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Face rash - anything besides the sun??
Hi all! Tossing this out there b/c I've become really frustrated with both my rheumy and my dermatologist. They are both really great but beyond saying "yeah, that's the rash" they are soooo not helpful. No matter how much sunscreen I put on (I do all over body and at least three layers on my face +
Hi all! Tossing this out there b/c I've become really frustrated with both my rheumy and my dermatologist. They are both really great but beyond saying "yeah, that's the rash" they are soooo not helpful. No matter how much sunscreen I put on (I do all over body and at least three layers on my face +
katidid
in
LUPUS UK
7 years ago
Groin pain flare = inflammatory arthritis?
I'm currently diagnosed with UCTD plus possible fibromyalgia. In the last six weeks I've had two episodes of a new 'crisis' - groin pain that I'm guessing is coming from the hip joint. Does this sound familiar to anyone? I have had mild pain in both hips (really the grease of my groin, on both sides
I'm currently diagnosed with UCTD plus possible fibromyalgia. In the last six weeks I've had two episodes of a new 'crisis' - groin pain that I'm guessing is coming from the hip joint. Does this sound familiar to anyone? I have had mild pain in both hips (really the grease of my groin, on both sides
LuckyJC
in
LUPUS UK
7 years ago
New to Humira - curious if others had similar experience?
Good morning, fellow warriors. I wish mine WAS a good morning, but not so much. I should start out by saying I DO plan to talk to my rheumy on Monday, but since it's the weekend and I have to wait for his input, I thought I'd seek some comfort here - if nothing else, knowing I'm not alone helps! Took
Good morning, fellow warriors. I wish mine WAS a good morning, but not so much. I should start out by saying I DO plan to talk to my rheumy on Monday, but since it's the weekend and I have to wait for his input, I thought I'd seek some comfort here - if nothing else, knowing I'm not alone helps! Took
gatodelsol
in
Cure Arthritis Community
7 years ago
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Finally I become of Imbruvica's family
My fifth day Imbruvica. What to expect and what to keep as a young patient ? Blood picture from today- chronic progressive ;) Still on corticosteroids 2*4 mg Medrol! I feel boringly normal...хахахахх Best regards CLL friends! Cervus_dama
My fifth day Imbruvica. What to expect and what to keep as a young patient ? Blood picture from today- chronic progressive ;) Still on corticosteroids 2*4 mg Medrol! I feel boringly normal...хахахахх Best regards CLL friends! Cervus_dama
Cervus_dama
in
CLL Support
7 years ago
RECURRING PMR SYMPTOMS OR ANOTHER CONDITION?
I began weekly depo-medrol injections for PMR on August 25, 2016, and have been tapering since November 15. Two weeks ago my daily dose dropped to an estimated 2.0 mg and I experienced 4 consecutive days with stiffness in my hands and mild-moderate shoulder pain. When I went back up to 2.5 mg, the symptoms
I began weekly depo-medrol injections for PMR on August 25, 2016, and have been tapering since November 15. Two weeks ago my daily dose dropped to an estimated 2.0 mg and I experienced 4 consecutive days with stiffness in my hands and mild-moderate shoulder pain. When I went back up to 2.5 mg, the symptoms
Admiral06
in
PMRGCAuk
7 years ago
Just ended day 3 of Solumedrol
I hated to do it, but I've spent the last 3 days getting IV steroids from Home Health Care. The exacerbation hadn't gotten too bad yet, but it was spreading and the neuro wanted to nit it in the bud. The worst part of the steroids for me is the sleep disturbance. I've been up and down at night, sleeping
I hated to do it, but I've spent the last 3 days getting IV steroids from Home Health Care. The exacerbation hadn't gotten too bad yet, but it was spreading and the neuro wanted to nit it in the bud. The worst part of the steroids for me is the sleep disturbance. I've been up and down at night, sleeping
Iona60
in
My MSAA Community
7 years ago
Does Flu and Colds makes the platelet count drops to low level?
My child was confined 2 weeks ago and he received IvIg for 1 day and Solumedrol 870mg for 3 days and no medication at home.....after a week his platelet went up to 359k and after a week again his platelet went low to 29.6k without any petechiae, hematoma and bleeding. ( my son is a bleeder his bleeding
My child was confined 2 weeks ago and he received IvIg for 1 day and Solumedrol 870mg for 3 days and no medication at home.....after a week his platelet went up to 359k and after a week again his platelet went low to 29.6k without any petechiae, hematoma and bleeding. ( my son is a bleeder his bleeding
DavieSimon
in
ITP Support Association
7 years ago
Loss of sight scare
Hi Everyone, Hope all are well, coping, with these inflammatory conditions. I am just home from a NYC Hospital w an event that was truly frightening. And again it concerned doctors, claiming to be "experts" in GCA, and not knowing what the h--- they were doing. After 2 bouts of penicillin, I walked
Hi Everyone, Hope all are well, coping, with these inflammatory conditions. I am just home from a NYC Hospital w an event that was truly frightening. And again it concerned doctors, claiming to be "experts" in GCA, and not knowing what the h--- they were doing. After 2 bouts of penicillin, I walked
Whittlesey
in
PMRGCAuk
7 years ago
CT3M
I know members here have used the CT3M method successfully, and I'd love to hear about your experiences. I managed to wean myself off Medrol (prescribed for adrenal fatigue in late 2011) about a year ago. HC never worked for me as it metabolised too quickly. I was diagnosed with adrenal fatigue based
I know members here have used the CT3M method successfully, and I'd love to hear about your experiences. I managed to wean myself off Medrol (prescribed for adrenal fatigue in late 2011) about a year ago. HC never worked for me as it metabolised too quickly. I was diagnosed with adrenal fatigue based
Hidden
in
Thyroid UK
7 years ago
should cortisone always be combined with DHEA?
The Hertoghe doctors say you need to take DHEA with hydrocortisone or Medrol (unless you also suffer from PCOS). The reason is that DHEA will prevent cortisone from "eating up" too much tissue. Therefore, you are handed a prescription for DHEA along with your prescription for cortisone. Last year, my
The Hertoghe doctors say you need to take DHEA with hydrocortisone or Medrol (unless you also suffer from PCOS). The reason is that DHEA will prevent cortisone from "eating up" too much tissue. Therefore, you are handed a prescription for DHEA along with your prescription for cortisone. Last year, my
Hidden
in
Thyroid UK
7 years ago
synthetic corticosteroid
Solumedrol IV treatment- people are willing to use a synthetic corticosteroid when turmeric or frankincense oil or extreme high doses of Vitamin D3 can help, curious as to the why's?
Solumedrol IV treatment- people are willing to use a synthetic corticosteroid when turmeric or frankincense oil or extreme high doses of Vitamin D3 can help, curious as to the why's?
Fuzzman
in
My MSAA Community
7 years ago
Acupoints Massage Therapy For PPMS
For years I tried to reach out for PPMS patients like me. Since 1995, I was diagnosed with Fibromyalgia and IBS. In year 2000, I was confirmed with Spinal Cord MS. Injections and oral medications (except Elavil) did not slow down my progression. In 2011, I was in the hospital and came home in wheelchair
For years I tried to reach out for PPMS patients like me. Since 1995, I was diagnosed with Fibromyalgia and IBS. In year 2000, I was confirmed with Spinal Cord MS. Injections and oral medications (except Elavil) did not slow down my progression. In 2011, I was in the hospital and came home in wheelchair
yuehmei56
in
My MSAA Community
7 years ago
Solumedrol
I'm on to second of five Solumedrol iv treatment. I'm a paraplegic fighting to save my upper body. Right side ok but left is numb, tingling and plain dumb sometimes.
I'm on to second of five Solumedrol iv treatment. I'm a paraplegic fighting to save my upper body. Right side ok but left is numb, tingling and plain dumb sometimes.
karenmbloom
in
My MSAA Community
7 years ago
adrenal support after weaning off Medrol
I recently order this product after weaning off Medrol (4 mg daily) which I took for almost five years for adrenal fatigue: https://www.pureformulas.com/pure-adrenal-400-60-capsules-by-professional-formulas.html The reason I ordered this supplement was 1. I don't feel optimal yet (tend to feel tired
I recently order this product after weaning off Medrol (4 mg daily) which I took for almost five years for adrenal fatigue: https://www.pureformulas.com/pure-adrenal-400-60-capsules-by-professional-formulas.html The reason I ordered this supplement was 1. I don't feel optimal yet (tend to feel tired
Hidden
in
Thyroid UK
7 years ago
This will get the star for brainfog for sure.
If it wasn't true, it might even be funny. 😏 But when I share these things it helps me realize they are not as desperate as it feels. As you know, I've been on the steroids for about 14 mos. I take methylprednilosone which is not prednisone proper, but it is medrol, or solumedrol.... same kind of side
If it wasn't true, it might even be funny. 😏 But when I share these things it helps me realize they are not as desperate as it feels. As you know, I've been on the steroids for about 14 mos. I take methylprednilosone which is not prednisone proper, but it is medrol, or solumedrol.... same kind of side
Zacsmimi
in
PMRGCAuk
7 years ago
how to know if I'm estrogen dominant or deficient...?
This is not directly thyroid-related but I hope it's OK to post this question here anyway, hoping that someone will know more about this: I have been asking myself a lot of questions lately about estrogen deficiency vs dominance. The symptoms seems confusingly similar in many cases....five years ago,
This is not directly thyroid-related but I hope it's OK to post this question here anyway, hoping that someone will know more about this: I have been asking myself a lot of questions lately about estrogen deficiency vs dominance. The symptoms seems confusingly similar in many cases....five years ago,
Hidden
in
Thyroid UK
7 years ago
Prednisone and hair loss
I have been taking prednisone since last October . I started with 20mg per day and slowly tapered down to 7.5 . It does the job of masking pain symptoms and allows me to function well enough for now. However, my hair has been falling off like crazy and now I'm down to half maybe more of my normal hair
I have been taking prednisone since last October . I started with 20mg per day and slowly tapered down to 7.5 . It does the job of masking pain symptoms and allows me to function well enough for now. However, my hair has been falling off like crazy and now I'm down to half maybe more of my normal hair
Izabella81
in
NRAS
7 years ago
Length of relapse
I'm starting to get a little concerned about the relapse that I am currently having. Although I have seen slight improvement, and most of my energy has returned, I'm still not back to my "normal". It has been close to a month when my symptoms first started, and two weeks since I've been off solumedrol
I'm starting to get a little concerned about the relapse that I am currently having. Although I have seen slight improvement, and most of my energy has returned, I'm still not back to my "normal". It has been close to a month when my symptoms first started, and two weeks since I've been off solumedrol
Sadieschafer
in
My MSAA Community
7 years ago
Help....
Has anyone returned to normal walking after lots of weakness and numbness in both legs? I have had weakness and numbness/stiffness even after solumedrol. I'm afraid I may never return....😢
Has anyone returned to normal walking after lots of weakness and numbness in both legs? I have had weakness and numbness/stiffness even after solumedrol. I'm afraid I may never return....😢
Sadieschafer
in
My MSAA Community
7 years ago
hypertension - too much NDT or licorice root?
I have been on Adrenaplex for the past few months, after successfully (and finally) managing to wean myself of Medrol (put on it in late 2011 after being diagnosed with adrenal fatigue by Hertoghe doctor). Adrenaplex contains licorice root, and I know you are supposed to avoid that if you suffer from
I have been on Adrenaplex for the past few months, after successfully (and finally) managing to wean myself of Medrol (put on it in late 2011 after being diagnosed with adrenal fatigue by Hertoghe doctor). Adrenaplex contains licorice root, and I know you are supposed to avoid that if you suffer from
Hidden
in
Thyroid UK
7 years ago
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