post right hemicolectomy functional bowel disorder

[Rosaandpompom]

my son age 7 during storm Emma passed out and vomited continuously, we had to take him to the nearest accessible hospital with ice chains on the car , they just said it was viral. A scan the next day revealed intersusception so his bowel was blocked , he developed sepsis. He had a right hemicolectomy at Bristol children’s hospital that night which saved his life. Ever since he has had continual problems with incomplete evacuation, spending hours in the toilet , urgency ,constipation and feacal impaction which I’m told is not related to his bowel surgery . He has a paediatric gastroenterologist, dietician and bowel nurse yet his life has only got worse and worse. He is hardly ever in school or able to go out . At the moment he has been doing a disempaction which he seems to need every 3 months but after 11 days on 12 sachets and a stimulant he is still not clear. Today he had reflux for the first time. Anyone out there with a child who has had major bowel surgery and struggling with repeat feacal impaction? He also has repeat viral infections whenever he manages to go back to school. He is now nearly 13 and finding coping harder and harder.