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Factor X deficiency
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Assistance with Potential misdiagnosis.
Hi All, I was unsure where to turn and you guys are my last hope! In July 2020 I was diagnosed with MS ( Multiple Sclerosis ) due to having some numbness and tingling in legs and foot and cognitive problems ( forgetful and thinking issues ) and extreme fatigue. I then had an MRI which revealed lesions
Hi All, I was unsure where to turn and you guys are my last hope! In July 2020 I was diagnosed with MS ( Multiple Sclerosis ) due to having some numbness and tingling in legs and foot and cognitive problems ( forgetful and thinking issues ) and extreme fatigue. I then had an MRI which revealed lesions
smileysammi
in
Pernicious Anaemia Society
3 years ago
Surgical clips
I have just received a chest X-ray report which thankfully was clear. On it though after saying [i]Heart and mediastinal contours are normal[/i] it says [i]Surgical clips in the left lower zone. [/i]It then goes onto lungs etc. First I’ve heard of the clips and have no idea what left zone they are talking
I have just received a chest X-ray report which thankfully was clear. On it though after saying [i]Heart and mediastinal contours are normal[/i] it says [i]Surgical clips in the left lower zone. [/i]It then goes onto lungs etc. First I’ve heard of the clips and have no idea what left zone they are talking
Frances123
in
AF Association
3 years ago
Iron /Ferritin Level and Menopause
Hello Everyone...Quick question. Is it necessary to test your iron and ferritin if you no longer have a menstrual cycle? The GP who is filling in for the regular GP stated that since I no longer have a period, that I could not be anemic due to low iron/ferritin. This does not make sense to me , so
Hello Everyone...Quick question. Is it necessary to test your iron and ferritin if you no longer have a menstrual cycle? The GP who is filling in for the regular GP stated that since I no longer have a period, that I could not be anemic due to low iron/ferritin. This does not make sense to me , so
MightyMay
in
Thyroid UK
3 years ago
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Pneumonia
Diagnosed with cll 2013, had my first round of pneumonia October 2021, took antibiotics got over it. Shortly after that had appointment with oncologist we talked about the new pneumonia and fact I still felt wore out and WC was 213k it was time to start treatment. I wanted to keep working so we decided
Diagnosed with cll 2013, had my first round of pneumonia October 2021, took antibiotics got over it. Shortly after that had appointment with oncologist we talked about the new pneumonia and fact I still felt wore out and WC was 213k it was time to start treatment. I wanted to keep working so we decided
Tgw61
in
CLL Support
3 years ago
IFab or MMA
Hello I am trying to investigate low active b12 results (at the low end of the reference range). Am I better to organise a private iFab test or an MMA test? Medichecks suggested MMA but is iFab better? My mum didn’t get diagnosed with PA with low intrinsic factor until she was very severely disabled
Hello I am trying to investigate low active b12 results (at the low end of the reference range). Am I better to organise a private iFab test or an MMA test? Medichecks suggested MMA but is iFab better? My mum didn’t get diagnosed with PA with low intrinsic factor until she was very severely disabled
Sparklyjenson
in
Pernicious Anaemia Society
3 years ago
Health anxiety or something sinister
Hi. Looking back over the years, I have suffered with health anxiety from around 8 years old, my mum used to cry as she was terrified of dying of cancer and my dad thought he was a doctor in his former life so guess as a child I grew up being very aware of every ache and pain ! Sadly they both died of
Hi. Looking back over the years, I have suffered with health anxiety from around 8 years old, my mum used to cry as she was terrified of dying of cancer and my dad thought he was a doctor in his former life so guess as a child I grew up being very aware of every ache and pain ! Sadly they both died of
Georgie666
in
Anxiety Support
3 years ago
2nd visit to A&E
First visit Boxing Day as previous post, diagnosed with A&F discharged. Felt terrible all next week heartbeat all over the place, if this AF I can’t handle it, saw a GP not much help. New Year’s Day all over the place very low to high and back again, double beats, missed beats the lot. Back to A & E,
First visit Boxing Day as previous post, diagnosed with A&F discharged. Felt terrible all next week heartbeat all over the place, if this AF I can’t handle it, saw a GP not much help. New Year’s Day all over the place very low to high and back again, double beats, missed beats the lot. Back to A & E,
Sherbett
in
British Heart Foundation
3 years ago
Questions re B12 injections and long term use of prescribed folic acid
Have been advised by members in the thyroid community to ask this question of yourselves. I have been fighting for years with GP's re my Hashimoto's and my pernicious anaemia. I have been taking 5mg folic acid and have done for many years along with 3 monthly B12 injections. I continually ask for at
Have been advised by members in the thyroid community to ask this question of yourselves. I have been fighting for years with GP's re my Hashimoto's and my pernicious anaemia. I have been taking 5mg folic acid and have done for many years along with 3 monthly B12 injections. I continually ask for at
mill44
in
Pernicious Anaemia Society
3 years ago
High ferritin levels
Good evening one and all - and in advance I want to wish you all a happy new year, one that is healthier for us all. My serum ferritin level has gone up even further and I just wondered if the PMR/Pred etc has anything to do with it? I should add that I do have an abnormal inherited gene (a carrier
Good evening one and all - and in advance I want to wish you all a happy new year, one that is healthier for us all. My serum ferritin level has gone up even further and I just wondered if the PMR/Pred etc has anything to do with it? I should add that I do have an abnormal inherited gene (a carrier
Doraflora
in
PMRGCAuk
3 years ago
Is Inflammatory Arthritis RA?
Stupid question, been diagnosed for six years since 20 but it’s always been written as: Seronegative inflammatory arthritis. It was once written as RA and once as Oligoarthritis. Is there any difference. I am negative rheumatoid factor, anti-CCP and HLA B27. Three years ago my DSA28 score equates to
Stupid question, been diagnosed for six years since 20 but it’s always been written as: Seronegative inflammatory arthritis. It was once written as RA and once as Oligoarthritis. Is there any difference. I am negative rheumatoid factor, anti-CCP and HLA B27. Three years ago my DSA28 score equates to
gr95
in
NRAS
3 years ago
Low iron first time in years despite supps
Hello, I just had an iron panel done as it turned out my iron is 4% of range.... 55 (50-170)! Ferritin better at 30% range, but still not great. I used to take Floradix and my iron was over midrange on it, then took 60 mg Actiferol (ferric pyrophosphate) in powder from the pharmacy for couple of months
Hello, I just had an iron panel done as it turned out my iron is 4% of range.... 55 (50-170)! Ferritin better at 30% range, but still not great. I used to take Floradix and my iron was over midrange on it, then took 60 mg Actiferol (ferric pyrophosphate) in powder from the pharmacy for couple of months
Incoguto
in
Thyroid UK
3 years ago
What’s wrong with me
So I am at a loss. In April, I used a deodorant that made my armpit have a lymph node swell. went down, however the doctor suggested a mammogram in which it showed something and i had to have a biopsy. I then started developing night sweats, not drenching but just enough to freak me out damp my neck
So I am at a loss. In April, I used a deodorant that made my armpit have a lymph node swell. went down, however the doctor suggested a mammogram in which it showed something and i had to have a biopsy. I then started developing night sweats, not drenching but just enough to freak me out damp my neck
robinebc
in
Healthy Evidence
3 years ago
Muscular pain
I’m waiting for a CT scan on my aorta in April it’s currently 5cm .I had aorta valve replacement 6 years ago which went well .The last couple of weeks I’ve had a muscular type pain across my shoulders sometimes left hand of my neck and left side of rib cage under arm pit also left hand side of lower
I’m waiting for a CT scan on my aorta in April it’s currently 5cm .I had aorta valve replacement 6 years ago which went well .The last couple of weeks I’ve had a muscular type pain across my shoulders sometimes left hand of my neck and left side of rib cage under arm pit also left hand side of lower
Lincolnimp66
in
British Heart Foundation
3 years ago
Castor oil for loss of sense of smell (anosmia, hyposmia)
Had never heard of this use for castor oil before: https://www.healthline.com/health/how-to-regain-sense-of-smell-naturally#methods-to-try Came across this when reading up on castor oil which I have been using successfully to treat eyelid inflammation (blepharitis). I'm also going to try using it as
Had never heard of this use for castor oil before: https://www.healthline.com/health/how-to-regain-sense-of-smell-naturally#methods-to-try Came across this when reading up on castor oil which I have been using successfully to treat eyelid inflammation (blepharitis). I'm also going to try using it as
Rhyothemis
in
Cure Parkinson's
3 years ago
Iron Supplements for those very sensitive to gluten
Hi, I'm being prescribed iron supplement (ferrous sulphate). GP assures me it is gluten free but GPs and Pharmacists don't understand gluten in ingredients. The pharmacy is not answering their phone when I call to find out the brands they have so I can do my own check. Any pharmacy prescribed brands
Hi, I'm being prescribed iron supplement (ferrous sulphate). GP assures me it is gluten free but GPs and Pharmacists don't understand gluten in ingredients. The pharmacy is not answering their phone when I call to find out the brands they have so I can do my own check. Any pharmacy prescribed brands
Hidden
in
Gluten Free Guerrillas
3 years ago
Ectopic beats all day everyday and now sharp stabbing pain.
Hi everyone. Just wanted to see if anyone has experienced something similar… I’m 35 and have had palpitations since August but in the last week they’ve gotten horrific and they’re all day, everyday. I was fitted with a holter monitor on Monday and wore that for 24 hours, still waiting on results but
Hi everyone. Just wanted to see if anyone has experienced something similar… I’m 35 and have had palpitations since August but in the last week they’ve gotten horrific and they’re all day, everyday. I was fitted with a holter monitor on Monday and wore that for 24 hours, still waiting on results but
Callie_Angelica
in
Arrhythmia Alliance
3 years ago
Non-gut related symptoms - could it still be CD?
Hi All New here and just looking for some opinions on my situation. As some background, I’ve been struggling with joint pain since December last year. I went to the GP who did: – nerve test for Carpel Tunnel (normal) -referred to physio in case it’s tendonitis (it was mostly wrists and elbows at
Hi All New here and just looking for some opinions on my situation. As some background, I’ve been struggling with joint pain since December last year. I went to the GP who did: – nerve test for Carpel Tunnel (normal) -referred to physio in case it’s tendonitis (it was mostly wrists and elbows at
AtemiM
in
Gluten Free Guerrillas
3 years ago
Help with Blood Test Results Please
Hi there I was hoping to see if anyone could help me with my latest blood test results please: Active Vitamin B12 67 pmol/L (Range 25-108) Homocysteine 14.0 (range 3.7-13.9 umol/L) Methylmalonic acid 0.14 (Range 0.29 umol/L) Intrinsic Factor 0 (Range 0-6 U/mL) Vitamin D 37 (Range 76-250 nmol/L) Serum
Hi there I was hoping to see if anyone could help me with my latest blood test results please: Active Vitamin B12 67 pmol/L (Range 25-108) Homocysteine 14.0 (range 3.7-13.9 umol/L) Methylmalonic acid 0.14 (Range 0.29 umol/L) Intrinsic Factor 0 (Range 0-6 U/mL) Vitamin D 37 (Range 76-250 nmol/L) Serum
Mrss25
in
Pernicious Anaemia Society
3 years ago
Prognosis
Hello, I had pernicious anemia about two years ago and it was corrected with injections. Intrinsic factor test was negative. However, with the time I needed injections again. I read in the internet that pernicious anemia is caused by autoimmune gastritis and that this gastritis may lead to cancer. I
Hello, I had pernicious anemia about two years ago and it was corrected with injections. Intrinsic factor test was negative. However, with the time I needed injections again. I read in the internet that pernicious anemia is caused by autoimmune gastritis and that this gastritis may lead to cancer. I
LarissaGishar
in
Pernicious Anaemia Society
3 years ago
GPA relapse advice needed
Good Morning to you all. I was hoping someone who could advice me on GPA Replase. I was diagnosed back in April of this year spent over 2 weeks in hospital and treated with Rituximab and continue on steroids unable to tolerate Azathioprine so spent the summer reducing steroids down from 60 mg to 10mg
Good Morning to you all. I was hoping someone who could advice me on GPA Replase. I was diagnosed back in April of this year spent over 2 weeks in hospital and treated with Rituximab and continue on steroids unable to tolerate Azathioprine so spent the summer reducing steroids down from 60 mg to 10mg
Hidden
in
Vasculitis UK
3 years ago
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