoon (I wasn’t with her) and the nurse refused to do it as said her level was too high (now 1242). He checked with a gp and was
I wonder if you can help - my daughter is 17 and posted for the first time recently. I’m writing on her behalf as I’m her mum. She went to have her monthly b12 jab this afternoon (I wasn’t with her) and the nurse refused to do it as said her level was too high (now 1242). He checked with a gp and was
SAM2608
in
Pernicious Anaemia Society
4 years ago
Any connection with B12 deficiency and Bladder issues?
This forum seems such a helpful community, I have finally plucked up courage to post. I have some questions which I would be really grateful if someone might be able to help me with. My (22 year old) son was informed he had B12 deficiency around a year ago. He had been suffering with anxiety and fatigue
This forum seems such a helpful community, I have finally plucked up courage to post. I have some questions which I would be really grateful if someone might be able to help me with. My (22 year old) son was informed he had B12 deficiency around a year ago. He had been suffering with anxiety and fatigue
papaya259
in
Pernicious Anaemia Society
4 years ago
Difficult to swallow and pressure
Hi there I’m 17 years old and after going to my GP with suspected iron deficiency, my b12 levels came back as very low at 92. After pre loading doses and monthly injections since October my levels are now at 1434! Intrinsic Factor came back as normal and no further action required- Paediatrician has
Hi there I’m 17 years old and after going to my GP with suspected iron deficiency, my b12 levels came back as very low at 92. After pre loading doses and monthly injections since October my levels are now at 1434! Intrinsic Factor came back as normal and no further action required- Paediatrician has
SAM2608
in
Pernicious Anaemia Society
5 years ago
Hello, delurking, & thanks
Well, I've lurked here on this great forum long enough. Here's my long saga. Feel free to skim! I joined early summer 2018 soon after a June morning when I woke up, Googled "stiff fingers upon waking," and knew, somehow, that I had RA. My GP ran rheumatoid factor and anti-CCP tests along with CRP/SED
Well, I've lurked here on this great forum long enough. Here's my long saga. Feel free to skim! I joined early summer 2018 soon after a June morning when I woke up, Googled "stiff fingers upon waking," and knew, somehow, that I had RA. My GP ran rheumatoid factor and anti-CCP tests along with CRP/SED
lily2003
in
NRAS
5 years ago
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