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F 58 years old UK As per previous posts I have RLS at least 14 years every day. Am currently on Ropinirol and Gabapentin. I'm experiencing refractory RLS. I have been sleep deprived for years, 4 hours sleep or less means I don't dream, now I'm getting 5 hours I do dream and wake up exhausted! I have
F 58 years old UK As per previous posts I have RLS at least 14 years every day. Am currently on Ropinirol and Gabapentin. I'm experiencing refractory RLS. I have been sleep deprived for years, 4 hours sleep or less means I don't dream, now I'm getting 5 hours I do dream and wake up exhausted! I have
Louless9
in
Restless Legs Syndrome
4 months ago
Looking for advice
I had a TBI a few weeks ago, after a work related car accident. It resulted in a craniotomy and I was in an induced coma for a couple of days. I'm slowly beginning to feel better but I just don't feel like myself. I'm tired all the time and I get angry over nothing. Any support or advice would be
I had a TBI a few weeks ago, after a work related car accident. It resulted in a craniotomy and I was in an induced coma for a couple of days. I'm slowly beginning to feel better but I just don't feel like myself. I'm tired all the time and I get angry over nothing. Any support or advice would be
Armymanbooks
in
Headway
4 months ago
Mental barriers crossed
Week 7 done without injury this time - last time I was out of action for weeks due to injury following the first run of week 7 (take home from that experience was 'see the physio sooner rather than later'). I had planned to do the third run this week on the almost flat running track in the local park
Week 7 done without injury this time - last time I was out of action for weeks due to injury following the first run of week 7 (take home from that experience was 'see the physio sooner rather than later'). I had planned to do the third run this week on the almost flat running track in the local park
Sewandrunmore
in
Couch to 5K
4 months ago
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Ibs- C then sudden D. Any successes?
My issue is that I will be constipated for several days. Then at sudden moment, I have to go to the bathroom fast— like within a couple of minutes. And it will be total diarrhea for hours until I’m completely empty. Anyone else experience this? Any tips? it’s more pronounced when traveling. I’ll
My issue is that I will be constipated for several days. Then at sudden moment, I have to go to the bathroom fast— like within a couple of minutes. And it will be total diarrhea for hours until I’m completely empty. Anyone else experience this? Any tips? it’s more pronounced when traveling. I’ll
Senin
in
IBS Network
5 months ago
Bedranol
I have been prescribed Bedranol ( propranolol hydrochloride) for my anxiety. Just to use as and when I feel anxious . Has anyone else used this beta blocker ? I suffer from IBS - D and I’m worried it might cause diarrhoea. This would defeat the object of taking it completely!
I have been prescribed Bedranol ( propranolol hydrochloride) for my anxiety. Just to use as and when I feel anxious . Has anyone else used this beta blocker ? I suffer from IBS - D and I’m worried it might cause diarrhoea. This would defeat the object of taking it completely!
Jess54
in
IBS Network
5 months ago
Rapid Decline in Balance
Hello All, My Dad was diagnosed with PD about 2 years ago. Initially he did not have a definitive dx because they said he did not have the traditional PD gait. Now he has tremors in his hands and one leg, slower responses, flat affect and his balance is quickly declining and becoming the biggest concern
Hello All, My Dad was diagnosed with PD about 2 years ago. Initially he did not have a definitive dx because they said he did not have the traditional PD gait. Now he has tremors in his hands and one leg, slower responses, flat affect and his balance is quickly declining and becoming the biggest concern
Wings2Learning
in
Cure Parkinson's
5 months ago
Pregabalin and Linaclotide
There's a bit out there in the posts but it would be good to hear from anyone with experience of either of these. GP can't prescribe me linaclotide: blocked due to a record of IBD (i.e. Crohn's that I have/had -no physical signs, long story). So I get the P and a followup visit to see if that works and
There's a bit out there in the posts but it would be good to hear from anyone with experience of either of these. GP can't prescribe me linaclotide: blocked due to a record of IBD (i.e. Crohn's that I have/had -no physical signs, long story). So I get the P and a followup visit to see if that works and
XDjames
in
IBS Network
5 months ago
Crusted scabies
l have this illness and would like to know if anyone else either has it or has had it. I would like to know how they were cured. I have tried both permethrin cream and oral ivermectin. I would appreciate any reply as l am greatly in need of help. Are there any new drugs for it?
l have this illness and would like to know if anyone else either has it or has had it. I would like to know how they were cured. I have tried both permethrin cream and oral ivermectin. I would appreciate any reply as l am greatly in need of help. Are there any new drugs for it?
lastofthemohicans
in
IBS Network
5 months ago
dental abscess
does anyone else have a problem with IBSd flare up which also affects their gums? Sometimes my teeth and gums are a precursor to the D. I mange my diarrhoea with loperamide and a lactose free diet which is mostly good. I don’t think I suffer as severely as some of you do but it is a horrible condition
does anyone else have a problem with IBSd flare up which also affects their gums? Sometimes my teeth and gums are a precursor to the D. I mange my diarrhoea with loperamide and a lactose free diet which is mostly good. I don’t think I suffer as severely as some of you do but it is a horrible condition
Dahliaforever
in
IBS Network
5 months ago
I am an older gay man and I have a diagnosis of IBS. Am I alone ?
This is a sensitive issue for me. As a gay man, I am increasingly returning to the closet, reluctantly. This is because of years of IBS which has worsened in recent years. I do now have a diagnosis of IBSd, and my GP prescribes Loperamide for me, and Mebeverine. It is a potentially very embarrassing
This is a sensitive issue for me. As a gay man, I am increasingly returning to the closet, reluctantly. This is because of years of IBS which has worsened in recent years. I do now have a diagnosis of IBSd, and my GP prescribes Loperamide for me, and Mebeverine. It is a potentially very embarrassing
rubberpants3
in
Sensitive Issues for Men
5 months ago
Librax side effects
Hello to the IBS Community,
😊 I hope this message finds you well. I'm reaching out because I've been navigating stress-induced IBS, and it's been quite a journey. The symptoms—pain, nausea, bloating, inflammation—have been challenging, to say the least. I have been feeling pain daily for months
Hello to the IBS Community,
😊 I hope this message finds you well. I'm reaching out because I've been navigating stress-induced IBS, and it's been quite a journey. The symptoms—pain, nausea, bloating, inflammation—have been challenging, to say the least. I have been feeling pain daily for months
RuthBlossom
in
IBS Network
5 months ago
Some good news.
I have not posted about my progression for some time but wanted to share some good news. I had CyberKnife (basically SBRT) to remove a 2.2 cm adenocarcinoma from the right lung in Nov/Dec of 2020. It was found coincidentally when I had a PET for a spinal meningioma which was removed surgically in July
I have not posted about my progression for some time but wanted to share some good news. I had CyberKnife (basically SBRT) to remove a 2.2 cm adenocarcinoma from the right lung in Nov/Dec of 2020. It was found coincidentally when I had a PET for a spinal meningioma which was removed surgically in July
dunnellon
in
Lung Conditions Community Forum
5 months ago
Ovary discomfort a month after failed ET.
I’ve been experiencing some dull aches in my ovary over the last few days. Occasionally I get sharp pains in my ovary, although I have always had this now and again. It has been about a month since my ET which failed and I have had a bleed since. And I have already ovulated. I spoke to my clinic and
I’ve been experiencing some dull aches in my ovary over the last few days. Occasionally I get sharp pains in my ovary, although I have always had this now and again. It has been about a month since my ET which failed and I have had a bleed since. And I have already ovulated. I spoke to my clinic and
Saskiahope
in
Fertility Network UK
5 months ago
I don’t have fibromyalgia ( I am so sorry you do) but yes my blood pressure medicine Clonidine makes me shake (my insides shake) .it’s awful
check the side effects of your medicine ( all of them) perhaps your doctor can switch you to something else with less side effects 🙏I’ll pray for you. I can relate
check the side effects of your medicine ( all of them) perhaps your doctor can switch you to something else with less side effects 🙏I’ll pray for you. I can relate
Skylane2
in
Fibromyalgia Action UK
5 months ago
Phosphatidylserine
I thought I posted here about phosphatidylserine but can't find it now.... Does anyone know anything about taking this with APS? It is a phospholipid so as I have antibodies to phospholipids, shouldn't this mean that supplementing with phospholipids could help? Or would it hinder? The product helps
I thought I posted here about phosphatidylserine but can't find it now.... Does anyone know anything about taking this with APS? It is a phospholipid so as I have antibodies to phospholipids, shouldn't this mean that supplementing with phospholipids could help? Or would it hinder? The product helps
Coppernob
in
Hughes Syndrome APS Forum
5 months ago
wk7run3(revisited)
wow!! That wind!! I lay awake last night listening to it blow people’s recycling up and down the street and thought to myself “ I probably won’t run”. Then this morning the forecast said it was gonna die down so I ate breakfast and let that go down and then ran. I would have run yesterday but I do
wow!! That wind!! I lay awake last night listening to it blow people’s recycling up and down the street and thought to myself “ I probably won’t run”. Then this morning the forecast said it was gonna die down so I ate breakfast and let that go down and then ran. I would have run yesterday but I do
limberlou
Graduate
in
Couch to 5K
5 months ago
Advice re. Churchill hospital
Can anyone who attends the Churchill hospital in Oxford give me a little guidance please. I have been referred to haematology there and have an appointment in late May. I will have to drive to get there (a round trip of about 70 miles) and I understand that parking there is pretty hellish. So if anyone
Can anyone who attends the Churchill hospital in Oxford give me a little guidance please. I have been referred to haematology there and have an appointment in late May. I will have to drive to get there (a round trip of about 70 miles) and I understand that parking there is pretty hellish. So if anyone
friendofpiglet
in
MPN Voice
5 months ago
post right hemicolectomy functional bowel disorder
my son age 7 during storm Emma passed out and vomited continuously, we had to take him to the nearest accessible hospital with ice chains on the car , they just said it was viral. A scan the next day revealed intersusception so his bowel was blocked , he developed sepsis. He had a right hemicolectomy
my son age 7 during storm Emma passed out and vomited continuously, we had to take him to the nearest accessible hospital with ice chains on the car , they just said it was viral. A scan the next day revealed intersusception so his bowel was blocked , he developed sepsis. He had a right hemicolectomy
Rosaandpompom
in
ERIC
6 months ago
Colonoscopy v Colonography
Has anyone else been told they have a loopy bowel and it is not advisable to have a colonoscopy anymore. They recommended ct colonography, but i am worried about the amount of radiation this needs. Apparently 2yrs normal exposure in one go. Anyone else had this predicament?
Has anyone else been told they have a loopy bowel and it is not advisable to have a colonoscopy anymore. They recommended ct colonography, but i am worried about the amount of radiation this needs. Apparently 2yrs normal exposure in one go. Anyone else had this predicament?
casares8
in
IBS Network
6 months ago
wk6run3
I was trying to talk myself out of running yesterday, especially after losing an hour, then I figured if I was going to have Roast turkey and possibly Easter Egg then it made sense to burn some calories 😂. Both myself and my son had managed to sleep in till nearly 10 ( nearly 9 in old money) which
I was trying to talk myself out of running yesterday, especially after losing an hour, then I figured if I was going to have Roast turkey and possibly Easter Egg then it made sense to burn some calories 😂. Both myself and my son had managed to sleep in till nearly 10 ( nearly 9 in old money) which
limberlou
Graduate
in
Couch to 5K
6 months ago
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